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since the numbers of centers for excellence has increased

i wonder

do the centers for excellence seek new members

or

do the new members seek the centers of excellence

to be added to their list

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org

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Pink

I think its a combination of both. There are various forms of Centers of

Excellence in many fields and different recognitions. Some of them are

simply recognitions and hospitals go after those diligently to have all

the " prestige " they can. Others, like the IPF Centers of Excellence

require more of the center. Actually the National Heart and Lung

Institute of the National Institutes of Health is also involved in

encouraging participating centers. To be an IPF Center of Excellence,

however, does require sharing of information, active participation in

coordinating with the other centers, and involvement in trials. It does

require some adaptation to the protocols established jointly as well. I

know that the heads and representatives of the Centers do have annual

meetings even.

There certainly has been an increase. I think mostly it has come from

Hospitals that did have ILD programs and by mutual choice they felt it

was valuable enough to be a part of the program to make the changes to

fully qualify while the existing Centers felt they would meet the

standards and both benefit from the program and contribute to it.

I do believe the sharing of knowledge to be so beneficial and am so glad

to see the increase. I hope the time comes there is a Center convenient

to everyone. I also hope by being part of the program those newer ones

will find their Centers to improve toward the levels of those who have

been involved for a long time. I would still personally favor some of

the older centers but I think the newer ones are committed and will

continue to raise their standards.

The number of practicing pulmonologists in each of these centers is

still a small number. UTSW here is a recent addition. They have a very

large Pulmonology area. They do transplants. But, they only have three

doctors dedicated to Interstitial Lung Diseases. Even if the average

nationwide is 4 Pulmonologists, that only gives you around 80 in the

entire nation. Still working as a group of 80 is better than being just

a group of 4.

>

> since the numbers of centers for excellence has increased

>

> i wonder

>

> do the centers for excellence seek new members

>

> or

>

> do the new members seek the centers of excellence

>

> to be added to their list

>

>

> Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

> Donate Life Listed 1/09 Inactive 4/09

> www.transplantfund.org

>

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