Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 Well...here's the latest! I had my appointment at Penn this morning. My HRCT's from July and October show a re occurrence of inflammation! " Idiopathic Fibrosing Alveolitis" it seems to be yet another term for NSIP. A glass like opacity in the lower lobe of both lungs..no honeycombing. Even though symptoms have changed only in a minor way.( slight increase in cough and SOB and less energy) ...the Prednisone was increased from 10 to 20mg and the Imuran was increased from 50 to 75mg! Here we go again...I'm just hoping that my cognitive function doesn't go haywire! He seem to think that this worsening may be a result of the bronchitis from March! I have to go back for the HRCT and PFT's in 3 months and keep n touch with him if I have trouble with the medication increases. He hasn't changed his attitude my general health and feels that anything I want and can do is good. So, barring medication issues things should be OK. BUT...it means for the time being I'm no longer stable...yuck..yuck..yuck! Presently, I'm not a happy camper!It took so long to get down to the 10mg of Prednisone! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.