Re: My mind must be going....

[Guest guest]

Hey Guys,just my two cents worth. GO do not stop Go to thr dr. I have just spent 8 days in the big house getting over pneumonia. I kept thinking the cough would get better. Almost didn't make it this time. Boy was that scary. Blue is not a becoming color for any of us. I came home to over 1000 e mails so it might take me a little time to catch up as now I need a nap

Love and peace to all

A

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

i stopped eating things like broccoli and cauliflower because of the gas

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: My mind must be going....To: Breathe-Support Date: Wednesday, November 18, 2009, 6:05 PM

I don't know if it is just you but years ago I told my doc that I after I ate my food seemed to just lie there and never digest! It was a horrid feeling. I felt bloated and sick. Now that I am a Vegan (mostly) I don't have that problem. I digest rapidly and never feel bloated..I do have a lot of gas but I've been told it is because of all the fiber I eat....Joyce rudy AZ birds

In a message dated 11/18/2009 10:02:09 A.M. US Mountain Standard Tim, ddmhogc (AT) yahoo (DOT) com writes:

is it just me then..i can't seem to keep any seafood down..especially tuna or fish of any kind. it's so hard for me to digest...does anyone else have any trouble with seafood. i love it, but for a year now...i can't eat it..i have the hardest time...after eating it i just feel soo bloated & it takes forever to digest. .my chest even hurts...

dot/uip10/08/ sa,tx/42

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: My mind must be going....To: Breathe-Support@ yahoogroups. comDate: Wednesday, November 18, 2009, 6:46 AM

Spinach!! I am not a vegan, but love my fruits and veggies and have cut out most meats over the years. I do a lot of fish (was raised on fish in MN). I have tuna fish sandwich for lunch probably 3 times a week. When I go out, it is shrimp and clams (what an odd combo) or salmon. I started craving spinach with my subs and sandwiches. That is one of those things I have never been able to put my finger on, but I start craving some of the strangest foods (in most people's books). Since the onset of this disease, spinach has been one of those cravings. Some other cravings include apples, blueberries, bananas, and cauliflower. Over the years, I have learned that I should follow my cravings because in the long term it has proven to be good for me. I have to watch the chocolate one, but then that is the dark chocolate (as opposed to the lighter milk chocolate). I also have felt better with MODERATE exercise, but that is true whether I am sick or

not.Stefani 61 year old UtahnLD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I am not a total vegan, but I do try to eat mostly fish, chicken and turkey. Where ever I go, I carry lots and lots of nuts, which as you know are a good source of protein, potassium and the B vitamins. Raw nuts and raw vegetables make a meal for me most days. > > Also, does your blood tend toward the anemic side? You wouldn't want to add iron unless tests showed you needed it, but not eating meat may tilt your numbers toward needing iron, and boy do weneed iron in our blood! Although vegatables

like spinach and dried fruit like raisins do have iron, it is not as readily available as that found in meat. So do keep an eye on your blood tests. Also, I take B12 (along with other B vitamins) every day. B12 is the one vitamin that plants don't make. > > And we have to rest throughout the day, We so easily drop into an oxygen deficit, and once our heart gets above idleing, it won't come down until we reduce our need for oxygen, and most likely it will continue to increase in speed until we stop and take some deep breaths. When our brain and muscles need oxygen, our heart must speed up during times of greater activity, and the heart itself uses more oxygen than any organ in the body. When our heart tries to pump more oxygen than our lungs can provide, we hit that brick wall, and we have to take a break. And do you know Joyce, what I can do in my mind is still much more than I can actually do in real life. My mind will never catch

up with this disease and get real. Anything more than a moderate to lite exertion, and I get out of sorts. As I may have said, I can walk at a slow to moderate pace on a treamill for miles, but put me on an incline, and I'mdone for very quickly. That is the body I am having to> learn to work with now. > > Take care of yourself and our sweet doggie friends too.> > Jerry/Mississippi/ 54/IPF/dx April 5> > Who believes that hard times help us appreciate the good times even more.>

[Guest guest]

A

glad you came home from the big house

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: My mind must be going....To: Breathe-Support Date: Wednesday, November 18, 2009, 6:05 PM

Hey Guys,just my two cents worth. GO do not stop Go to thr dr. I have just spent 8 days in the big house getting over pneumonia. I kept thinking the cough would get better. Almost didn't make it this time. Boy was that scary. Blue is not a becoming color for any of us. I came home to over 1000 e mails so it might take me a little time to catch up as now I need a nap

Love and peace to all

A

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

Joyce, My street doesn't have sidewalks either, but it is paved with curbs, but it does slant on the sides, and makes a little difficulty walking. I always laugh when I remember that a few days after we bought this house, I put my daughter in her stroller and started down the driveway, and it was then that I realized for the first time, that we didn't have sidewalks. I remember thinking, "Well that's a heck of a thing." Marcia

[Guest guest]

Joyce R,

Thanks! I'd greatly appreciate it.

AB

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds____________ _________ _________ _________ _________ __

[Guest guest]

Adrienne- I haven't forgotten about your request. I called my friend and she said she didn't know the name...just a bag on wheels...but would ask the friend who goes to Nevada what they are called so hang in there! I haven't forgotten Joyce Rudy AZ birds

Joyce R,

What is the thing you bought for $10.00 to carry your oxygen in. If you don't have a name can you describe it or tell me where you bought it. My Marathon is very heavy especially when I first fill it up.

Adrienne

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds____________ _________ _________ _________ _________ __

[Guest guest]

Joyce,

I have found that when I don't purposely take care of myself my body will break down on its own in ways that I don't like to deal with. Not good!

Get the rest your body so desperately needs, do it on purpose! C_53_Familial IPF_5/09Washington

To: Breathe-Support Sent: Tue, November 17, 2009 6:22:38 PMSubject: Re: My mind must be going....

You are very right, Beth...I really need to eat 3 times a day and I will get up and have some veggie soup I made and a piece of toast but some times i go so much that I have no time to make anything to eat! When you are a vegetarian you can't just make a balogna sandwich (which I so love) you have to cook and I don't have the time all the time to cook! Im not even home! And when I walk in the door and feed my dogs i am so exhausted all I can do is go lie down and sleep.What I need to do is stop going going going...I think it is affecting my lungs. I am coughing more and I am coughing up stuff and sometimes it is hard for me to breathe. I need a break..I am also worried about this new situation - coughing and coughing up stuff. I have always coughed very little and never brought up crap. It is scaring me a bit and I'm hoping it will go away. Joyce rudy AZ birds

In a message dated 11/17/2009 6:50:12 P.M. US Mountain Standard Time, mbmurtha (AT) yahoo (DOT) com writes:

Joyce,

My lord woman! I know this is not what you want to hear but you are just asking too much of yourself. Even if you just take a small piece of the problem. Food. Joyce you are a diabetic. You can't not eat. You have to eat and you have to eat the right foods.

I know you know all this but you are abusing your body. Please take care of yourself or you won't be around to take care of the dogs that you love so much and do all the other things that are important to you.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: "BlueLiddy (AT) aol (DOT) com" <BlueLiddy (AT) aol (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tue, November 17, 2009 8:43:54 PMSubject: Re: My mind must be going....

I do understand. I get so exhausted I fell like I will collapse but I force myself to go. I have too many committements. I rreally need to not be so active and allow myself some days off. I get so fatigued but have too many things to do. Like today I had to have my dog trained- is being trained as a service dog and a therapy dog- and we went to Fry's grocery to teach him...then when I got home I had to rush to the vet with 2 dogs and my 02 and they had their sugar tested and Sebastian got his bandages off and the sutures are now gone. Meanwhile I didn't eat lunch or breakfast... came home and fed the dogs and then collapsed. I just now woke up! It's 6:30 and now I have to feed the dogs and give them insulin and pills and I am too tired to feed myself! On top of it all somehow I hurt my back. Lord it hurts terrible. I am walking like a great ape! I had to take an oxycodone to do the dog training and that always throws me for a loop. Yes, i do

understand being fatigued and as I have said if it were not for the Provigil I wouldn't be able to make it to the kitchen either! Hugs Joyce rudy AZ birds

In a message dated 11/17/2009 4:57:47 P.M. US Mountain Standard Time, ddmhogc (AT) yahoo (DOT) com writes:

Joyce, you are so brave..i avoid stairs all together if i can...i am so proud of you guys that can get around & walk..i know that i go to like the $ Tree it wears me out..but the time i get home i'm so exhausted it takes me the whole next day just to recuperate.. .yesterday was so bad that i didn't make it to my kitchen..but today i'm alot better...one day @ a time..but i really know what you mean...i can get in that bad habit of just staying home....

dot/uip10/08/ 42/sa,tx

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

Thank you Joyce. I appreciate you trying. I figure in the mean time I can use it as a weight to help develop my muscles

Adrienne

To: Breathe-Support Sent: Sat, November 21, 2009 11:05:21 PMSubject: Re: My mind must be going....

Adrienne- I haven't forgotten about your request. I called my friend and she said she didn't know the name...just a bag on wheels...but would ask the friend who goes to Nevada what they are called so hang in there! I haven't forgotten Joyce Rudy AZ birds

In a message dated 11/18/2009 12:10:31 P.M. US Mountain Standard Tim, eggie5909 (AT) yahoo (DOT) com writes:

Joyce R,

What is the thing you bought for $10.00 to carry your oxygen in. If you don't have a name can you describe it or tell me where you bought it. My Marathon is very heavy especially when I first fill it up.

Adrienne

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds____________ _________ _________ _________ _________ __