Re: Anyone ever test regular food for a reaction?

[Guest guest]

,I think one or two things will most likely happen. You could have immediate symptoms -- like Marilyn and others, or you could be like my husband and eat many illegals sporadically and then have a slow on-coming issue that you don't like and can't get rid of. ; ) Right now DH has returned from a 3 week trip in India where he ate rice and/or wheat every day. He had to stop taking a probiotic and his LDN because his scalp and face around his eyes became irritated, red, dry and flaky (I know to be yeast related). His skin got much better. Since being home and NOT eating those things and not taking the beneficial things, his skin is getting slightly worse (I think die-off) and now wants to stop using coconut milk because he thinks it is causing him a problem.

HA! As I sit here and wonder just how long he will go before admitting to himself that he has a yeast problem that really needs to be addressed! Go ahead, keep using all the meds you are using without questioning if they could be the problem and eat illegals. I predict that within the near future, not even those meds will help you. I honestly believe you have a big underlying issue that you have not discovered or possibly just not treated properly. I know that you have been trying natural anti-fungals, but if you have a large root problem with yeast and are still on Prednisone (which encourages yeast), you might need some big guns like Diflucan and/or Nystatin. I don't doubt that you need the Prednisone to control your symptoms at this point, so please do not think I am saying you are doing something wrong there. I do think you should question 12 oral Asacol pills a day though. It is a maintenance

drug and it apparently isn't working or you wouldn't have the symptoms you do or the need you have to do the Prednisone. If the enemas are helping, you might consider dropping the oral Asacol to see if it helps. That is a lot of Asacol and it does say in the package insert that it can cause the same symptoms in side-effects as it is trying to help!I don't mean to sound harsh, and I am probably taking out my frustrations with my husband on you, but the advice (unsolicitated as it may be), would be to find a good integrative medicine doctor and/or get testing for done for yeast overgrowth and get it addressed if there is a problem. If you had a small yeast problem I believe a SCD adapted for yeast routine with natural anti-fungals would help, but I think that if it goes too long and becomes too extensive, I think they would only help you 'tread water' at best in the short-term and it would take a very long time with strict

adherence and major persistance to clear it. O.k. I have finished my rant and I send my absolute and complete regrets for sounding so offensive. After watching your comments for awhile, I just thought maybe some one should shake you up bit kind of like Sky did for me to get me to see I still had unresolved thyroid issues -- only I think she is a nicer person and did it in a more diplomatic way! : )Amelia To: btvc-scd Sent: Thu, May 6, 2010 3:49:21 AMSubject: Anyone ever test regular food for a reaction?

Since SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now. Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

It seems like the longer someone is on prednisone, the more yeast issues you have.  I had constant problems and I was pred dependent.  Sometimes that rears it's head and is a constant issue.  I was even told to watch my sugars/salt and to keep it below the 'accepted' level but I still always had thrush and skin problems.  Meaning it would take longer to get rid of.

 

Debbie 41 cd

 

,I think one or two things will most likely happen.  You could have immediate symptoms -- like Marilyn and others, or you could be like my husband and eat many illegals sporadically and then have a slow on-coming issue that you don't like and can't get rid of.  ; )  Right now DH has returned from a 3 week trip in India where he ate rice and/or wheat every day.  He had to stop taking a probiotic and his LDN because his scalp and face around his eyes became irritated, red, dry and flaky (I know to be yeast related). His skin got much better.  Since being home and NOT eating those things and not taking the beneficial things, his skin is getting slightly worse (I think die-off) and now wants to stop using coconut milk because he thinks it is causing him a problem.  HA!  As I sit here and wonder just how long he will go before admitting to himself that he has a yeast problem that really needs to be addressed! 

Go ahead, keep using all the meds you are using without questioning if they could be the problem and eat illegals.  I predict that within the near future, not even those meds will help you.  I honestly believe you have a big underlying issue that you have not discovered or possibly just not treated properly.  I know that you have been trying natural anti-fungals, but if you have a large root problem with yeast and are still on Prednisone (which encourages yeast), you might need some big guns like Diflucan and/or Nystatin.  I don't doubt that you need the Prednisone to control your symptoms at this point, so please do not think I am saying you are doing something wrong there.  I do think you should question 12 oral Asacol pills a day though.  It is a maintenance drug and it apparently isn't working or you wouldn't have the symptoms you do or the need you have to do the Prednisone.  If the enemas are helping, you might consider dropping the oral Asacol to see if it helps.  That is a lot of Asacol and it does say in the package insert that it can cause the same symptoms in side-effects as it is trying to help!

I don't mean to sound harsh, and I am probably taking out my frustrations with my husband on you, but the advice (unsolicitated as it may be), would be to find a good integrative medicine doctor and/or get testing for done for yeast overgrowth and get it addressed if there is a problem.  If you had a small yeast problem I believe a SCD adapted for yeast routine with natural anti-fungals would help, but I think that if it goes too long and becomes too extensive, I think they would only help you 'tread water' at best in the short-term and it would take a very long time with strict adherence and major persistance to clear it.  

O.k. I have finished my rant and I send my absolute and complete regrets for sounding so offensive.  After watching your comments for awhile, I just thought maybe some one should shake you up bit kind of like Sky did for me to get me to see I still had unresolved thyroid issues -- only I think she is a nicer person and did it in a more diplomatic way!   : )

Amelia 

To: btvc-scd

Sent: Thu, May 6, 2010 3:49:21 AMSubject: Anyone ever test regular food for a reaction?

 

Since SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!

If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day

Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

I also wanted to add that in BTVC, the discussion on trying illegals is after

being on SCD and at least symptom free for one year, so for you, this experiment

is a bit premature in this context.

Judging by the people here on SCD longer than 2 years, I believe it is a long

term lifestyle. The first year on SCD is an adjustment.

Yes, this is not fun, or easy. It is an adjustment, and for the long run. We

can't just stay on SCD waiting for the day it is all over and can eat illegals

again, for many of us will never eat them, or just rarely.

My son's room mate at school has multiple food allergies. He can't eat in the

cafeteria or go out to eat wherever he wants with his buddies. I think we have

to look at this the same way, it's what it is, but it keeps us healthier than

not being on SCD. We may feel alone, but we are not really.

I do hope you feel better. I know you miss the more carefree lifestyle.

PJ

>

> ,

>

> I think one or two things will most likely happen. You could have immediate

symptoms -- like Marilyn and others, or you could be like my husband and eat

many illegals sporadically and then have a slow on-coming issue that you don't

like and can't get rid of. ; ) Right now DH has returned from a 3 week trip in

India where he ate rice and/or wheat every day. He had to stop taking a

probiotic and his LDN because his scalp and face around his eyes became

irritated, red, dry and flaky (I know to be yeast related). His skin got much

better. Since being home and NOT eating those things and not taking the

beneficial things, his skin is getting slightly worse (I think die-off) and now

wants to stop using coconut milk because he thinks it is causing him a problem.

HA! As I sit here and wonder just how long he will go before admitting to

himself that he has a yeast problem that really needs to be addressed!

>

> Go ahead, keep using all the meds you are using without questioning if they

could be the problem and eat illegals. I predict that within the near future,

not even those meds will help you. I honestly believe you have a big underlying

issue that you have not discovered or possibly just not treated properly. I

know that you have been trying natural anti-fungals, but if you have a large

root problem with yeast and are still on Prednisone (which encourages yeast),

you might need some big guns like Diflucan and/or Nystatin. I don't doubt that

you need the Prednisone to control your symptoms at this point, so please do not

think I am saying you are doing something wrong there. I do think you should

question 12 oral Asacol pills a day though. It is a maintenance drug and it

apparently isn't working or you wouldn't have the symptoms you do or the need

you have to do the Prednisone. If the enemas are helping, you might consider

dropping the oral Asacol to

> see if it helps. That is a lot of Asacol and it does say in the package

insert that it can cause the same symptoms in side-effects as it is trying to

help!

>

> I don't mean to sound harsh, and I am probably taking out my frustrations with

my husband on you, but the advice (unsolicitated as it may be), would be to find

a good integrative medicine doctor and/or get testing for done for yeast

overgrowth and get it addressed if there is a problem. If you had a small yeast

problem I believe a SCD adapted for yeast routine with natural anti-fungals

would help, but I think that if it goes too long and becomes too extensive, I

think they would only help you 'tread water' at best in the short-term and it

would take a very long time with strict adherence and major persistance to clear

it.

>

> O.k. I have finished my rant and I send my absolute and complete regrets for

sounding so offensive. After watching your comments for awhile, I just thought

maybe some one should shake you up bit kind of like Sky did for me to get me to

see I still had unresolved thyroid issues -- only I think she is a nicer person

and did it in a more diplomatic way! : )

>

> Amelia

>

>

>

>

>

> ________________________________

>

> To: btvc-scd

> Sent: Thu, May 6, 2010 3:49:21 AM

> Subject: Anyone ever test regular food for a reaction?

>

>

> Since SCD doesn't work for everyone, which Elaine says herself, has anyone

tried eating something illegal to see if you get a reaction or not? I'm thinking

about trying it since i'm reacting to everything legal I figure why not try

something illegal!

>

> If I do eat something illegal, would it really set me back all that much? Been

on SCD a year now...

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

>

> ________________________________

> Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox.

Learn more.

>

[Guest guest]

I ate something I thought was ok last year -applegate hotdogs- so the illegal

wasn't even a food but just the anti-caking agent in the spices and had 1 loose

BM everyday for a month - BUT.. my neighbor who is 80% scd now a few weks on

-says she feels so good and her illegals don't affect her as badly now just a

few weeks in - if you're symptom free and are willing to risk something you LOVE

-give it a try - I'm TOO petrified (and yeasty) to think of that though :-)

eileen 2years 4 months scd

though I should state not food wise but supplementwise I recently have added a

few illegals that have helped - it's a personal call

> >Since SCD doesn't work for everyone, which

> >Elaine says herself, has anyone tried eating

> >something illegal to see if you get a reaction

> >or not? I'm thinking about trying it since i'm

> >reacting to everything legal I figure why not try something illegal!

> >

> >If I do eat something illegal, would it really

> >set me back all that much? Been on SCD a year now...

>

> Well, I didn't eat something illegal deliberately.

>

> I can tell you that the pain killers I had after

> my cancer surgery were all formulated with

> illegals. THe opiates weren't too bad, as their

> tendency to cause constipation balanced the

> diarrhea the illegal would normally cause.

>

> However, the Motrin was formulated with lactose,

> and I can state, unequivocally, that trying to

> bolt out of bed and run for the bathroom because

> you have sudden and violent diarrhea when you

> also have a 24 " slice across your gut is not entertaining.

>

> I learned, early on, that there is NO food so

> delicious that it's worth being sick in order to eat.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

Mara,It might have, or it might have been the meds.. I just don't know because I started the meds and SCD at the same time, so it's impossible for me to tell. I'm going to stay on SCD, but I may go off sometime in the future we'll see. I see people with Uc that have been flare free taking only colazol and eating whatever they want. Or, my friend who's on Imuran, no side effects, and living life completely "normal". I know this is probably temporary for both of them, then onto a bigger badder medicine, but sometimes I wonder if i'll be there as well despite my commitement to the diet.-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: alcibiades@...Date: Thu, 6 May 2010 02:03:32 -0400Subject: Re: Anyone ever test regular food for a reaction?

.I thought SCD was helping to improve you until you had antibiotics for the secondtime, which started this long flare?You should go for the Genova lab tests or the ones at Quest that Jodi recently described - there are some pathogenic bacteria/fungi, etc. where you need more than SCD to getrid of them. , at Healing Crow, used to be really helpful at giving advice in thosesituations, but that list is closed now to new members. Also, have you researched extreme reactions to antibiotics and come up with anythingthat matches your two experiences? As for the illegal things - some things you'll probably be able to eat just fine, and others you will react really badly to - and even when you are non reactive to some things atsome times, that won't necessarily hold consistently, particularly if your system is allsensitive from being in a flare. And also, there's the problem of not knowing in advancewhich is which. MaraSince SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

I appreciet the honesty, sometimes people need it! No offence taken at all by the way. I am doing a phone consult with a doctor so I can try LDN soon and I will see if he can give me a script for diflucan to go with the LDN, or what he thinks would work best... I don't know where to look for another doc to get this year thing figured out. I did ask my GI but he said there are no tests for yeast with the exception of oral thrush?? I found that confusing with all the technology and tests we have today. You would think they would be able to test for yeast somehow!-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: bhide_thehague@...Date: Thu, 6 May 2010 02:11:27 -0700Subject: Re: Anyone ever test regular food for a reaction?

,I think one or two things will most likely happen. You could have immediate symptoms -- like Marilyn and others, or you could be like my husband and eat many illegals sporadically and then have a slow on-coming issue that you don't like and can't get rid of. ; ) Right now DH has returned from a 3 week trip in India where he ate rice and/or wheat every day. He had to stop taking a probiotic and his LDN because his scalp and face around his eyes became irritated, red, dry and flaky (I know to be yeast related). His skin got much better. Since being home and NOT eating those things and not taking the beneficial things, his skin is getting slightly worse (I think die-off) and now wants to stop using coconut milk because he thinks it is causing him a problem.

HA! As I sit here and wonder just how long he will go before admitting to himself that he has a yeast problem that really needs to be addressed! Go ahead, keep using all the meds you are using without questioning if they could be the problem and eat illegals. I predict that within the near future, not even those meds will help you. I honestly believe you have a big underlying issue that you have not discovered or possibly just not treated properly. I know that you have been trying natural anti-fungals, but if you have a large root problem with yeast and are still on Prednisone (which encourages yeast), you might need some big guns like Diflucan and/or Nystatin. I don't doubt that you need the Prednisone to control your symptoms at this point, so please do not think I am saying you are doing something wrong there. I do think you should question 12 oral Asacol pills a day though. It is a maintenance

drug and it apparently isn't working or you wouldn't have the symptoms you do or the need you have to do the Prednisone. If the enemas are helping, you might consider dropping the oral Asacol to see if it helps. That is a lot of Asacol and it does say in the package insert that it can cause the same symptoms in side-effects as it is trying to help!I don't mean to sound harsh, and I am probably taking out my frustrations with my husband on you, but the advice (unsolicitated as it may be), would be to find a good integrative medicine doctor and/or get testing for done for yeast overgrowth and get it addressed if there is a problem. If you had a small yeast problem I believe a SCD adapted for yeast routine with natural anti-fungals would help, but I think that if it goes too long and becomes too extensive, I think they would only help you 'tread water' at best in the short-term and it would take a very long time with strict

adherence and major persistance to clear it. O.k. I have finished my rant and I send my absolute and complete regrets for sounding so offensive. After watching your comments for awhile, I just thought maybe some one should shake you up bit kind of like Sky did for me to get me to see I still had unresolved thyroid issues -- only I think she is a nicer person and did it in a more diplomatic way! : )Amelia From: T <scdguy26 (AT) hotmail (DOT) com>To: btvc-scd Sent: Thu, May 6, 2010 3:49:21 AMSubject: Anyone ever test regular food for a reaction?

Since SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now. Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

,

The yeast theory is considered complementary and alternative medicine (CAM).

Many traditional doctors don't get into this.

PJ

>

>

> I appreciet the honesty, sometimes people need it! No offence taken at all by

the way. I am doing a phone consult with a doctor so I can try LDN soon and I

will see if he can give me a script for diflucan to go with the LDN, or what he

thinks would work best... I don't know where to look for another doc to get this

year thing figured out. I did ask my GI but he said there are no tests for yeast

with the exception of oral thrush?? I found that confusing with all the

technology and tests we have today. You would think they would be able to test

for yeast somehow!

>

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

>

> To: BTVC-SCD

> From: bhide_thehague@...

> Date: Thu, 6 May 2010 02:11:27 -0700

> Subject: Re: Anyone ever test regular food for a reaction?

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> ,

>

> I think one or two things will most likely happen. You could have immediate

symptoms -- like Marilyn and others, or you could be like my husband and eat

many illegals sporadically and then have a slow on-coming issue that you don't

like and can't get rid of. ; ) Right now DH has returned from a 3 week trip in

India where he ate rice and/or wheat every day. He had to stop taking a

probiotic and his LDN because his scalp and face around his eyes became

irritated, red, dry and flaky (I know to be yeast related). His skin got much

better. Since being home and NOT eating those things and not taking the

beneficial things, his skin is getting slightly worse (I think die-off) and now

wants to stop using coconut milk because he thinks it is causing him a problem.

> HA! As I sit here and wonder just how long he will go before admitting to

himself that he has a yeast problem that really needs to be addressed!

>

> Go ahead, keep using all the meds you are using without questioning if they

could be the problem and eat illegals. I predict that within the near future,

not even those meds will help you. I honestly believe you have a big underlying

issue that you have not discovered or possibly just not treated properly. I

know that you have been trying natural anti-fungals, but if you have a large

root problem with yeast and are still on Prednisone (which encourages yeast),

you might need some big guns like Diflucan and/or Nystatin. I don't doubt that

you need the Prednisone to control your symptoms at this point, so please do not

think I am saying you are doing something wrong there. I do think you should

question 12 oral Asacol pills a day though. It is a maintenance

> drug and it apparently isn't working or you wouldn't have the symptoms you do

or the need you have to do the Prednisone. If the enemas are helping, you might

consider dropping the oral Asacol to see if it helps. That is a lot of Asacol

and it does say in the package insert that it can cause the same symptoms in

side-effects as it is trying to help!

>

> I don't mean to sound harsh, and I am probably taking out my frustrations with

my husband on you, but the advice (unsolicitated as it may be), would be to find

a good integrative medicine doctor and/or get testing for done for yeast

overgrowth and get it addressed if there is a problem. If you had a small yeast

problem I believe a SCD adapted for yeast routine with natural anti-fungals

would help, but I think that if it goes too long and becomes too extensive, I

think they would only help you 'tread water' at best in the short-term and it

would take a very long time with strict

> adherence and major persistance to clear it.

>

> O.k. I have finished my rant and I send my absolute and complete regrets for

sounding so offensive. After watching your comments for awhile, I just thought

maybe some one should shake you up bit kind of like Sky did for me to get me to

see I still had unresolved thyroid issues -- only I think she is a nicer person

and did it in a more diplomatic way! : )

>

> Amelia

>

>

>

> To: btvc-scd

> Sent: Thu, May 6, 2010 3:49:21 AM

> Subject: Anyone ever test regular food for a reaction?

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Since SCD doesn't work for everyone, which Elaine says herself, has anyone

tried eating something illegal to see if you get a reaction or not? I'm thinking

about trying it since i'm reacting to everything legal I figure why not try

something illegal!

>

> If I do eat something illegal, would it really set me back all that much? Been

on SCD a year now...

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

>

> Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox.

Learn more.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with

Hotmail.

>

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>

[Guest guest]

Or, my friend who's on Imuran, no side effects, and living life completely "normal".And then me, who's also on Imuran/azathioprine, and still stuck on prednisone. Hoping it just hasn't taken full effect yet, but remember it does go both ways =( I know this is probably temporary for both of them, then onto a bigger badder medicine, but sometimes I wonder if i'll be there as well despite my commitement to the diet.Well, that's where you get into all the 'what ifs.' But really, after you do all you can, all you can do is just relax, because there's nothing else you can do, and what comes will come. I, however, think that we will all find what works for us eventually, because I don't believe we were created to suffer. You'll get there =) Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day

[Guest guest]

you won't be there on scd !! and they're doing damage and not seeing or feeling

it YET!!!-try to not be too jealous of the " normal " life - lol

eileen 2 years 4 months scd

>

> Since SCD doesn't work for everyone, which Elaine says herself, has anyone

tried eating something illegal to see if you get a reaction or not? I'm thinking

about trying it since i'm reacting to everything legal I figure why not try

something illegal!

>

> If I do eat something illegal, would it really set me back all that much? Been

on SCD a year now...

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

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>

[Guest guest]

Here's the thing, . If you have something like C. Diff. - and I don't know that youdo, I'm just speculating about difficult to control bacteria, the diet alone or the medswon't help you. You'll need something that will target those particular bacteria. And itjust seems likely since your two onsets were both connected to antibiotics, that theymay have killed off lots of various kinds of bacteria and allowed something pathogenicto overgrow causing the onset of your symptoms. That's why getting a stool test seems the best idea for you right now. Clearly something extra difficult to eradicate is happening. And if the cause is bacterial -it could be something else that we are unaware of, too - this is the quickest way to find out. At least you will be ruling out possibilities. MaraMara,It might have, or it might have been the meds.. I just don't know because I started the meds and SCD at the same time, so it's impossible for me to tell. I'm going to stay on SCD, but I may go off sometime in the future we'll see. I see people with Uc that have been flare free taking only colazol and eating whatever they want. Or, my friend who's on Imuran, no side effects, and living life completely "normal". I know this is probably temporary for both of them, then onto a bigger badder medicine, but sometimes I wonder if i'll be there as well despite my commitement to the diet.-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: alcibiades@...Date: Thu, 6 May 2010 02:03:32 -0400Subject: Re: A! nyone ever test regular food for a reaction?.I thought SCD was helping to improve you until you had antibiotics for the secondtime, which started this long flare?You should go for the Genova lab tests or the ones at Quest that Jodi recently described - there are some pathogenic bacteria/fungi, etc. where you need more than SCD to getrid of them. , at Healing Crow, used to be really helpful at giving advice in thosesituations, but that list is closed now to new members. Also, have you researched extreme reactions to antibiotics and come up with anythingthat matches your two experiences? As for the illegal things - some things you'll probably be able to eat just fine, and others you will react really badly to - and even when you are non reactive to some things atsome times, that won't necessarily h! old consistently, particularly if your system is allsensitive from being in a flare. And also, there's the problem of not knowing in advancewhich is which. MaraSince SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it reall! y set me back all that much? Been on SCD a year now...Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

,

There absolutely is a test for candida/fungus. I'm having it done. This lab does DNA analysis of the stool and it shows everything. The information I have on what it all reveals is pages long. It shows pathogenic bacteria, parasites, yeasts, fungi, inflammation, digestion, absorption, etc. The lab is called Metametrix and I believe it's in Georgia. My doctor provided me with the kit and their office sent it. My results should be back in a couple of weeks. My regular MD would never even know about this because of course they're not looing for true causes of things. This doctor I'm seeing is an MD but has taken the preventative/natural route to therapy. DarleneIntestinal Dysbiosis/CFSSCD 11 weeks

To: btvc-scd Sent: Thu, May 6, 2010 7:23:33 PMSubject: RE: Anyone ever test regular food for a reaction?

I appreciet the honesty, sometimes people need it! No offence taken at all by the way. I am doing a phone consult with a doctor so I can try LDN soon and I will see if he can give me a script for diflucan to go with the LDN, or what he thinks would work best... I don't know where to look for another doc to get this year thing figured out. I did ask my GI but he said there are no tests for yeast with the exception of oral thrush?? I found that confusing with all the technology and tests we have today. You would think they would be able to test for yeast somehow!-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.

To: BTVC-SCD@yahoogroup s.comFrom: bhide_thehague@ yahoo.comDate: Thu, 6 May 2010 02:11:27 -0700Subject: Re: Anyone ever test regular food for a reaction?

,I think one or two things will most likely happen. You could have immediate symptoms -- like Marilyn and others, or you could be like my husband and eat many illegals sporadically and then have a slow on-coming issue that you don't like and can't get rid of. ; ) Right now DH has returned from a 3 week trip in India where he ate rice and/or wheat every day. He had to stop taking a probiotic and his LDN because his scalp and face around his eyes became irritated, red, dry and flaky (I know to be yeast related). His skin got much better. Since being home and NOT eating those things and not taking the beneficial things, his skin is getting slightly worse (I think die-off) and now wants to stop using coconut milk because he thinks it is causing him a problem. HA! As I sit here and wonder just how long he will go before admitting to

himself that he has a yeast problem that really needs to be addressed! Go ahead, keep using all the meds you are using without questioning if they could be the problem and eat illegals. I predict that within the near future, not even those meds will help you. I honestly believe you have a big underlying issue that you have not discovered or possibly just not treated properly. I know that you have been trying natural anti-fungals, but if you have a large root problem with yeast and are still on Prednisone (which encourages yeast), you might need some big guns like Diflucan and/or Nystatin. I don't doubt that you need the Prednisone to control your symptoms at this point, so please do not think I am saying you are doing something wrong there. I do think you should question 12 oral Asacol pills a day though. It is a maintenance drug and it apparently isn't working or you wouldn't have the symptoms you do or

the need you have to do the Prednisone. If the enemas are helping, you might consider dropping the oral Asacol to see if it helps. That is a lot of Asacol and it does say in the package insert that it can cause the same symptoms in side-effects as it is trying to help!I don't mean to sound harsh, and I am probably taking out my frustrations with my husband on you, but the advice (unsolicitated as it may be), would be to find a good integrative medicine doctor and/or get testing for done for yeast overgrowth and get it addressed if there is a problem. If you had a small yeast problem I believe a SCD adapted for yeast routine with natural anti-fungals would help, but I think that if it goes too long and becomes too extensive, I think they would only help you 'tread water' at best in the short-term and it would take a very long time with strict adherence and major persistance to clear it. O.k. I have finished my

rant and I send my absolute and complete regrets for sounding so offensive. After watching your comments for awhile, I just thought maybe some one should shake you up bit kind of like Sky did for me to get me to see I still had unresolved thyroid issues -- only I think she is a nicer person and did it in a more diplomatic way! : )Amelia

From: T <scdguy26 (AT) hotmail (DOT) com>To: btvc-scd@yahoogroup s.comSent: Thu, May 6, 2010 3:49:21 AMSubject: Anyone ever test regular food for a reaction? Since SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

" Diflucan first for a month. Then

Nystatin. I asked my doctor why the switch, did Diflucan lose it's

effectiveness after a month? He said no, they work differently. Diflucan

" surrounds and escorts the yeast out of the body " and thus is

usually pretty mild. It works on the easy to get yeasties. Then

after it has done the job, Nystatin comes in to mop up the harder to

find, harder to kill ones. Nystatin does kill them, so it can cause

die-off. "

She also mentioned that as she approached the end of the month on

Diflucan, she started taking small doses of the Nystatin and building

up to the proper dose so that the body didn't get slammed all at

once. I am working hard at convincing DH to try this!

That was me, and I might just give an update on my meds here. I did

try the Nystatin, starting literally with toothpick doses (the amount

you can get on the end of a toothpick, the small one first). Even

after building up for a few weeks (and not to full dose) very slowly

I was (I thought) having horrendous die-off so I mentioned all this

to the doctor. He said from my description it couldn't be die-off as

that would come and stay a bit and then ease off and go in cycles,

but not build up and stay bad or continue getting worse. He said (as

with some other meds) I must be allergic to the Nystatin. So, I'm

not doing that after all but staying on the Diflucan. He said it will

just maybe take a little longer this way but at least I'm tolerating

the Diflucan pretty well. Considering the above, which he told me

first, I'm not entirely sure WHY the Diflucan taken longer will get

the harder yeasties, though, but I have an excellent alternative

doctor, so I tend to believe him.

[Guest guest]

if you're on diflucan be sure to test your liver function wherea nystatin

doesn't affect it - are you doing other anti-fungals too?

eileen

2 years 4 months

>

> " Diflucan first for a month. Then

> Nystatin. I asked my doctor why the switch, did Diflucan lose it's

> effectiveness after a month? He said no, they work differently. Diflucan

> " surrounds and escorts the yeast out of the body " and thus is

> usually pretty mild. It works on the easy to get yeasties. Then

> after it has done the job, Nystatin comes in to mop up the harder to

> find, harder to kill ones. Nystatin does kill them, so it can cause

> die-off. "

>

> She also mentioned that as she approached the end of the month on

> Diflucan, she started taking small doses of the Nystatin and building

> up to the proper dose so that the body didn't get slammed all at

> once. I am working hard at convincing DH to try this!

>

> That was me, and I might just give an update on my meds here. I did

> try the Nystatin, starting literally with toothpick doses (the amount

> you can get on the end of a toothpick, the small one first). Even

> after building up for a few weeks (and not to full dose) very slowly

> I was (I thought) having horrendous die-off so I mentioned all this

> to the doctor. He said from my description it couldn't be die-off as

> that would come and stay a bit and then ease off and go in cycles,

> but not build up and stay bad or continue getting worse. He said (as

> with some other meds) I must be allergic to the Nystatin. So, I'm

> not doing that after all but staying on the Diflucan. He said it will

> just maybe take a little longer this way but at least I'm tolerating

> the Diflucan pretty well. Considering the above, which he told me

> first, I'm not entirely sure WHY the Diflucan taken longer will get

> the harder yeasties, though, but I have an excellent alternative

> doctor, so I tend to believe him.

>

>

>

[Guest guest]

if you're on diflucan be sure to test your liver function wherea

nystatin doesn't affect it - are you doing other anti-fungals too?

eileen

Thanks for the reminder. yes, I have some lab tests to go get this

coming week and I did ask for liver to be included on general

principles, though at the time I forgot about the Diflucan! So we

shall see. I'm also using coconut oil and some oil of oregano when

threatened by a virus but I've read, I thought here, that one should

in general do the anti-fungals one at a time, prescription or natural. Wrong?

[Guest guest]

Amelia,I am no longer taking Asacol, I switched to Colazol instead. I also started taking s.boullardi 2 weeks ago but I haven't seen any noticable changes with that yet. I'm going to have to go on Imuran for now until I get things under control. Then, I plan on stopping and going the LDN route. All good things take time -UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: bhide_thehague@...Date: Fri, 7 May 2010 05:46:34 -0700Subject: Re: Anyone ever test regular food for a reaction?

,Thank you for being so gracious! They can test for antibody markers for a specific by-product of yeast I believe. I think via blood and/or urine testing. I have a phone consult with my doctor in a couple of weeks and plan to ask him that question -- which one is best. I can let you know what he says. I talked about this with (a group member) because she was doing the drug anti-fungals (versus natural) and this is what she said in a previous post:"Diflucan first for a month. Then

Nystatin. I asked my doctor why the switch, did Diflucan lose it's

effectiveness after a month? He said no, they work differently. Diflucan

"surrounds and escorts the yeast out of the body" and thus is

usually pretty mild. It works on the easy to get yeasties. Then

after it has done the job, Nystatin comes in to mop up the harder to

find, harder to kill ones. Nystatin does kill them, so it can cause

die-off."She also mentioned that as she approached the end of the month on Diflucan, she started taking small doses of the Nystatin and building up to the proper dose so that the body didn't get slammed all at once. I am working hard at convincing DH to try this! I meant to mention that Asacol also contain lactose in the oral tabs in case you are lactose sensitive. And you will need to be down to 10mg or lower on the Prednisone before taking the LDN because at the higher levels the Prednisone acts as an immune suppressant (not merely an anti-infammitory) and will 'fight' the immune modulating effects of the LDN. And it would be best to address the yeast questions first (test to eliminate the possibility or treat to eliminate the problem) first before doing the LDN. The LDN won't work otherwise. It isn't something you can do together, well at least not without possible needless pain and

suffering.Amelia P.S. I really do think that last antibiotic you had to take gave an unintended boost to a building yeast problem and that it is that that is behind your low/lack of progress in healing and the diet.From: T <scdguy26 (AT) hotmail (DOT) com>To: btvc-scd Sent: Fri, May 7, 2010 2:23:33 AMSubject: RE: Anyone ever test regular food for a reaction?

I appreciet the honesty, sometimes people need it! No offence taken at all by the way. I am doing a phone consult with a doctor so I can try LDN soon and I will see if he can give me a script for diflucan to go with the LDN, or what he thinks would work best... I don't know where to look for another doc to get this year thing figured out. I did ask my GI but he said there are no tests for yeast with the exception of oral thrush?? I found that confusing with all the technology and tests we have today. You would think they would be able to test for yeast somehow!-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD@yahoogroup s.comFrom: bhide_thehague@ yahoo.comDate: Thu, 6 May 2010 02:11:27 -0700Subject: Re: Anyone ever test regular food for a reaction?

,I think one or two things will most likely happen. You could have immediate symptoms -- like Marilyn and others, or you could be like my husband and eat many illegals sporadically and then have a slow on-coming issue that you don't like and can't get rid of. ; ) Right now DH has returned from a 3 week trip in India where he ate rice and/or wheat every day. He had to stop taking a probiotic and his LDN because his scalp and face around his eyes became irritated, red, dry and flaky (I know to be yeast related). His skin got much better. Since being home and NOT eating those things and not taking the beneficial things, his skin is getting slightly worse (I think die-off) and now wants to stop using coconut milk because he thinks it is causing him a problem.

HA! As I sit here and wonder just how long he will go before admitting to himself that he has a yeast problem that really needs to be addressed! Go ahead, keep using all the meds you are using without questioning if they could be the problem and eat illegals. I predict that within the near future, not even those meds will help you. I honestly believe you have a big underlying issue that you have not discovered or possibly just not treated properly. I know that you have been trying natural anti-fungals, but if you have a large root problem with yeast and are still on Prednisone (which encourages yeast), you might need some big guns like Diflucan and/or Nystatin. I don't doubt that you need the Prednisone to control your symptoms at this point, so please do not think I am saying you are doing something wrong there. I do think you should question 12 oral Asacol pills a day though. It is a maintenance

drug and it apparently isn't working or you wouldn't have the symptoms you do or the need you have to do the Prednisone. If the enemas are helping, you might consider dropping the oral Asacol to see if it helps. That is a lot of Asacol and it does say in the package insert that it can cause the same symptoms in side-effects as it is trying to help!I don't mean to sound harsh, and I am probably taking out my frustrations with my husband on you, but the advice (unsolicitated as it may be), would be to find a good integrative medicine doctor and/or get testing for done for yeast overgrowth and get it addressed if there is a problem. If you had a small yeast problem I believe a SCD adapted for yeast routine with natural anti-fungals would help, but I think that if it goes too long and becomes too extensive, I think they would only help you 'tread water' at best in the short-term and it would take a very long time with strict

adherence and major persistance to clear it. O.k. I have finished my rant and I send my absolute and complete regrets for sounding so offensive. After watching your comments for awhile, I just thought maybe some one should shake you up bit kind of like Sky did for me to get me to see I still had unresolved thyroid issues -- only I think she is a nicer person and did it in a more diplomatic way! : )Amelia From: T <scdguy26 (AT) hotmail (DOT) com>To: btvc-scd@yahoogroup s.comSent: Thu, May 6, 2010 3:49:21 AMSubject: Anyone ever test regular food for a reaction?

Since SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now. Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy.

[Guest guest]

I'm going to have to go on Imuran for now until I get things under control. Then, I plan on stopping and going the LDN route.Me too! How long do you think you'll be on imuran until you try LDN? I have no idea how long I'll be on it. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day

[Guest guest]

no my doc has me on about 5 - amazing i still have yeast! gives you an idea of

how much sugar i consumed pre-scd!!

eileen

>

> if you're on diflucan be sure to test your liver function wherea

> nystatin doesn't affect it - are you doing other anti-fungals too?

> eileen

>

> Thanks for the reminder. yes, I have some lab tests to go get this

> coming week and I did ask for liver to be included on general

> principles, though at the time I forgot about the Diflucan! So we

> shall see. I'm also using coconut oil and some oil of oregano when

> threatened by a virus but I've read, I thought here, that one should

> in general do the anti-fungals one at a time, prescription or natural. Wrong?

>

>

>

[Guest guest]

that depends on how long it takes for my insides to settle down I'll keep you updated though!-UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: luckycharms@...Date: Sat, 8 May 2010 17:45:12 -0400Subject: Re: Anyone ever test regular food for a reaction?

I'm going to have to go on Imuran for now until I get things under control. Then, I plan on stopping and going the LDN route.Me too! How long do you think you'll be on imuran until you try LDN? I have no idea how long I'll be on it. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day

The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.