Re: Re: Temple vs Penn

[Guest guest]

,

I know Temple is not on the center for Excellence, but my understanding is that they have doctors who are well informed. I believe Beth said that not all good hospitals were listed as a center of excellence. I saw that one new member was going to Temple and then changed to Penn and I was curious but never heard her reason for the change. If you know anything about Temple I'd like to knowAB

To: Breathe-Support Sent: Thu, November 26, 2009 2:22:09 PMSubject: Re: Re: Hey Terre - Update on my status

Pink..Temple is not on the centers for Excellence list!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Joyce T Rosenberg wrote:

Temple University in Philadelphia is another excellent center for ILD's and lung transplants

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: davegreg11 <davegreg11 (AT) yahoo (DOT) com>Subject: Re: Hey Terre - Update on my statusTo: Breathe-Support@ yahoogroups. comDate: Thursday, November 26, 2009, 10:54 AM

Hi,You have 3 places in your area, University of Rochester (Rochester, NY) , Cornell University (Manhattan), University of Penn. (Philadelphia) - they all have special departments for ILD.You should know your scores, ect. You need to take control of your care, because as soon as you leave the Dr.'s office they are already onto the next patient. Your need to keep records of every Dr. visit and what was said, keep copies of all your test results and know how to read them, ask questions about anything and everything, explore the internet, and use this group as a resource.You have to get past the intial shock and fight this. It sucks for all of us, and I am still upset, but I have no other choice. Dave> > > > >> > > > > > > > > > Hello all> > > > >  > > > > > Just wanted to let you know that tomorrow morning Dr. Dan Rose, President of the Pulmonary Fibrosis Foundation and Krysten Knievel will be on the Doctor Radio Show being interviewed by Dr. Fred Feit on Sirius and XM Satellite Radio - > > > > >  > > > > > Wednesday November 25 6AM EST - 7AM EST> > > > > The show will air live on Sirius channel 114 and XM channel 119. The show will repeat at 4PM EST that same day> > > > >  > > > > > Please call in with questions:> > > > > 877-NYU-DOCS ()> > > > >  > > > > > You can sign up for a free 7-day trial if you are

interested in hearing the interview:> > > > > http://www.sirius./ com/freetrial/ register> > > > >  > > > > > We hope you will be able to tune into the Doctor Radio show....> > > > >  > > > > > > > > > > > > > > >  > > > > > Leanne Storch> > > > > Executive Director> > > > > Pulmonary Fibrosis Foundation> > > > > 1332 N.. Halsted, Suite 201> > > > > Chicago, IL 60642-2642> > > > > www.pulmonaryfibros is.org> > > > > Join our Facebook Community> > > > >

http://www.facebook..com/PulmonaryFibrosisFoundation> > > > > P> > > > > F> > > > >  > > > > >  A cure is just a breath away > > > > >   > > > > > > > > > > ÂÂ