Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 Hello, I want to thank you all for your quick support for a newbie. You are all truly courageous as you fight this awful disease. I saw a new pulm doc today, we looked at my most recent ct and agreed with my other pulm doc that there isn't substantial fibrosis on my lungs. I do have fluid around one and the other is trapped. That still doesn't make sense for my breathing issues. As in years past he brought up getting my heart checked and that with all the chemo I've had perhaps my heart has been damaged, ok, I can see that. So I am off to a cardio doc next week but I will keep up with the rehab and see what happens. I got the dx of PF from my other doc saying I have scarring and my original rehab needing a dx, all I could say was diaphragm and general weakness. But I just wanted to say thank you and wish you all well. If anything crazy happens I'll let you know. Dawn 43, Newtown Square, PA PF from radiation 07/2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2009 Report Share Posted November 23, 2009 Best of luck. Hope that it is not PF , fingers will be crossed for you. Take care,IPF/NSIP 08 NCSubject: actually not PF I guess?To: Breathe-Support Date: Monday, November 23, 2009, 11:01 PM Hello, I want to thank you all for your quick support for a newbie. You are all truly courageous as you fight this awful disease. I saw a new pulm doc today, we looked at my most recent ct and agreed with my other pulm doc that there isn't substantial fibrosis on my lungs. I do have fluid around one and the other is trapped. That still doesn't make sense for my breathing issues. As in years past he brought up getting my heart checked and that with all the chemo I've had perhaps my heart has been damaged, ok, I can see that. So I am off to a cardio doc next week but I will keep up with the rehab and see what happens. I got the dx of PF from my other doc saying I have scarring and my original rehab needing a dx, all I could say was diaphragm and general weakness. But I just wanted to say thank you and wish you all well. If anything crazy happens I'll let you know. Dawn 43, Newtown Square, PA PF from radiation 07/2008 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.