Re: Funny you mention rheumatology workups

[Guest guest]

all I know from reading alot of posts is that somehow pain produces humor. LOL! I can also hear the frustration in your post. We are complicated individuals! Aren't we all. It seems if it isn't our bodies letting us down it's a side effect from some medication were taking! Argh!!!!!!!!!!!!!!!!!!!!!!1Oh by the way, they do make adult pull ups! (Just kidding!)PJ in OH, 54, IPF 09, Sjogren's Perfinedone application made to the FDA> > >> > > Â> > > I don't know if it's new news, but it is to me. Intermune has> > applied for a new drug approval for Perfinedone as a treatment for> > pulmonary fibrosis. I was alerted to that by the coalitionforpf.> > org I'll check with my pulmo guys and see what that means, if> > anything. Some time ago I asked them about the drug, having heard> > it was in testing, and didn't get much of a rise out of anybody, so I> > dunno.> > >> > > Bill C. IPF 10/08> > > N.E. PA> > >> >>

[Guest guest]

,

OMG girl what you go through....unbelievable. And you seem to maintain your incredible sense of humor. My mouthful of coffee very nearly spewed across the keyboard of my laptop when I read, "mess with me...I'll just go pee".

FYI, I've been taking Imuran for just short of a year now with no problems at all. Initially I had some fairly mild nausea for but that passed after a couple of weeks. I have bloodwork once a month to check on my liver and bone marrow function but I seem to be tolerating it well. It has definitely reduced the symptoms of my dermatomyositis. Right now I'm taking 150mg daily. I came off of it for about a month back in May when I had H1N1 but other than that I have nothing really unusual to report. My hair is a bit thinner than it was but I can't even really complain about alot of hair loss. Other people have different experiences on Imuran and considerably more trouble.

Look after yourself !

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Fri, November 6, 2009 12:50:17 AMSubject: Funny you mention rheumatology workups

I went in again yesterday to see mine to whine and hold forth about all the stuff going on in my body and to plead for a cortisone shot in my right knee. Which I thought I would never do but was grateful for getting it.Anyway - he's been seeing me every 3 months and we are desparately trying to get the monster inside my body to show itself. So far he has called it seronegative rheumatoid arthritis because nothing shows up in the bloodwork but it acts that way. Whatever it is, it is getting worse. Now it is going after my brain. The MRI in the hospital indicated microvascular ischemic disease and there is a non-specific abnormal EEG wtih generalized cerebral slowing indicating cerebral dysfunction. And evidently maybe a baby aneurysm in there. And non-specific neurodegeneration. YA THINK THERE COULD POSSIBLY BE ANY MORE NON-SPECIFIC CRAP GOING ON IN MY BODY?????So what is taking Imuran like? Evidently it may become a new player in my

medicine box next month if I can tolerate taking it. We did all the bloodwork for that yesterday.If anybody sees me wandering around in the streets of Lubbock blathering about things that don't make sense or trying to ride my Labrador Retriever like a horse, ya'll call somebody. Evidently my brain could go tottering off on its own and leave the world behind.But my kidneys still work. So FPPPTPPPTTTTTTTTTTH HHHH, damn autoimmune disease whatever you are. Mess with me, I'll just go pee. S, Lubbock, TXNSIP w/PF 12/2006 et al> > >> > > Does anyone know how long it takes for approval - are we looking> > at months, or years?> > >  Dorothy Reinecke> > >> > >

UIP-7/05> > >> > >> > >> > > ____________ _________ _________ __> > > From: "Paradis3@ ." Paradis3@> > > To: Breathe-Support@ yahoogroups.> > <mailto:Breathe- Support%40yahoog roups.com> com> > > Sent: Thu, November 5, 2009 9:37:47 AM> > > Subject: Perfinedone application made to the FDA> > >> > > Â> > > I don't know if it's new news, but it is to me. Intermune has> > applied for a new drug approval for Perfinedone as a treatment for> > pulmonary fibrosis. I was alerted to that by the coalitionforpf.> > org I'll check with my pulmo guys and see what that means, if> > anything. Some time ago I asked them about the drug, having heard> > it was in testing, and didn't get much of a rise out of anybody, so I> >

dunno.> > >> > > Bill C. IPF 10/08> > > N.E. PA> > >> >>

[Guest guest]

Well I guess with the right shoes I could pull off the adult diaper look.

Hadn't given it much thought but yeah that could be good.

LOL

S, Lubbock, TX

NSIP w/PF 12/2006 et al

>

>

> > > >

>

>

> > > > Does anyone know how long it takes for approval - are we looking

>

>

> > > at months, or years?

>

>

> > > > Â Dorothy Reinecke

>

>

> > > >

>

>

> > > > UIP-7/05

>

>

> > > >

>

>

> > > >

>

>

> > > >

>

>

> > > > ____________ _________ _________ __

>

>

> > > > From: " Paradis3@ . " Paradis3@

>

>

> > > > To: Breathe-Support@ yahoogroups.

>

>

> > > com

>

>

> > > > Sent: Thu, November 5, 2009 9:37:47 AM

>

>

> > > > Subject: Perfinedone application made to the FDA

>

>

> > > >

>

>

> > > > Â

>

>

> > > > I don't know if it's new news, but it is to me. Intermune has

>

>

> > > applied for a new drug approval for Perfinedone as a treatment for

>

>

> > > pulmonary fibrosis. I was alerted to that by the coalitionforpf.

>

>

> > > org I'll check with my pulmo guys and see what that means, if

>

>

> > > anything. Some time ago I asked them about the drug, having heard

>

>

> > > it was in testing, and didn't get much of a rise out of anybody, so I

>

>

> > > dunno.

>

>

> > > >

>

>

> > > > Bill C. IPF 10/08

>

>

> > > > N.E. PA

>

>

> > > >

>

>

> > >

>

>

> >

>

[Guest guest]

Good to hear the Imuran is not that bad. We would start at a low dose and go

up. I would have to change my med for gout and one of my blood pressure meds.

My rheumo dude is hesitant to do it because in 20 years I could have problems

with my liver or kidneys. I want 10 good years and really can't think about 20.

I told him I already knew I was not getting out of this alive anyway. I'm

pretty aggressive when I want something. I think unless the bloodwork comes

back with a negative indicator for Imuran I'm going there and doing that.

Humor is the only way I know of to deal with all this crap. I either try to

look at it in a good light or go screaming about like a lunatic and that's not

cool. For anybody.

Thanks Beth for the encouragement. Today is a beautiful day outside and I

am trying to look for the beauty in my world these days.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

> > > >

> > > > Does anyone know how long it takes for approval - are we looking

> > > at months, or years?

> > > > Â Dorothy Reinecke

> > > >

> > > > UIP-7/05

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: " Paradis3@ . " Paradis3@

> > > > To: Breathe-Support@ yahoogroups.

> > > <mailto:Breathe- Support%40yahoog roups.com> com

> > > > Sent: Thu, November 5, 2009 9:37:47 AM

> > > > Subject: Perfinedone application made to the FDA

> > > >

> > > > Â

> > > > I don't know if it's new news, but it is to me. Intermune has

> > > applied for a new drug approval for Perfinedone as a treatment for

> > > pulmonary fibrosis. I was alerted to that by the coalitionforpf.

> > > org I'll check with my pulmo guys and see what that means, if

> > > anything. Some time ago I asked them about the drug, having heard

> > > it was in testing, and didn't get much of a rise out of anybody, so I

> > > dunno.

> > > >

> > > > Bill C. IPF 10/08

> > > > N.E. PA

> > > >

> > >

> >

>

[Guest guest]

The positive thing about Imuran is that while the liver is your worry,

through blood testing, any issues can be quickly detected and reversed.

Initially you get tested weekly, then bi-weekly, then monthly in many of

the protocols. Liver enzymes are monitored.

Sounds like a rheumatologist, looking 20 years ahead. While with

relatively healthy patients that makes sense, most of us are more

concerned with a shorter time period. My rheumatologist worries about my

kidneys. My nephrologist feels very comfortable that they're going to

outlast my lungs so doesn't worry but just monitors.

> > > > >

> > > > > Does anyone know how long it takes for approval - are we

looking

> > > > at months, or years?

> > > > > Â Dorothy Reinecke

> > > > >

> > > > > UIP-7/05

> > > > >

> > > > >

> > > > >

> > > > > ____________ _________ _________ __

> > > > > From: " Paradis3@ . " Paradis3@

> > > > > To: Breathe-Support@ yahoogroups.

> > > > <mailto:Breathe- Support%40yahoog roups.com> com

> > > > > Sent: Thu, November 5, 2009 9:37:47 AM

> > > > > Subject: Perfinedone application made to the

FDA

> > > > >

> > > > > Â

> > > > > I don't know if it's new news, but it is to me.Â

Intermune has

> > > > applied for a new drug approval for Perfinedone as a treatment

for

> > > > pulmonary fibrosis. I was alerted to that by the

coalitionforpf.

> > > > org I'll check with my pulmo guys and see what that means,

if

> > > > anything. Some time ago I asked them about the drug,

having heard

> > > > it was in testing, and didn't get much of a rise out of anybody,

so I

> > > > dunno.

> > > > >

> > > > > Bill C. IPF 10/08

> > > > > N.E. PA

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks Bruce for the info. My dad died of liver disease so there is a worry but

I don't carry the gene to develop the disease. But yeah, he worries.

> > > > > >

> > > > > > Does anyone know how long it takes for approval - are we

> looking

> > > > > at months, or years?

> > > > > > Â Dorothy Reinecke

> > > > > >

> > > > > > UIP-7/05

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: " Paradis3@ . " Paradis3@

> > > > > > To: Breathe-Support@ yahoogroups.

> > > > > <mailto:Breathe- Support%40yahoog roups.com> com

> > > > > > Sent: Thu, November 5, 2009 9:37:47 AM

> > > > > > Subject: Perfinedone application made to the

> FDA

> > > > > >

> > > > > > Â

> > > > > > I don't know if it's new news, but it is to me.Â

> Intermune has

> > > > > applied for a new drug approval for Perfinedone as a treatment

> for

> > > > > pulmonary fibrosis. I was alerted to that by the

> coalitionforpf.

> > > > > org I'll check with my pulmo guys and see what that means,

> if

> > > > > anything. Some time ago I asked them about the drug,

> having heard

> > > > > it was in testing, and didn't get much of a rise out of anybody,

> so I

> > > > > dunno.

> > > > > >

> > > > > > Bill C. IPF 10/08

> > > > > > N.E. PA

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Should the blood be tested every month when on imuran. I have been on it for years and my PC only checks it about every 3 months. I had to suggest to the first dr that it should be tested. He said, "Oh yeah, we can do that." Some of these drs have no clue.

Marcia

[Guest guest]

Marcia

They might do less after you've shown a history of no problems with it.

Still, I don't think I would be comfortable with every three months. My

rheumatologist won't allow me to go three months between labs and I'm

not on anything. Your PC?

>

> Should the blood be tested every month when on imuran. I have been on

it for years and my PC only checks it about every 3 months. I had to

suggest to the first dr that it should be tested. He said, " Oh yeah, we

can do that. " Some of these drs have no clue.

> Marcia

>

[Guest guest]

Marcia - on the drug printout the rheumo guy gave me from the American College

of Rheumatology, it really doesn't give a specific testing cycle. It just says

test regularly after beginning Imuran.

I'm hoping Beth can find a better answer as well.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

>

> Marcia,

> I don't know. When I first started the Imuran a year ago, I had bloodwork

weekly. After a few months it was twice a month, for the last 3 or 4 months

it's been monthly.

> If you've been on it for years chances are your liver is tolerating it fine

but I don't honestly know the answer to how often things should be checked. I'll

do some research and see what I can find out.

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>  

>  

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Sat, November 7, 2009 2:50:58 AM

> Subject: Re: Funny you mention rheumatology workups

>

>  

> Should the blood be tested every month when on imuran.  I have been on it for

years and my PC only checks it about every 3 months.  I had to suggest to the

first dr that it should be tested.  He said, " Oh yeah, we can do that. "   Some

of these drs have no clue.

> Marcia

>

[Guest guest]

I don't think the first Dr. who put me on it, would have tested at all, if I hadn't questioned it. I think it had been about 2 or 3 months. He didn't retest when he raised it either, but I changed Drs about that time. He checked it more often. My present PC, Primary Care , Doctor seems to check it about every 3 months.

I also was told to get the shingles vaccine, which of course is a live vacine and I shouldn't get it because of all the inmune suppressing drugs I am taking. She also wanted me to get another vacine at the same time, which the shingles vacine says not to take with another. Seems like you need to know these things yourself.

Thank goodness for all the people on this air family who come up with these pearls of wisdom.

Marcia

[Guest guest]

Marcia

I thought PC might be referring to your primary which brings me to

another concern. I don't see it in the realm of a primary care physician

to manage many of these things, such as Imuran or decisions within the

scope of managing the disease and the drugs. Where is your pulmonologist

or rheumatologist in all this? I'm just questioning why they aren't

monitoring things like the Imuran.

>

> I don't think the first Dr. who put me on it, would have tested at

all, if I hadn't questioned it. I think it had been about 2 or 3 months.

He didn't retest when he raised it either, but I changed Drs about that

time. He checked it more often. My present PC, Primary Care , Doctor

seems to check it about every 3 months.

> I also was told to get the shingles vaccine, which of course is a live

vacine and I shouldn't get it because of all the inmune suppressing

drugs I am taking. She also wanted me to get another vacine at the same

time, which the shingles vacine says not to take with another. Seems

like you need to know these things yourself.

> Thank goodness for all the people on this air family who come up with

these pearls of wisdom.

> Marcia

>

[Guest guest]

,

You sound so much like me! How far is Lubbock from Midlothian do ya know. I'm

gonna come see my daughter and her family next year and maybe we can totter off

together! LOL I always tell people that I have to laugh about all of this

because if I cry, my nose stuffs up and then I REALLY can't breathe ha ha

Dyane Phoenix

> > > > >

> > > > > Does anyone know how long it takes for approval - are we looking

> > > > at months, or years?

> > > > > Â Dorothy Reinecke

> > > > >

> > > > > UIP-7/05

> > > > >

> > > > >

> > > > >

> > > > > ____________ _________ _________ __

> > > > > From: " Paradis3@ . " Paradis3@

> > > > > To: Breathe-Support@ yahoogroups.

> > > > <mailto:Breathe- Support%40yahoog roups.com> com

> > > > > Sent: Thu, November 5, 2009 9:37:47 AM

> > > > > Subject: Perfinedone application made to the FDA

> > > > >

> > > > > Â

> > > > > I don't know if it's new news, but it is to me. Intermune has

> > > > applied for a new drug approval for Perfinedone as a treatment for

> > > > pulmonary fibrosis. I was alerted to that by the coalitionforpf.

> > > > org I'll check with my pulmo guys and see what that means, if

> > > > anything. Some time ago I asked them about the drug, having heard

> > > > it was in testing, and didn't get much of a rise out of anybody, so I

> > > > dunno.

> > > > >

> > > > > Bill C. IPF 10/08

> > > > > N.E. PA

> > > > >

> > > >

> > >

> >

>

[Guest guest]

No the vacine is a live virus and I looked it up and it says anyone who is immune suppressed should not get it, which so many of us are, because of the medicines we take, such as imuran. I do know shingles are miserable as I had them, and they were, but the instructions were not to get the vacine if immune suppressed.

[Guest guest]

The first pulmologist I had put me on the imuran. I mentioned to him about checking it, so then he did, then when he raised the amount he didn’t check it like I thought he should. Shortly after that I changed Dr.s He seemed pretty good, but he was to far away. Insurance changed again and new dr. Probably because you have to see the PC to get a referral to the Pulmodude. I probably needed a refil, so

she probably started ordering it. My pulmodude knows what medications I am taking, but she does the prescription writing. He sometimes makes changes. If it needs to be checked once a month, I will have to talk to her. Marcia

[Guest guest]

Well MSN maps says it is a little over 5 hours but going through Dallas adds

time. In Texas things are so spread out we don't really think about 5 hours are

being all that much. These folks out here will drive 2 hours to get a cold beer

and a good steak at a dive out from Abilene or San Angelo. I have yet to figure

out why we must refer to them as cold beers and not just beers but this is one

of the quirky West Texas things. We almost need a different dictionary out

here. I have been here almost 20 years and still don't have everything figured

out. LOL

S, Lubbock, TX

NSIP w/PF 12/2006

> > > > > >

> > > > > > Does anyone know how long it takes for approval - are we looking

> > > > > at months, or years?

> > > > > > Â Dorothy Reinecke

> > > > > >

> > > > > > UIP-7/05

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: " Paradis3@ . " Paradis3@

> > > > > > To: Breathe-Support@ yahoogroups.

> > > > > <mailto:Breathe- Support%40yahoog roups.com> com

> > > > > > Sent: Thu, November 5, 2009 9:37:47 AM

> > > > > > Subject: Perfinedone application made to the FDA

> > > > > >

> > > > > > Â

> > > > > > I don't know if it's new news, but it is to me. Intermune has

> > > > > applied for a new drug approval for Perfinedone as a treatment for

> > > > > pulmonary fibrosis. I was alerted to that by the coalitionforpf.

> > > > > org I'll check with my pulmo guys and see what that means, if

> > > > > anything. Some time ago I asked them about the drug, having heard

> > > > > it was in testing, and didn't get much of a rise out of anybody, so I

> > > > > dunno.

> > > > > >

> > > > > > Bill C. IPF 10/08

> > > > > > N.E. PA

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

,Thats funny, I have been across Texas several times so I understand, Texas is always a "2-day state". Phoenix on the other hand is full of wimps, if they have to drive more than 30 minutes its too far. When we had a bid to-do over the fact the West side of town got the new Cardinal stadium 5 years ago or so, people from Tempe (a 35-40 minute drive) swore they would give up their season tickets cuz it was too far to drive for a losing team. Hope they did ha ha. Me? We once drove 2 hours in rain and sleet in West Germany in a VW bug w/no heat to go to Mcs after a year with no Big Macs LOL.Dyane Phoenix ipf 02> > > > > > >> > > > > > > Does anyone know how long it takes for approval - are we looking> > > > > > at months, or years?> > > > > > >  Dorothy Reinecke> > > > > > >> > > > > > > UIP-7/05> > > > > > >> > > > > > >> > > > > > >> > > > > > > ____________ _________ _________ __> > > > > > > From: "Paradis3@ ." Paradis3@> > > > > > > To: Breathe-Support@ yahoogroups.> > > > > > <mailto:Breathe- Support%40yahoog roups.com> com> > > > > > > Sent: Thu, November 5, 2009 9:37:47 AM> > > > > > > Subject: Perfinedone application made to the FDA> > > > > > >> > > > > > > Â> > > > > > > I don't know if it's new news, but it is to me. Intermune has> > > > > > applied for a new drug approval for Perfinedone as a treatment for> > > > > > pulmonary fibrosis. I was alerted to that by the coalitionforpf.> > > > > > org I'll check with my pulmo guys and see what that means, if> > > > > > anything. Some time ago I asked them about the drug, having heard> > > > > > it was in testing, and didn't get much of a rise out of anybody, so I> > > > > > dunno.> > > > > > >> > > > > > > Bill C. IPF 10/08> > > > > > > N.E. PA> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

That's funny. I guess it is all in the perspective.

So have you ever been to Alice 's stown??? How fun would that be?

S, Lubbock, TX

NSIP w/PF 12/2006 et al

> > > > > > > >

> > > > > > > > Does anyone know how long it takes for approval -

> are we looking

> > > > > > > at months, or years?

> > > > > > > > Â Dorothy Reinecke

> > > > > > > >

> > > > > > > > UIP-7/05

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > ____________ _________ _________ __

> > > > > > > > From: " Paradis3@ . " Paradis3@

> > > > > > > > To: Breathe-Support@ yahoogroups.

> > > > > > > <mailto:Breathe- Support%40yahoog roups.com> com

> > > > > > > > Sent: Thu, November 5, 2009 9:37:47 AM

> > > > > > > > Subject: Perfinedone application made to

> the FDA

> > > > > > > >

> > > > > > > > Â

> > > > > > > > I don't know if it's new news, but it is to me.Â

> Intermune has

> > > > > > > applied for a new drug approval for Perfinedone as a

> treatment for

> > > > > > > pulmonary fibrosis. I was alerted to that by the

> coalitionforpf.

> > > > > > > org I'll check with my pulmo guys and see what that

> means, if

> > > > > > > anything. Some time ago I asked them about the drug,

> having heard

> > > > > > > it was in testing, and didn't get much of a rise out of

> anybody, so I

> > > > > > > dunno.

> > > > > > > >

> > > > > > > > Bill C. IPF 10/08

> > > > > > > > N.E. PA

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

,I have, great food, loud music, have seen "Alice" several times in various places as he lives here, just as old as the rest of us 'old farts'. I say that with the most love. I used to call my dear husband 'my old fart'. I miss him. He and I would dance anytime the music played...Dyane Phoenix ipf o2> > > > > > > > >> > > > > > > > > Does anyone know how long it takes for approval -> > are we looking> > > > > > > > at months, or years?> > > > > > > > >  Dorothy Reinecke> > > > > > > > >> > > > > > > > > UIP-7/05> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > > ____________ _________ _________ __> > > > > > > > > From: "Paradis3@ ." Paradis3@> > > > > > > > > To: Breathe-Support@ yahoogroups.> > > > > > > > <mailto:Breathe- Support%40yahoog roups.com> com> > > > > > > > > Sent: Thu, November 5, 2009 9:37:47 AM> > > > > > > > > Subject: Perfinedone application made to> > the FDA> > > > > > > > >> > > > > > > > > Â> > > > > > > > > I don't know if it's new news, but it is to me.Â> > Intermune has> > > > > > > > applied for a new drug approval for Perfinedone as a> > treatment for> > > > > > > > pulmonary fibrosis. I was alerted to that by the> > coalitionforpf.> > > > > > > > org I'll check with my pulmo guys and see what that> > means, if> > > > > > > > anything. Some time ago I asked them about the drug,> > having heard> > > > > > > > it was in testing, and didn't get much of a rise out of> > anybody, so I> > > > > > > > dunno.> > > > > > > > >> > > > > > > > > Bill C. IPF 10/08> > > > > > > > > N.E. PA> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

Awwwwww. That makes my day.

Let's make it a beautiful wonderful blessed day day. Shall we?

S, Lubbock, TX

NSIP w/PF 12/2006

> > > > > > > > > >

> > > > > > > > > > Does anyone know how long it takes for approval -

> > > are we looking

> > > > > > > > > at months, or years?

> > > > > > > > > > Â Dorothy Reinecke

> > > > > > > > > >

> > > > > > > > > > UIP-7/05

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > ____________ _________ _________ __

> > > > > > > > > > From: " Paradis3@ . " Paradis3@

> > > > > > > > > > To: Breathe-Support@ yahoogroups.

> > > > > > > > > <mailto:Breathe- Support%40yahoog roups.com> com

> > > > > > > > > > Sent: Thu, November 5, 2009 9:37:47 AM

> > > > > > > > > > Subject: Perfinedone application

> made to

> > > the FDA

> > > > > > > > > >

> > > > > > > > > > Â

> > > > > > > > > > I don't know if it's new news, but it is to me.Â

> > > Intermune has

> > > > > > > > > applied for a new drug approval for Perfinedone as a

> > > treatment for

> > > > > > > > > pulmonary fibrosis. I was alerted to that by the

> > > coalitionforpf.

> > > > > > > > > org I'll check with my pulmo guys and see what

> that

> > > means, if

> > > > > > > > > anything. Some time ago I asked them about the

> drug,

> > > having heard

> > > > > > > > > it was in testing, and didn't get much of a rise out of

> > > anybody, so I

> > > > > > > > > dunno.

> > > > > > > > > >

> > > > > > > > > > Bill C. IPF 10/08

> > > > > > > > > > N.E. PA

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>