Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 - I am afraid of death too. I think everyone is to some extent. It is very hard to learn you have a dx which is terminal. It is just very hard. I'm sorry you have no support there but you do here! We understand and we care. Confusion is par for the course...just realize that you are alive now and have as much fun as you can. Make it a point to enjoy each day. Some days will be excellent and some not so good but remember, you are not dead...you are living. My husband was driving to work on a California Freeway and he was sniped right off it and died..he was in his 40's. Life is neither fair nor foul it just is and we have to have as much fun as we can until god calls us....as someone in the group says no one is stamped with the date of his/her death! this is a group for living! You are confused and sad and angry and scared and we all were too and some of us still are. But,we work thru those feelings. Enjoy your Thanksgiving! Take care and keep talking to us. Joyce R AZ birds Guyssory I got off to a bad start in this groupI read all to the posts today, been several dayys since I read themI too have no support here, nobody understands or wants to.I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok.I know you can't I've always lived y the " one-day-at-a-time" thing but this seems different,.I'm scared, confused, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 Guys sory I got off to a bad start in this group I read all to the posts today, been several dayys since I read them I too have no support here, nobody understands or wants to. I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok. I know you can't I've always lived y the " one-day-at-a-time " thing but this seems different,. I'm scared, confused, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 Dear Batik , I've not been around for a wee while & am not familiar with your 'bad start' in this group so I can fell free to lauch as though I've just met you OK! (I do remember noticing the 'batik' bit in your ID name though..) DEATH...that big huge scary thought travels with us through life...we squash it under, hide it away, pretend it only happens to OTHER people 'cos when we DO look at it face to face it scares the livin' HECK out of us...'cos none of us KNOW what to expect..... THIS is different because we all know the path we're on leads to a final conclusion. BUT & it's a big BUT..our PF might NOT kill us...we can still end up DEAD by various other means & quicker or later than we expect. There's the rub.....even now none of us can predict the WHEn let alone the HOW! Death is an inevitable consequence of LIFE...none of us can avoid IT! So how do we LIVE until we DIE.....that is the 64 Million Dollar Question...........we all do it differently & it's based on our beliefs, culture, chiildhood fears, expereience of others dying...the LOT..... Some people are comfortable talking about their own approach..others are intensely private or do not want to deal with it yet. Whether or not we can help each other by being open about our own approach is probably dependent on all of the above. It'd call on a lot of tolerance for accepting everyone's differing core-belief systems for a start. My way is to ENJOY life every single day...to LOVE & be LOVED by my family & friends.....notice the small things..LAUGH lots...make memories...yummy food... Crikey I'm gunna be a long time dead & to me it seems like a very boring state so why go there any sooner than I have to...Live LIFE while you've got it mate! Don't make the mistake of shutting down on experience while you are still drawing breath! As for the process..well Drugs are a girl's best friend & I'll accept anything I can get to lighten the load when the time comes! Until then for goodness sake LIVE! in Oz IPF: Fibrotic NSIP/UIP? May 2007 >> Guys> sory I got off to a bad start in this group> I read all to the posts today, been several dayys since I read them> I too have no support here, nobody understands or wants to.> I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok.> I know you can't > I've always lived y the " one-day-at-a-time" thing but this seems different,.> I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 ..my sista from OZ!!! What a wonderful post you sent to ! You just seem to have figured it all out and are able to put it all down so beautifully!!!Thanks for the pep talk..we all read the posts and I needed to read that one today. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower grangi49 wrote: Dear Batik , I've not been around for a wee while & am not familiar with your 'bad start' in this group so I can fell free to lauch as though I've just met you OK! (I do remember noticing the 'batik' bit in your ID name though..) DEATH...that big huge scary thought travels with us through life...we squash it under, hide it away, pretend it only happens to OTHER people 'cos when we DO look at it face to face it scares the livin' HECK out of us...'cos none of us KNOW what to expect..... THIS is different because we all know the path we're on leads to a final conclusion. BUT & it's a big BUT..our PF might NOT kill us...we can still end up DEAD by various other means & quicker or later than we expect. There's the rub.....even now none of us can predict the WHEn let alone the HOW! Death is an inevitable consequence of LIFE...none of us can avoid IT! So how do we LIVE until we DIE.....that is the 64 Million Dollar Question...........we all do it differently & it's based on our beliefs, culture, chiildhood fears, expereience of others dying...the LOT..... Some people are comfortable talking about their own approach..others are intensely private or do not want to deal with it yet. Whether or not we can help each other by being open about our own approach is probably dependent on all of the above. It'd call on a lot of tolerance for accepting everyone's differing core-belief systems for a start. My way is to ENJOY life every single day...to LOVE & be LOVED by my family & friends.....notice the small things..LAUGH lots...make memories...yummy food... Crikey I'm gunna be a long time dead & to me it seems like a very boring state so why go there any sooner than I have to...Live LIFE while you've got it mate! Don't make the mistake of shutting down on experience while you are still drawing breath! As for the process..well Drugs are a girl's best friend & I'll accept anything I can get to lighten the load when the time comes! Until then for goodness sake LIVE! in Oz IPF: Fibrotic NSIP/UIP? May 2007 > > Guys > sory I got off to a bad start in this group > I read all to the posts today, been several dayys since I read them > I too have no support here, nobody understands or wants to. > I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok. > I know you can't > I've always lived y the " one-day-at-a-time" thing but this seems different,. > I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 Thanks. Just reading your response to makes me feel more positive. It is hard to remember that everyone starts dying the minute that they are born, that this illness is horrible, but the life is not. Sometimes, I start to feel very overwhelmed. But your response puts it all back into perspective. Thank you. later,IPF/NSIP 08 NCSubject: Re: dieTo: Breathe-Support Date: Monday, November 23, 2009, 9:00 PM Dear Batik , I've not been around for a wee while & am not familiar with your 'bad start' in this group so I can fell free to lauch as though I've just met you OK! (I do remember noticing the 'batik' bit in your ID name though..) DEATH...that big huge scary thought travels with us through life...we squash it under, hide it away, pretend it only happens to OTHER people 'cos when we DO look at it face to face it scares the livin' HECK out of us...'cos none of us KNOW what to expect..... THIS is different because we all know the path we're on leads to a final conclusion. BUT & it's a big BUT..our PF might NOT kill us...we can still end up DEAD by various other means & quicker or later than we expect. There's the rub.....even now none of us can predict the WHEn let alone the HOW! Death is an inevitable consequence of LIFE...none of us can avoid IT! So how do we LIVE until we DIE.....that is the 64 Million Dollar Question.... .......we all do it differently & it's based on our beliefs, culture, chiildhood fears, expereience of others dying...the LOT..... Some people are comfortable talking about their own approach..others are intensely private or do not want to deal with it yet. Whether or not we can help each other by being open about our own approach is probably dependent on all of the above. It'd call on a lot of tolerance for accepting everyone's differing core-belief systems for a start. My way is to ENJOY life every single day...to LOVE & be LOVED by my family & friends..... notice the small things..LAUGH lots...make memories...yummy food... Crikey I'm gunna be a long time dead & to me it seems like a very boring state so why go there any sooner than I have to...Live LIFE while you've got it mate! Don't make the mistake of shutting down on experience while you are still drawing breath! As for the process..well Drugs are a girl's best friend & I'll accept anything I can get to lighten the load when the time comes! Until then for goodness sake LIVE! in Oz IPF: Fibrotic NSIP/UIP? May 2007 >> Guys> sory I got off to a bad start in this group> I read all to the posts today, been several dayys since I read them> I too have no support here, nobody understands or wants to.> I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok.> I know you can't > I've always lived y the " one-day-at-a- time" thing but this seems different,.> I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 , You are not alone. We are all scared, confused, and paddling as hard as we can. Here we understand. You will have good days and bad days, we all do. But the important thing to remember is that you are not alone. Vent, share, learn. Don't give up.Later,IPF/NSIP 08 NCSubject: dieTo: Breathe-Support Date: Monday, November 23, 2009, 5:46 PM Guys sory I got off to a bad start in this group I read all to the posts today, been several dayys since I read them I too have no support here, nobody understands or wants to. I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok. I know you can't I've always lived y the " one-day-at-a- time" thing but this seems different,. I'm scared, confused, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 , Its gonna be ok, do not worry,you sulk or vent ,cry or laugh, we are with you.We are all in the same boat.We want you to come back to us.We are all moms here and give you our shoulders to weep on, the biggest of us of course is Mama Sher, the large hearted mama!Happy Thanks Giving ! Geeta > > Guys > sory I got off to a bad start in this group > I read all to the posts today, been several dayys since I read them > I too have no support here, nobody understands or wants to. > I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok. > I know you can't > I've always lived y the " one-day-at-a-time " thing but this seems different,. > I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Hang in there . We're still here listening .PJ die Guyssory I got off to a bad start in this groupI read all to the posts today, been several dayys since I read themI too have no support here, nobody understands or wants to.I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok.I know you can't I've always lived y the " one-day-at-a-time" thing but this seems different,.I'm scared, confused, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 - I thought I was going to die when my first pulmo-dude put me on a high dose of prednisone and then left the country (to visit family in India) for two months. While he was gone I was forced to see my regular GP because there was no one else in the Heart and Lung Institute available to see me. I was gaining a lot of weight, was having extreme fatigue and depression. It turned out I had drug-induced diabetes and liver damage. When he got back from India I request that I be taken off prednisone. He did a bronco-lavage or broncoscopy which just yielded a list of things I did not have. At that point I left that doctor because none of his drugs were helping me and I just wanted off of them. 3 years later, I found this group and went to National Jewish to find what Interstitial Lung Disease I had because those were the only words the first pulmo dude gave me. He never suggested anything else and never did a complete set of tests on me (pulmonary function, blood gas or 6 minute walk). I feel so much better now, knowing what I have. I feel so much better because I am not taking any drugs that I don't want to take. I feel so much better because I have my energy back and I don't have the depression. It may not have been the prednisone. That first pulmo-doc had me on a cocktail of drugs that may have had some interactions. Knowledge is power. There are no expiration dates and you can be your own best advocate for treatment and services. I pushed for the rehab (had to chase down 2 pulmonary specialists before I found one who would refer me). I pushed for the oxygen systems that I was most comfortable with (it took me 3 months to get the sleep apnea test and the series of tanks and concentrator that I wanted). I had the VATS biopsy done to confirm the National Jewish findings. My health is not perfect, but I have my diabetes under control and I keep my eyes and ears open for new information all of the time. My husband and I have DNR clauses written into our living will. I still haven't made a decision about lung transplant. Hang in there... we are here to listen and share Stefani 61 year old Utahn ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009 > > Hang in there . We're still here listening . > PJ die > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Guys > > > sory I got off to a bad start in this group > > > I read all to the posts today, been several dayys since I read them > > > I too have no support here, nobody understands or wants to. > > > I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok. > > > I know you can't > > > I've always lived y the " one-day-at-a-time " thing but this seems different,. > > > I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 - I was just diagnosed with PF in Sept. I cried for weeks. I have some support, but not loads - and believe me, I totally understand how scared you are. I too, lost my mom when I was young - I was 16. I then lost my dad at 24. Most of my life has been very topsy turvy - so don't feel you are alone in your fear. I keep saying " It is what itis! " - my new mantra. Most days now, I am ok. but, every now and then - dealing with all the doctors and tests and the overload of information is just overwhelming - and I find myself crying again. It is getting better though.....those episodes are fewer and fewer. Hang in there.......say your prayers.....and reach out to your friends and family. Try to make them understand.....but, give them forgiveness if they don't. Tell them to go online and read about the disease.....that alone will be an eye opener for them. Take care and God Bless You, Myrlene Brown IPF 09/09 La Verne, CA > > Hang in there . We're still here listening . > PJ die > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Guys > > > sory I got off to a bad start in this group > > > I read all to the posts today, been several dayys since I read them > > > I too have no support here, nobody understands or wants to. > > > I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok. > > > I know you can't > > > I've always lived y the " one-day-at-a-time " thing but this seems different,. > > > I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 TY Myrlene.......You hang in there.....I just slide backwards once in awhile. I then have a PITY PARTY.... <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Wed, November 25, 2009 12:45:54 PMSubject: Re: die - I was just diagnosed with PF in Sept. I cried for weeks. I have some support, but not loads - and believe me, I totally understand how scared you are. I too, lost my mom when I was young - I was 16. I then lost my dad at 24. Most of my life has been very topsy turvy - so don't feel you are alone in your fear. I keep saying "It is what itis!" - my new mantra. Most days now, I am ok. but, every now and then - dealing with all the doctors and tests and the overload of information is just overwhelming - and I find myself crying again. It is getting better though.....those episodes are fewer and fewer. Hang in there....... say your prayers..... and reach out to your friends and family. Try to make them understand.. ...but, give them forgiveness if they don't. Tell them to go online and read about the disease..... that alone will be an eye opener for them.Take care and God Bless You, Myrlene BrownIPF 09/09 La Verne, CA>> Hang in there . We're still here listening .> PJ die> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Guys> > > sory I got off to a bad start in this group> > > I read all to the posts today, been several dayys since I read them> > > I too have no support here, nobody understands or wants to.> > > I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok.> > > I know you can't > > > I've always lived y the " one-day-at-a- time" thing but this seems different,.> > > I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 Hi , I understand what you are saying and sometimes when I'm overwhelmed with fear I have to take it moment by moment knowing this feeling or symptom is only temporary. C_53_Familial IPF_5/09Washington To: Breathe-Support Sent: Mon, November 23, 2009 2:46:30 PMSubject: die Guyssory I got off to a bad start in this groupI read all to the posts today, been several dayys since I read themI too have no support here, nobody understands or wants to.I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok.I know you can't I've always lived y the " one-day-at-a- time" thing but this seems different,.I'm scared, confused, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 , I have wanted to respond to you for days and could not find the words. I am at the mild stage and have a ways to go. However, I have peace about the final outcome, but do have anxiety about getting there. The disease process, supporting myself and keeping insured are my concerns. I wish I could give your some of my peace. Blessings, Gale To: Breathe-Support Sent: Sat, November 28, 2009 7:09:08 AMSubject: Re: die Hi , I understand what you are saying and sometimes when I'm overwhelmed with fear I have to take it moment by moment knowing this feeling or symptom is only temporary. C_53_Familial IPF_5/09Washington From: <johnsbatik (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Mon, November 23, 2009 2:46:30 PMSubject: die Guyssory I got off to a bad start in this groupI read all to the posts today, been several dayys since I read themI too have no support here, nobody understands or wants to.I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok.I know you can't I've always lived y the " one-day-at-a- time" thing but this seems different,.I'm scared, confused, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 Gale I have feelings not dissimilar to yours. I have no appreciable fear of death, but do have a fear of pain or suffering and did have anxiety about the logistical and financial path until I worked through it. But, I certainly don't ever want to diminish the fears others have. I think it shows how different we all are. So along the way we'll all have different feelings. I haven't experienced the anger towards the disease either but I do understand how others do. I think part of what we each feel is based on our past and part just based on us. Certainly a huge part of my acceptance is based on counseling I have received before the diagnosis and since. Thats a great thing about having so many of us here is that we do find the others who are feeling the emotions we are encountering. I'm glad everyone feels free to express all those emotions from the greatest fears to anxiety to peace. > > , > I have wanted to respond to you for days and could not find the words. I am at the mild stage and have a ways to go. However, I have peace about the final outcome, but do have anxiety about getting there. The disease process, supporting myself and keeping insured are my concerns. > I wish I could give your some of my peace. > Blessings, Gale > > > > > ________________________________ > From: worth hope2thend@... > To: Breathe-Support > Sent: Sat, November 28, 2009 7:09:08 AM > Subject: Re: die > >  > Hi , > I understand what you are saying and sometimes when I'm overwhelmed with fear I have to take it moment by moment knowing this feeling or symptom is only temporary. > C_53_Familial IPF_5/09 > Washington > > > > > > ________________________________ > From: johnsbatik (AT) yahoo (DOT) com> > To: Breathe-Support@ yahoogroups. com > Sent: Mon, November 23, 2009 2:46:30 PM > Subject: die > >  > Guys > sory I got off to a bad start in this group > I read all to the posts today, been several dayys since I read them > I too have no support here, nobody understands or wants to. > I have always feared death, My Mom died when I was 4 and I've been terrified since. I want you all to tell me it's gonna be ok. > I know you can't > I've always lived y the " one-day-at-a- time " thing but this seems different,. > I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2009 Report Share Posted November 29, 2009 Gale I really catn tell your a wonderful person <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Sat, November 28, 2009 8:11:09 PMSubject: Re: die GaleI have feelings not dissimilar to yours. I have no appreciable fear ofdeath, but do have a fear of pain or suffering and did have anxietyabout the logistical and financial path until I worked through it. But,I certainly don't ever want to diminish the fears others have. I thinkit shows how different we all are. So along the way we'll all havedifferent feelings. I haven't experienced the anger towards the diseaseeither but I do understand how others do. I think part of what we eachfeel is based on our past and part just based on us. Certainly a hugepart of my acceptance is based on counseling I have received before thediagnosis and since.Thats a great thing about having so many of us here is that we do findthe others who are feeling the emotions we are encountering. I'm gladeveryone feels free to express all those emotions from the greatestfears to anxiety to peace.>> ,> I have wanted to respond to you for days and could not find thewords. I am at the mild stage and have a ways to go. However,I have peace about the final outcome, but do have anxiety about gettingthere. The disease process, supporting myself and keeping insured are myconcerns.> I wish I could give your some of my peace.Â> Blessings, Gale>>>>> ____________ _________ _________ __> From: worth hope2thend@. ..> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 28, 2009 7:09:08 AM> Subject: Re: die>> Â> Hi ,> I understand what you are saying and sometimes when I'm overwhelmedwith fear I have to take it moment by moment knowing thisfeeling or symptom is only temporary.Â> C_53_Familial IPF_5/09> Washington>>>>>> ____________ _________ _________ __> From: johnsbatik (AT) yahoo (DOT) com>> To: Breathe-Support@ yahoogroups. com> Sent: Mon, November 23, 2009 2:46:30 PM> Subject: die>> Â> Guys> sory I got off to a bad start in this group> I read all to the posts today, been several dayys since I read them> I too have no support here, nobody understands or wants to.> I have always feared death, My Mom died when I was 4 and I've beenterrified since. I want you all to tell me it's gonna be ok.> I know you can't> I've always lived y the " one-day-at-a- time" thing but this seemsdifferent,.> I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2009 Report Share Posted November 29, 2009 I will treasure that complement, however, it is the love that flows from Him. To: Breathe-Support Sent: Sun, November 29, 2009 2:20:59 PMSubject: Re: Re: die Gale I really catn tell your a wonderful person <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT> From: Bruce <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Sat, November 28, 2009 8:11:09 PMSubject: Re: die GaleI have feelings not dissimilar to yours. I have no appreciable fear ofdeath, but do have a fear of pain or suffering and did have anxietyabout the logistical and financial path until I worked through it. But,I certainly don't ever want to diminish the fears others have. I thinkit shows how different we all are. So along the way we'll all havedifferent feelings. I haven't experienced the anger towards the diseaseeither but I do understand how others do. I think part of what we eachfeel is based on our past and part just based on us. Certainly a hugepart of my acceptance is based on counseling I have received before thediagnosis and since.Thats a great thing about having so many of us here is that we do findthe others who are feeling the emotions we are encountering. I'm gladeveryone feels free to express all those emotions from the greatestfears to anxiety to peace.>> ,> I have wanted to respond to you for days and could not find thewords. I am at the mild stage and have a ways to go. However,I have peace about the final outcome, but do have anxiety about gettingthere. The disease process, supporting myself and keeping insured are myconcerns.> I wish I could give your some of my peace.Â> Blessings, Gale>>>>> ____________ _________ _________ __> From: worth hope2thend@. ..> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 28, 2009 7:09:08 AM> Subject: Re: die>> Â> Hi ,> I understand what you are saying and sometimes when I'm overwhelmedwith fear I have to take it moment by moment knowing thisfeeling or symptom is only temporary.Â> C_53_Familial IPF_5/09> Washington>>>>>> ____________ _________ _________ __> From: johnsbatik (AT) yahoo (DOT) com>> To: Breathe-Support@ yahoogroups. com> Sent: Mon, November 23, 2009 2:46:30 PM> Subject: die>> Â> Guys> sory I got off to a bad start in this group> I read all to the posts today, been several dayys since I read them> I too have no support here, nobody understands or wants to.> I have always feared death, My Mom died when I was 4 and I've beenterrified since. I want you all to tell me it's gonna be ok.> I know you can't> I've always lived y the " one-day-at-a- time" thing but this seemsdifferent,.> I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2009 Report Share Posted November 29, 2009 way back in the fall of 2006, i think, i expressed my fear of dying more than death -- there was a flood of discussion about that at the time Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: dieTo: Breathe-Support Date: Saturday, November 28, 2009, 8:11 PM GaleI have feelings not dissimilar to yours. I have no appreciable fear ofdeath, but do have a fear of pain or suffering and did have anxietyabout the logistical and financial path until I worked through it. But,I certainly don't ever want to diminish the fears others have. I thinkit shows how different we all are. So along the way we'll all havedifferent feelings. I haven't experienced the anger towards the diseaseeither but I do understand how others do. I think part of what we eachfeel is based on our past and part just based on us. Certainly a hugepart of my acceptance is based on counseling I have received before thediagnosis and since.Thats a great thing about having so many of us here is that we do findthe others who are feeling the emotions we are encountering. I'm gladeveryone feels free to express all those emotions from the greatestfears to anxiety to peace.>> ,> I have wanted to respond to you for days and could not find thewords. I am at the mild stage and have a ways to go. However,I have peace about the final outcome, but do have anxiety about gettingthere. The disease process, supporting myself and keeping insured are myconcerns.> I wish I could give your some of my peace.Â> Blessings, Gale>>>>> ____________ _________ _________ __> From: worth hope2thend@. ..> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 28, 2009 7:09:08 AM> Subject: Re: die>> Â> Hi ,> I understand what you are saying and sometimes when I'm overwhelmedwith fear I have to take it moment by moment knowing thisfeeling or symptom is only temporary.Â> C_53_Familial IPF_5/09> Washington>>>>>> ____________ _________ _________ __> From: johnsbatik (AT) yahoo (DOT) com>> To: Breathe-Support@ yahoogroups. com> Sent: Mon, November 23, 2009 2:46:30 PM> Subject: die>> Â> Guys> sory I got off to a bad start in this group> I read all to the posts today, been several dayys since I read them> I too have no support here, nobody understands or wants to.> I have always feared death, My Mom died when I was 4 and I've beenterrified since. I want you all to tell me it's gonna be ok.> I know you can't> I've always lived y the " one-day-at-a- time" thing but this seemsdifferent,.> I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2009 Report Share Posted November 29, 2009 Amen, sister! C_53_Familial IPF_5/09Washington To: Breathe-support Sent: Sun, November 29, 2009 1:14:52 PMSubject: Re: Re: die I will treasure that complement, however, it is the love that flows from Him. From: Soulliere <johnsbatik (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, November 29, 2009 2:20:59 PMSubject: Re: Re: die Gale I really catn tell your a wonderful person <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT> From: Bruce <brucemoreland@ gmail..com>To: Breathe-Support@ yahoogroups. comSent: Sat, November 28, 2009 8:11:09 PMSubject: Re: die GaleI have feelings not dissimilar to yours. I have no appreciable fear ofdeath, but do have a fear of pain or suffering and did have anxietyabout the logistical and financial path until I worked through it. But,I certainly don't ever want to diminish the fears others have. I thinkit shows how different we all are. So along the way we'll all havedifferent feelings. I haven't experienced the anger towards the diseaseeither but I do understand how others do. I think part of what we eachfeel is based on our past and part just based on us. Certainly a hugepart of my acceptance is based on counseling I have received before thediagnosis and since.Thats a great thing about having so many of us here is that we do findthe others who are feeling the emotions we are encountering. I'm gladeveryone feels free to express all those emotions from the greatestfears to anxiety to peace.>> ,> I have wanted to respond to you for days and could not find thewords. I am at the mild stage and have a ways to go. However,I have peace about the final outcome, but do have anxiety about gettingthere. The disease process, supporting myself and keeping insured are myconcerns.> I wish I could give your some of my peace.Â> Blessings, Gale>>>>> ____________ _________ _________ __> From: worth hope2thend@. ..> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 28, 2009 7:09:08 AM> Subject: Re: die>> Â> Hi ,> I understand what you are saying and sometimes when I'm overwhelmedwith fear I have to take it moment by moment knowing thisfeeling or symptom is only temporary.Â> C_53_Familial IPF_5/09> Washington>>>>>> ____________ _________ _________ __> From: johnsbatik (AT) yahoo (DOT) com>> To: Breathe-Support@ yahoogroups. com> Sent: Mon, November 23, 2009 2:46:30 PM> Subject: die>> Â> Guys> sory I got off to a bad start in this group> I read all to the posts today, been several dayys since I read them> I too have no support here, nobody understands or wants to.> I have always feared death, My Mom died when I was 4 and I've beenterrified since. I want you all to tell me it's gonna be ok.> I know you can't> I've always lived y the " one-day-at-a- time" thing but this seemsdifferent,.> I'm scared, confused, > Quote Link to comment Share on other sites More sharing options...
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