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[Guest guest]

,Welcome...sorry you need us, glad you found us. Glad you are going to National Jewish, I was just there the first week of November and I LOVED them all. If your saturation is dropping that low TURN YOUR OXYGEN UP! I'm on 2-3 liters sitting and 8 liters on moving. I drop like a rock the minute I move. You will be less tired if you raise your o2 levels to keep yourself above 90 when you are moving. Don't wait till someone says its ok. You know your body. It was funny at National Jewish the very first test I had was an arterial blood gas and then for some reason they walked me around on o2 (not a 6 minute walk) Even though I told the nurse I dropped like a rock she started me out on 3 liters. We barely made it 20 feet before I had to sit down. Another 20 feet on 4 liters, longer on 5, some more on 6. Finally she called the doctor and wanted to know if she should walk me on 8 or just believe me as it was getting late and I needed to get to my next test. They might be the experts but with an oximeter we can adjust our o2 needs as well as they can. You will love them there I guarentee it!Dyane,

54, Phoenix, IIP 02 now NSIP 09, Breast Cancer, Psoriasis,

Lipodermatosclerosis, Diabetes, and now a RA like autoimmune component,

yadda yadda yadda."Life is not a journey to the grave with

intentions of arriving is a pretty, well-preserved body, but rather to

skid in broadside, thoroughly used up, totally worn out, chocolate in

one hand, Margaritas in the other, loudly proclaiming "Holy **** What a

ride!".">> I'm a newbie too!! and I read almost everything at least everyday if not every other. But I do know how everyone feels with being tired all the time. I'm pretty tired of this already and was only diagnosed in July. But I see that this all comes with it, So I do rest when I can. Really tired after I work all day. Don't know how long I'm going to be able to do this as on O2 24/7 with out oxygen my O2 is maybe a 86 standing, now if I walk any it will drop to the mid 70's. Get to see a ILD doctors at National Jewish in Denver , unfortunately not until Feb 1. I feel it is really progressing fast which really s****. We will see what they say.>