RE: 7 days and counting - update on C.

April 22, 2005

,

I'm so sorry this is such a difficult time. will be in our

prayers as will your family.

mom to Autumn 15 mos RSS, Ocean 2 1/2, Skye 6 1/2, baby girl due in

July

>

> Hello All,

>

> First, thank you so much for your thoughts and prayers last week

when

> was scheduled to have surgery to place a g-tube, fix a

> malrotation in his intestine and remove his appendix.

>

> Unfortunately, he has been hospitalized ever since. Actually, we

> left Sunday night only to return a few hours later because he had

non-

> stop vomiting and was in severe pain. He has since been diagonised

> with " paralytic ileus " , which essentially means that his intestines

> are stunned and not functioning properly or pushing his food

> through. He has not been able to eat (orally) since Sunday. They

> are giving him a diluted formula through his g-tube and he has been

> on an IV. He has been poked umpteen times for blood, but they can

> never get enough to run their tests.

>

> His surgeon did not expect this from him and it has taken him much

> longer than average to recover. They gave him an enema yesterday

to

> relieve him from some gas and pressure, as he was very

> uncomfortable. I have not been able to hold him or move him much

> because of the pain.

>

> Hopefully his intestines will " wake up " and come back to normal

> soon. This was supposed to be a simple in-and-out procedure that

has

> dragged on for a week. I can't wait until we can all go home and

> return to some state of " normalcy " . :-(

>

> Please continue to keep him (us!) in your prayers. I am confident

> things will get better soon. I appreciate all the messages and e-

> mails from you wonderful folks!

>

> Take care and thanks a bunch,

>

> Mom to 5 1/2 and 21 months (RSS, etc.)

April 22, 2005

,

Max had the same surgery when he was about 8 months old. Well, he did

not have the g-tube part, but he did have the malrotated intestines

and appendix removal. He was in the hospital for about 5 days and

VERY uncomfortable. I remember all he could do was sit in his infant

seat that I had brought to the hospital because we had to keep him in

an upright postition (very bad reflux). I could not hold him or do

anything but fight with the nurses to give him pain meds. They did

not like to do it because they would slow down his motility. It was

awful. I just cried.

I hope that is better soon. How awful to go in for something

that should be relatively simple and wind up with complications. I

hope that the next time we hear from you, you are all home and

comfortable again.

Jodi Z

April 22, 2005

Hi

My son Liam had his g tube placed at 11 months, he had a paralytic

illeus for 6 days post op. One thing i have always remembered about

that time was after 6 days of not hearing any bowel sounds, they

started giving him feeds anyway, obviously very slowly and he took a

bottle, which stunned us because he hadnt been intrested in oral for

weeks before the op( he must of been starving).

I do think our kids guts stop, with any procedure or illness, they

have very slow guts and very sensitive.

Even today I can listen to Liams abdomen and not hear much, where

with my other son he sounds like a washing machine.I think thats

just RSS kids.

Hope is feeling better soon.

Jody(mum to Liam 3.10yrs 11kg 86cm and cameron 6)

>

> Hello All,

>

> First, thank you so much for your thoughts and prayers last week

when

> was scheduled to have surgery to place a g-tube, fix a

> malrotation in his intestine and remove his appendix.

>

> Unfortunately, he has been hospitalized ever since. Actually, we

> left Sunday night only to return a few hours later because he had

non-

> stop vomiting and was in severe pain. He has since been

diagonised

> with " paralytic ileus " , which essentially means that his

intestines

> are stunned and not functioning properly or pushing his food

> through. He has not been able to eat (orally) since Sunday. They

> are giving him a diluted formula through his g-tube and he has

been

> on an IV. He has been poked umpteen times for blood, but they can

> never get enough to run their tests.

>

> His surgeon did not expect this from him and it has taken him much

> longer than average to recover. They gave him an enema yesterday

to

> relieve him from some gas and pressure, as he was very

> uncomfortable. I have not been able to hold him or move him much

> because of the pain.

>

> Hopefully his intestines will " wake up " and come back to normal

> soon. This was supposed to be a simple in-and-out procedure that

has

> dragged on for a week. I can't wait until we can all go home and

> return to some state of " normalcy " . :-(

>

> Please continue to keep him (us!) in your prayers. I am confident

> things will get better soon. I appreciate all the messages and e-

> mails from you wonderful folks!

>

> Take care and thanks a bunch,

>

> Mom to 5 1/2 and 21 months (RSS, etc.)

April 22, 2005

,

How terrible for you all!! Those hospital stays are awful for everyone. I

sure hope is feeling better soon. We wish you the best too, and will

continue you in our prayers.

Dayna

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of soniacardinale

Sent: Friday, April 22, 2005 6:11 PM

To: RSS-Support

Subject: 7 days and counting - update on C.

Hello All,

First, thank you so much for your thoughts and prayers last week when

was scheduled to have surgery to place a g-tube, fix a

malrotation in his intestine and remove his appendix.

Unfortunately, he has been hospitalized ever since. Actually, we

left Sunday night only to return a few hours later because he had non-

stop vomiting and was in severe pain. He has since been diagonised

with " paralytic ileus " , which essentially means that his intestines

are stunned and not functioning properly or pushing his food

through. He has not been able to eat (orally) since Sunday. They

are giving him a diluted formula through his g-tube and he has been

on an IV. He has been poked umpteen times for blood, but they can

never get enough to run their tests.

His surgeon did not expect this from him and it has taken him much

longer than average to recover. They gave him an enema yesterday to

relieve him from some gas and pressure, as he was very

uncomfortable. I have not been able to hold him or move him much

because of the pain.

Hopefully his intestines will " wake up " and come back to normal

soon. This was supposed to be a simple in-and-out procedure that has

dragged on for a week. I can't wait until we can all go home and

return to some state of " normalcy " . :-(

Please continue to keep him (us!) in your prayers. I am confident

things will get better soon. I appreciate all the messages and e-

mails from you wonderful folks!

Take care and thanks a bunch,

Mom to 5 1/2 and 21 months (RSS, etc.)

_____

April 22, 2005

Hope it all gets better soon! I will keep you in my thoughts.

, mom to 5 and Emerence, 2 RSS/SGA

>

> Hello All,

>

> First, thank you so much for your thoughts and prayers last week

when

> was scheduled to have surgery to place a g-tube, fix a

> malrotation in his intestine and remove his appendix.

>

> Unfortunately, he has been hospitalized ever since. Actually, we

> left Sunday night only to return a few hours later because he had

non-

> stop vomiting and was in severe pain. He has since been diagonised

> with " paralytic ileus " , which essentially means that his intestines

> are stunned and not functioning properly or pushing his food

> through. He has not been able to eat (orally) since Sunday. They

> are giving him a diluted formula through his g-tube and he has been

> on an IV. He has been poked umpteen times for blood, but they can

> never get enough to run their tests.

>

> His surgeon did not expect this from him and it has taken him much

> longer than average to recover. They gave him an enema yesterday

to

> relieve him from some gas and pressure, as he was very

> uncomfortable. I have not been able to hold him or move him much

> because of the pain.

>

> Hopefully his intestines will " wake up " and come back to normal

> soon. This was supposed to be a simple in-and-out procedure that

has

> dragged on for a week. I can't wait until we can all go home and

> return to some state of " normalcy " . :-(

>

> Please continue to keep him (us!) in your prayers. I am confident

> things will get better soon. I appreciate all the messages and e-

> mails from you wonderful folks!

>

> Take care and thanks a bunch,

>

> Mom to 5 1/2 and 21 months (RSS, etc.)

April 23, 2005

I am so sorry to hear what is going through and the rest of the

family. I will continue to pray for you all.

B

5 and Kelli 2 1/2

soniacardinale wrote: