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Cees -

I suspected sleep problems, but no doctor checked into it until I firmly planted

my feet and asked for it. When they finally tested me they did it with the

" prongs " (I was on 2 liters of oxygen at night) and found it threw off sleep

test results. So they tested without oxygen at night and found I would stop

breathing up to 50 times a minute and sometimes I would stop breathing for as

long as a minute and 50 seconds!! Then they tested me with a CPAP. It took 3

more weeks before I got my CPAP machine and then they did 3 more overnight tests

to fine-tune the CPAP settings. I sleep quite well now, thank you. I still

need an occasional afternoon nap (once a week or so), and I still wake up

occasionally during the night (dry mouth... even with the humidifier unit).

However,... I absolutely LOVE my CPAP machine and travel everywhere with it.

There are a few tricks to getting it through airport security quickly, but you

can call and find out how to do that. Good luck!!

Stefani

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

> >

> > Cees,

> >

> > I never thought I would be able to sleep with any type of mask as I have

claustraphobia pretty good, but because in the beginning I could feel the air

blowing on my face it was ok. I started out with nasel prongs, went to a full

face and ended up with a Fisher Paykel full face that just slips beflow my chin

because I'm a mouth breather. Now I can't sleep without it or I get the worst

sore throat from snoring. Bruce swears by the blue gel and I may try that

because they all leak, they all leave marks on your face, mine pushed on my

eyes, but its still way better than not breathing LOL. I had 92 apnea episodes

in 60 minutes broken up between sleep apneas, central apneas and shallow

breathing hypoxcemia. Never knew it. GOOD LUCK

> >

> > Dyane, 54, Phoenix, IIP 02 now NSIP 09, Breast Cancer, Psoriasis,

Lipodermatosclerosis, Diabetes, and now a RA like autoimmune component, yadda

yadda yadda.

> >

> >

> > " Life is not a journey to the grave with intentions of arriving is a pretty,

well-preserved body, but rather to skid in broadside, thoroughly used up,

totally worn out, chocolate in one hand, Margaritas in the other, loudly

proclaiming " Holy **** What a ride! " . "

> >

>

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Stefani,

Can you share tips on airport security with CPAP. I have not traveled with mine yet.

Phyllis

To: Breathe-Support Sent: Wed, November 25, 2009 5:52:58 AMSubject: Re: Sleep problems

Cees -I suspected sleep problems, but no doctor checked into it until I firmly planted my feet and asked for it. When they finally tested me they did it with the "prongs" (I was on 2 liters of oxygen at night) and found it threw off sleep test results. So they tested without oxygen at night and found I would stop breathing up to 50 times a minute and sometimes I would stop breathing for as long as a minute and 50 seconds!! Then they tested me with a CPAP. It took 3 more weeks before I got my CPAP machine and then they did 3 more overnight tests to fine-tune the CPAP settings. I sleep quite well now, thank you. I still need an occasional afternoon nap (once a week or so), and I still wake up occasionally during the night (dry mouth... even with the humidifier unit). However,... I absolutely LOVE my CPAP machine and travel everywhere with it. There are a few tricks to getting it through airport security quickly, but you can call and find out how

to do that. Good luck!!StefaniILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> >> > Cees,> > > > I never thought I would be able to sleep with any type of mask as I have claustraphobia pretty good, but because in the beginning I could feel the air blowing on my face it was ok. I started out with nasel prongs, went to a full face and ended up with a Fisher Paykel full face that just slips beflow my chin because I'm a mouth breather. Now I can't sleep without it or I get the worst sore throat from snoring. Bruce swears by the blue gel and I may try that because they all leak, they all leave marks on your face, mine pushed on my eyes, but its still way better than not breathing LOL. I had 92 apnea episodes in 60 minutes broken up between sleep apneas, central apneas and shallow

breathing hypoxcemia. Never knew it. GOOD LUCK> > > > Dyane, 54, Phoenix, IIP 02 now NSIP 09, Breast Cancer, Psoriasis, Lipodermatosclerosi s, Diabetes, and now a RA like autoimmune component, yadda yadda yadda.> > > > > > "Life is not a journey to the grave with intentions of arriving is a pretty, well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, chocolate in one hand, Margaritas in the other, loudly proclaiming "Holy **** What a ride!"."> >>

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