Re: Questions about Zevex pump - to Debbie & Pat

[Guest guest]

Debbie & Pat,

Thanks for your responses. I called Zevex, & the lady I spoke to did not

recommend trying

to use the 1200mL bag in the mini-backpack, but I am going to try anyway. She

said it

would probably cause the pump to alarm. Debbie, you said the only problem you

have is

the weight of the bag, and that is the only thing I was worried about too. I

will be filling it

with 750 mL. is bigger than your kids (48 lbs.), but he also wears a

back

brace for kyphosis/scoliosis (Pat, you commented about Dr. H's concern about

this).

Pat, I called the formula company to find about hang time to prevent bacteria.

I explained

that I live in South Florida where it gets really hot, and I thought the

guidelines might be

different under those conditions. However, I was assured that the formula would

be safe

for 8-10 hours. I also asked about using an ice pack, and they did not

recommend this,

because having cold formula go directly into the stomach could cause problems.

Thinking

back, we did have this problem 2 years ago when we went camping when it was in

the low

30's. was on continuous overnight feedings & he was up retching all

night, not

able to tolerate the cold formula. I need to find out more about the prefilled

containers,

because they have a hang time of 48 hours.

is older & bigger than your children, so he needs a lot more calories.

He is

currently getting 1500 mL of Nutren 1.5 per day (for a total of 2250

calories/day). If he

was on 30 cal.oz. formula, he would need even more volume! Hopefully you won't

face

this issue when your kids are older. I hope your kids are able to get rid of

their g-tubes by

then!

Kim C.

> ---Hi Kim,

> We switched from the Kangaroo to the Zevex enteralite pump a year

> ago. My daughter Mollie is three and has been tube fed since 9

> months of age. I have always used the 1000ml bags. I fill them to

> 700-800ml. Squeeze the rest of the air out and have not had a

> problem other than sometimes being heavy for her. It seems that the

> bag weighs at least half of what she does. ANd it is a minipack as

> well. But, she is quite used to it now. She gets hooked up usually

> around 6 p.m. at night and runs to 8 oclock the next morning. We

> were able to cut back on our daytime feeds a bit.

> As far as the prefilled bags, I have not heard of them. I will be

> interested to see if anyone else posts as well. Good Luck.

>

> Debbie(mom to Mollie 3yrs.25# 35 inches gtube, reglan,prilosec,

> miralax, nutropin)

>

>

>

>

>

>

>

> In RSS-Support , " Kacey171 " <capuano_k@p...> wrote:

> >

> > has always used a Kangaroo Pet feeding pump, and for the

> past 9 years only at

> > night. He just switched to a Zevex Enteralite pump, so that he

> could be on continuous

> > feedings during the day as well. The problem I am running into is

> that he is using the

> > mini-backpack with a 500mL feeding bag. He needs 750mL during the

> day and another

> > 750mL during the night. This means the bag has to be refilled in

> the middle of the

> > feedings. can't do this himself during the day, as the

> bag is hard to close. In

> > fact, I even have a hard time doing this. When I fill the bag to

> the top and try to close it,

> > formula spurts out of the top & spills. This is somewhat of a

> nuisance. Then at night, I

> > either have to stay up very late or wake up in the middle of the

> night to refill the bag,

> > which is definitely a pain in the butt. I don't think my

> insurance will pay for both 500ml

> > and 1200ml bags to avoid this problem. I was thinking about

> trying a 1200mL bag in the

> > mini-backpack, but just filling it with 750 mL & rolling up the

> rest of the bag to get it out

> > of the way. I am not sure if this will work though. Has anyone

> ever done this or run into a

> > similar problem using this pump? Any suggestions would be

> welcomed.

> >

> > Kim C.