Guest guest Posted November 22, 2009 Report Share Posted November 22, 2009 Hi , And whoever else can help, I have UIP and it first showed up on a CAT scan 10/08 and I just had a VATS biopsy 3 weeks ago and it was confirmed. I am still in some pain and it gets worse if a move around too much, - I guess the insides are still healing. I am also going to try and get Long Term Disability through my job (I have the same insurance where you get 60% of pay through Met Life). I get out of breath, extremely tired all the time, chest pain (even before VATS) and find it hard too concentrate. My PFT scores are somewhat good and I dont need 02 yet. But I dont want to waste what ever time I have left at a job I hate. People look at me and because I am only 43 (only - I wish I was 18 again) and dont look older and sickly that there is nothing wrong with me. " You look fine " , " Its in your head " , and " stop being a hypocondriac " . I should carry around my Biopsy results and a detailed definition of the disease. I know the government S.S. disability insurance has so many different criteria to qualify, ie. certain PFT score, ect. But my private insurance through Met Life simply reads that if you cannot function at you job at the same level you did in the past that you can qualify. Did you speak with you private disabily insurance company yet? What did they say? I have to be on short term disabilty for 13 weeks before I can apply for long term disability. What happens if I go out on the short term for 13 weeks and then get denied for the long term? And my employer is cutting back. If I get laid off (which is a very real possibility - they already laid off half the department and we are expecting more layoffs) and have to get a new job I wont be able to get private disability insurance because I have a pre-existing illness. I could not survive and government disability income alone, and at my age I have not saved for that " what if in life " ..... Did not expect to get a terminal illness at this age. What kind of hurdles have any of you encountered with PRIVATE disability isurance? Any Thoughts out there, Thanks Dave, Miami, UIP 11/09 > > > >From: worth <hope2thend (AT) yahoo (DOT) com> > >Subject: Re: Newby > >To: Breathe-Support@ yahoogroups. com > >Date: Friday, November 20, 2009, 5:46 PM > > > > > > > >Hi Gale, > > > >What you are experiencing is perfectly normal. I have had many crying spells from time-to-time.  Diagnosis and living with a chronic (and fatal) condition is a huge stress. You are going through a major change in your body, mind and daily life. Having a chronic condition can drain your energy. No matter what disease or diseases you have, whatever you do demands more energy. When a chronic illness is present, the body is less efficient in its use of the energy reserved for every day activities. This is because some of your energy is used to help the body heal itself. > >I was diagnosed with IPF in May 09 and just this week applied for (part-time) disability from work, just can't handle the stress and energy it takes anymore. > >Hang in there, you're not alone! C_53_Familial IPF_5/09 > >Washington > > > > > > > > > > > > > ________________________________ > From: Gale More <gale.more (AT) yahoo (DOT) com> > >To: Breathe-Support@ yahoogroups. com > >Sent: Sat, November 7, 2009 3:57:01 PM > >Subject: Newby > > > > > >Hi all, > > > >I was diagnosed with PF last year and I have more trouble coping with stress now (of any kind). I cry easily and become stressed quikly, particularly at work. Does this have a physical root or merely emotional? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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