transplant eval

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When first diagnosed (march 06) i was referred to the transplant center just in case i would need one down the road

the evaluation was done (aug 06)

the results were too healthy for transplant, but would be a candidate if necessarry

the transplant doc used to see me every 6 months, then it changed to every 2 or 3 months

alternates with the pulmonary doc

since their offices are next to each other, they discuss my case when necessary

the point i am trying to make is that it is a good idea to go for a transplant consult as soon as possible

get the eval so that you know if you would be a candidate and

if there is a sudden change in your condition, you can be listed asap without having to go through the entire eval

hope this makes sense

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Hey Terre - Update on my statusTo: Breathe-Support Date: Thursday, November 26, 2009, 10:29 AM

DaveThe term thinking of a transplant can mean a lot of things. To someoneearly I think it can mean that one would consider it down the road, isgoing to start learning what they can about it, will check out possibletransplant centers, and while still healthy may even visit one to findout if they have any issues that need addressing before that time comes.While one won't go for listing early, that doesn't mean thinking can'tbe helpful. Just being aware of the logistics one would involve isimportant. For one who is outside the weight limits they would want, thesooner one can start losing the better for many reasons. For one withother conditions that may impact or at least need treatment andaddressing, they can work on that. I am personally not a transplantcandidate but I did and have thought about it and visited the nearesttransplant center and saw the doctors there a year and half

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