Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Dave i go to Penn and if i have a transplant it would be there another option is Temple, i know a few people who go there and have met people who have had their transplants there Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: CORNELL OR U PENN????????To: Breathe-Support Date: Wednesday, December 2, 2009, 9:25 AM Hello all,After my biopsy DX came back UIP/IPF from University of Miami a couple of weeks ago, I want to get a second opinion.I am visiting my family in NJ in Feb. and both Cornell and U Penn are about the same distance.Does anyone have anything good or bad to say about either and maybe a Dr. recommendation. I am also going to look into their transplant programs too. Universiy of Miami only did 4 lung transplants last year and they are also not covered by my insurance for transplants. My insurance Aetna does cover Cornell and U Penn and consider them hospitals on excellence.Any help would be appriciated as I need to make my appointments now.Thanks, Dave, 43, UIP, Miami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Dave, When I lived in NY I saw Dr. Simonelli at Columbia in Manhattan. He came extremely highly recommended and is very well thought of in the ILD field. He's also a very kind person and very easy to speak with. Here is a link to his info: http://cpmcnet.columbia.edu/dept/pulmonary/3Faculty%20Pages/Simonelli/Simonelli%20Page.htm Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Wed, December 2, 2009 9:25:23 AMSubject: CORNELL OR U PENN???????? Hello all,After my biopsy DX came back UIP/IPF from University of Miami a couple of weeks ago, I want to get a second opinion.I am visiting my family in NJ in Feb. and both Cornell and U Penn are about the same distance.Does anyone have anything good or bad to say about either and maybe a Dr. recommendation. I am also going to look into their transplant programs too. Universiy of Miami only did 4 lung transplants last year and they are also not covered by my insurance for transplants. My insurance Aetna does cover Cornell and U Penn and consider them hospitals on excellence.Any help would be appriciated as I need to make my appointments now.Thanks, Dave, 43, UIP, Miami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Dave, I'd say Penn...that's where I go. My other doctors upon DX all recommended that I seek further help from Penn. They did not say Temple which is also here. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower davegreg11 wrote: Hello all, After my biopsy DX came back UIP/IPF from University of Miami a couple of weeks ago, I want to get a second opinion. I am visiting my family in NJ in Feb. and both Cornell and U Penn are about the same distance. Does anyone have anything good or bad to say about either and maybe a Dr. recommendation. I am also going to look into their transplant programs too. Universiy of Miami only did 4 lung transplants last year and they are also not covered by my insurance for transplants. My insurance Aetna does cover Cornell and U Penn and consider them hospitals on excellence. Any help would be appriciated as I need to make my appointments now. Thanks, Dave, 43, UIP, Miami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Dave, I have heard a lot of good things about about Pennsylvania. All anecdotal I'm afraid. I have not heard a lot about Cornell. My doctor is Dr. Joao de Andrade at UAB in Birmingham AL. It is a transplant center and has an excellent survival record. While this may not be a convenient location for you it is one I can wholeheartedly recommend. Hello all,After my biopsy DX came back UIP/IPF from University of Miami a couple of weeks ago, I want to get a second opinion.I am visiting my family in NJ in Feb. and both Cornell and U Penn are about the same distance. Does anyone have anything good or bad to say about either and maybe a Dr. recommendation. I am also going to look into their transplant programs too. Universiy of Miami only did 4 lung transplants last year and they are also not covered by my insurance for transplants. My insurance Aetna does cover Cornell and U Penn and consider them hospitals on excellence. Any help would be appriciated as I need to make my appointments now.Thanks, Dave, 43, UIP, Miami -- Spalding7001 Inverness Green LaneBirmingham, AL 35242 ©johnlspalding@... Quote Link to comment Share on other sites More sharing options...
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