From Jen - stories, tantrums, body odor....

[Guest guest]

Jenn,

My daughter is 8. We are seeing signs of adrenarche and have an appt with

her endo in 2 weeks. What should we ask him to look for? Last summer we thought

we had a problem (breast development, body odor,) and they did a test which

showed no hormone activity. I couldn't believe it. Now I know it's happening.

We feel that we hqve a good endo - no problems yet - but he is way too busy.

He's the only Ped endo in N E Oklahoma. What do we look for, ask, etc.? Mikey

is 50 lbs, 50 in., has been on growth hormone for 5 years.She has been

growing at the rate of 4 in per year - no other problems. Finally eats well. We

thought we were " home free " . Guess not. Since I have seen your posts about

I thought you might have some advice. Mikey was born full term, 3.8

lbs,15 inches.Thanks Ellen - mother and grandmother to Mikey

[Guest guest]

Guys - I am just giggling at your stories. We used to call

" Jekyll and Hyde. " When it continued past age 4, we quickly

found out that a major contributing factor was her blood sugar

levels. Once we stablized those, it got MUCH better. I pray for

all of you!

Today, we had a BIG revelation. 's last blood work clearly

showed she is in full adrenarche (DHEA levels of more than 320,

normal 60-70 prior years). She has had scattered pimples on her

forehead. Today she came home from school hot and sweaty - I helped

her change and BAM -- massive body odor, almost bowled me over! I

told her it was deodorant time, and you have never seen a little

girl SOO excited. Here I am thinking, 9 years old, bone thin, and

body odor, and she is so excited about it. Incredible!

I have learned from Dr. H that the Arimidex that she is on won't

STOP adrenarche, so the body odor and pimples keep going. It just

specifically halts the conversion of the adrogens into estrogen, and

hopefully will then halt her rapid progression of her bone age.

Meanwhile, I just wish the pimples and body odor would go away. She

is only 9 and in 3rd grade!!!

Jenn

> > > > Definitions taken from www.thefreedictionary.com

> > > > <http://www.thefreedictionary.com/>

> > > >

> > > >

> > > >

> > > > Dwarfism:

> > > >

> > > >

> > > >

> > > > A pathological condition of arrested growth having various

> > > causes.

> > > >

> > > >

> > > >

> > > > From the thesaurus : a genetic abnormality resulting in

short

> > > stature.

> > > >

> > > >

> > > >

> > > > Midget:

> > > >

> > > >

> > > >

> > > > 1. Offensive An extremely small person who is otherwise

normally

> > > > proportioned.

> > > >

> > > > 2. A small or miniature version of something.

> > > >

> > > > 3. A class of small objects, as a class of very small

sailboats

> > or

> > > racing

> > > > cars.

> > > >

> > > >

> > > >

> > > > From the Thesaurus: a person who is abnormally small

> > > >

> > > >

> > > >

> > > > Dwarf:

> > > >

> > > >

> > > >

> > > > 1.

> > > >

> > > > a. An abnormally small person, often having limbs and

features

> > > atypically

> > > > proportioned or formed.

> > > >

> > > > b. An atypically small animal or plant.

> > > >

> > > > 2. A small creature resembling a human, often ugly,

appearing

> in

> > > legends and

> > > > fairy tales.

> > > >

> > > > 3. A dwarf star.

> > > >

> > > >

> > > >

> > > > From the Thesaurus: a person who is abnormally small.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Dayna< Mom to ALyssa

> > > >

> > > > _____

> > > >

> > > > From: RSS-Support [mailto:RSS-

> > > Support ] On

> > > > Behalf Of R

> > > > Sent: Friday, May 27, 2005 7:37 AM

> > > > To: RSS-Support

> > > > Subject: Re: (unknown)

> > > >

> > > >

> > > >

> > > > << so

> > > > technically wouldn't persons with RSS be considered dwarves??

>>

> > > >

> > > > From my understanding RSS is considered Proportionate

Dwarfism.

> > > Just Like

> > > > Growth hormone Deficiency is call Puturity Dwarfism..People

> > that

> > > are Growth

> > > > hormone deficient are proportionate as well.

> > > >

> > > >

> > > >

> > > > R

> > > > Mom to:

> > > > Jed (1/22/93) Tic disorder, Asthma, Heart Murmur.....

> > > > Liam (12/12/00) SGA/RSS, Hypothyroid,Asthma, Epilepsy,

Hearing

> > > Impaired,

> > > > Sensory Issues, Food Allergies, Heart Murmur...

> > > >

> > > > Groups I own:

> > > > Toddlers with Epilepsy

> > > > Moms 30 and Beyond

> > > > HOHPreschoolers

> > > >

> > > >

[Guest guest]

,

I am so glad that you shared this with us. I have talked to my husband several

times about the risk of premature adrenarche but it never hit home to him until

I told him about . Knowing how involved you are and the fact that she

see's Dr. H twice (at least, right?) a year really made me open my eyes. If

this can happen at 9 to it sure as heck can happen earlier with other

kids. I just hope her growth continues and the mood swings level out for you.

(mom to Zoe)

Brock wrote:

Guys - I am just giggling at your stories. We used to call

" Jekyll and Hyde. " When it continued past age 4, we quickly

found out that a major contributing factor was her blood sugar

levels. Once we stablized those, it got MUCH better. I pray for

all of you!

Today, we had a BIG revelation. 's last blood work clearly

showed she is in full adrenarche (DHEA levels of more than 320,

normal 60-70 prior years). She has had scattered pimples on her

forehead. Today she came home from school hot and sweaty - I helped

her change and BAM -- massive body odor, almost bowled me over! I

told her it was deodorant time, and you have never seen a little

girl SOO excited. Here I am thinking, 9 years old, bone thin, and

body odor, and she is so excited about it. Incredible!

I have learned from Dr. H that the Arimidex that she is on won't

STOP adrenarche, so the body odor and pimples keep going. It just

specifically halts the conversion of the adrogens into estrogen, and

hopefully will then halt her rapid progression of her bone age.

Meanwhile, I just wish the pimples and body odor would go away. She

is only 9 and in 3rd grade!!!

Jenn

> > > > Definitions taken from www.thefreedictionary.com

> > > > <http://www.thefreedictionary.com/>

> > > >

> > > >

> > > >

> > > > Dwarfism:

> > > >

> > > >

> > > >

> > > > A pathological condition of arrested growth having various

> > > causes.

> > > >

> > > >

> > > >

> > > > From the thesaurus : a genetic abnormality resulting in

short

> > > stature.

> > > >

> > > >

> > > >

> > > > Midget:

> > > >

> > > >

> > > >

> > > > 1. Offensive An extremely small person who is otherwise

normally

> > > > proportioned.

> > > >

> > > > 2. A small or miniature version of something.

> > > >

> > > > 3. A class of small objects, as a class of very small

sailboats

> > or

> > > racing

> > > > cars.

> > > >

> > > >

> > > >

> > > > From the Thesaurus: a person who is abnormally small

> > > >

> > > >

> > > >

> > > > Dwarf:

> > > >

> > > >

> > > >

> > > > 1.

> > > >

> > > > a. An abnormally small person, often having limbs and

features

> > > atypically

> > > > proportioned or formed.

> > > >

> > > > b. An atypically small animal or plant.

> > > >

> > > > 2. A small creature resembling a human, often ugly,

appearing

> in

> > > legends and

> > > > fairy tales.

> > > >

> > > > 3. A dwarf star.

> > > >

> > > >

> > > >

> > > > From the Thesaurus: a person who is abnormally small.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Dayna< Mom to ALyssa

> > > >

> > > > _____

> > > >

> > > > From: RSS-Support [mailto:RSS-

> > > Support ] On

> > > > Behalf Of R

> > > > Sent: Friday, May 27, 2005 7:37 AM

> > > > To: RSS-Support

> > > > Subject: Re: (unknown)

> > > >

> > > >

> > > >

> > > > << so

> > > > technically wouldn't persons with RSS be considered dwarves??

>>

> > > >

> > > > From my understanding RSS is considered Proportionate

Dwarfism.

> > > Just Like

> > > > Growth hormone Deficiency is call Puturity Dwarfism..People

> > that

> > > are Growth

> > > > hormone deficient are proportionate as well.

> > > >

> > > >

> > > >

> > > > R

> > > > Mom to:

> > > > Jed (1/22/93) Tic disorder, Asthma, Heart Murmur.....

> > > > Liam (12/12/00) SGA/RSS, Hypothyroid,Asthma, Epilepsy,

Hearing

> > > Impaired,

> > > > Sensory Issues, Food Allergies, Heart Murmur...

> > > >

> > > > Groups I own:

> > > > Toddlers with Epilepsy

> > > > Moms 30 and Beyond

> > > > HOHPreschoolers

> > > >

> > > >