Re: tip -- stress incontinence

November 17, 2009

Joyce- I didn't have stress incontinence until I was dx with pf...I wonder if there is a connection? For some reason I am coughing a lot more too and bringing up junk which I never did before. I coughed all thru the movie. I thought the people in the movie were going to kick me out. I also have problems with eating and coughing. I choke some times because I am eating and swallowing and suddenly cough.

I went to my doctor about the incontinence and she said that she didn't recommend those medications because the side effects were not good. She said to wear a Kotex and all I thought was ..here I have finally been liberated from having a period and I'm back to wearing a Kotex..not just a week but every day! Joyce Rudy AZ birds

Joyce,I get that when I cough really hard. I thought I was the only one. So happy I'm not, but sorry you have it too.Kathy

From: Joyce T Rosenberg <pinkrockybeach (AT) yahoo (DOT) com>Subject: tip -- stress incontinenceTo: breathe-support Date: Tuesday, November 17, 2009, 12:57 PM

I don't know about anyone else, but i have noticed that an increase in stress incontinence is a sign that something is doing with my lungs -- usually my cough is harder

is it the decrease in prednisone?

or am i getting a cold?

rhetorical questions, don't expect answers

Jerry has also noticed an increase in my cough recently

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

November 17, 2009

Pink Joyce,

A doctor told my mother(who had PF) that as if women didn't have enough

to worry about, that the bladder is one of the first organs to be

affected by oxygen deprivation...go figure.

Dyane Phoenix ipf 02

>

> I don't know about anyone else, but i have noticed that an increase in

stress incontinence is a sign that something is doing with my lungs --

usually my cough is harder

>

> is it the decrease in prednisone?

> or am i getting a cold?

>

> rhetorical questions, don't expect answers

>

> Jerry has also noticed an increase in my cough recently

>

> Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

> Donate Life Listed 1/09 Inactive 4/09

> www.transplantfund.org

>

November 17, 2009

Joyce,I get that when I cough really hard. I thought I was the only one. So happy I'm not, but sorry you have it too.KathySubject: tip -- stress incontinenceTo: breathe-support Date: Tuesday, November 17, 2009, 12:57 PM

I don't know about anyone else, but i have noticed that an increase in stress incontinence is a sign that something is doing with my lungs -- usually my cough is harder

is it the decrease in prednisone?

or am i getting a cold?

rhetorical questions, don't expect answers

Jerry has also noticed an increase in my cough recently

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

November 17, 2009

dyanne

didn't know that

thought it was due to coughing so hard that something presses down on the bladder

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: tip -- stress incontinenceTo: Breathe-Support Date: Tuesday, November 17, 2009, 4:34 PM

Pink Joyce,A doctor told my mother(who had PF) that as if women didn't have enoughto worry about, that the bladder is one of the first organs to beaffected by oxygen deprivation. ..go figure.Dyane Phoenix ipf 02>> I don't know about anyone else, but i have noticed that an increase instress incontinence is a sign that something is doing with my lungs --usually my cough is harder>> is it the decrease in prednisone?> or am i getting a cold?>> rhetorical questions, don't expect answers>> Jerry has also noticed an increase in my cough recently>>> Pink Joyce R (IPF 3/06) IFA

5/09 Pennsylvania> Donate Life Listed 1/09 Inactive 4/09> www.transplantfund. org>__________________________________________________

November 17, 2009

Kathy thanks for responding

i had a feeling that i am not the only one

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: tip -- stress incontinenceTo: Breathe-Support Date: Tuesday, November 17, 2009, 4:51 PM

Joyce,I get that when I cough really hard. I thought I was the only one. So happy I'm not, but sorry you have it too.Kathy

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>Subject: tip -- stress incontinenceTo: breathe-support@ yahoogroups. comDate: Tuesday, November 17, 2009, 12:57 PM

I don't know about anyone else, but i have noticed that an increase in stress incontinence is a sign that something is doing with my lungs -- usually my cough is harder

is it the decrease in prednisone?

or am i getting a cold?

rhetorical questions, don't expect answers

Jerry has also noticed an increase in my cough recently

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

November 17, 2009

I hate it when i cough..the last time i coughed so hard my lung collapsed..so i really hate it when i cough..it makes my lungs hurt real bad..

dot/uip10/08/sa,tx/42

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>Subject: tip -- stress incontinenceTo: breathe-support@ yahoogroups. comDate: Tuesday, November 17, 2009, 12:57 PM

I don't know about anyone else, but i have noticed that an increase in stress incontinence is a sign that something is doing with my lungs -- usually my cough is harder

is it the decrease in prednisone?

or am i getting a cold?

rhetorical questions, don't expect answers

Jerry has also noticed an increase in my cough recently

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

November 17, 2009

Joyce,

I had never heard that either but we learn something new every day huh? The coughing that most of us do has an awful lot to do with stress incontinence. The constant pressure from coughing on all of our pelvic floor muscles eventually just tires them out.

My gyn referred me for pelvic floor physical therapy last year and it helped tremendously! It took about 4 or 5 months of work with the physical therapist and the exercises on my own but I'd say my stress incontinence is about 85% improved. That's a HUGE difference for me. The difference between needing to use the Poise pads and being able to just use the little liners. For any woman with simple stress incontinence, pelvic floor physical therapy can be a BIG help.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tue, November 17, 2009 7:25:52 PMSubject: Re: Re: tip -- stress incontinence

dyanne

didn't know that

thought it was due to coughing so hard that something presses down on the bladder

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: DyaneB <dyane.billings@ ball-mcgraw. com>Subject: Re: tip -- stress incontinenceTo: Breathe-Support@ yahoogroups. comDate: Tuesday, November 17, 2009, 4:34 PM

Pink Joyce,A doctor told my mother(who had PF) that as if women didn't have enoughto worry about, that the bladder is one of the first organs to beaffected by oxygen deprivation. ..go figure.Dyane Phoenix ipf 02>> I don't know about anyone else, but i have noticed that an increase instress incontinence is a sign that something is doing with my lungs --usually my cough is harder>> is it the decrease in prednisone?> or am i getting a cold?>> rhetorical questions, don't expect answers>> Jerry has also noticed an increase in my cough recently>>> Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania> Donate Life Listed 1/09

Inactive 4/09> www.transplantfund. org>____________ _________ _________ _________ _________ __

November 17, 2009

Joyce/ Beth

I'm always happy when you bring this subject up and I'm being serious.

It's one of those subjects not discussed enough and therefore treatments

or better understanding not pursued. This is such a common problem and

many suffer needlessly out of shyness over discussing it. Obviously, its

one problem I'm safe from, but I went to Mayo's site out of curiosity

and I was pleased to see that there were so many treatments shown there,

with the one Beth talks about seeming the most conservative. One

reason I'm saying this is that 's mother experienced the problem

(at 79 and after open heart surgery) and was embarrassed about it and I

just felt how sad it is that one feels that way over a condition they

can't help and one so widely experienced.

> >>

> >> I don't know about anyone else, but i have noticed that an increase

in

> >stress incontinence is a sign that something is doing with my lungs

--

> >usually my cough is harder

> >>

> >> is it the decrease in prednisone?

> >> or am i getting a cold?

> >>

> >> rhetorical questions, don't expect answers

> >>

> >> Jerry has also noticed an increase in my cough recently

> >>

> >> Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

> >> Donate Life Listed 1/09 Inactive 4/09

> >> www.transplantfund. org

> >>

> >

> ____________ _________ _________ _________ _________ __

>

November 17, 2009

Bruce,

I'm sitting here laughing because I guess I've lost the ability to be embarrassed by this kind of thing. I sympathize with 's mother. It's even more difficult for older people to talk about things like this.

When I mentioned it to my gyn last winter I was not expecting a solution. I knew the meds were not a good choice for me. (I don't have the "urgency and frequency" issue) Surgery was not the solution for me because of all my issues with sedation and anesthesia. I would not risk it for a relatively "minor" problem.

She suggested pelvic floor physical therapy because my issue was simple and straightforward. My pelvic floor muscles needed strengthening in order to support my bladder and keep my dry when I cough. I've had doctors in the past just tell me to "do your kegels". It's not quite that simple. This type of physical therapy can teach you how to isolate and exercise the specific muscles that do this job.

I would encourage any woman coping with this problem to ask either their primary doc or their gyn to refer them for 'pelvic floor physical therapy'. It is very conservative and it is not necessarily the complete solution for those whose incontinence is more complex. But for those of us who like me are sick and tired of peeing every time we cough hard it's a really good thing to try. And Medicare and my supplement paid for it 100%.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tue, November 17, 2009 8:00:42 PMSubject: Re: tip -- stress incontinence

Joyce/ BethI'm always happy when you bring this subject up and I'm being serious.It's one of those subjects not discussed enough and therefore treatmentsor better understanding not pursued. This is such a common problem andmany suffer needlessly out of shyness over discussing it. Obviously, itsone problem I'm safe from, but I went to Mayo's site out of curiosityand I was pleased to see that there were so many treatments shown there,with the one Beth talks about seeming the most conservative. Onereason I'm saying this is that 's mother experienced the problem(at 79 and after open heart surgery) and was embarrassed about it and Ijust felt how sad it is that one feels that way over a condition theycan't help and one so widely experienced.> >>> >> I don't know about anyone else, but i have noticed that an increasein> >stress incontinence is a sign that something is doing with my lungs--> >usually my cough is harder> >>> >> is

it the decrease in prednisone?> >> or am i getting a cold?> >>> >> rhetorical questions, don't expect answers> >>> >> Jerry has also noticed an increase in my cough recently> >>> >>> >> Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania> >> Donate Life Listed 1/09 Inactive 4/09> >> www.transplantfund. org> >>> >> >> ____________ _________ _________ _________ _________ __>

November 17, 2009

There you go. I dodged another bullet. I had problems with incontinence after

my first child. My son came into this world at just under 10 pounds and just

shot my plumbing to hell. I was put on exercise and counseling to help me

control my problem. It probably took me the better part of 5 years to get

things " back to normal " as I had my daughter (at just under 9 pounds) two years

after my son. I have continued doing my exercises to this very day because I

figured I would backslide if I didn't. Now I am so glad I have kept up with it

because I cough quite often, and quite violently sometimes, but do not have

" leaks " . Like I said... dodged that one!! Of course, there are always depends,

if it comes to that (LOL).

Stefani 61 year old Utahn

LD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> From: Joyce T Rosenberg <pinkrockybeach@pinkrocky>

> Subject: tip -- stress incontinence

> To: breathe-support@To: To:

> Date: Tuesday, November 17, 2009, 12:57 PM

>

> I don't know about anyone else, but i have noticed that an increase in

> stress incontinence is a sign that something is doing with my lungs --

usually

> my cough is harder

>

> is it the decrease in prednisone?

> or am i getting a cold?

>

> rhetorical questions, don't expect answers

>

> Jerry has also noticed an increase in my cough recently

>

> Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

> Donate Life Listed 1/09 Inactive 4/09

> _www.transplantfund. org_ (http://www.transplantfund.org/)

>

November 18, 2009

I did not expect so many responses

glad to know i am not alone

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: tip -- stress incontinenceTo: Breathe-Support Date: Tuesday, November 17, 2009, 7:45 PM

Joyce,

I had never heard that either but we learn something new every day huh? The coughing that most of us do has an awful lot to do with stress incontinence. The constant pressure from coughing on all of our pelvic floor muscles eventually just tires them out.

My gyn referred me for pelvic floor physical therapy last year and it helped tremendously! It took about 4 or 5 months of work with the physical therapist and the exercises on my own but I'd say my stress incontinence is about 85% improved. That's a HUGE difference for me. The difference between needing to use the Poise pads and being able to just use the little liners. For any woman with simple stress incontinence, pelvic floor physical therapy can be a BIG help.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tue, November 17, 2009 7:25:52 PMSubject: Re: Re: tip -- stress incontinence

dyanne

didn't know that

thought it was due to coughing so hard that something presses down on the bladder

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: DyaneB <dyane.billings@ ball-mcgraw. com>Subject: Re: tip -- stress incontinenceTo: Breathe-Support@ yahoogroups. comDate: Tuesday, November 17, 2009, 4:34 PM

Pink Joyce,A doctor told my mother(who had PF) that as if women didn't have enoughto worry about, that the bladder is one of the first organs to beaffected by oxygen deprivation. ..go figure.Dyane Phoenix ipf 02>> I don't know about anyone else, but i have noticed that an increase instress incontinence is a sign that something is doing with my lungs --usually my cough is harder>> is it the decrease in prednisone?> or am i getting a cold?>> rhetorical questions, don't expect answers>> Jerry has also noticed an increase in my cough recently>>> Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania> Donate Life Listed 1/09

Inactive 4/09> www.transplantfund. org>____________ _________ _________ _________ _________ __

November 18, 2009

Rudy

i use the poise liners, they are more comfortable for me than Kotex

as for bringing up junk when you cough, i would discuss this with your doctor

i didn't know it at the time, but i think the NAC is what helped eliminate the junk

so talk to your doctor about it

sometimes i choke when eating

sometimes i have trouble just swallowing saliva

this is all new for me

the dollar store has either plastic diaper bags or poopie bags, i use them for the used poise liners

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: tip -- stress incontinenceTo: Breathe-Support Date: Tuesday, November 17, 2009, 8:53 PM

Joyce- I didn't have stress incontinence until I was dx with pf...I wonder if there is a connection? For some reason I am coughing a lot more too and bringing up junk which I never did before. I coughed all thru the movie. I thought the people in the movie were going to kick me out. I also have problems with eating and coughing. I choke some times because I am eating and swallowing and suddenly cough.

I went to my doctor about the incontinence and she said that she didn't recommend those medications because the side effects were not good. She said to wear a Kotex and all I thought was ..here I have finally been liberated from having a period and I'm back to wearing a Kotex..not just a week but every day! Joyce Rudy AZ birds

In a message dated 11/17/2009 2:52:31 P.M. US Mountain Standard Time, psychnursekathy@ yahoo.com writes:

Joyce,I get that when I cough really hard. I thought I was the only one. So happy I'm not, but sorry you have it too.Kathy

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>Subject: tip -- stress incontinenceTo: breathe-support@ yahoogroups. comDate: Tuesday, November 17, 2009, 12:57 PM

I don't know about anyone else, but i have noticed that an increase in stress incontinence is a sign that something is doing with my lungs -- usually my cough is harder

is it the decrease in prednisone?

or am i getting a cold?

rhetorical questions, don't expect answers

Jerry has also noticed an increase in my cough recently

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

November 18, 2009

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: tip -- stress incontinenceTo: Breathe-Support Date: Wednesday, November 18, 2009, 10:43 AM

Pink Joyce,It is usually the coughing and of course that is part of the whole 'wonderful part of womanhood' we all get sold, but apparently it is made worse by lack of oxygen, guessing it has something to do with nerve endings as mine got worse when my breathing worsened and the neuropathy from the diabetes started to show up. Such is life...now whenever my sister sends me something funny she always says go pee first LOLDyane Phoenix ipf 02> >> > I don't know about anyone else, but i have noticed that an increase in> stress incontinence is a sign that something is doing with my lungs --> usually my cough is harder>

>> > is it the decrease in prednisone?> > or am i getting a cold?> >> > rhetorical questions, don't expect answers> >> > Jerry has also noticed an increase in my cough recently> >> >> > Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania> > Donate Life Listed 1/09 Inactive 4/09> > www.transplantfund. org> >> > > > > > > > > ____________ _________ _________ _________ _________ __>

November 18, 2009

AHAHAHAHAHAHAHA Go pee first! AHAHAHAHAHAHHAAHHAH Yes, that is what I should do before I read something funny....but, alas...I don't know it's funny until I read it. ahahahahahahahhaha Joyce rudy

Pink Joyce,It is usually the coughing and of course that is part of the whole 'wonderful part of womanhood' we all get sold, but apparently it is made worse by lack of oxygen, guessing it has something to do with nerve endings as mine got worse when my breathing worsened and the neuropathy from the diabetes started to show up. Such is life...now whenever my sister sends me something funny she always says go pee first LOLDyane Phoenix ipf 02> >> > I don't know about anyone else, but i have noticed that an increase in> stress incontinence is a sign that something is doing with my lungs --> usually my cough is harder> >> > is it the decrease in prednisone?> > or am i getting a cold?> >> > rhetorical questions, don't expect answers> >> > Jerry has also noticed an increase in my cough recently> >> >> > Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania> > Donate Life Listed 1/09 Inactive 4/09> > www.transplantfund. org> >> > > > > > > > > __________________________________________________>

November 18, 2009

Peggy/BruceNeener neener neener my youngest IS a massage therapist best job of any of the kids LOLDyane Phoenix ipf 02> > > >> > > > I don't know about anyone else, but i have noticed that an> increase in> > > stress incontinence is a sign that something is doing with my lungs> --> > > usually my cough is harder> > > >> > > > is it the decrease in prednisone?> > > > or am i getting a cold?> > > >> > > > rhetorical questions, don't expect answers> > > >> > > > Jerry has also noticed an increase in my cough recently> > > >> > > >> > > > Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania> > > > Donate Life Listed 1/09 Inactive 4/09> > > > www.transplantfund. org> > > >> > >> > >> > >> > >> > >> > >> > >> > >> > > __________________________________________________> > >

November 18, 2009

-

I got a walker when I got my knee replaced. I also got the shower stool and the

long handled picker-upper and shoe horn. I love them. I did not think I would

need to use them the rest of my life, but it was kinda nice having them. I also

have a heavy duty cane that I will use occasionally. It all helps. I did not

encounter shortness of breath until 25 days after my knee replacement. Since

then I have been on the whirlwind tour of learning just what I have and how to

deal with it. The accoutrements have been really helpful and were purchased

through the rehab clinic. I also bought some elastic resistance bands for

exercising. I did have to buy my walker as well, but with my husband and I in

our 60s and aging, I figure one or both of us can use these gadgets.

Stefani 61 year old Utahn

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

> > >>

> > >> I don't know about anyone else, but i have noticed that an increase in

> > >stress incontinence is a sign that something is doing with my lungs --

> > >usually my cough is harder

> > >>

> > >> is it the decrease in prednisone?

> > >> or am i getting a cold?

> > >>

> > >> rhetorical questions, don't expect answers

> > >>

> > >> Jerry has also noticed an increase in my cough recently

> > >>

> > >> Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

> > >> Donate Life Listed 1/09 Inactive 4/09

> > >> www.transplantfund. org

> > >>

> > >

> > ____________ _________ _________ _________ _________ __

> >

November 19, 2009

,Better green than blue LOL. It is nice, but what is even nicer is she is a wonderful woman ( hard to believe my baby is turning 30) She is kind, thoughtful, careing and understands her mothers weird sense of humor. My other two girls are wonderful too, but Beth is special. She should have died when she was 5 months old and fell 20 feet straight down on a concrete landing and she got nothing more than a bruise on her hand. God knew I would need her later and she is my angel.Dyane Phoenix ipf 02> > > > >> > > > > I don't know about anyone else, but i have noticed that an> > increase in> > > > stress incontinence is a sign that something is doing with my lungs> > --> > > > usually my cough is harder> > > > >> > > > > is it the decrease in prednisone?> > > > > or am i getting a cold?> > > > >> > > > > rhetorical questions, don't expect answers> > > > >> > > > > Jerry has also noticed an increase in my cough recently> > > > >> > > > >> > > > > Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania> > > > > Donate Life Listed 1/09 Inactive 4/09> > > > > www.transplantfund. org> > > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > ____________ _________ _________ _________ _________ __> > > >

November 21, 2009

me too

C_53_Familial IPF_5/09Washington

To: Breathe-Support Sent: Tue, November 17, 2009 1:51:41 PMSubject: Re: tip -- stress incontinence

Joyce,I get that when I cough really hard. I thought I was the only one. So happy I'm not, but sorry you have it too.Kathy

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>Subject: tip -- stress incontinenceTo: breathe-support@ yahoogroups. comDate: Tuesday, November 17, 2009, 12:57 PM

I don't know about anyone else, but i have noticed that an increase in stress incontinence is a sign that something is doing with my lungs -- usually my cough is harder

is it the decrease in prednisone?

or am i getting a cold?

rhetorical questions, don't expect answers

Jerry has also noticed an increase in my cough recently

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

November 21, 2009

Joyce-R,

Do you take a cough suppressant? Most of us with PF take something for our cough. I am on a maintenance dose of Guaifen-Codeine cough syrup, it works really well for me. Without it I would be miserable. C_53_Familial IPF_5/09Washington

To: Breathe-Support Sent: Tue, November 17, 2009 5:53:32 PMSubject: Re: tip -- stress incontinence

Joyce- I didn't have stress incontinence until I was dx with pf...I wonder if there is a connection? For some reason I am coughing a lot more too and bringing up junk which I never did before. I coughed all thru the movie. I thought the people in the movie were going to kick me out. I also have problems with eating and coughing. I choke some times because I am eating and swallowing and suddenly cough.

I went to my doctor about the incontinence and she said that she didn't recommend those medications because the side effects were not good. She said to wear a Kotex and all I thought was ..here I have finally been liberated from having a period and I'm back to wearing a Kotex...not just a week but every day! Joyce Rudy AZ birds

In a message dated 11/17/2009 2:52:31 P.M. US Mountain Standard Time, psychnursekathy@ yahoo.com writes:

Joyce,I get that when I cough really hard. I thought I was the only one. So happy I'm not, but sorry you have it too.Kathy

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>Subject: tip -- stress incontinenceTo: breathe-support@ yahoogroups. comDate: Tuesday, November 17, 2009, 12:57 PM

I don't know about anyone else, but i have noticed that an increase in stress incontinence is a sign that something is doing with my lungs -- usually my cough is harder

is it the decrease in prednisone?

or am i getting a cold?

rhetorical questions, don't expect answers

Jerry has also noticed an increase in my cough recently

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

November 21, 2009

no i do not take anything for the cough

the first pulmonary doc said that nothing will work, but prescribed those pearls

all they did was make me sleep -- i usually don't cough when asleep

so i didn't bother with them

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: tip -- stress incontinenceTo: Breathe-Support Date: Saturday, November 21, 2009, 7:00 PM

Joyce-R,

Do you take a cough suppressant? Most of us with PF take something for our cough. I am on a maintenance dose of Guaifen-Codeine cough syrup, it works really well for me. Without it I would be miserable. C_53_Familial IPF_5/09Washington

From: "BlueLiddy (AT) aol (DOT) com" <BlueLiddy (AT) aol (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tue, November 17, 2009 5:53:32 PMSubject: Re: tip -- stress incontinence

Joyce- I didn't have stress incontinence until I was dx with pf...I wonder if there is a connection? For some reason I am coughing a lot more too and bringing up junk which I never did before. I coughed all thru the movie. I thought the people in the movie were going to kick me out. I also have problems with eating and coughing. I choke some times because I am eating and swallowing and suddenly cough.

I went to my doctor about the incontinence and she said that she didn't recommend those medications because the side effects were not good. She said to wear a Kotex and all I thought was ..here I have finally been liberated from having a period and I'm back to wearing a Kotex...not just a week but every day! Joyce Rudy AZ birds

In a message dated 11/17/2009 2:52:31 P.M. US Mountain Standard Time, psychnursekathy@ yahoo.com writes:

Joyce,I get that when I cough really hard. I thought I was the only one. So happy I'm not, but sorry you have it too.Kathy

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>Subject: tip -- stress incontinenceTo: breathe-support@ yahoogroups. comDate: Tuesday, November 17, 2009, 12:57 PM

I don't know about anyone else, but i have noticed that an increase in stress incontinence is a sign that something is doing with my lungs -- usually my cough is harder

is it the decrease in prednisone?

or am i getting a cold?

rhetorical questions, don't expect answers

Jerry has also noticed an increase in my cough recently

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

November 21, 2009

Dyane B,

Thanks for the extra info... I had no idea that the incontinence may be a result

of the PF (I have an appointment with Urology because of this plus I have had

blood in my pee for a few years now and with no idea where it is coming

from...still checking, but now at least I have an idea as to the cause of my

lack of control). As for the cough, that is VERY annoying to me & others have

told me it bothers them...I get asked all the time " do you need a cough drop? "

I have noticed that I am very sensitive to temp changes, the cough gets bad when

I go from cold the hot, or vise-versa. It's good to know about the cough syrup.

Just an " FYI " in most States you can go to your local Pharmacy and get what is

classified as a C-V control med (cough syrup w/codeine in it with out an Rx, you

just have to sign a log and have a valid ID then you are only allowed to get

1~4oz bottle every 72 hours @ about $12.00 ... not that I am saying this is the

thing to do...really should check with your Dr. to see what is right for you,

but if you find you run out don't panic, it's available OTC. Most people don't

know that and the only reason I know is because I am in the Pharmacy business.

Thanks to everyone here...you're making a " Newbie " feel better about this crazy

PF.

> >

> > I don't know about anyone else, but i have noticed that an increase in

> stress incontinence is a sign that something is doing with my lungs --

> usually my cough is harder

> >

> > is it the decrease in prednisone?

> > or am i getting a cold?

> >

> > rhetorical questions, don't expect answers

> >

> > Jerry has also noticed an increase in my cough recently

> >

> > Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

> > Donate Life Listed 1/09 Inactive 4/09

> > www.transplantfund.org

> >

>

November 21, 2009

Joyce, that is good news that you haven't had to experience a coughing attack, maybe you never will! That would be a blessing.

I have had some that lasted up to an hour. During these attacks I become short of breath, I gag, sometimes feel nauseated, and always experience incontinence. Afterwards I'm just exhausted. And if it happens while driving it is horrible, one time I thought I might need to pull over.

I don't really know what triggers it, maybe inflammation in the lungs, because sometimes I can take Ibuprofen and it will ease my cough. C_53_Familial IPF_5/09Washington

To: Breathe-Support Sent: Sat, November 21, 2009 7:43:12 PMSubject: Re: tip -- stress incontinence

- I haven't had any real coughing spells....I just cough and now I am bringing up gunk but I just cough for awhile and it goes away and I am not so aware of it. Dr. Cosgrove at NJH wrote that I claimed to not cough but while he was talking with me I coughed but seemed unaware of doing so. Now I am aware that I am coughing but I don't go on coughing binges...you would think with my lungs I would cough more. Joyce R

In a message dated 11/21/2009 5:00:44 P.M. US Mountain Standard Time, hope2thend (AT) yahoo (DOT) com writes: