Re: My mind must be going....

[Guest guest]

Rudy Joyce

i find walking around the neighborhood more difficult than walking on the treadmill

i think it is because on the treadmill, i put the O2 on the floor and don't have to hold it

carrying the o2 is a pain -- it's heavy, sometimes hurts my back, and makes me tired

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: My mind must be going....To: Breathe-support Date: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds__________________________________________________

[Guest guest]

Miranda,Drive on over, we have them all over in AZ LOLDyane Phoenix>> Oh wow, Fudruckers ! I used to go to the one in Pasadena,CA all the time as a kid. Just last week I was wanting to go there and was sad when my mom told me they closed down. Wish they were still around for my kids to enjoy. > > I mess up on here too. It is confusing, especially when you are oxygen deprived. LOL> > Miranda> LA / 29 yrs old> IPF 05>

[Guest guest]

I do understand. I get so exhausted I fell like I will collapse but I force myself to go. I have too many committements. I rreally need to not be so active and allow myself some days off. I get so fatigued but have too many things to do. Like today I had to have my dog trained- is being trained as a service dog and a therapy dog- and we went to Fry's grocery to teach him...then when I got home I had to rush to the vet with 2 dogs and my 02 and they had their sugar tested and Sebastian got his bandages off and the sutures are now gone. Meanwhile I didn't eat lunch or breakfast...came home and fed the dogs and then collapsed. I just now woke up! It's 6:30 and now I have to feed the dogs and give them insulin and pills and I am too tired to feed myself! On top of it all somehow I hurt my back. Lord it hurts terrible. I am walking like a great ape! I had to take an oxycodone to do the dog training and that always throws me for a loop. Yes, i do understand being fatigued and as I have said if it were not for the Provigil I wouldn't be able to make it to the kitchen either! Hugs Joyce rudy AZ birds

Joyce, you are so brave..i avoid stairs all together if i can...i am so proud of you guys that can get around & walk..i know that i go to like the $ Tree it wears me out..but the time i get home i'm so exhausted it takes me the whole next day just to recuperate...yesterday was so bad that i didn't make it to my kitchen..but today i'm alot better...one day @ a time..but i really know what you mean...i can get in that bad habit of just staying home...

dot/uip10/08/42/sa,tx

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support Date: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

Yes! fudruckers! It just came in Nov 1 and I didn't know it. I was passing by and saw the new ad for it and boy that day I went! I love Fudruckers!!!! Joyce Rudy AZ birds

Did someone say Fuddruckers? we have them here in Sa,TX too...i'll have to send u a large burger..oxygen deprived..hahaha, i asked my sister the same question 10x's yesterday & i didn't even know it, i mean i didn't realize it until she abruptly told me so.. & my mom too, oh well...God help us...

dot/42/uip10/08/sa,tx

From: miranda gagne <tazluvzraz (AT) yahoo (DOT) com>Subject: My mind must be going....To: Breathe-Support Date: Monday, November 16, 2009, 10:48 PM

Oh wow, Fudruckers ! I used to go to the one in Pasadena,CA all the time as a kid. Just last week I was wanting to go there and was sad when my mom told me they closed down. Wish they were still around for my kids to enjoy.

I mess up on here too. It is confusing, especially when you are oxygen deprived. LOL

Miranda

LA / 29 yrs old

IPF 05

[Guest guest]

Pink- I so agree about the 02 being heavy...it seems like it is getting heavier too. Walking just generally makes me tired. Thank God that when I go out generally I have little walking. I used to love to go window shopping at the Mall and have lunch in the Food Court but don't do that any more and now I am terrified of stair cases! Joyce Rudy AZ birds

Rudy Joyce

i find walking around the neighborhood more difficult than walking on the treadmill

i think it is because on the treadmill, i put the O2 on the floor and don't have to hold it

carrying the o2 is a pain -- it's heavy, sometimes hurts my back, and makes me tired

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org--- On Mon, 11/16/09, BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com> wrote:

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support Date: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds__________________________________________________

[Guest guest]

Miranda- I have not seen a Fudruckers in 4oyears and it just came in here! Boy am I going to be visiting them! And, they have veggie burgers! i just love the fact that you can pile on all the stuff you want and add the dressings you wnat...love it! Joyce Rudy AZ birds

Oh wow, Fudruckers ! I used to go to the one in Pasadena,CA all the time as a kid. Just last week I was wanting to go there and was sad when my mom told me they closed down. Wish they were still around for my kids to enjoy.

I mess up on here too. It is confusing, especially when you are oxygen deprived. LOL

Miranda

LA / 29 yrs old

IPF 05

[Guest guest]

You are very right, Beth...I really need to eat 3 times a day and I will get up and have some veggie soup I made and a piece of toast but some times i go so much that I have no time to make anything to eat! When you are a vegetarian you can't just make a balogna sandwich (which I so love) you have to cook and I don't have the time all the time to cook! Im not even home! And when I walk in the door and feed my dogs i am so exhausted all I can do is go lie down and sleep.What I need to do is stop going going going...I think it is affecting my lungs. I am coughing more and I am coughing up stuff and sometimes it is hard for me to breathe. I need a break..I am also worried about this new situation - coughing and coughing up stuff. I have always coughed very little and never brought up crap. It is scaring me a bit and I'm hoping it will go away. Joyce rudy AZ birds

Joyce,

My lord woman! I know this is not what you want to hear but you are just asking too much of yourself. Even if you just take a small piece of the problem. Food. Joyce you are a diabetic. You can't not eat. You have to eat and you have to eat the right foods.

I know you know all this but you are abusing your body. Please take care of yourself or you won't be around to take care of the dogs that you love so much and do all the other things that are important to you.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: "BlueLiddy (AT) aol (DOT) com" <BlueLiddy (AT) aol (DOT) com>To: Breathe-Support Sent: Tue, November 17, 2009 8:43:54 PMSubject: Re: My mind must be going....

I do understand. I get so exhausted I fell like I will collapse but I force myself to go. I have too many committements. I rreally need to not be so active and allow myself some days off. I get so fatigued but have too many things to do. Like today I had to have my dog trained- is being trained as a service dog and a therapy dog- and we went to Fry's grocery to teach him...then when I got home I had to rush to the vet with 2 dogs and my 02 and they had their sugar tested and Sebastian got his bandages off and the sutures are now gone. Meanwhile I didn't eat lunch or breakfast... came home and fed the dogs and then collapsed. I just now woke up! It's 6:30 and now I have to feed the dogs and give them insulin and pills and I am too tired to feed myself! On top of it all somehow I hurt my back. Lord it hurts terrible. I am walking like a great ape! I had to take an oxycodone to do the dog training and that always throws me for a loop. Yes, i do understand being fatigued and as I have said if it were not for the Provigil I wouldn't be able to make it to the kitchen either! Hugs Joyce rudy AZ birds

In a message dated 11/17/2009 4:57:47 P.M. US Mountain Standard Time, ddmhogc (AT) yahoo (DOT) com writes:

Joyce, you are so brave..i avoid stairs all together if i can...i am so proud of you guys that can get around & walk..i know that i go to like the $ Tree it wears me out..but the time i get home i'm so exhausted it takes me the whole next day just to recuperate.. .yesterday was so bad that i didn't make it to my kitchen..but today i'm alot better...one day @ a time..but i really know what you mean...i can get in that bad habit of just staying home...

dot/uip10/08/ 42/sa,tx

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

Did someone say Fuddruckers? we have them here in Sa,TX too...i'll have to send u a large burger..oxygen deprived..hahaha, i asked my sister the same question 10x's yesterday & i didn't even know it, i mean i didn't realize it until she abruptly told me so.. & my mom too, oh well...God help us...

dot/42/uip10/08/sa,tx

Subject: My mind must be going....To: Breathe-Support Date: Monday, November 16, 2009, 10:48 PM

Oh wow, Fudruckers ! I used to go to the one in Pasadena,CA all the time as a kid. Just last week I was wanting to go there and was sad when my mom told me they closed down. Wish they were still around for my kids to enjoy.

I mess up on here too. It is confusing, especially when you are oxygen deprived. LOL

Miranda

LA / 29 yrs old

IPF 05

[Guest guest]

Joyce, you are so brave..i avoid stairs all together if i can...i am so proud of you guys that can get around & walk..i know that i go to like the $ Tree it wears me out..but the time i get home i'm so exhausted it takes me the whole next day just to recuperate...yesterday was so bad that i didn't make it to my kitchen..but today i'm alot better...one day @ a time..but i really know what you mean...i can get in that bad habit of just staying home...

dot/uip10/08/42/sa,tx

Subject: My mind must be going....To: Breathe-support Date: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

Dot

depending on the type of outing, sometimes i need to stay home the next day too

and take extra naps

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: My mind must be going....To: Breathe-Support Date: Tuesday, November 17, 2009, 6:57 PM

Joyce, you are so brave..i avoid stairs all together if i can...i am so proud of you guys that can get around & walk..i know that i go to like the $ Tree it wears me out..but the time i get home i'm so exhausted it takes me the whole next day just to recuperate.. .yesterday was so bad that i didn't make it to my kitchen..but today i'm alot better...one day @ a time..but i really know what you mean...i can get in that bad habit of just staying home...

dot/uip10/08/ 42/sa,tx

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

Joyce,

My lord woman! I know this is not what you want to hear but you are just asking too much of yourself. Even if you just take a small piece of the problem. Food. Joyce you are a diabetic. You can't not eat. You have to eat and you have to eat the right foods.

I know you know all this but you are abusing your body. Please take care of yourself or you won't be around to take care of the dogs that you love so much and do all the other things that are important to you.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tue, November 17, 2009 8:43:54 PMSubject: Re: My mind must be going....

I do understand. I get so exhausted I fell like I will collapse but I force myself to go. I have too many committements. I rreally need to not be so active and allow myself some days off. I get so fatigued but have too many things to do. Like today I had to have my dog trained- is being trained as a service dog and a therapy dog- and we went to Fry's grocery to teach him...then when I got home I had to rush to the vet with 2 dogs and my 02 and they had their sugar tested and Sebastian got his bandages off and the sutures are now gone. Meanwhile I didn't eat lunch or breakfast... came home and fed the dogs and then collapsed. I just now woke up! It's 6:30 and now I have to feed the dogs and give them insulin and pills and I am too tired to feed myself! On top of it all somehow I hurt my back. Lord it hurts terrible. I am walking like a great ape! I had to take an oxycodone to do the dog training and that always throws me for a loop. Yes, i do

understand being fatigued and as I have said if it were not for the Provigil I wouldn't be able to make it to the kitchen either! Hugs Joyce rudy AZ birds

In a message dated 11/17/2009 4:57:47 P.M. US Mountain Standard Time, ddmhogc (AT) yahoo (DOT) com writes:

Joyce, you are so brave..i avoid stairs all together if i can...i am so proud of you guys that can get around & walk..i know that i go to like the $ Tree it wears me out..but the time i get home i'm so exhausted it takes me the whole next day just to recuperate.. .yesterday was so bad that i didn't make it to my kitchen..but today i'm alot better...one day @ a time..but i really know what you mean...i can get in that bad habit of just staying home...

dot/uip10/08/ 42/sa,tx

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

Joyce,

You need to do whatever is necessary to carve out enough time for you to look after yourself. That's the bottom line. Though I'm not a vegan, I don't generally eat prepared foods anymore. I make most everything I eat from scratch so I do understand the amount of time and energy that takes. I really do.

The increased cough would concern me too. If you're coughing stuff up, you need to look at the color. If it's clear, you probably don't have an infection but if it's any color at all you need to get yourself to the doctor asap.

Please take a day or two to rest and see if the cough subsides a bit. You may just be super fatigued and needing rest. Please take care of yourself!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tue, November 17, 2009 9:22:38 PMSubject: Re: My mind must be going....

You are very right, Beth...I really need to eat 3 times a day and I will get up and have some veggie soup I made and a piece of toast but some times i go so much that I have no time to make anything to eat! When you are a vegetarian you can't just make a balogna sandwich (which I so love) you have to cook and I don't have the time all the time to cook! Im not even home! And when I walk in the door and feed my dogs i am so exhausted all I can do is go lie down and sleep.What I need to do is stop going going going...I think it is affecting my lungs. I am coughing more and I am coughing up stuff and sometimes it is hard for me to breathe. I need a break..I am also worried about this new situation - coughing and coughing up stuff. I have always coughed very little and never brought up crap. It is scaring me a bit and I'm hoping it will go away. Joyce rudy AZ birds

In a message dated 11/17/2009 6:50:12 P.M. US Mountain Standard Time, mbmurtha (AT) yahoo (DOT) com writes:

Joyce,

My lord woman! I know this is not what you want to hear but you are just asking too much of yourself. Even if you just take a small piece of the problem. Food. Joyce you are a diabetic. You can't not eat. You have to eat and you have to eat the right foods.

I know you know all this but you are abusing your body. Please take care of yourself or you won't be around to take care of the dogs that you love so much and do all the other things that are important to you.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: "BlueLiddy (AT) aol (DOT) com" <BlueLiddy (AT) aol (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tue, November 17, 2009 8:43:54 PMSubject: Re: My mind must be going....

I do understand. I get so exhausted I fell like I will collapse but I force myself to go. I have too many committements. I rreally need to not be so active and allow myself some days off. I get so fatigued but have too many things to do. Like today I had to have my dog trained- is being trained as a service dog and a therapy dog- and we went to Fry's grocery to teach him...then when I got home I had to rush to the vet with 2 dogs and my 02 and they had their sugar tested and Sebastian got his bandages off and the sutures are now gone. Meanwhile I didn't eat lunch or breakfast... came home and fed the dogs and then collapsed. I just now woke up! It's 6:30 and now I have to feed the dogs and give them insulin and pills and I am too tired to feed myself! On top of it all somehow I hurt my back. Lord it hurts terrible. I am walking like a great ape! I had to take an oxycodone to do the dog training and that always throws me for a loop. Yes, i do

understand being fatigued and as I have said if it were not for the Provigil I wouldn't be able to make it to the kitchen either! Hugs Joyce rudy AZ birds

In a message dated 11/17/2009 4:57:47 P.M. US Mountain Standard Time, ddmhogc (AT) yahoo (DOT) com writes:

Joyce, you are so brave..i avoid stairs all together if i can...i am so proud of you guys that can get around & walk..i know that i go to like the $ Tree it wears me out..but the time i get home i'm so exhausted it takes me the whole next day just to recuperate.. .yesterday was so bad that i didn't make it to my kitchen..but today i'm alot better...one day @ a time..but i really know what you mean...i can get in that bad habit of just staying home...

dot/uip10/08/ 42/sa,tx

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]



Joyce....hey, a 'ditto' from me on the posts here from MB.

Do please take care of you.

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

I also find the treadmill easier to walk on than outside. My Dr. said it is because the belt comes to you or something like that. I think perhaps it is also because I put my hands on the rails and it may lift the chest up differently and make breathing easier, maybe not but it is a thought. I know I get the same effect in the grocery store holding on to the cart. Also inside and on the treadmill is an even base and a controlled climate. Outside there are curbs, and streets usually slant slightly on the edges, and also uneven sidewalks. For some reason, as soon as I get outside, I often find I am breathing thru my mouth, and especially if it is windy. Also as you said we don't need to carry the portable on the treadmill. Marcia

[Guest guest]

Marcia

The weather on the treadmill is perfect. The walkway is perfectly

smooth. And carrying no weight. No thinking required. No turns. And I

know my breathing methods are good on the treadmill. It's just easier.

>

> I also find the treadmill easier to walk on than outside. My Dr. said

it is because the belt comes to you or something like that. I think

perhaps it is also because I put my hands on the rails and it may lift

the chest up differently and make breathing easier, maybe not but it is

a thought. I know I get the same effect in the grocery store holding on

to the cart. Also inside and on the treadmill is an even base and a

controlled climate. Outside there are curbs, and streets usually slant

slightly on the edges, and also uneven sidewalks. For some reason, as

soon as I get outside, I often find I am breathing thru my mouth, and

especially if it is windy. Also as you said we don't need to carry the

portable on the treadmill. Marcia

>

[Guest guest]

Joyce -

Just going to reiterate what Beth said. I am diabetic also. I always have

apples, bananas and oranges around to throw in my backpack. I also have

pre-packaged cheerios that can be thrown in at a moments notice. Sometimes when

I went to rehab I wouldn't be sure when I would get out because they would

schedule other sessions for me. I was glad I had the cup of cheerios and the

apple. The rehab clinic and my doctors office have valet parking... ooooh do I

love that. It is paid for by the hospital and clinic so they tell us NOT TO

TIP. I have a handicap parking tag and I use it often. I practice my breathing

techniques. When I was at National Jewish I got so frustrated lugging the tank.

I noticed some " veterans " carrying a " handle on top " back pack with their tank

in it. I found one this fall with the school supply sales. It was $10.00 and

boy do I love it. It is so much easier than the backpacks or carts. I use my

cart around home and sometimes for walks, but most of the time, I use my

backpack. It has side net pouches that I can put my oximeter in. It has two

zipper pouches that I use for food/snacks/camera and a velcro close pouch that

accommodates papers (that you take to or get from doctors). The guiding word is

take care of yourself. Figure out what will work best for you and make your

life sing!!

Stefani 61 year old Utahn

LD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Severe Sleep Apnea

4/2009

> >>

> >>

> >>>From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>

> >>>Subject: My mind must be going....

> >>>To: Breathe-support@ yahoogroups. com

> >>>Date: Monday, November 16, 2009, 10:09 PM

> >>>

> >>>

> >>> 

> >>>I write messages and click to send them and never see them on post. I must

be clicking on the X instead of send now...????? Very frustrating to me..

> >>>

> >>>Went out today all day and went to  Fudruckers and I love fudruckers! they

have a veggie burger! But had to do much walking and boy was I panting and

panting and had to slow down to a crawl....I am not liking this one bit...but

got there and loved my burger..piled it high with every veggie they had and I

loved the dill pickles! They tasted like clausen's. LOL I am beginning to

psychologically want to avoid long walks and stuff and I really don't like this

change in me....It makes me feel like I am lazy...It seems like it is getting

harder and harder to walk and to go up stairs and things like that...I have to

find a way to not psychologically avoid these circumstances. ..my docs say they

want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

> >>

>

[Guest guest]

Joyce,

I am not a total vegan, but I do try to eat mostly fish, chicken and turkey. Where ever I go, I carry lots and lots of nuts, which as you know are a good source of protein, potassium and the B vitamins. Raw nuts and raw vegetables make a meal for me most days.

Also, does your blood tend toward the anemic side? You wouldn't want to add iron unless tests showed you needed it, but not eating meat may tilt your numbers toward needing iron, and boy do weneed iron in our blood! Although vegatables like spinach and dried fruit like raisins do have iron, it is not as readily available as that found in meat. So do keep an eye on your blood tests. Also, I take B12 (along with other B vitamins) every day. B12 is the one vitamin that plants don't make.

And we have to rest throughout the day, We so easily drop into an oxygen deficit, and once our heart gets above idleing, it won't come down until we reduce our need for oxygen, and most likely it will continue to increase in speed until we stop and take some deep breaths. When our brain and muscles need oxygen, our heart must speed up during times of greater activity, and the heart itself uses more oxygen than any organ in the body. When our heart tries to pump more oxygen than our lungs can provide, we hit that brick wall, and we have to take a break. And do you know Joyce, what I can do in my mind is still much more than I can actually do in real life. My mind will never catch up with this disease and get real. Anything more than a moderate to lite exertion, and I get out of sorts. As I may have said, I can walk at a slow to moderate pace on a treamill for miles, but put me on an incline, and I'mdone for very quickly. That is the body I am having

to learn to work with now.

Take care of yourself and our sweet doggie friends too.

Jerry/Mississippi/54/IPF/dx April 5Who believes that hard times help us appreciate the good times even more.

[Guest guest]

Spinach!! I am not a vegan, but love my fruits and veggies and have cut out

most meats over the years. I do a lot of fish (was raised on fish in MN). I

have tuna fish sandwich for lunch probably 3 times a week. When I go out, it is

shrimp and clams (what an odd combo) or salmon. I started craving spinach with

my subs and sandwiches. That is one of those things I have never been able to

put my finger on, but I start craving some of the strangest foods (in most

people's books). Since the onset of this disease, spinach has been one of those

cravings. Some other cravings include apples, blueberries, bananas, and

cauliflower. Over the years, I have learned that I should follow my cravings

because in the long term it has proven to be good for me. I have to watch the

chocolate one, but then that is the dark chocolate (as opposed to the lighter

milk chocolate). I also have felt better with MODERATE exercise, but that is

true whether I am sick or not.

Stefani 61 year old Utahn

LD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> Joyce,

> I am not a total vegan, but I do try to eat mostly fish, chicken and turkey.

Where ever I go, I carry lots and lots of nuts, which as you know are a good

source of protein, potassium and the B vitamins. Raw nuts and raw vegetables

make a meal for me most days.

>  

> Also, does your blood tend toward the anemic side? You wouldn't want to add

iron unless tests showed you needed it, but not eating meat may tilt your

numbers toward needing iron, and boy do weneed iron in our blood! Although

vegatables like spinach and dried fruit like raisins do have iron, it is not as

readily available as that found in meat. So do keep an eye on your blood tests.

Also, I take B12 (along with other B vitamins) every day. B12 is the one vitamin

that plants don't make.

>  

> And we have to rest throughout the day, We so easily drop into an oxygen

deficit, and once our heart gets above idleing, it won't come down until we

reduce our need for oxygen, and most likely it will continue to increase in

speed until we stop and take some deep breaths. When our brain and muscles need

oxygen, our heart must speed up during times of greater activity, and the heart

itself uses more oxygen than any organ in the body. When our heart tries to pump

more oxygen than our lungs can provide, we hit that brick wall, and we have to

take a break. And do you know Joyce, what I can do in my mind is still much more

than I can actually do in real life. My mind will never catch up with this

disease and get real. Anything more than a moderate to lite exertion, and I get

out of sorts. As I may have said, I can walk at a slow to moderate pace on a

treamill for miles, but put me on an incline, and I'mdone for very quickly. That

is the body I am having to

> learn to work with now.

>  

> Take care of yourself and our sweet doggie friends too.

>  

> Jerry/Mississippi/54/IPF/dx April 5

>

> Who believes that hard times help us appreciate the good times even more.

>

[Guest guest]

i have stopped eating at buffets

a couple of years ago i spoke with someone who had a lung transplant several years ago

he told me that he had to stop eating at buffets

then a lady from rehab who had a lung transplant told me the same thing

so I stopped going to them

(Jerry and i rarely go to buffets anyway for other reasons)

since i am on immunosuppresants i avoid them

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: My mind must be going....To: Breathe-Support Date: Tuesday, November 17, 2009, 8:46 PM

Yes! fudruckers! It just came in Nov 1 and I didn't know it. I was passing by and saw the new ad for it and boy that day I went! I love Fudruckers!! !! Joyce Rudy AZ birds

In a message dated 11/17/2009 4:43:05 P.M. US Mountain Standard Time, ddmhogc (AT) yahoo (DOT) com writes:

Did someone say Fuddruckers? we have them here in Sa,TX too...i'll have to send u a large burger..oxygen deprived..hahaha, i asked my sister the same question 10x's yesterday & i didn't even know it, i mean i didn't realize it until she abruptly told me so.. & my mom too, oh well...God help us...

dot/42/uip10/ 08/sa,tx

From: miranda gagne <tazluvzraz (AT) yahoo (DOT) com>Subject: My mind must be going....To: Breathe-Support@ yahoogroups. comDate: Monday, November 16, 2009, 10:48 PM

Oh wow, Fudruckers ! I used to go to the one in Pasadena,CA all the time as a kid. Just last week I was wanting to go there and was sad when my mom told me they closed down. Wish they were still around for my kids to enjoy.

I mess up on here too. It is confusing, especially when you are oxygen deprived. LOL

Miranda

LA / 29 yrs old

IPF 05

[Guest guest]

Rudy

i take the baby stroller to the mall and the baby is my O2, that way i am able to walk around the entire mall

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: My mind must be going....To: Breathe-Support Date: Tuesday, November 17, 2009, 9:00 PM

Pink- I so agree about the 02 being heavy...it seems like it is getting heavier too. Walking just generally makes me tired. Thank God that when I go out generally I have little walking. I used to love to go window shopping at the Mall and have lunch in the Food Court but don't do that any more and now I am terrified of stair cases! Joyce Rudy AZ birds

In a message dated 11/17/2009 6:24:44 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i find walking around the neighborhood more difficult than walking on the treadmill

i think it is because on the treadmill, i put the O2 on the floor and don't have to hold it

carrying the o2 is a pain -- it's heavy, sometimes hurts my back, and makes me tired

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds____________ _________ _________ _________ _________ __

[Guest guest]

joyce

maybe all of the stuff you are coughing up is indicating an infection

call your doctor today

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: My mind must be going....To: Breathe-Support Date: Tuesday, November 17, 2009, 9:22 PM

You are very right, Beth...I really need to eat 3 times a day and I will get up and have some veggie soup I made and a piece of toast but some times i go so much that I have no time to make anything to eat! When you are a vegetarian you can't just make a balogna sandwich (which I so love) you have to cook and I don't have the time all the time to cook! Im not even home! And when I walk in the door and feed my dogs i am so exhausted all I can do is go lie down and sleep.What I need to do is stop going going going...I think it is affecting my lungs. I am coughing more and I am coughing up stuff and sometimes it is hard for me to breathe. I need a break..I am also worried about this new situation - coughing and coughing up stuff. I have always coughed very little and never brought up crap. It is scaring me a bit and I'm hoping it will go away. Joyce rudy AZ birds

In a message dated 11/17/2009 6:50:12 P.M. US Mountain Standard Time, mbmurtha (AT) yahoo (DOT) com writes:

Joyce,

My lord woman! I know this is not what you want to hear but you are just asking too much of yourself. Even if you just take a small piece of the problem. Food. Joyce you are a diabetic. You can't not eat. You have to eat and you have to eat the right foods.

I know you know all this but you are abusing your body. Please take care of yourself or you won't be around to take care of the dogs that you love so much and do all the other things that are important to you.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: "BlueLiddy (AT) aol (DOT) com" <BlueLiddy (AT) aol (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tue, November 17, 2009 8:43:54 PMSubject: Re: My mind must be going....

I do understand. I get so exhausted I fell like I will collapse but I force myself to go. I have too many committements. I rreally need to not be so active and allow myself some days off. I get so fatigued but have too many things to do. Like today I had to have my dog trained- is being trained as a service dog and a therapy dog- and we went to Fry's grocery to teach him...then when I got home I had to rush to the vet with 2 dogs and my 02 and they had their sugar tested and Sebastian got his bandages off and the sutures are now gone. Meanwhile I didn't eat lunch or breakfast... came home and fed the dogs and then collapsed. I just now woke up! It's 6:30 and now I have to feed the dogs and give them insulin and pills and I am too tired to feed myself! On top of it all somehow I hurt my back. Lord it hurts terrible. I am walking like a great ape! I had to take an oxycodone to do the dog training and that always throws me for a loop. Yes, i do

understand being fatigued and as I have said if it were not for the Provigil I wouldn't be able to make it to the kitchen either! Hugs Joyce rudy AZ birds

In a message dated 11/17/2009 4:57:47 P.M. US Mountain Standard Time, ddmhogc (AT) yahoo (DOT) com writes:

Joyce, you are so brave..i avoid stairs all together if i can...i am so proud of you guys that can get around & walk..i know that i go to like the $ Tree it wears me out..but the time i get home i'm so exhausted it takes me the whole next day just to recuperate.. .yesterday was so bad that i didn't make it to my kitchen..but today i'm alot better...one day @ a time..but i really know what you mean...i can get in that bad habit of just staying home...

dot/uip10/08/ 42/sa,tx

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

I don't know if it is just you but years ago I told my doc that I after I ate my food seemed to just lie there and never digest! It was a horrid feeling. I felt bloated and sick. Now that I am a Vegan (mostly) I don't have that problem. I digest rapidly and never feel bloated..I do have a lot of gas but I've been told it is because of all the fiber I eat....Joyce rudy AZ birds

is it just me then..i can't seem to keep any seafood down..especially tuna or fish of any kind. it's so hard for me to digest...does anyone else have any trouble with seafood. i love it, but for a year now...i can't eat it..i have the hardest time...after eating it i just feel soo bloated & it takes forever to digest. .my chest even hurts...

dot/uip10/08/sa,tx/42

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: My mind must be going....To: Breathe-Support Date: Wednesday, November 18, 2009, 6:46 AM

Spinach!! I am not a vegan, but love my fruits and veggies and have cut out most meats over the years. I do a lot of fish (was raised on fish in MN). I have tuna fish sandwich for lunch probably 3 times a week. When I go out, it is shrimp and clams (what an odd combo) or salmon. I started craving spinach with my subs and sandwiches. That is one of those things I have never been able to put my finger on, but I start craving some of the strangest foods (in most people's books). Since the onset of this disease, spinach has been one of those cravings. Some other cravings include apples, blueberries, bananas, and cauliflower. Over the years, I have learned that I should follow my cravings because in the long term it has proven to be good for me. I have to watch the chocolate one, but then that is the dark chocolate (as opposed to the lighter milk chocolate). I also have felt better with MODERATE exercise, but that is true whether I am sick or not.Stefani 61 year old UtahnLD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I am not a total vegan, but I do try to eat mostly fish, chicken and turkey. Where ever I go, I carry lots and lots of nuts, which as you know are a good source of protein, potassium and the B vitamins. Raw nuts and raw vegetables make a meal for me most days. > > Also, does your blood tend toward the anemic side? You wouldn't want to add iron unless tests showed you needed it, but not eating meat may tilt your numbers toward needing iron, and boy do weneed iron in our blood! Although vegatables like spinach and dried fruit like raisins do have iron, it is not as readily available as that found in meat. So do keep an eye on your blood tests. Also, I take B12 (along with other B vitamins) every day. B12 is the one vitamin that plants don't make. > > And we have to rest throughout the day, We so easily drop into an oxygen deficit, and once our heart gets above idleing, it won't come down until we reduce our need for oxygen, and most likely it will continue to increase in speed until we stop and take some deep breaths. When our brain and muscles need oxygen, our heart must speed up during times of greater activity, and the heart itself uses more oxygen than any organ in the body. When our heart tries to pump more oxygen than our lungs can provide, we hit that brick wall, and we have to take a break. And do you know Joyce, what I can do in my mind is still much more than I can actually do in real life. My mind will never catch up with this disease and get real. Anything more than a moderate to lite exertion, and I get out of sorts. As I may have said, I can walk at a slow to moderate pace on a treamill for miles, but put me on an incline, and I'mdone for very quickly. That is the body I am having to> learn to work with now. > > Take care of yourself and our sweet doggie friends too.> > Jerry/Mississippi/ 54/IPF/dx April 5> > Who believes that hard times help us appreciate the good times even more.>

[Guest guest]

A- if this cough keeps up for a few more days I will see my doctor..you scared me. I cannot be in the hospital! Joyce Rudy AZ birds

Hey Guys,just my two cents worth. GO do not stop Go to thr dr. I have just spent 8 days in the big house getting over pneumonia. I kept thinking the cough would get better. Almost didn't make it this time. Boy was that scary. Blue is not a becoming color for any of us. I came home to over 1000 e mails so it might take me a little time to catch up as now I need a nap

Love and peace to all

A

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

Dot

no problem with fish or seafood for me

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: My mind must be going....To: Breathe-Support Date: Wednesday, November 18, 2009, 12:00 PM

is it just me then..i can't seem to keep any seafood down..especially tuna or fish of any kind. it's so hard for me to digest...does anyone else have any trouble with seafood. i love it, but for a year now...i can't eat it..i have the hardest time...after eating it i just feel soo bloated & it takes forever to digest. .my chest even hurts...

dot/uip10/08/ sa,tx/42

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: My mind must be going....To: Breathe-Support@ yahoogroups. comDate: Wednesday, November 18, 2009, 6:46 AM

Spinach!! I am not a vegan, but love my fruits and veggies and have cut out most meats over the years. I do a lot of fish (was raised on fish in MN). I have tuna fish sandwich for lunch probably 3 times a week. When I go out, it is shrimp and clams (what an odd combo) or salmon. I started craving spinach with my subs and sandwiches. That is one of those things I have never been able to put my finger on, but I start craving some of the strangest foods (in most people's books). Since the onset of this disease, spinach has been one of those cravings. Some other cravings include apples, blueberries, bananas, and cauliflower. Over the years, I have learned that I should follow my cravings because in the long term it has proven to be good for me. I have to watch the chocolate one, but then that is the dark chocolate (as opposed to the lighter milk chocolate). I also have felt better with MODERATE exercise, but that is true whether I am sick or

not.Stefani 61 year old UtahnLD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I am not a total vegan, but I do try to eat mostly fish, chicken and turkey. Where ever I go, I carry lots and lots of nuts, which as you know are a good source of protein, potassium and the B vitamins. Raw nuts and raw vegetables make a meal for me most days. > > Also, does your blood tend toward the anemic side? You wouldn't want to add iron unless tests showed you needed it, but not eating meat may tilt your numbers toward needing iron, and boy do weneed iron in our blood! Although vegatables like spinach and dried fruit like raisins do have iron, it is not as readily available

as that found in meat. So do keep an eye on your blood tests. Also, I take B12 (along with other B vitamins) every day. B12 is the one vitamin that plants don't make. > > And we have to rest throughout the day, We so easily drop into an oxygen deficit, and once our heart gets above idleing, it won't come down until we reduce our need for oxygen, and most likely it will continue to increase in speed until we stop and take some deep breaths. When our brain and muscles need oxygen, our heart must speed up during times of greater activity, and the heart itself uses more oxygen than any organ in the body. When our heart tries to pump more oxygen than our lungs can provide, we hit that brick wall, and we have to take a break. And do you know Joyce, what I can do in my mind is still much more than I can actually do in real life. My mind will never catch up with this disease and get real. Anything more than a moderate to lite exertion, and I

get out of sorts. As I may have said, I can walk at a slow to moderate pace on a treamill for miles, but put me on an incline, and I'mdone for very quickly. That is the body I am having to> learn to work with now. > > Take care of yourself and our sweet doggie friends too.> > Jerry/Mississippi/ 54/IPF/dx April 5> > Who believes that hard times help us appreciate the good times even more.>

[Guest guest]

Joyce R,

What is the thing you bought for $10.00 to carry your oxygen in. If you don't have a name can you describe it or tell me where you bought it. My Marathon is very heavy especially when I first fill it up.

Adrienne

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds____________ _________ _________ _________ _________ __