Re: rss adult convention?

[Guest guest]

Hey Jodie its kim, As far as i know most of us adults are saving to attend the

convention next year as there is only an rss adult section once every two

years,as none of us can organise events for this year. I think however that

claire is going this year as she lives in chicago. I'm not too bad at the

moment, i dont know if i mentioned on the site but the orthopedic surgeon has

found a loose piece of bone in my knee, as you may know i have

joint/knee/mobility problems, and also that my kneecaps dont track correctly so

i have a date,June 15th 2005, to have the bone removed,my kneecaps smoothed on

the reverse of the cap, and possibly my ligaments in my knees tightened to

correct the bad kneecap postioning. Anyway i hope all are ok and your kids are

continuing to progress.

Jodie wrote:hey all you rss adults i just had a question

or maybe jen s could

answere, where and when is the adult convention going to be? i

remember seeing a post about it and cindy (22yrs old rss adult that

lives near me wanted the info, i am going to see her on the 18th when

she comes to help me with the benefit breakfast). thanks!! by the way

has anyone heard from any of our adult friends? i havent seen any

posts in a while from sharon, kim, claire, ect? just hoping everything

is alright!!

jodie c

---------------------------------

[Guest guest]

Hi Jodie,

Jenn did post about a MAGIC convention for affected adults (with any

growth disorder)... I posted it on the RSS-People listserve, and

everyone I heard back from decided to wait to go to the full Chicago

conference in 2006 instead. But here's what she posted, in case

Cindy (or any other RSS adult who's lurking here) is interested in a

trip to Phoenix:

-Ana

RSS Adults -

I need your feedback. MAGIC is planning an ADULTS convention, to be

tentatively held on the weekend of Nov. 4-5th at the Marriott Phoenix

Hotel.

This convention currently is for the Adult Growth Hormone Deficient

Division. MAGIC would like to know if the RSS adults would also like

to attend? MAGIC would organize the convention, and would help in

any

way possible to set up speakers. But the adults group would need to

decide what they wanted in terms of speakers, etc.

The plan was to have 1/2 a day Saturday devoted to disorder speaker

issues, and the afternoon devoted to general short stature issues,

regardless of disorder.

Anyway. Will you talk about this on the RSS Adult listserve and let

me know ASAP if anyone is interested in investigating this any

further?

Thanks! Jenn

[Guest guest]

The feedback from the RSS adult listserve was that they did not want

to participate in the MAGIC Adult convention, in so far as having

specific RSS presentations put together. The AGHD adults are still

gathering, in November, in Phoenix, AZ. She can contact MAGIC for

more info.

The feedback was that the adult RSS'ers would rather concentrate on

2006 and try and put something together at the regular convention,

because they enjoy being with the little kids with RSS, too, and

meeting all the parents. I thought that was pretty neat.

Jenn

> hey all you rss adults i just had a question or maybe jen s could

> answere, where and when is the adult convention going to be? i

> remember seeing a post about it and cindy (22yrs old rss adult that

> lives near me wanted the info, i am going to see her on the 18th

when

> she comes to help me with the benefit breakfast). thanks!! by the

way

> has anyone heard from any of our adult friends? i havent seen any

> posts in a while from sharon, kim, claire, ect? just hoping

everything

> is alright!!

>

> jodie c