Guest guest Posted December 3, 2009 Report Share Posted December 3, 2009 Gita One of the things I had to do for my own mental comfort was very early think through the stages and the worst case scenarios in each stage. I took care of all legal paperwork and death planning and that was done, never to require any further thought. In each stage I realized that there were various possibilities. But most of all I realized that even the worst wasn't so bad. That I could enjoy life through it all. Maybe not the way I might have envisioned but maybe much better than what might have been. Having gone through that process the fear was removed as well as any possible anger. > > > > > > > > > From: Beth mbmurtha@ > > > Subject: Re: new to the group > > > To: Breathe-Support > > > Date: Wednesday, December 2, 2009, 8:26 AM > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > Patti, > > > Welcome to Breathe Support!! It's lousy that you have reason to > > look for a group like this but I hope that you find it as helpful > > as I have over the last 3 and a half years. > > > It sounds like you are doing all the right stuff. I'm so happy to hear > > you are going to the University of Chicago. They have a great reputation > > and I'm certain you will learn a ton regarding your own situation and > > how to approach the new realities. > > > Take things one step at a time and please don't panic about what you > > read on the internet. I was diagnosed 3 and a half years ago and I'm in > > EXACTLY the same condition I was at that time. I've been stable for 3 > > and a half years. We have a member who is I think ten or twelve years > > out from diagnosis and is stable. So the moral of the story is, there is > > no expiration date tatooed on your fanny! > > > Please continue to read and ask whatever questions you have. We're > > here to help! > > > > > >  > > > Beth > > > Moderator > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > >  > > >  > > > > > > > > > > > > > > > > > > > > > From: emma0850 napa73 (AT) comcast (DOT) net> > > > To: Breathe-Support@ yahoogroups. com > > > Sent: Tue, December 1, 2009 10:35:47 PM > > > Subject: new to the group > > > > > >  > > > > > > Hello everyone.... .I just found this group today and I couldn't be > > happier to find all of you! My name is Patti.....I am 59 yrs old and was > > told three years ago that I had pulmonary fibrosis in my lung bases. I > > went through the entire ordeal of test after test and was told it was so > > mild that they thought it may have been there for years. I continued to > > do all the follow up tests each year and until now it had remained > > unchanged. This past month the tests showed it has now progressed to the > > entire lung area. My PFT had dropped from 79 to 60 in two years. I still > > feel just fine but the doctor says it is time for Prednisone. I have an > > appt in Chicago this month with a new doctor. I have read volumes of > > information on the internet and most of the info I read just scares me. > > They make it sound like a death sentence. Again I am so happy to find > > this group!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2009 Report Share Posted December 3, 2009 Dyane No, just hired engineers at times. I was an Accountant by training and Financial and Operations by experience. Probably got into every area of business at one time or another. Much of the time I just ended up involved wherever there were problems or issues to be addressed. I'm not sure anyone knows what planning and work went into Geeta's trip to the US or how much effort it was. Nor how much it was worth it all to her and to her family. It wasn't just her dream, it was the dream of all of her family. But she did it. We can all still dream and still pursue those dreams. The important ones like spending time with our friends and family, those most important in our lives. > > > > > > > > > > > > From: Beth mbmurtha@ > > > > Subject: Re: new to the group > > > > To: Breathe-Support > > > > Date: Wednesday, December 2, 2009, 8:26 AM > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > Patti, > > > > Welcome to Breathe Support!! It's lousy that you have reason > to > > > look for a group like this but I hope that you find it as > helpful > > > as I have over the last 3 and a half years. > > > > It sounds like you are doing all the right stuff. I'm so happy to > hear > > > you are going to the University of Chicago. They have a great > reputation > > > and I'm certain you will learn a ton regarding your own situation > and > > > how to approach the new realities. > > > > Take things one step at a time and please don't panic about what > you > > > read on the internet. I was diagnosed 3 and a half years ago and I'm > in > > > EXACTLY the same condition I was at that time. I've been stable for > 3 > > > and a half years. We have a member who is I think ten or twelve > years > > > out from diagnosis and is stable. So the moral of the story is, > there is > > > no expiration date tatooed on your fanny! > > > > Please continue to read and ask whatever questions you have. We're > > > here to help! > > > > > > > >  > > > > Beth > > > > Moderator > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > >  > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > From: emma0850 napa73 (AT) comcast (DOT) net> > > > > To: Breathe-Support@ yahoogroups. com > > > > Sent: Tue, December 1, 2009 10:35:47 PM > > > > Subject: new to the group > > > > > > > >  > > > > > > > > Hello everyone.... .I just found this group today and I couldn't > be > > > happier to find all of you! My name is Patti.....I am 59 yrs old and > was > > > told three years ago that I had pulmonary fibrosis in my lung bases. > I > > > went through the entire ordeal of test after test and was told it > was so > > > mild that they thought it may have been there for years. I continued > to > > > do all the follow up tests each year and until now it had remained > > > unchanged. This past month the tests showed it has now progressed to > the > > > entire lung area. My PFT had dropped from 79 to 60 in two years. I > still > > > feel just fine but the doctor says it is time for Prednisone. I have > an > > > appt in Chicago this month with a new doctor. I have read volumes of > > > information on the internet and most of the info I read just scares > me. > > > They make it sound like a death sentence. Again I am so happy to > find > > > this group!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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