Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 MB... Guess I've ended up with the color blue. I tried green and then olive. Oh well. Doc didn't say 'what' he thought the additional pain in joints and legs is.... do you know why the print out states to call doc 'immediately'...and you say the same thing....if pain worsens?? I think it is certainly not better but no need to call him again. I'm already on 3 oxycontins 3 qd and still having pain. Thanks for your response MB. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher Sorry that you are feeling cruddy. I'm glad the doctor doesn't think it's the Cipro causing the joint pain but be careful nonetheless. If it suddenly gets alot worse in one joint or another call the doc immediately. Hopefully if the Cipro is causing your increased pain it will start to go away quickly once you stop taking it. Take good care of you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Sher, Cipro is a very effective antibiotic especially for use in urinary tract infections. Unfortunately in some people it causes a worsening of some types of arthritis. More signifcantly it can occasionally cause inflammation or even rupture of tendons. (tendons connect our bones to our muscles). This is a rare but serious side effect (somewhat more common in those over 60). If you notice that the pain in any of your joints suddenly gets alot worse or you suddenly have swelling in any of your joints, rest the joint and call your doctor. Don't try to tough it out, rest it till you know for sure what is causing it. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Saturday, September 19, 2009 3:26:06 PMSubject: Re: Sher MB... Guess I've ended up with the color blue. I tried green and then olive. Oh well. Doc didn't say 'what' he thought the additional pain in joints and legs is.... do you know why the print out states to call doc 'immediately' ...and you say the same thing....if pain worsens?? I think it is certainly not better but no need to call him again. I'm already on 3 oxycontins 3 qd and still having pain. Thanks for your response MB. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher Sorry that you are feeling cruddy. I'm glad the doctor doesn't think it's the Cipro causing the joint pain but be careful nonetheless. If it suddenly gets alot worse in one joint or another call the doc immediately. Hopefully if the Cipro is causing your increased pain it will start to go away quickly once you stop taking it. Take good care of you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Sher Oh I like this color and size. The other color was ok, but the font was tooooooooooooooooooo small for me...lol As, MB said, you seem to be tolerating the pain right now, but if it gets worse, follow up again. > > MB... Guess I've ended up with the color blue. I tried green and then olive. Oh well. > > Doc didn't say 'what' he thought the additional pain in joints and legs is.... do you know why the print out states to call doc 'immediately'...and you say the same thing....if pain worsens?? > I think it is certainly not better but no need to call him again. > I'm already on 3 oxycontins 3 qd and still having pain. > > Thanks for your response MB. > MamaSher; 71, IPF 3-2006, OR. > Don't fret about tomorrow, God is already there! > Sher > > > > Sorry that you are feeling cruddy. I'm glad the doctor doesn't think it's the Cipro causing the joint pain but be careful nonetheless. If it suddenly gets alot worse in one joint or another call the doc immediately. Hopefully if the Cipro is causing your increased pain it will start to go away quickly once you stop taking it. > > Take good care of you! > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Thanks again MB...that is a better explanation then the doc gave me! I have been mostly 'down' and will stay so. I appreciate your input to me and others. Hugs MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher Sorry that you are feeling cruddy. I'm glad the doctor doesn't think it's the Cipro causing the joint pain but be careful nonetheless. If it suddenly gets alot worse in one joint or another call the doc immediately. Hopefully if the Cipro is causing your increased pain it will start to go away quickly once you stop taking it. Take good care of you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Bruce... I used this color/font previously. Works for me and if it works for YOU then, brother, we're all set! Yes, I plan to call doc on Mon for a check-in. Later. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher>>>> Sorry that you are feeling cruddy. I'm glad the doctor doesn't thinkit's the Cipro causing the joint pain but be careful nonetheless. If itsuddenly gets alot worse in one joint or another call the docimmediately. Hopefully if the Cipro is causing your increased pain itwill start to go away quickly once you stop taking it.>> Take good care of you!>> Beth>> Moderator>> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Thanks sher i like the color and the size i need to figure out how to make my font larger automatically instead of adjusting everytime Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: SherTo: Breathe-Support Date: Saturday, September 19, 2009, 3:50 PM Bruce... I used this color/font previously. Works for me and if it works for YOU then, brother, we're all set! Yes, I plan to call doc on Mon for a check-in. Later. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher>>>> Sorry that you are feeling cruddy. I'm glad the doctor doesn't thinkit's the Cipro causing the joint pain but be careful nonetheless. If itsuddenly gets alot worse in one joint or another call the docimmediately. Hopefully if the Cipro is causing your increased pain itwill start to go away quickly once you stop taking it.>> Take good care of you!>> Beth>> Moderator>> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2009 Report Share Posted October 18, 2009  MB....oh thank you for telling me that sob can be caused by PH! Perhaps you will remember, that soon after I joined the board, my constant concern has been about sob, (now worse) and yet my sats would be low 90s. So I didn't use 02. I do not want to have PH added into my records but at LEAST it explains a reason for the sob. What do I do when I am sob then? I know of course the pursed lip breathing... I'm thinking Dr. Raghu's reports will state that my 6mw went to 88 and then right back to 90. Dr. R. said he didn't think I needed o2 (except at night). The o2 has become a 'crutch' for me but maybe I don't need it when I'm out and about. I certainly get sob but sats jump back to 90 even when they dropped to 87--88. Dr R says 'this disease is very confusing and hard to understand". I will go now and look at PH... MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher Hey Ladybug, How is it going ?? I do hope you are having good days. I think of you and just know you are hurting is upsetting. Keep us posted. Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009  Thanks Pink...I feel more secure. I know I'm not just 'hanging' out there. What amazes me is he made me feel as though I was the only person he needed to see! Others say the same thing. I wonder how he does it. Lots of good assistants, is one thing I observed. I've already been writing questions for next time. I'm also going to call in the morning (closed Mon) and try to get an email so I can get some 'left over' questions answered. Be good today. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher Hey Ladybug, How is it going ?? I do hope you are having good days. I think of you and just know you are hurting is upsetting. Keep us posted. Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Bruce...no, haven't had an echo in at least a year...I've had only one since 2006 dx. At that time everything was ok. I asked specifically if dr saw PH and he said no. I don't know about the wire thing, if it was done or not. I seem to think it must have been, for dr to say 'no' to PH. I have other symptoms that can go with PH...increasing SOB (remember? I've been commenting on that even tho' SATS are ok?) swollen legs/ankles and fatigue (I'll say!). Chest pressure. Heart palpitations. I'm really feeling high anxiety over just what I know so far. There will be an echo w/wire done soon and also to check for an "underlying heart problem". I'm worn out Bruce...chronic diseases besides the PF, the constant pain...and the cognitive problems that go with opiates... I don't usually 'complain' but I see the complaints are spewing out. So many here with severe problems...my sweet friend Peggy for one...many more. I have no cause to gripe. But I just did! Yes, have echo once a yr unless directed more often. If I had been watched more closely I could have spotted trouble just like Dr. R. did. THIS is where we learn what to expect from our Drs. I didn't know I should have had a echo long ago. Of course you say it often Bruce but I knew I was going to see Dr. R. and just put it off... Oh well, it is what it is and hey Walt! I'm borrowing your 'slogan'... "I'll try again tomorrow". Love ya. mamasher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher> >> >> > Hey Ladybug, How is it going ?? I do hope you are having good> days. I think of you and just know you are hurting is upsetting.> > Keep us posted.> >> >> >> >> >> >> >> >> >> > Love & Prayers, Peggy> > Florida, IPF/UIP 2004> >> >> > "I believe that friends are quiet angels who lift us to our> feet,> > when our wings have trouble remembering how to fly."> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Sher Well, only the right heart catheter (thats the wire through your neck (or groin) and into your heart) will show for sure if you have PH. However, my bet is that if you do have it, it's still mild and so treatable by the medications. I think he's showing the appropriate concern as I think every PF'er should be concerned about PH. But, that concern doesn't automatically mean there will be a problem. Typically annual echos are required and if any sign of PH, then a catheter. I'm on echos every six months now. > > > > > > I feel better too. I'm going to call in the morning and see if > there > > is an email I can use to his nurse. I have many questions I did not > > ask...after we were gone is when I thought of them, of course. > > > He asked me to come back in three months, regardless of the > results of > > the tests. He asked me if the 2 hour trip would bother me. Too see > him > > again? I would drive twice that far. > > > I'm feeling confident that his overlooking my care will bring > results > > or at least attention to my needs. > > > MamaSher; 71, IPF 3-2006, OR. > > > Don't fret about tomorrow, God is already there! > > > Sher > > > > > > > > > Hey Ladybug, How is it going ?? I do hope you are having good > > days. I think of you and just know you are hurting is upsetting. > > > Keep us posted. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Love & Prayers, Peggy > > > Florida, IPF/UIP 2004 > > > > > > > > > " I believe that friends are quiet angels who lift us to our > > feet, > > > when our wings have trouble remembering how to fly. " > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2009 Report Share Posted October 24, 2009 Gosh Sher, I didn't think when I suggested it..  But you know, it seems that there should be some kind of assistance for folks in this situation.  I mean, how in hell are you supposed to meet his needs and yours??? No driving for a year?  NO lifting over 5 lbs???  Our healthcare issues in this country make me so mad sometimes I could just scream. I know you have strength beyond belief both physically and mentally, but I just worry about the toll this may take.  I'm taking some deep breaths now..I know you will do what you can. Roxanne, 59, South Carolina 2006 Asthma/ PF 2008 PF/ Sarcoidosis/Gerd I pray you enough..... From: Sher Bauman <bofus6 (AT) verizon (DOT) net>Subject: Re: Re: sher>MayTo: Breathe-Support@ yahoogroups. comDate: Saturday, October 24, 2009, 1:52 PM  Bruce... how in the heck do you know about Rich's surgery?? You must be on the board w/Ze and May... Yes, surgery on Nov. 3rd. I'm extremely apprehensive about meeting his needs as well as he has meant mine all these years. My caregiver now needs a caregiver. According to the paper work he was given, no driving for a year! Possibility of fainting and/or dizziness and other things. Don't lift more than 5#. However long it takes him to recover sufficiently, shopping that he currently does and errands and etc he may not do for awhile... It's lucky we are here close to Lysa but she can't be a caregiver full time either. Our lives are certainly going to change. We don't know yet how we will handle the changes but we will and yes I'll sure keep ya posted. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Re: sher>May  SherSorry to hear about Rich's planned surgery. I sure hope everything goessmoothly with it. Please keep us posted. I know he does become yourpriority in this situation. Just try your best not to exhaust yourself.>> Thanks ever so much for telling me about the group you started. Whata wonderful gesture and already over 100 members. That's great May,really great.> You and Ze will be so appreciated with what you two know.> MB, Leanne, then , Babs and . What a great group!> I haven't seen post in a long while. Do tell her and Babs hellofor me and of course Ze...>> Yes, the move was hard but we are now settled in and cozy and we likethe apt. a lot.>> My husband, Rich, is having heart surgery on Nov 3rd. That is my mainworry right now. His heart has gotten so bad that it's now time to dosomething about it.> I'll be writing the board so I won't repeat it all here again...>> Blessings for strength friend.> Sher> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Sher, what kind of a surgery is Rich having? Is it a By-pass? angioplsty? do try to get all help possible as some are suggesting Love and once again , my best wishes to you and Rich Geeta > >     Tell Rich I'll be praying for him!!! Wish I could have seen him when I was up last time, so I will definitely give him and you more notice next time. Good luck and please keep us posted. >    G. UIP/IPF 5/07 AZ. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Sher in pennsylvania there is senior citizen transportation -- like someone else, check with your area agency on aging to see what services they provide Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: SherTo: Breathe-Support Date: Sunday, October 25, 2009, 4:39 PM Geeta...Rich is having a defibrillator put in on Nov. 3. Cardio and PCP both say his heart is bad enough now that something needs to be done. He is a candidate for Cardiac Arrest and if he should have one it's no doubt fatal. He's anxious to get it done. Me too! Cardio says his life will be extended 20 years or so but at 10 years they probably will change the battery! lol. Rich is almost 80. lol MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Re: Sher Sher,what kind of a surgery is Rich having?Is it a By-pass? angioplsty? do try to get all help possible as some are suggestingLove and once again , my best wishes to you and RichGeeta>> Tell Rich I'll be praying for him!!! Wish I could have seen him when I was up last time, so I will definitely give him and you more notice next time. Good luck and please keep us posted.> G. UIP/IPF 5/07 AZ.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Sher, tell Rich I'll be watching out for him on November 3rd. My grandaughter is having a rough time time. She has Crohn's disease and went into the hospital to have a 3 inch piece of the intestine removed near the ilium by lapascropy, That went well, but the next day she was in terrific pain. The surgeon then did an open surgery, from the top to the bottom. The reconnection had been badly done and she was bleeding so much that the whole stomach space was filled with blood. For the moment she is doing fine although she isn't moving around much. She's in Virginia and it tears me up that I can't there to be with her. Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Sun, October 25, 2009 4:23:54 PMSubject: Re: Sher ...I will tell Rich you send him prayers! He will appreciate that. He was sorry we didn't connect last time. Surgery has been set for Nov. 3. Now that he made up his mind for a 'go' he is anxious to get it done. It could mean no driving for up to a year, watching for fainting or dizziness... that will be a little tough. My meds cause me a little light head but we'll manage. There are 3 drivers at 's. Take care and I hope you've been getting 'out' more. Hugs to you and Dakota. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Sher Tell Rich I'll be praying for him!!! Wish I could have seen him when I was up last time, so I will definitely give him and you more notice next time. Good luck and please keep us posted. G. UIP/IPF 5/07 AZ. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 Ok Sher, I've done it, but I don't understand...just like making a phone call ?  I don't think I have a camera (new ibook G4) but I can hear. Do you have a webcam?  Does Peggy et al?Won't I need one?Roxanne, 59, South Carolina 2006 Asthma/ PF 2008 PF/ Sarcoidosis/Gerd I pray you enough..... From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM  Hi all! After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie. Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08   Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 Roxanne, Yes, we need web cams to Skype each other... Someone else will have to help you w/selection or whatever else you need to do to get one connected. I bought a new laptop a couple of months ago and there is a cam already installed. And speakers. When it comes to electronics I am first in the dummy line! My Skype name is sherbauman. When you're ready, Skype me. I'm slow in getting connected for some reason but hopefully we will connect. I see you have Skype in your Ibook. What is your Skype name?? Does your Ibook have a web cam? Sorry if this is a dumb question...I don't even know what an Ibook is... MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM Hi all! After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie. Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 talked about the casino before and I though it was between Grapeview and Shelton. I could be wrong. I have passed a casino over there somewhere several times over the years but I can't remember where it is.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho From: Sher Bauman <bofus6 (AT) verizon (DOT) net>Subject: Re: Hi Sher & To: Breathe-Support@ yahoogroups. comDate: Thursday, November 26, 2009, 12:09 PM ... oh 100 miles is ok! Where will we be going? give us enough heads up and if I'm doing ok we can plan on it. Anybody else up for dinner???? Or is it lunch? I'd prefer lunch but it doesn't really matter. Don't like driving at night much anymore and Rich has night blindness. Ahhhh, ain't age grand? MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Hi Sher & It would be great to see you guys (and Rich), I will not be able to be as free as I would like during this visit. My son & his wife are going on a cruise after thanksgiving, so my WIFE and I volunteered to baby sit for the week. We will only have access to one car and my G'-daughter has her after school activities we have to run around for, BUT,-- you did have a great idea about the seafood buffet----that would be about a 100 mile drive for Sher? If it works out --- we could get together and put this plan in action? Let me know if that is to far for you to drive Sher---- Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.