Re: Hey All - I have a bad cold, what to do??

[Guest guest]

dave

you are doing the right thing by seeing a doctor

with pf it is important to nip it -- the cold -- in the bud

you want to prevent pneumonia

i bring copies of all the pulmonary's papers with me to the primary -- pft's, 6 min walks

also, my pulmonary sends letters to the primary

he is the one doc who gets copies of everything

he is the only doc who looks at the entire body, not just the lungs, not just the GI tract, etc

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Hey All - I have a bad cold, what to do??To: Breathe-Support Date: Monday, November 30, 2009, 10:30 AM

Hey guys,Now that I got my official DX from Biopsy of UIP/IPF a couple of weeks ago I guess that puts me in a new ballpark. For the past year it was a maybe as my Pulmo. doctor always thought it was caused by some other disease, ie. auto-immune disease, sensitivity disease, ect..Question, got a bad called over the weekend. Usual stuff - sore throat, runny nose, cough, low grade fever, ect. As this is the first time I have been sick sick in the past year I need a little advise. I am treating this as I always have when I had a cold. Is there anything I should do different now that I have PF? Is there anything I should watch out for now that I have PF? I made an appointment with my primary Dr. for tomorrow to get checked out and to also fill him in on my DX and to update him on what has been going on.I assume that when I get sick I will see my Primary as my Pulmo. only sees patients once a week, as she is doing trials, teaching,

ect. My primary and my pulmo. have not really talked about my condition, ect. I assume they should call each other and talk about how I will be cared for.Any thoughts.... . Thanks, Dave, Miami, 43, UIP/IPF

[Guest guest]

Dave

Use common sense. You can check some drug interactions at the AARP website

(health). Make sure your pulmo knows about all of the regular stuff, and your

GP/regular doctor knows all about the PF stuff. I have a traveling folder that

I take with me to all of my doctors that lists all medications /

over-the-counter stuff (to check for interactions), current treatments/programs

(just completed pulmonary rehab), and list of vaccinations dates (shingles,

pneumonia, flu and swine flu). I make sure each doctor has the contact

information of the other doctors as I never know if a medical emergency might

arise where I am not able to speak for myself. It is called " being an active

self advocate " . Know as much as you can and make sure the other parties are

aware as well. Sometimes the doctors offices / county health departments /

treatment facility or rehab programs do not forward the important information in

a timely manner.

Stefani 61 year old Utahn (transplant from MN)

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

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> Subject: Hey All - I have a bad cold, what to do??

> To: Breathe-Support

> Date: Monday, November 30, 2009, 10:30 AM

>

>

>  

>

>

>

> Hey guys,

>

> Now that I got my official DX from Biopsy of UIP/IPF a couple of weeks ago I

guess that puts me in a new ballpark. For the past year it was a maybe as my

Pulmo. doctor always thought it was caused by some other disease, ie.

auto-immune disease, sensitivity disease, ect..

>

> Question, got a bad called over the weekend. Usual stuff - sore throat, runny

nose, cough, low grade fever, ect. As this is the first time I have been sick

sick in the past year I need a little advise. I am treating this as I always

have when I had a cold. Is there anything I should do different now that I have

PF? Is there anything I should watch out for now that I have PF? I made an

appointment with my primary Dr. for tomorrow to get checked out and to also fill

him in on my DX and to update him on what has been going on.

>

> I assume that when I get sick I will see my Primary as my Pulmo. only sees

patients once a week, as she is doing trials, teaching, ect. My primary and my

pulmo. have not really talked about my condition, ect. I assume they should call

each other and talk about how I will be cared for.

>

> Any thoughts.... . Thanks, Dave, Miami, 43, UIP/IPF

>

[Guest guest]

Stefani

I also carry a list of scripts.........everything encludi8ng asprin and juice.

Each Dr has one and one in my wallet......have done this for several years. ya never know.

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Mon, November 30, 2009 3:55:49 PMSubject: Re: Hey All - I have a bad cold, what to do??

Dave Use common sense. You can check some drug interactions at the AARP website (health). Make sure your pulmo knows about all of the regular stuff, and your GP/regular doctor knows all about the PF stuff. I have a traveling folder that I take with me to all of my doctors that lists all medications / over-the-counter stuff (to check for interactions) , current treatments/programs (just completed pulmonary rehab), and list of vaccinations dates (shingles, pneumonia, flu and swine flu). I make sure each doctor has the contact information of the other doctors as I never know if a medical emergency might arise where I am not able to speak for myself. It is called "being an active self advocate". Know as much as you can and make sure the other parties are aware as well. Sometimes the doctors offices / county health departments / treatment facility or rehab programs do not forward the important information in a timely manner.Stefani 61 year

old Utahn (transplant from MN)ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> > > From: davegreg11 <davegreg11@ ...>> Subject: Hey All - I have a bad cold, what to do??> To: Breathe-Support@ yahoogroups. com> Date: Monday, November 30, 2009, 10:30 AM> > > Â > > > > Hey guys,> > Now that I got my official DX from Biopsy of UIP/IPF a couple of weeks ago I guess that puts me in a new ballpark. For the past year it was a maybe as my Pulmo. doctor always thought it was caused by some other disease, ie. auto-immune disease, sensitivity disease, ect..> >

Question, got a bad called over the weekend. Usual stuff - sore throat, runny nose, cough, low grade fever, ect. As this is the first time I have been sick sick in the past year I need a little advise. I am treating this as I always have when I had a cold. Is there anything I should do different now that I have PF? Is there anything I should watch out for now that I have PF? I made an appointment with my primary Dr. for tomorrow to get checked out and to also fill him in on my DX and to update him on what has been going on.> > I assume that when I get sick I will see my Primary as my Pulmo. only sees patients once a week, as she is doing trials, teaching, ect. My primary and my pulmo. have not really talked about my condition, ect. I assume they should call each other and talk about how I will be cared for.> > Any thoughts.... . Thanks, Dave, Miami, 43, UIP/IPF>