Guest guest Posted October 20, 2001 Report Share Posted October 20, 2001 In a message dated 10/19/2001 9:25:14 PM Central Daylight Time, saintsnsinners@... writes: > This all is so twerpy and a royal pain to boot. I am sure that the > office would never have called ME to tell me of her adjenda and I > have a consult date in Nov. for which I have been waiting for a > LOOOONG time! I know this may sound like sour grapes, but I had > started to think several days ago, that I wasn't totally sure I > wanted to have Lap surgery, after listening to and viewing many > lectures on the SAGES site, so I'm not as devastated as I could be. > In a way, this is just a confirmation of what my guts were telling > me!! > > I just want anyone who is in theis situation to know that I really feel for you. I would be devastated. They should call people who think they want the DS and let them know. Of course it sounds like she give them a big song and dance that the standard BPD is better when they get in there. The BPD is a good procedure if the DS was not developed. It is a further advancement that people should get if they want it. Dawn--South Suburban Chicago area Dr. Hess, Bowling Green, OH BPD/DS 4/27/00 www.duodenalswitch.com 267 to 165 5' 4 " size 22 to size 10 have made size goal no more high blood pressure, sore feet, or dieting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2001 Report Share Posted October 20, 2001 Dawn, Thanks so much for the understanding and support. I am trying really hard to think outside the box at this point and I'm praying a lot!!! Kathy in Arlington > > I just want anyone who is in theis situation to know that I really feel for > you. I would be devastated. They should call people who think they want the > DS and let them know. Of course it sounds like she give them a big song and > dance that the standard BPD is better when they get in there. The BPD is a > good procedure if the DS was not developed. It is a further advancement that > people should get if they want it. > > Dawn--South Suburban Chicago area > Dr. Hess, Bowling Green, OH > BPD/DS > 4/27/00 > www.duodenalswitch.com > 267 to 165 5' 4 " > size 22 to size 10 > have made size goal > no more high blood pressure, sore feet, or dieting > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 Kathy, Unfortunately I'm not personally familiar with either hospital. Looking briefly at their websites though is kind of enlightening. Based on that very brief look it would seem that U of Iowa has a good size pulmononlgy and critical care dept, ILD specialists and even a pulmonary rehab program. At Creighton they've got only one pulmonologist listed as having ILD's as a clinical interest. That would not make me comfortable. My inclination based on that would be to investigate U of Iowa further. Hope that helps! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Fri, November 27, 2009 5:03:31 PMSubject: Re: Re: Hey Terre - Update on my status Beth,I don't know if you know anything about the U of Iowa or Creighton University in Omaha, but my PCP recommended them to me since we are moving to Iowa in the beginning of next year.Kathy IPF 10/09 Type 2 diabetes forever ago From: davegreg11 <davegreg11 (AT) yahoo (DOT) com>Subject: Re: Hey Terre - Update on my statusTo: Breathe-Support@ yahoogroups. comDate: Thursday, November 26, 2009, 10:54 AM Hi,You have 3 places in your area, University of Rochester (Rochester, NY) , Cornell University (Manhattan), University of Penn. (Philadelphia) - they all have special departments for ILD.You should know your scores, ect. You need to take control of your care, because as soon as you leave the Dr.'s office they are already onto the next patient. Your need to keep records of every Dr. visit and what was said, keep copies of all your test results and know how to read them, ask questions about anything and everything, explore the internet, and use this group as a resource.You have to get past the intial shock and fight this. It sucks for all of us, and I am still upset, but I have no other choice. Dave> > > > >> > > > > > > > > > Hello all> > > > >  > > > > > Just wanted to let you know that tomorrow morning Dr. Dan Rose, President of the Pulmonary Fibrosis Foundation and Krysten Knievel will be on the Doctor Radio Show being interviewed by Dr. Fred Feit on Sirius and XM Satellite Radio - > > > > >  > > > > > Wednesday November 25 6AM EST - 7AM EST> > > > > The show will air live on Sirius channel 114 and XM channel 119. The show will repeat at 4PM EST that same day> > > > >  > > > > > Please call in with questions:> > > > > 877-NYU-DOCS 877-NYU-DOCS 877-NYU-DOCS 877-NYU-DOCS ( )> > > > >  > > > > > You can sign up for a free 7-day trial if you are interested in hearing the interview:> > > > > http://www.sirius. / com/freetrial/ register> > > > >  > > > > > We hope you will be able to tune into the Doctor Radio show....> > > > >  > > > > > > > > > > > > > > >  > > > > > Leanne Storch> > > > > Executive Director> > > > > Pulmonary Fibrosis Foundation> > > > > 1332 N.. Halsted, Suite 201> > > > > Chicago, IL 60642-2642> > > > > www.pulmonaryfibros is.org> > > > > Join our Facebook Community> > > > > http://www.facebook ..com/PulmonaryF ibrosisFoundatio n> > > > > P> > > > > F> > > > >  > > > > >  A cure is just a breath away > > > > >   > > > > > > > > > >  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 Beth,Thanks for the research and info. U of Iowa here I come.Kathy IPF 10/09 Type 2 diabetes forever ago From: davegreg11 <davegreg11 (AT) yahoo (DOT) com>Subject: Re: Hey Terre - Update on my statusTo: Breathe-Support@ yahoogroups. comDate: Thursday, November 26, 2009, 10:54 AM Hi,You have 3 places in your area, University of Rochester (Rochester, NY) , Cornell University (Manhattan), University of Penn. (Philadelphia) - they all have special departments for ILD.You should know your scores, ect. You need to take control of your care, because as soon as you leave the Dr.'s office they are already onto the next patient. Your need to keep records of every Dr. visit and what was said, keep copies of all your test results and know how to read them, ask questions about anything and everything, explore the internet, and use this group as a resource.You have to get past the intial shock and fight this. It sucks for all of us, and I am still upset, but I have no other choice. Dave> > > > >> > > > > > > > > > Hello all> > > > >  > > > > > Just wanted to let you know that tomorrow morning Dr. Dan Rose, President of the Pulmonary Fibrosis Foundation and Krysten Knievel will be on the Doctor Radio Show being interviewed by Dr. Fred Feit on Sirius and XM Satellite Radio - > > > > >  > > > > > Wednesday November 25 6AM EST - 7AM EST> > > > > The show will air live on Sirius channel 114 and XM channel 119. The show will repeat at 4PM EST that same day> > > > >  > > > > > Please call in with questions:> > > > > 877-NYU-DOCS 877-NYU-DOCS 877-NYU-DOCS 877-NYU-DOCS ( )> > > > >  > > > > > You can sign up for a free 7-day trial if you are interested in hearing the interview:> > > > > http://www.sirius. / com/freetrial/ register> > > > >  > > > > > We hope you will be able to tune into the Doctor Radio show....> > > > >  > > > > > > > > > > > > > > >  > > > > > Leanne Storch> > > > > Executive Director> > > > > Pulmonary Fibrosis Foundation> > > > > 1332 N.. Halsted, Suite 201> > > > > Chicago, IL 60642-2642> > > > > www.pulmonaryfibros is.org> > > > > Join our Facebook Community> > > > > http://www.facebook ..com/PulmonaryF ibrosisFoundatio n> > > > > P> > > > > F> > > > >  > > > > >  A cure is just a breath away > > > > >   > > > > > > > > > >  Quote Link to comment Share on other sites More sharing options...
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