Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 My goodness i have more than 300 mails to read! Some days i dont have time to open my email everyday. Welcome to the new members! Dear friends, I had my Right Heart Cath yesterday and I got very good news. pressure was 25, which still withing the normal range, means i dont have Pulmonary hipertension!!! yeah!! I have been taking Tracleer for a about a year. Now that I know i dont have PH I dont need to take it anymore. Aparently my pulmonologist diagnosed me only using my PFT's, x-rays and Ct scans. She didnt request a RHC to confirm diagnosis. I went to see a PH specialist in New Orleans and he inmediately ordered that test because he says that was the only way to find out for sure if i had PH. Honestly I am not happy with my pulmonologist. She is been treating me for COPD, for my lungs I take only Advair and Pro-Air, for my scleroderma I take Cellcept. Reply to sender | Reply to group Messages in this topic (23) Recent Activity: New Members 6 New Photos 8 Visit Your Group Start a New Topic MARKETPLACE Parenting Zone: Your community resource for family and home Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Happy news ! Now you can have a Happy Thanksgiving! Congrats.Kathy IPF 10/09 Type 2 diabetes forever ago Reply to sender | Reply to group Messages in this topic (23) Recent Activity: New Members 6 New Photos 8 Visit Your Group Start a New Topic MARKETPLACE Parenting Zone: Your community resource for family and home Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 , that is awesome news! I had my RHC yesterday too and it was 30, so I too am in the normal range. I hope we hear from Sher soon and find out that hers too was in the norm. C_53_Familial IPF_5/09Washington To: Breathe-Support Sent: Tue, November 24, 2009 7:10:15 PMSubject: Re: No PH My goodness i have more than 300 mails to read! Some days i dont have time to open my email everyday. Welcome to the new members! Dear friends, I had my Right Heart Cath yesterday and I got very good news. pressure was 25, which still withing the normal range, means i dont have Pulmonary hipertension! !! yeah!! I have been taking Tracleer for a about a year. Now that I know i dont have PH I dont need to take it anymore. Aparently my pulmonologist diagnosed me only using my PFT's, x-rays and Ct scans. She didnt request a RHC to confirm diagnosis. I went to see a PH specialist in New Orleans and he inmediately ordered that test because he says that was the only way to find out for sure if i had PH. Honestly I am not happy with my pulmonologist. She is been treating me for COPD, for my lungs I take only Advair and Pro-Air, for my scleroderma I take Cellcept. Reply to sender | Reply to group Messages in this topic (23) Recent Activity: New Members 6 New Photos 8 Visit Your Group Start a New Topic MARKETPLACE Parenting Zone: Your community resource for family and home Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Congrats on the good news!! No PH is very good news. Geeta > > > > > > >  > > Reply to sender | Reply to group Messages in this topic (23) > Recent Activity: > > New Members 6 > New Photos 8 > Visit Your Group Start a New Topic > > MARKETPLACE > > > Parenting Zone: Your community resource for family and home > > Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009  ... I think you've already read my RHC shows Diastolic heart failure and mild to moderate PH. Doc says I can take meds for it... Glad yours was normal. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Re: No PH My goodness i have more than 300 mails to read! Some days i dont have time to open my email everyday. Welcome to the new members! Dear friends, I had my Right Heart Cath yesterday and I got very good news. pressure was 25, which still withing the normal range, means i dont have Pulmonary hipertension! !! yeah!! I have been taking Tracleer for a about a year. Now that I know i dont have PH I dont need to take it anymore. Aparently my pulmonologist diagnosed me only using my PFT's, x-rays and Ct scans. She didnt request a RHC to confirm diagnosis. I went to see a PH specialist in New Orleans and he inmediately ordered that test because he says that was the only way to find out for sure if i had PH. Honestly I am not happy with my pulmonologist. She is been treating me for COPD, for my lungs I take only Advair and Pro-Air, for my scleroderma I take Cellcept. Reply to sender | Reply to group Messages in this topic (23) Recent Activity: New Members 6 New Photos 8 Visit Your Group Start a New Topic MARKETPLACE Parenting Zone: Your community resource for family and home Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.