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, good to hear from you BUT not about your BIG HOUSE visit.. OUCHHHH.. on the chest tube and all that.I am headed to bed. Welcome back and you GO girl and do everything your big enough... Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." I've been away with busy stuff again. This is me checking back in with yet another one of those stories. So I've been in the big house again. I blew out a lung like an old tire. Pneumothorax and all that, chest tube for which I was actually grateful, you get the picture. So anyway, who knew fibrotic spots could do that? I didn't get that memo. It was not in the instruction manual for "How to have lung disease". So the other good news is that now that it has happened, it could easily happen again. BUT the good news is my better lung has already compensated for its evil twin not working so well. My sats never even dropped. Had it not been for the chest pain and the darn thing flopping around in my chest I might not have noticed anything wrong. How weird is that? But we know for sure I have the heart of a lion. I actually saw it beating in the echo. Looked like a lion actually. That's my story and I'm sticking to it. Jerry I'm glad your eye is better. So we are Skyping now? Very interesting... I did not read very far back in the postings so what's new peeps? I have been thinking about you guys even though I have not been physically around. I hope everybody is having a really pleasant day. It has been a cool gray fall day here. I had an adventure and went out for a haircut today. I get to go to work again on Monday, for which I am also grateful. So this is me going on with life again. S, Lubbock, TX NSIP w/PF 12/2006 et al

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Thanks Peggy!

Up until this point my mission in life was never to have another chest tube.

Now my mission is to remember to be grateful for them.

S

>

> I've been away with busy stuff again. This is me checking back in

> with yet another one of those stories.

>

> So I've been in the big house again. I blew out a lung like an old

> tire. Pneumothorax and all that, chest tube for which I was actually

> grateful, you get the picture.

> So anyway, who knew fibrotic spots could do that? I didn't get that

> memo. It was not in the instruction manual for " How to have lung

> disease " . So the other good news is that now that it has happened, it

> could easily happen again. BUT the good news is my better lung has

> already compensated for its evil twin not working so well. My sats

> never even dropped. Had it not been for the chest pain and the darn

> thing flopping around in my chest I might not have noticed anything

> wrong. How weird is that? But we know for sure I have the heart of a

> lion. I actually saw it beating in the echo. Looked like a lion

> actually. That's my story and I'm sticking to it.

>

> Jerry I'm glad your eye is better. So we are Skyping now? Very

> interesting... I did not read very far back in the postings so what's

> new peeps? I have been thinking about you guys even though I have not

> been physically around.

>

> I hope everybody is having a really pleasant day. It has been a cool

> gray fall day here. I had an adventure and went out for a haircut

> today. I get to go to work again on Monday, for which I am also

> grateful. So this is me going on with life again.

>

> S, Lubbock, TX

> NSIP w/PF 12/2006 et al

>

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Glad you're out even though never knew you were in. Guess I'm going to

have to tell Lizabeth she's in my doghouse for that....lol

As to the collapsed lung I did have a friend years ago with that

problem. He'd had it for decades and while the bad part was it

periodically happening, the good news was that he could feel it coming

and would get it repaired and back going with relative ease each time.

Hopefully in your case it will not recur.

>

> I've been away with busy stuff again. This is me checking back in

with yet another one of those stories.

>

> So I've been in the big house again. I blew out a lung like an old

tire. Pneumothorax and all that, chest tube for which I was actually

grateful, you get the picture.

> So anyway, who knew fibrotic spots could do that? I didn't get that

memo. It was not in the instruction manual for " How to have lung

disease " . So the other good news is that now that it has happened, it

could easily happen again. BUT the good news is my better lung has

already compensated for its evil twin not working so well. My sats

never even dropped. Had it not been for the chest pain and the darn

thing flopping around in my chest I might not have noticed anything

wrong. How weird is that? But we know for sure I have the heart of a

lion. I actually saw it beating in the echo. Looked like a lion

actually. That's my story and I'm sticking to it.

>

> Jerry I'm glad your eye is better. So we are Skyping now? Very

interesting... I did not read very far back in the postings so what's

new peeps? I have been thinking about you guys even though I have not

been physically around.

>

> I hope everybody is having a really pleasant day. It has been a cool

gray fall day here. I had an adventure and went out for a haircut

today. I get to go to work again on Monday, for which I am also

grateful. So this is me going on with life again.

>

> S, Lubbock, TX

> NSIP w/PF 12/2006 et al

>

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,

Wow, you have been a busy girl haven't you? I'm so sorry that you went through this and good Lord I hope it never happens again. Chest tubes are horrible, painful and just plain evil and thanks be to God they work when we need them to right?

Please look after yourself!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wed, October 7, 2009 10:40:59 PMSubject: Hi all

I've been away with busy stuff again. This is me checking back in with yet another one of those stories.So I've been in the big house again. I blew out a lung like an old tire. Pneumothorax and all that, chest tube for which I was actually grateful, you get the picture.So anyway, who knew fibrotic spots could do that? I didn't get that memo. It was not in the instruction manual for "How to have lung disease". So the other good news is that now that it has happened, it could easily happen again. BUT the good news is my better lung has already compensated for its evil twin not working so well. My sats never even dropped. Had it not been for the chest pain and the darn thing flopping around in my chest I might not have noticed anything wrong. How weird is that? But we know for sure I have the heart of a lion. I actually saw it beating in the echo. Looked like a lion actually. That's my story and I'm sticking to it.Jerry I'm glad your

eye is better. So we are Skyping now? Very interesting. .. I did not read very far back in the postings so what's new peeps? I have been thinking about you guys even though I have not been physically around.I hope everybody is having a really pleasant day. It has been a cool gray fall day here. I had an adventure and went out for a haircut today. I get to go to work again on Monday, for which I am also grateful. So this is me going on with life again. S, Lubbock, TXNSIP w/PF 12/2006 et al

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glad you recovered from your ordeal

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Hi allTo: Breathe-Support Date: Wednesday, October 7, 2009, 10:40 PM

I've been away with busy stuff again. This is me checking back in with yet another one of those stories.So I've been in the big house again. I blew out a lung like an old tire. Pneumothorax and all that, chest tube for which I was actually grateful, you get the picture.So anyway, who knew fibrotic spots could do that? I didn't get that memo. It was not in the instruction manual for "How to have lung disease". So the other good news is that now that it has happened, it could easily happen again. BUT the good news is my better lung has already compensated for its evil twin not working so well. My sats never even dropped. Had it not been for the chest pain and the darn thing flopping around in my chest I might not have noticed anything wrong. How weird is that? But we know for sure I have the heart of a lion. I actually saw it beating in the echo. Looked like a lion actually. That's my story and I'm sticking to it.Jerry I'm glad

your eye is better. So we are Skyping now? Very interesting. .. I did not read very far back in the postings so what's new peeps? I have been thinking about you guys even though I have not been physically around.I hope everybody is having a really pleasant day. It has been a cool gray fall day here. I had an adventure and went out for a haircut today. I get to go to work again on Monday, for which I am also grateful. So this is me going on with life again. S, Lubbock, TXNSIP w/PF 12/2006 et al

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S...I caught this post to you from Peggy. I'm sure sorry to hear about the 'big house' ordeal. So what's next?? How does one "blow a lung"?

Do be good to you and surround yourself with those who will do likewise...good to you.

Hugs.

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Re: Hi all

, good to hear from you BUT not about your BIG HOUSE visit.. OUCHHHH.. on the chest tube and all that.

I am headed to bed. Welcome back and you GO girl and do everything your big enough...

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

I've been away with busy stuff again. This is me checking back in with yet another one of those stories.So I've been in the big house again. I blew out a lung like an old tire. Pneumothorax and all that, chest tube for which I was actually grateful, you get the picture.So anyway, who knew fibrotic spots could do that? I didn't get that memo. It was not in the instruction manual for "How to have lung disease". So the other good news is that now that it has happened, it could easily happen again. BUT the good news is my better lung has already compensated for its evil twin not working so well. My sats never even dropped. Had it not been for the chest pain and the darn thing flopping around in my chest I might not have noticed anything wrong. How weird is that? But we know for sure I have the heart of a lion. I actually saw it beating in the echo. Looked like a lion actually. That's my story and I'm sticking to it.Jerry I'm glad your eye is better. So we are Skyping now? Very interesting... I did not read very far back in the postings so what's new peeps? I have been thinking about you guys even though I have not been physically around.I hope everybody is having a really pleasant day. It has been a cool gray fall day here. I had an adventure and went out for a haircut today. I get to go to work again on Monday, for which I am also grateful. So this is me going on with life again. S, Lubbock, TXNSIP w/PF 12/2006 et al

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  • 1 month later...

Hi group, Well I am posting from the home page.. LOL I think I told you

changed our server-SMACK-WELL now I have my beautiful new puter and NONE of my

passwords.. NO I didn't write them down.. GGGGGGRRRRRRRR SOOOOOOO I will start

tomorrow going through ALL my programs that require a password and get them

straight. We have had company since last Wed and I am totally pooped.

I have only had one shot (morphine is served in a shot glass mixed with tea)

today. I am still doing well but am tired. I so relate with Joyce R and the

others that are tired 24/7.. By bedtime I feel like I have been digging ditches.

I must say it is hard to keep everyone under control from " control central " (my

recliner) but they are all doing so well, my life sure would have been easier 20

years ago had they listened to me like now.. LOL I wouldn't change a thing.

Have a good week. I am going to get my mail fixed this week.

Love & Prayers to ALL.

Peggy, Fl., IPF 2004

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Hi Peggy,

WOW what terrible news about your grand daughter. I will definitely keep her in

my prayers and of course, you too.-

nne, ILD 6/09, Sjogren's,Raynaud's,plymyolitis 11/09

>

> Well I know things have been so heart breaking for me lately, my spirit has

> been hazy.. I think the ol' devil is after my soul and my family.

>

> My 14 year old twin grand-daughter has been tested this past few weeks for

> kidney problems. They had taken an x-ray for the curvature in her spine,

> which they will ck again in 6 months but they saw a problem with her kidney.

> This what my daughter sent me.

>

> We saw the nephrologist today and basically Amber has one working kidney her

> left . She said this is fine as long as its working ok. We have to watch

> Amber's salt intake, protein, no contact sports, no flipping nothing that

> can hurt that kidney or her spleen, no ibuprofen Tylenol only. Must push

> fluids (like we all already do) She gave Amber a note so she can drink

> freely at school. She did blood work and will have the results on Monday.

> Will see amber again in 6 months unless there is a problem such as high

> blood pressure or UTI. Oh and no more pickle juice!!

>

> this child is the wild one. NEVER still. Can cook and clean like any woman

> and has since she was tiny. Was a cheer leader until all this started. I do

> not know how they will ever keep her from running jumping. Please please

> pray for her. (me too)

>

> This year has been such a trial but I KNOW God will be here for us. I Praise

> Him in ALL things.

> I know this post isn't what we're here for but I know I have support here

> and really need it right now. You are all wonderful.. Thanks, Love and

> Prayers, Peggy

>

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Peggy

sorry to hear about your granddaughter

people do live full lives with one kidney

she needs to keep that kidney healthy

amber will be in my thoughts

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Hi AllTo: Breathe-Support Date: Monday, November 30, 2009, 12:19 PM

Hi Peggy,WOW what terrible news about your grand daughter. I will definitely keep her in my prayers and of course, you too.- nne, ILD 6/09, Sjogren's,Raynaud' s,plymyolitis 11/09>> Well I know things have been so heart breaking for me lately, my spirit has> been hazy.. I think the ol' devil is after my soul and my family.> > My 14 year old twin grand-daughter has been tested this past few weeks for> kidney problems. They had taken an x-ray for the curvature in her spine,> which they will ck again in 6 months but they saw a problem with her kidney.> This what my daughter sent me.> > We saw the nephrologist today and

basically Amber has one working kidney her> left . She said this is fine as long as its working ok. We have to watch> Amber's salt intake, protein, no contact sports, no flipping nothing that> can hurt that kidney or her spleen, no ibuprofen Tylenol only. Must push> fluids (like we all already do) She gave Amber a note so she can drink> freely at school. She did blood work and will have the results on Monday.> Will see amber again in 6 months unless there is a problem such as high> blood pressure or UTI. Oh and no more pickle juice!!> > this child is the wild one. NEVER still. Can cook and clean like any woman> and has since she was tiny. Was a cheer leader until all this started. I do> not know how they will ever keep her from running jumping. Please please> pray for her. (me too)> > This year has been such a trial but I KNOW God will be here for us. I

Praise> Him in ALL things.> I know this post isn't what we're here for but I know I have support here> and really need it right now. You are all wonderful.. Thanks, Love and> Prayers, Peggy>

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Peggy/Pink

I'm sorry to hear about her too but I'm hoping they will get things

under control and treat appropriately and then she'll be able to return

to a full life.

When I read Joyce's statement re: people living full lives with one

kidney, it reminded me of my mother. She had a quadruple heart bypass in

1969 and later some complications and time in Intensive Care and heavy

cortisone and hallucinations. But somewhere along the way they said

something to her about having only one kidney and she accused them of

leaving it out on the table during surgery. She had only one and had

apparently always had just one but never knew it until then. So not only

did she do fine with one, she never even was aware. Sure had fewer

problems than the woman who lived behind us who had four.

> >

> > Well I know things have been so heart breaking for me lately, my

spirit has

> > been hazy.. I think the ol' devil is after my soul and my family.

> >

> > My 14 year old twin grand-daughter has been tested this past few

weeks for

> > kidney problems. They had taken an x-ray for the curvature in her

spine,

> > which they will ck again in 6 months but they saw a problem with her

kidney.

> > This what my daughter sent me.

> >

> > We saw the nephrologist today and basically Amber has one working

kidney her

> > left . She said this is fine as long as its working ok. We have to

watch

> > Amber's salt intake, protein, no contact sports, no flipping nothing

that

> > can hurt that kidney or her spleen, no ibuprofen Tylenol only. Must

push

> > fluids (like we all already do) She gave Amber a note so she can

drink

> > freely at school. She did blood work and will have the results on

Monday.

> > Will see amber again in 6 months unless there is a problem such as

high

> > blood pressure or UTI. Oh and no more pickle juice!!

> >

> > this child is the wild one. NEVER still. Can cook and clean like any

woman

> > and has since she was tiny. Was a cheer leader until all this

started. I do

> > not know how they will ever keep her from running jumping. Please

please

> > pray for her. (me too)

> >

> > This year has been such a trial but I KNOW God will be here for us.

I Praise

> > Him in ALL things.

> > I know this post isn't what we're here for but I know I have support

here

> > and really need it right now. You are all wonderful.. Thanks, Love

and

> > Prayers, Peggy

> >

>

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Yeah, will add to my list as well. I have always done the prayer list. Can't

hurt, and it reminds me of those I care about. Know the prayer is there.

Stefani 61 year old Utahn (transplant from MN)

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

> >

> > Well I know things have been so heart breaking for me lately, my spirit has

> > been hazy.. I think the ol' devil is after my soul and my family.

> >

> > My 14 year old twin grand-daughter has been tested this past few weeks for

> > kidney problems. They had taken an x-ray for the curvature in her spine,

> > which they will ck again in 6 months but they saw a problem with her kidney.

> > This what my daughter sent me.

> >

> > We saw the nephrologist today and basically Amber has one working kidney her

> > left . She said this is fine as long as its working ok. We have to watch

> > Amber's salt intake, protein, no contact sports, no flipping nothing that

> > can hurt that kidney or her spleen, no ibuprofen Tylenol only. Must push

> > fluids (like we all already do) She gave Amber a note so she can drink

> > freely at school. She did blood work and will have the results on Monday.

> > Will see amber again in 6 months unless there is a problem such as high

> > blood pressure or UTI. Oh and no more pickle juice!!

> >

> > this child is the wild one. NEVER still. Can cook and clean like any woman

> > and has since she was tiny. Was a cheer leader until all this started. I do

> > not know how they will ever keep her from running jumping. Please please

> > pray for her. (me too)

> >

> > This year has been such a trial but I KNOW God will be here for us. I Praise

> > Him in ALL things.

> > I know this post isn't what we're here for but I know I have support here

> > and really need it right now. You are all wonderful.. Thanks, Love and

> > Prayers, Peggy

> >

>

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Peggy,I'm so so sorry abou your granddanughter. And this is too a place for things like that. Remember. we are an Air Family! Again, my thoughts are with you for your granddaughter.Kathy IPF 10/09 Type 2 diabetes forever agoSubject: Re: Hi AllTo: Breathe-Support Date: Monday, November 30, 2009, 9:19 AM

Hi Peggy,

WOW what terrible news about your grand daughter. I will definitely keep her in my prayers and of course, you too.-

nne, ILD 6/09, Sjogren's,Raynaud' s,plymyolitis 11/09

>

> Well I know things have been so heart breaking for me lately, my spirit has

> been hazy.. I think the ol' devil is after my soul and my family.

>

> My 14 year old twin grand-daughter has been tested this past few weeks for

> kidney problems. They had taken an x-ray for the curvature in her spine,

> which they will ck again in 6 months but they saw a problem with her kidney.

> This what my daughter sent me.

>

> We saw the nephrologist today and basically Amber has one working kidney her

> left . She said this is fine as long as its working ok. We have to watch

> Amber's salt intake, protein, no contact sports, no flipping nothing that

> can hurt that kidney or her spleen, no ibuprofen Tylenol only. Must push

> fluids (like we all already do) She gave Amber a note so she can drink

> freely at school. She did blood work and will have the results on Monday.

> Will see amber again in 6 months unless there is a problem such as high

> blood pressure or UTI. Oh and no more pickle juice!!

>

> this child is the wild one. NEVER still. Can cook and clean like any woman

> and has since she was tiny. Was a cheer leader until all this started. I do

> not know how they will ever keep her from running jumping. Please please

> pray for her. (me too)

>

> This year has been such a trial but I KNOW God will be here for us. I Praise

> Him in ALL things.

> I know this post isn't what we're here for but I know I have support here

> and really need it right now. You are all wonderful.. Thanks, Love and

> Prayers, Peggy

>

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Peggy and Amber you are in my prayers! God bless you and keep you in His care. I thank God for the wonderful work He is doing in your lives today and everyday!PJ in OH, 54, IPF 09, Sjogrens 95 Re: Hi All

Hi Peggy,WOW what terrible news about your grand daughter. I will definitely keep her in my prayers and of course, you too.- nne, ILD 6/09, Sjogren's,Raynaud's,plymyolitis 11/09>> Well I know things have been so heart breaking for me lately, my spirit has> been hazy.. I think the ol' devil is after my soul and my family.> > My 14 year old twin grand-daughter has been tested this past few weeks for> kidney problems. They had taken an x-ray for the curvature in her spine,> which they will ck again in 6 months but they saw a problem with her kidney.> This what my daughter sent me.> > We saw the nephrologist today and basically Amber has one working kidney her> left . She said this is fine as long as its working ok. We have to watch> Amber's salt intake, protein, no contact sports, no flipping nothing that> can hurt that kidney or her spleen, no ibuprofen Tylenol only. Must push> fluids (like we all already do) She gave Amber a note so she can drink> freely at school. She did blood work and will have the results on Monday.> Will see amber again in 6 months unless there is a problem such as high> blood pressure or UTI. Oh and no more pickle juice!!> > this child is the wild one. NEVER still. Can cook and clean like any woman> and has since she was tiny. Was a cheer leader until all this started. I do> not know how they will ever keep her from running jumping. Please please> pray for her. (me too)> > This year has been such a trial but I KNOW God will be here for us. I Praise> Him in ALL things.> I know this post isn't what we're here for but I know I have support here> and really need it right now. You are all wonderful.. Thanks, Love and> Prayers, Peggy>

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Peggy,

Sorry to hear about your grand daughter . I can understand how it must be

hurting you and your family.

When you are sick or in pain being brave comes easily, but just not possible

when loved ones are suffering, it can hurt horribly, we just want them to be

well again.

I will pray for her and for all of you.

Geeta

>

> >

>

> > Well I know things have been so heart breaking for me lately, my spirit has

>

> > been hazy.. I think the ol' devil is after my soul and my family.

>

> >

>

> > My 14 year old twin grand-daughter has been tested this past few weeks for

>

> > kidney problems. They had taken an x-ray for the curvature in her spine,

>

> > which they will ck again in 6 months but they saw a problem with her kidney.

>

> > This what my daughter sent me.

>

> >

>

> > We saw the nephrologist today and basically Amber has one working kidney her

>

> > left . She said this is fine as long as its working ok. We have to watch

>

> > Amber's salt intake, protein, no contact sports, no flipping nothing that

>

> > can hurt that kidney or her spleen, no ibuprofen Tylenol only. Must push

>

> > fluids (like we all already do) She gave Amber a note so she can drink

>

> > freely at school. She did blood work and will have the results on Monday.

>

> > Will see amber again in 6 months unless there is a problem such as high

>

> > blood pressure or UTI. Oh and no more pickle juice!!

>

> >

>

> > this child is the wild one. NEVER still. Can cook and clean like any woman

>

> > and has since she was tiny. Was a cheer leader until all this started. I do

>

> > not know how they will ever keep her from running jumping. Please please

>

> > pray for her. (me too)

>

> >

>

> > This year has been such a trial but I KNOW God will be here for us. I Praise

>

> > Him in ALL things.

>

> > I know this post isn't what we're here for but I know I have support here

>

> > and really need it right now. You are all wonderful.. Thanks, Love and

>

> > Prayers, Peggy

>

> >

>

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Peggy ... you and Amber are in my prayers too!

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Re: Hi All Hi Peggy,WOW what terrible news about your grand daughter. I will definitely keep her in my prayers and of course, you too.- nne, ILD 6/09, Sjogren's,Raynaud's,plymyolitis 11/09>> Well I know things have been so heart breaking for me lately, my spirit has> been hazy.. I think the ol' devil is after my soul and my family.> > My 14 year old twin grand-daughter has been tested this past few weeks for> kidney problems. They had taken an x-ray for the curvature in her spine,> which they will ck again in 6 months but they saw a problem with her kidney.> This what my daughter sent me.> > We saw the nephrologist today and basically Amber has one working kidney her> left . She said this is fine as long as its working ok. We have to watch> Amber's salt intake, protein, no contact sports, no flipping nothing that> can hurt that kidney or her spleen, no ibuprofen Tylenol only. Must push> fluids (like we all already do) She gave Amber a note so she can drink> freely at school. She did blood work and will have the results on Monday.> Will see amber again in 6 months unless there is a problem such as high> blood pressure or UTI. Oh and no more pickle juice!!> > this child is the wild one. NEVER still. Can cook and clean like any woman> and has since she was tiny. Was a cheer leader until all this started. I do> not know how they will ever keep her from running jumping. Please please> pray for her. (me too)> > This year has been such a trial but I KNOW God will be here for us. I Praise> Him in ALL things.> I know this post isn't what we're here for but I know I have support here> and really need it right now. You are all wonderful.. Thanks, Love and> Prayers, Peggy>

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