On-the-Job with O2

[Guest guest]

Dyane Billings!

I think it was you that said you were still working full-time? Do you need your oxygen while at work? If so, how does your employer accommodate this need?

I just went on part-time disability, so I'm only working 12 hours a week now. I'm fine while sitting at my desk but its a long walk to the restroom, lunchroom, and copier machine and I really need to be using my O2 when I get up and move at work. C_53_Familial IPF_5/09Washington

[Guest guest]

, Yep I still work full time as an accountant with a small firm here in Phoenix. First off, my employer's are family, the two CPA's are my ex-husbands sister and her husband. They all like me a whole lot more than they like him LOL. But even if they were not I don't think I would have a problem. We have a tri-level house type office. My office has always been on the bottom floor and I come in and out through a ground level garage door so no stair climbing. I have a 10 liter concentrator at work and use my E tanks driving to and from. In the beginning I had the fillable smaller portables but as my needs rose I first switched to a 5 liter concentrator and now the 10 liter. I simply told my pulmo dudette I needed a script for the insurance people. I know lots of insurance will only pay for 1 concentrator but then I would have to work from home. I could do that but not unless I have too. I have a 40 foot cord which gets me to the copier, bathroom, refridgerator and file room. We eat at our desks and if I have to, I climb the 6 stairs to the main level. We are small (9 people) and the receptionist takes things up the stairs to my boss on the top floor. I haven't been up there in 3 years. ha ha. I'm very lucky I have a job that while stressful is not very physical. I would love to work part time or have disablility of any kind because by the end of the week I am exhausted but with a small firm you don't get that. I am grateful that they pick up about 65% of my health care premiums. Even with that I still pay $6500 a year. Its hard right now for everyone with the economy the way it is. When my second husband passed away in 2008 I lost 50% of our income and my house is now selling for about$30,000 less that what we payed for it. But I thank God I have a job, a house, and people who love and care for me. I also belone to the Scarlett O'hara School of "I'll think about it tomorrow". If I think too much about it I get REALLY depressed so I'm simply keep on keeping on and trust God to take of me. I'm pretty sure I still rate higher than a sparrow:)Dyane,

54, Phoenix, IIP 02 now NSIP 09, Breast Cancer, Psoriasis,

Lipodermatosclerosis, Diabetes, and now a RA like autoimmune component,

yadda yadda yadda."Life is not a journey to the grave with

intentions of arriving is a pretty, well-preserved body, but rather to

skid in broadside, thoroughly used up, totally worn out, chocolate in

one hand, Margaritas in the other, loudly proclaiming "Holy **** What a

ride!".">> Dyane Billings!> > I think it was you that said you were still working full-time? Do you need your oxygen while at work? If so, how does your employer accommodate this need?> > I just went on part-time disability, so I'm only working 12 hours a week now. I'm fine while sitting at my desk but its a long walk to the restroom, lunchroom, and copier machine and I really need to be using my O2 when I get up and move at work.> C_53_Familial IPF_5/09> Washington>

[Guest guest]

Hi ,Even though your post was to Dyanne, I'll jump in here as I too still work part time. My O2 supplier furnished me with small "B" tanks with a conserver for work. One tank will usually last me 4 hours at work if used when up and moving around. I always carry 2 just in case.Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

I pray you enough.....Subject: On-the-Job with O2To: "Breath Support" <Breathe-Support >Date: Tuesday, December 1, 2009, 11:11 PM

Dyane Billings!

I think it was you that said you were still working full-time? Do you need your oxygen while at work? If so, how does your employer accommodate this need?

I just went on part-time disability, so I'm only working 12 hours a week now. I'm fine while sitting at my desk but its a long walk to the restroom, lunchroom, and copier machine and I really need to be using my O2 when I get up and move at work. C_53_Familial IPF_5/09Washington

[Guest guest]

Dyane... good for you that you can/will still work and it sounds like your place to work is accommodating you well.

OFF Topic...I'm ABOUT TO give up on Skype. There for awhile lots of us were anxious to get on Skype and now it's faded away. When I try to reach anyone, I can't. As I told you before I get this 'busy' signal on you and then the damn thing won't go off! Have to turn my Skype off and then no one can reach me. lol.

Are you having luck reaching others?

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Re: On-the-Job with O2

, Yep I still work full time as an accountant with a small firm here in Phoenix. First off, my employer's are family, the two CPA's are my ex-husbands sister and her husband. They all like me a whole lot more than they like him LOL. But even if they were not I don't think I would have a problem. We have a tri-level house type office. My office has always been on the bottom floor and I come in and out through a ground level garage door so no stair climbing. I have a 10 liter concentrator at work and use my E tanks driving to and from. In the beginning I had the fillable smaller portables but as my needs rose I first switched to a 5 liter concentrator and now the 10 liter. I simply told my pulmo dudette I needed a script for the insurance people. I know lots of insurance will only pay for 1 concentrator but then I would have to work from home. I could do that but not unless I have too. I have a 40 foot cord which gets me to the copier, bathroom, refridgerator and file room. We eat at our desks and if I have to, I climb the 6 stairs to the main level. We are small (9 people) and the receptionist takes things up the stairs to my boss on the top floor. I haven't been up there in 3 years. ha ha. I'm very lucky I have a job that while stressful is not very physical. I would love to work part time or have disablility of any kind because by the end of the week I am exhausted but with a small firm you don't get that. I am grateful that they pick up about 65% of my health care premiums. Even with that I still pay $6500 a year. Its hard right now for everyone with the economy the way it is. When my second husband passed away in 2008 I lost 50% of our income and my house is now selling for about$30,000 less that what we payed for it. But I thank God I have a job, a house, and people who love and care for me. I also belone to the Scarlett O'hara School of "I'll think about it tomorrow". If I think too much about it I get REALLY depressed so I'm simply keep on keeping on and trust God to take of me. I'm pretty sure I still rate higher than a sparrow:)Dyane, 54, Phoenix, IIP 02 now NSIP 09, Breast Cancer, Psoriasis, Lipodermatosclerosis, Diabetes, and now a RA like autoimmune component, yadda yadda yadda."Life is not a journey to the grave with intentions of arriving is a pretty, well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, chocolate in one hand, Margaritas in the other, loudly proclaiming "Holy **** What a ride!"."

>> Dyane Billings!> > I think it was you that said you were still working full-time? Do you need your oxygen while at work? If so, how does your employer accommodate this need?> > I just went on part-time disability, so I'm only working 12 hours a week now. I'm fine while sitting at my desk but its a long walk to the restroom, lunchroom, and copier machine and I really need to be using my O2 when I get up and move at work.> C_53_Familial IPF_5/09> Washington>

[Guest guest]

Hi Dyane,

Thanks for responding, sounds like you have an ideal setup with the small office and family owned buisness.

I work for a large agency and the administrative staff of 45 occupies an entire 2nd floor (5,800sf) of a 3-story building (with elevators of course). I don't think a concentrator and hose would work in my situation. I figure when I get to the point of needing O2 24/7 its time for me to leave work and I'm so thankful I have the option because I don't want my last years on this earth to be spent working.

I'm glad it works for you. C_53_Familial IPF_5/09Washington

To: Breathe-Support Sent: Tue, December 1, 2009 11:32:41 PMSubject: Re: On-the-Job with O2

, Yep I still work full time as an accountant with a small firm here in Phoenix. First off, my employer's are family, the two CPA's are my ex-husbands sister and her husband. They all like me a whole lot more than they like him LOL. But even if they were not I don't think I would have a problem. We have a tri-level house type office. My office has always been on the bottom floor and I come in and out through a ground level garage door so no stair climbing. I have a 10 liter concentrator at work and use my E tanks driving to and from. In the beginning I had the fillable smaller portables but as my needs rose I first switched to a 5 liter concentrator and now the 10 liter. I simply told my pulmo dudette I needed a script for the insurance people. I know lots of insurance will only pay for 1 concentrator but then I would have to work from home. I could do that but not unless I have

too. I have a 40 foot cord which gets me to the copier, bathroom, refridgerator and file room. We eat at our desks and if I have to, I climb the 6 stairs to the main level. We are small (9 people) and the receptionist takes things up the stairs to my boss on the top floor. I haven't been up there in 3 years. ha ha. I'm very lucky I have a job that while stressful is not very physical. I would love to work part time or have disablility of any kind because by the end of the week I am exhausted but with a small firm you don't get that. I am grateful that they pick up about 65% of my health care premiums. Even with that I still pay $6500 a year. Its hard right now for everyone with the economy the way it is. When my second husband passed away in 2008 I lost 50% of our income and my house is now selling for about$30,000 less that what we payed for it. But I thank God I have a job, a house, and

people who love and care for me. I also belone to the Scarlett O'hara School of "I'll think about it tomorrow". If I think too much about it I get REALLY depressed so I'm simply keep on keeping on and trust God to take of me. I'm pretty sure I still rate higher than a sparrow:)Dyane, 54, Phoenix, IIP 02 now NSIP 09, Breast Cancer, Psoriasis, Lipodermatosclerosi s, Diabetes, and now a RA like autoimmune component, yadda yadda yadda."Life is not a journey to the grave with intentions of arriving is a pretty, well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, chocolate in one hand, Margaritas in the other, loudly proclaiming "Holy **** What a

ride!"."

>> Dyane Billings!> > I think it was you that said you were still working full-time? Do you need your oxygen while at work? If so, how does your employer accommodate this need?> > I just went on part-time disability, so I'm only working 12 hours a week now. I'm fine while sitting at my desk but its a long walk to the restroom, lunchroom, and copier machine and I really need to be using my O2 when I get up and move at work.> C_53_Familial IPF_5/09> Washington>