Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Hear! Hear! Merf! One of the neatest things I always did was dress my dogs in special clothes and neckerchiefs and we would go walking in Fain Park.. and natural park just a little from me with a "Puddle" we here in AZ call a lake. Ahahhahhaahah we would get out of the car and walk around the park and talk to the fisher man and to the other dog people and have the best time. Can't do that any more. I miss it too but then I have found different ways to make up for it...I take my dogs for a ride! yes! I dress them up and in the car we go and I take them for a ride and we go to the Sonic and I buy them a hamburger and that is their fun now....take care...it is so frustrating! Joyce rudy AZ birds Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 in the winter, Rocky gets dressed in a sweater to go outside, but i don't bother with the fun stuff for dressing him up my daughter who lives in Florida gets Halloween costumes for her dog did I tell you that her first dog, Barney, died last month? about 2 weeks later, she adopted a dog at the Pet Smart rescue a mini pincher -- mostly black-- they named him Max cute in his pictures Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Scared & FatiguedTo: Breathe-Support Date: Sunday, November 15, 2009, 11:28 AM Hear! Hear! Merf! One of the neatest things I always did was dress my dogs in special clothes and neckerchiefs and we would go walking in Fain Park.. and natural park just a little from me with a "Puddle" we here in AZ call a lake. Ahahhahhaahah we would get out of the car and walk around the park and talk to the fisher man and to the other dog people and have the best time. Can't do that any more. I miss it too but then I have found different ways to make up for it...I take my dogs for a ride! yes! I dress them up and in the car we go and I take them for a ride and we go to the Sonic and I buy them a hamburger and that is their fun now....take care...it is so frustrating! Joyce rudy AZ birds In a message dated 11/15/2009 9:23:12 A.M. US Mountain Standard Time, corpat (AT) sympatico (DOT) ca writes: Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Merf, To be honest the fatigue is why I can no longer work full time. There would simply not be any way for me to get through an entire day at my previous job without having to take a significant break at a couple of different points during the day. And it's funny how napping during meetings is frowned upon. The fatigue is real and impossible to fight. You can't just tough it out and force yourself to work through it or well I certainly can't. I'm sorry you're going through a rough time. Please be gentle with yourself and don't overdo. When the time comes that you do need to use oxygen you may find that instead of it being a burden it is something that helps and allows you to do more of what you want to do. Look after yourself! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Sun, November 15, 2009 11:22:49 AMSubject: Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Oh I am so sorry that Barney died....and Max sounds delightful....but I bet they miss barney a lot. At Christmas I have special collars for the dogs...it is like an old Queen elizabeth collar sticking out andit's made of Christmas material and a red bow and a big bell. My dogs love to prance around with it. I think it is the bell they really like. I used to take them for a walk on Christmas afternoon and they would prance and meet people and just show off. Joyce Rudy AZ birds in the winter, Rocky gets dressed in a sweater to go outside, but i don't bother with the fun stuff for dressing him up my daughter who lives in Florida gets Halloween costumes for her dog did I tell you that her first dog, Barney, died last month? about 2 weeks later, she adopted a dog at the Pet Smart rescue a mini pincher -- mostly black-- they named him Max cute in his pictures Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- On Sun, 11/15/09, BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com> wrote: From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: Re: Scared & FatiguedTo: Breathe-Support Date: Sunday, November 15, 2009, 11:28 AM Hear! Hear! Merf! One of the neatest things I always did was dress my dogs in special clothes and neckerchiefs and we would go walking in Fain Park.. and natural park just a little from me with a "Puddle" we here in AZ call a lake. Ahahhahhaahah we would get out of the car and walk around the park and talk to the fisher man and to the other dog people and have the best time. Can't do that any more. I miss it too but then I have found different ways to make up for it...I take my dogs for a ride! yes! I dress them up and in the car we go and I take them for a ride and we go to the Sonic and I buy them a hamburger and that is their fun now....take care...it is so frustrating! Joyce rudy AZ birds In a message dated 11/15/2009 9:23:12 A.M. US Mountain Standard Time, corpat (AT) sympatico (DOT) ca writes: Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Merf... I want you to know you are not the only one who feels as you do. Fatigue starts the minute my feet touch the floor when I get out of bed in the morning! I tell my husband it just doesn't make sense to be so tried when I just wake up. I'm sleeping in to approx. 8:30 or some days even to 9! "Back when" I used to be an early riser. By 3,4,or 5 I'm usually 'down' for the rest of the day. Just to tired to do anything more... I'm still working on my new 'normal' too. I dreaded O2 and wouldn't wear it much when I first got it. I had a lot of denial going on. I do always use the O2 w/cpap at night and that doesn't bother me. Now, I go out with O2, use the scooters in the super-stores and the difference is so noticeable that I'm now glad to have the O2. I'm sorry you are having a 'rough time' . It will pass and then there will be another rough time. lol (That isn't very funny is it?) I'm sending it along anyway, maybe you have a sick humor like I do...) Keep on keepin' on Merf! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Thank you all very much for your support. This is the first time I needed help and you all came through in spades. Thank You Thank You Meref 62 IPF 05 > > Merf, > To be honest the fatigue is why I can no longer work full time. There would simply not be any way for me to get through an entire day at my previous job without having to take a significant break at a couple of different points during the day. And it's funny how napping during meetings is frowned upon.  > The fatigue is real and impossible to fight. You can't just tough it out and force yourself to work through it or well I certainly can't. > > I'm sorry you're going through a rough time. Please be gentle with yourself and don't overdo. When the time comes that you do need to use oxygen you may find that instead of it being a burden it is something that helps and allows you to do more of what you want to do. > > Look after yourself! > > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 >  >  > > > > > ________________________________ > > To: Breathe-Support > Sent: Sun, November 15, 2009 11:22:49 AM > Subject: Scared & Fatigued > >  > Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new " normal " . Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. > Merf dx05 62 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Merf think of oxygen as your best friend-- everyone breathes it, we just need it in a concentrated form Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Scared & FatiguedTo: Breathe-Support Date: Sunday, November 15, 2009, 2:07 PM Merf, To be honest the fatigue is why I can no longer work full time. There would simply not be any way for me to get through an entire day at my previous job without having to take a significant break at a couple of different points during the day. And it's funny how napping during meetings is frowned upon. The fatigue is real and impossible to fight. You can't just tough it out and force yourself to work through it or well I certainly can't. I'm sorry you're going through a rough time. Please be gentle with yourself and don't overdo. When the time comes that you do need to use oxygen you may find that instead of it being a burden it is something that helps and allows you to do more of what you want to do. Look after yourself! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: murphy.patrick10 <corpat (AT) sympatico (DOT) ca>To: Breathe-Support@ yahoogroups. comSent: Sun, November 15, 2009 11:22:49 AMSubject: Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 I love my portable O2 tank. I took him to the gym with me this afternoon and we walked on the treadmill. Well he really just sorta sat there but you get the picture. My poor ears take a beating by the time my eyeglasses sit on the lobes, add the O2 tubing and wrap my iPod earphones around the lobes as well. See I don't normally use my friend the O2 tank during the day. But I have learned to be good to my body and my body likes my friend the O2 tank. That allows me to walk a mile and keep my heart rate like it likes to be and that allows by lungs to do what they do without the heart beating hell out of them. And that way our enemy the treadmill does not throw me off. My O2 tank is my friend. He sometimes scares small children and dogs but he is still my friend. S, Lubbock, TX NSIP w/PF 12/2006 et al > > > > Subject: Re: Scared & Fatigued > To: Breathe-Support > Date: Sunday, November 15, 2009, 2:07 PM > > >  > > > > > > > Merf, > To be honest the fatigue is why I can no longer work full time. There would simply not be any way for me to get through an entire day at my previous job without having to take a significant break at a couple of different points during the day. And it's funny how napping during meetings is frowned upon.  > The fatigue is real and impossible to fight. You can't just tough it out and force yourself to work through it or well I certainly can't. >  > I'm sorry you're going through a rough time. Please be gentle with yourself and don't overdo. When the time comes that you do need to use oxygen you may find that instead of it being a burden it is something that helps and allows you to do more of what you want to do. >  > Look after yourself! >  >  > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 >  >  > > > > > > > From: murphy.patrick10 <corpat (AT) sympatico (DOT) ca> > To: Breathe-Support@ yahoogroups. com > Sent: Sun, November 15, 2009 11:22:49 AM > Subject: Scared & Fatigued > >  > > Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new " normal " . Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. > Merf dx05 62 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 that is a great description Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Scared & FatiguedTo: Breathe-Support Date: Sunday, November 15, 2009, 11:00 PM I love my portable O2 tank. I took him to the gym with me this afternoon and we walked on the treadmill. Well he really just sorta sat there but you get the picture. My poor ears take a beating by the time my eyeglasses sit on the lobes, add the O2 tubing and wrap my iPod earphones around the lobes as well. See I don't normally use my friend the O2 tank during the day. But I have learned to be good to my body and my body likes my friend the O2 tank. That allows me to walk a mile and keep my heart rate like it likes to be and that allows by lungs to do what they do without the heart beating hell out of them. And that way our enemy the treadmill does not throw me off.My O2 tank is my friend. He sometimes scares small children and dogs but he is still my friend. S, Lubbock, TXNSIP w/PF 12/2006 et al> > > From: Beth <mbmurtha@.. .>> Subject: Re: Scared & Fatigued> To: Breathe-Support@ yahoogroups. com> Date: Sunday, November 15, 2009, 2:07 PM> > > Â > > > > > > > Merf,> To be honest the fatigue is why I can no longer work full time. There would simply not be any way for me to get through an entire day at my previous job without having to take a significant break at a couple of different points during the day. And it's funny how napping during meetings is frowned upon. Â > The fatigue is real and impossible to fight. You can't just tough it out and force yourself to work through it or well I certainly can't. > Â > I'm sorry you're going through a rough time. Please be gentle with yourself and don't overdo. When the time comes that you do need to use oxygen you may find that instead of it being a burden it is something that helps and allows you to do more of what you want to do.> Â > Look after yourself!> Â > Â > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Â > Â > > > > > > > From: murphy.patrick10 <corpat (AT) sympatico (DOT) ca>> To: Breathe-Support@ yahoogroups. com> Sent: Sun, November 15, 2009 11:22:49 AM> Subject: Scared & Fatigued> > Â > > Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. > Merf dx05 62> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 , My o2 tank would like to meet your o2 tank, have your people call mine! LOL LOL Dyane > > > > > > From: Beth mbmurtha@ > > Subject: Re: Scared & Fatigued > > To: Breathe-Support > > Date: Sunday, November 15, 2009, 2:07 PM > > > > > > Â > > > > > > > > > > > > > > Merf, > > To be honest the fatigue is why I can no longer work full time. There would simply not be any way for me to get through an entire day at my previous job without having to take a significant break at a couple of different points during the day. And it's funny how napping during meetings is frowned upon. Â > > The fatigue is real and impossible to fight. You can't just tough it out and force yourself to work through it or well I certainly can't. > > Â > > I'm sorry you're going through a rough time. Please be gentle with yourself and don't overdo. When the time comes that you do need to use oxygen you may find that instead of it being a burden it is something that helps and allows you to do more of what you want to do. > > Â > > Look after yourself! > > Â > > Â > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > Â > > Â > > > > > > > > > > > > > > From: murphy.patrick10 corpat (AT) sympatico (DOT) ca> > > To: Breathe-Support@ yahoogroups. com > > Sent: Sun, November 15, 2009 11:22:49 AM > > Subject: Scared & Fatigued > > > > Â > > > > Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new " normal " . Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. > > Merf dx05 62 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 LOL Joyce....I've also heard, " You can't get addicted to Oxygen, you already are." <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Sun, November 15, 2009 6:58:45 PMSubject: Re: Scared & Fatigued Merf think of oxygen as your best friend-- everyone breathes it, we just need it in a concentrated form Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Scared & FatiguedTo: Breathe-Support@ yahoogroups. comDate: Sunday, November 15, 2009, 2:07 PM Merf, To be honest the fatigue is why I can no longer work full time. There would simply not be any way for me to get through an entire day at my previous job without having to take a significant break at a couple of different points during the day. And it's funny how napping during meetings is frowned upon. The fatigue is real and impossible to fight. You can't just tough it out and force yourself to work through it or well I certainly can't. I'm sorry you're going through a rough time. Please be gentle with yourself and don't overdo. When the time comes that you do need to use oxygen you may find that instead of it being a burden it is something that helps and allows you to do more of what you want to do. Look after yourself! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: murphy.patrick10 <corpat (AT) sympatico (DOT) ca>To: Breathe-Support@ yahoogroups. comSent: Sun, November 15, 2009 11:22:49 AMSubject: Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 I'll see if my people can work it out. It is good to have people. And a common enemy (the treadmill). S, Lubbock, TX NSIP w/PF 12/2006 et al > > > > > > > > > From: Beth mbmurtha@ > > > Subject: Re: Scared & Fatigued > > > To: Breathe-Support > > > Date: Sunday, November 15, 2009, 2:07 PM > > > > > > > > > Â > > > > > > > > > > > > > > > > > > > > > Merf, > > > To be honest the fatigue is why I can no longer work full time. > There would simply not be any way for me to get through an entire day at > my previous job without having to take a significant break at a couple > of different points during the day. And it's funny how napping during > meetings is frowned upon. Â > > > The fatigue is real and impossible to fight. You can't just tough it > out and force yourself to work through it or well I certainly can't. > > > Â > > > I'm sorry you're going through a rough time. Please be gentle with > yourself and don't overdo. When the time comes that you do need to use > oxygen you may find that instead of it being a burden it is something > that helps and allows you to do more of what you want to do. > > > Â > > > Look after yourself! > > > Â > > > Â > > > Beth > > > Moderator > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > Â > > > Â > > > > > > > > > > > > > > > > > > > > > From: murphy.patrick10 corpat (AT) sympatico (DOT) ca> > > > To: Breathe-Support@ yahoogroups. com > > > Sent: Sun, November 15, 2009 11:22:49 AM > > > Subject: Scared & Fatigued > > > > > > Â > > > > > > Beth that answer you gave Joyce about fatigue hit the nail on > the head for me. I get so darn fustrated when I cant do things that I > did 6 months or a year ago. I find myself wanting to nap in the middle > of the afternoon and thats hard to do when your working. I keep getting > mad at myself cause I cant do this or that and that really puts me in a > bummer mood. I cant even walk my dog like I used to. My sats are in the > mid to low 90,s most of the time. Any incline does me in. It is hard to > accept this new " normal " . Not on O2 yet and I hope not for awhile. For > some reason going through a rough time right now. Well thats enough. > > > Merf dx05 62 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2009 Report Share Posted November 17, 2009 Ah yes my treadmill mutters at me all night long while I play computer games ha ha Actually now that I know how I do walk on it before the zombie killing but it still mutters, in german I think.....Dyane PHoenix ipf 02> > > >> > > >> > > > From: Beth mbmurtha@> > > > Subject: Re: Scared & Fatigued> > > > To: Breathe-Support > > > > Date: Sunday, November 15, 2009, 2:07 PM> > > >> > > >> > > > Â> > > >> > > >> > > >> > > >> > > >> > > >> > > > Merf,> > > > To be honest the fatigue is why I can no longer work full time.> > There would simply not be any way for me to get through an entire day at> > my previous job without having to take a significant break at a couple> > of different points during the day. And it's funny how napping during> > meetings is frowned upon. Â> > > > The fatigue is real and impossible to fight. You can't just tough it> > out and force yourself to work through it or well I certainly can't.> > > > Â> > > > I'm sorry you're going through a rough time. Please be gentle with> > yourself and don't overdo. When the time comes that you do need to use> > oxygen you may find that instead of it being a burden it is something> > that helps and allows you to do more of what you want to do.> > > > Â> > > > Look after yourself!> > > > Â> > > > Â> > > > Beth> > > > Moderator> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > Â> > > > Â> > > >> > > >> > > >> > > >> > > >> > > >> > > > From: murphy.patrick10 corpat (AT) sympatico (DOT) ca>> > > > To: Breathe-Support@ yahoogroups. com> > > > Sent: Sun, November 15, 2009 11:22:49 AM> > > > Subject: Scared & Fatigued> > > >> > > > Â> > > >> > > > Beth that answer you gave Joyce about fatigue hit the nail on> > the head for me. I get so darn fustrated when I cant do things that I> > did 6 months or a year ago. I find myself wanting to nap in the middle> > of the afternoon and thats hard to do when your working. I keep getting> > mad at myself cause I cant do this or that and that really puts me in a> > bummer mood. I cant even walk my dog like I used to. My sats are in the> > mid to low 90,s most of the time. Any incline does me in. It is hard to> > accept this new "normal". Not on O2 yet and I hope not for awhile. For> > some reason going through a rough time right now. Well thats enough.> > > > Merf dx05 62> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2009 Report Share Posted November 17, 2009 I think one of the things that I really appreciate about this site and our "air family", is that I do not feel alone. I can not tell you how many times I have felt that I should be able to do more, that I should not be so flippin' tired, that I need to move more, lift more, work more. But I can not. I get winded, exhausted. With the simplest of things, like washing dishes. I wash dishes and then need to sit for an hour. Mentally, I know it should take x amount of time to do whatever, realistically it usually takes much longer. And then someone will post, as you have, that this is something that we all are facing. I am not the only one, it is not in my head, I am not lazy or crazy. It is in my lungs, and only those of us that have this disease understand.Every day that I read our site, I realize what an amazing group of people gather here, all willing to share the good and the bad. I thank all of you for sharing, informing and supporting. You keep me focused.Later,IPF/NSIP 08 NCSubject: Re: Scared & FatiguedTo: Breathe-Support Date: Sunday, November 15, 2009, 3:25 PM Merf... I want you to know you are not the only one who feels as you do. Fatigue starts the minute my feet touch the floor when I get out of bed in the morning! I tell my husband it just doesn't make sense to be so tried when I just wake up. I'm sleeping in to approx. 8:30 or some days even to 9! "Back when" I used to be an early riser. By 3,4,or 5 I'm usually 'down' for the rest of the day. Just to tired to do anything more... I'm still working on my new 'normal' too. I dreaded O2 and wouldn't wear it much when I first got it. I had a lot of denial going on. I do always use the O2 w/cpap at night and that doesn't bother me. Now, I go out with O2, use the scooters in the super-stores and the difference is so noticeable that I'm now glad to have the O2. I'm sorry you are having a 'rough time' . It will pass and then there will be another rough time. lol (That isn't very funny is it?) I'm sending it along anyway, maybe you have a sick humor like I do...) Keep on keepin' on Merf! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009 - I have just found out I must slow down...I am spinning and exhausted and fatigued all the time and for the past few weeks I have been forgetting to turn the 02 on. I wear the canula but forget to turn the air on,DUH and then I wonder why I am feeling so lousy...yesterday I almost burned the house down. I left the house with some beans cooking and took off to the vet and some grocery shopping and came home with all the doors and windows open and , who is working in my back yard heard the alarms go off and got my dogs out of a totally smoke fill house. All these things I think are a result of a high level of fatigue and pushing on even though I am exhausted! And, no oxygen is a mistake that cannot be made often so Yes I agree I am used to running and running and running and I get rewarded by everyone for doing just that and now I cannot do it any more. I fear to others I will lose importance to them. I will not be available for doing things. I worked for the dem Party in Yavapai co. here in Prescott ever week for years and when I started slowing down and then couldn't come in any more, the people I worked with for all those years...well most the people never gave me a call... I would call them and they would never call back...it is as though as soon as I could no longer perform I became invisible. Now not to one or two but I worked with the same people for YEARS and when I could no longer do it they made me invisible. Ahahahahahashah Joyce Rudy AZ birds  Yes .... well said. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009 It's crazy, isn't it? To live in a society that thinks being busy, busy, busy means your a success! If you can do it all..do more and you'll be applauded! If you get sick, just keep going and everyone will think you're a hero! Then we get struck with a chronic health condition, our body is brought down but our mind is still programmed to keep going. We are so used to "doing" and sometimes feel we are nobody if we aren't doing something. I'm not very good at resting either, but I'm trying to retrain myself into a new mind-set. I have to convince myself that resting my sick body is "doing something!" Afterall, our bodies our in a "chronic" state of disease! C_53_Familial IPF_5/09Washington To: Breathe-Support Sent: Tue, November 17, 2009 7:16:08 PMSubject: Re: Scared & Fatigued I think one of the things that I really appreciate about this site and our "air family", is that I do not feel alone. I can not tell you how many times I have felt that I should be able to do more, that I should not be so flippin' tired, that I need to move more, lift more, work more. But I can not. I get winded, exhausted. With the simplest of things, like washing dishes. I wash dishes and then need to sit for an hour. Mentally, I know it should take x amount of time to do whatever, realistically it usually takes much longer. And then someone will post, as you have, that this is something that we all are facing. I am not the only one, it is not in my head, I am not lazy or crazy. It is in my lungs, and only those of us that have this disease understand. Every day that I read our site, I realize what an amazing group of people gather here, all willing to share the good and the bad. I thank all of you for sharing, informing and supporting. You keep me focused. Later, IPF/NSIP 08 NC From: Sher Bauman <bofus6 (AT) verizon (DOT) net>Subject: Re: Scared & FatiguedTo: Breathe-Support@ yahoogroups. comDate: Sunday, November 15, 2009, 3:25 PM Merf... I want you to know you are not the only one who feels as you do. Fatigue starts the minute my feet touch the floor when I get out of bed in the morning! I tell my husband it just doesn't make sense to be so tried when I just wake up. I'm sleeping in to approx. 8:30 or some days even to 9! "Back when" I used to be an early riser. By 3,4,or 5 I'm usually 'down' for the rest of the day. Just to tired to do anything more... I'm still working on my new 'normal' too. I dreaded O2 and wouldn't wear it much when I first got it. I had a lot of denial going on. I do always use the O2 w/cpap at night and that doesn't bother me. Now, I go out with O2, use the scooters in the super-stores and the difference is so noticeable that I'm now glad to have the O2. I'm sorry you are having a 'rough time' . It will pass and then there will be another rough time. lol (That isn't very funny is it?) I'm sending it along anyway, maybe you have a sick humor like I do...) Keep on keepin' on Merf! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009  Yes .... well said. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2009 Report Share Posted November 22, 2009  JoyceR...... I'm certainly relieved to read you escaped what could have been a raging fire! That experience is a real eye opener isn't it. I've written before that when I stopped working I realized my self esteem and self worth were badly damaged. I thought (then) that if I didn't 'do' anything I wasn't 'worth' anything. It took me a couple of years to work my way through all of that as I had to accept the fact that I simply cannot do what I once did. I know what you mean... I'm sure that hurts to feel 'forgotten' by your peers after so many years working together. I would feel hurt too Joyce. However, you have a new group of folks who won't forget you! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2009 Report Share Posted November 22, 2009 Thank you, Sher! Also, People don't want you to tell them how things really are....they want you to be upbeat and talk about how good you are feeling and things like that. They don't want to know that you get tired easily and can't do what you used to do. Everything has to be masked. I have a psychiatrist I see for 7 minutes every 3 months and when I had first been diagnosed with IPF and found out that the average life span was about 3-4 years, I was a little down but not significantly but I told him what the dx was and the prognosis and he jumped all over me for being "negative".Now I wasn't complaining just stating the "facts that were given me".He told me to be POSITIVE because they could find a cure or some magnificent medicine and everything will be all right. Just stating the facts that were given me was seen as pessimism. I think he is an asshole but alas he is the only shrink around here and it took 6 months for me to get an appointment. I timed it...he sees me for 7 minutes and gives my meds...I also have a counselor who is nothing like this jerk but everyone wants you to be so positive...it's like they want to disregard any facts....Joyce R  JoyceR...... I'm certainly relieved to read you escaped what could have been a raging fire! That experience is a real eye opener isn't it. I've written before that when I stopped working I realized my self esteem and self worth were badly damaged. I thought (then) that if I didn't 'do' anything I wasn't 'worth' anything. It took me a couple of years to work my way through all of that as I had to accept the fact that I simply cannot do what I once did. I know what you mean... I'm sure that hurts to feel 'forgotten' by your peers after so many years working together. I would feel hurt too Joyce. However, you have a new group of folks who won't forget you! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2009 Report Share Posted November 22, 2009 ditto Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Scared & FatiguedTo: Breathe-Support Date: Saturday, November 21, 2009, 10:36 PM - I have just found out I must slow down...I am spinning and exhausted and fatigued all the time and for the past few weeks I have been forgetting to turn the 02 on. I wear the canula but forget to turn the air on,DUH and then I wonder why I am feeling so lousy...yesterday I almost burned the house down. I left the house with some beans cooking and took off to the vet and some grocery shopping and came home with all the doors and windows open and , who is working in my back yard heard the alarms go off and got my dogs out of a totally smoke fill house. All these things I think are a result of a high level of fatigue and pushing on even though I am exhausted! And, no oxygen is a mistake that cannot be made often so Yes I agree I am used to running and running and running and I get rewarded by everyone for doing just that and now I cannot do it any more. I fear to others I will lose importance to them. I will not be available for doing things. I worked for the dem Party in Yavapai co. here in Prescott ever week for years and when I started slowing down and then couldn't come in any more, the people I worked with for all those years...well most the people never gave me a call... I would call them and they would never call back...it is as though as soon as I could no longer perform I became invisible. Now not to one or two but I worked with the same people for YEARS and when I could no longer do it they made me invisible. Ahahahahahashah Joyce Rudy AZ birds In a message dated 11/21/2009 5:38:35 P.M. US Mountain Standard Time, bofus6 (AT) verizon (DOT) net writes:  Yes .... well said. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
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