Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Breastmilk does hold off some of the more serious infections by basically having your body make immunities for your child. So basically and simply what happens is that when you live in the same environment and you touch something you build the antibodies and then give them to the baby. So if you have your own milk still available it would help. Banked milk is much less specific so it would help in some areas but may not have the specificity to really change his situation. IgA which protects the mucus membranes, gut etc cannot be passed on is my understanding since it needs to be available as a first line of defense by the body. I know as a Lactation Consultant that it can be the difference of life and death in the more compromised kids and that when the mom stops nursing the child becomes deathly ill. I would think over time that nature made it so that the body of the child needs to take over and have its own system to be able to adequately protect the child. BARBIE From: Stettner <taw1492@...> Subject: Random thought Date: Wednesday, July 8, 2009, 11:40 PM I have a random question. I was thinking about how when I was breastfeeding Jordan that I was giving him my immunities. Although, it isn't an option for me to breastfeed him, have any of you used breast milk to help build immunities in you or your kids? I know that seems really weird, but the though keeps crossing my mind and wondering if it could help. Mom to Jordan (22 months and still awaiting an official diagnosis) Stettner Dolphin Yoga & Doula Center www.dolphinyoga. com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs q53YamFR8Ue1V- zA/query: dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally .ning.com/ ?xgi=5Tyt7F2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Breastmilk does hold off some of the more serious infections by basically having your body make immunities for your child. So basically and simply what happens is that when you live in the same environment and you touch something you build the antibodies and then give them to the baby. So if you have your own milk still available it would help. Banked milk is much less specific so it would help in some areas but may not have the specificity to really change his situation. IgA which protects the mucus membranes, gut etc cannot be passed on is my understanding since it needs to be available as a first line of defense by the body. I know as a Lactation Consultant that it can be the difference of life and death in the more compromised kids and that when the mom stops nursing the child becomes deathly ill. I would think over time that nature made it so that the body of the child needs to take over and have its own system to be able to adequately protect the child. BARBIE From: Stettner <taw1492@...> Subject: Random thought Date: Wednesday, July 8, 2009, 11:40 PM I have a random question. I was thinking about how when I was breastfeeding Jordan that I was giving him my immunities. Although, it isn't an option for me to breastfeed him, have any of you used breast milk to help build immunities in you or your kids? I know that seems really weird, but the though keeps crossing my mind and wondering if it could help. Mom to Jordan (22 months and still awaiting an official diagnosis) Stettner Dolphin Yoga & Doula Center www.dolphinyoga. com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs q53YamFR8Ue1V- zA/query: dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally .ning.com/ ?xgi=5Tyt7F2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Thanks Barbie. I appreciate that information. I know that the milk at the milk bank isn't really as sufficient for immunities, but what about if you had a good friend who was willing to donate? I am not sure how I feel about this, but Jordan is only 22 months and his immune system hasn't " taken over. " I know it is a stretch, but I would love to help him out in any way that I can. But, if not, then I just chalk it up as a creative thought :-) Stettner Dolphin Yoga & Doula Center www.dolphinyoga.com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp.com/biz/dolphin-yoga-and-doula-center-san-mateo#hrid:vjNhCs q53YamFR8Ue1V-zA/query:dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally.ning.com/?xgi=5Tyt7F2 _____ From: [mailto: ] On Behalf Of Barbara Jimenez Sent: Thursday, July 09, 2009 7:31 AM Subject: Re: Random thought Breastmilk does hold off some of the more serious infections by basically having your body make immunities for your child. So basically and simply what happens is that when you live in the same environment and you touch something you build the antibodies and then give them to the baby. So if you have your own milk still available it would help. Banked milk is much less specific so it would help in some areas but may not have the specificity to really change his situation. IgA which protects the mucus membranes, gut etc cannot be passed on is my understanding since it needs to be available as a first line of defense by the body. I know as a Lactation Consultant that it can be the difference of life and death in the more compromised kids and that when the mom stops nursing the child becomes deathly ill. I would think over time that nature made it so that the body of the child needs to take over and have its own system to be able to adequately protect the child. BARBIE From: Stettner <taw1492 (DOT) <mailto:taw1492%40> com> Subject: Random thought groups (DOT) <mailto:%40> com Date: Wednesday, July 8, 2009, 11:40 PM I have a random question. I was thinking about how when I was breastfeeding Jordan that I was giving him my immunities. Although, it isn't an option for me to breastfeed him, have any of you used breast milk to help build immunities in you or your kids? I know that seems really weird, but the though keeps crossing my mind and wondering if it could help. Mom to Jordan (22 months and still awaiting an official diagnosis) Stettner Dolphin Yoga & Doula Center www.dolphinyoga. com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs q53YamFR8Ue1V- zA/query: dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally .ning.com/ ?xgi=5Tyt7F2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 My kids are both adopted and as a lactation consultant I realized that there is a MAJOR difference between formula and breast milk.( I know others disagree and feel formula is adequate I personally feel a big part of our obesity and diabetes issues are related to feeding formula that is made of sugar( sucrose and use to have coconut and other saturated fats as the base) . I have used breast milk from a friend but I had to realize ahead of time that it is a live product just like blood and you can pass disease as well as the immunities to disease.( HIV, hepatitis etc) It is a risk that may and may not be acceptable. That is why they pasteurize the milk in the banks to take the risk out. But.... you lose a great deal of the properties that you would want by doing so. BARBIE From: Stettner <taw1492 (DOT) <mailto:taw1492% 40> com> Subject: Random thought groups (DOT) <mailto:% 40groups. com> com Date: Wednesday, July 8, 2009, 11:40 PM I have a random question. I was thinking about how when I was breastfeeding Jordan that I was giving him my immunities. Although, it isn't an option for me to breastfeed him, have any of you used breast milk to help build immunities in you or your kids? I know that seems really weird, but the though keeps crossing my mind and wondering if it could help. Mom to Jordan (22 months and still awaiting an official diagnosis) Stettner Dolphin Yoga & Doula Center www.dolphinyoga. com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs q53YamFR8Ue1V- zA/query: dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally .ning.com/ ?xgi=5Tyt7F2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 My kids are both adopted and as a lactation consultant I realized that there is a MAJOR difference between formula and breast milk.( I know others disagree and feel formula is adequate I personally feel a big part of our obesity and diabetes issues are related to feeding formula that is made of sugar( sucrose and use to have coconut and other saturated fats as the base) . I have used breast milk from a friend but I had to realize ahead of time that it is a live product just like blood and you can pass disease as well as the immunities to disease.( HIV, hepatitis etc) It is a risk that may and may not be acceptable. That is why they pasteurize the milk in the banks to take the risk out. But.... you lose a great deal of the properties that you would want by doing so. BARBIE From: Stettner <taw1492 (DOT) <mailto:taw1492% 40> com> Subject: Random thought groups (DOT) <mailto:% 40groups. com> com Date: Wednesday, July 8, 2009, 11:40 PM I have a random question. I was thinking about how when I was breastfeeding Jordan that I was giving him my immunities. Although, it isn't an option for me to breastfeed him, have any of you used breast milk to help build immunities in you or your kids? I know that seems really weird, but the though keeps crossing my mind and wondering if it could help. Mom to Jordan (22 months and still awaiting an official diagnosis) Stettner Dolphin Yoga & Doula Center www.dolphinyoga. com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs q53YamFR8Ue1V- zA/query: dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally .ning.com/ ?xgi=5Tyt7F2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 That makes sense. Thanks so much for the information. I really appreciate it. Stettner Dolphin Yoga & Doula Center www.dolphinyoga.com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp.com/biz/dolphin-yoga-and-doula-center-san-mateo#hrid:vjNhCs q53YamFR8Ue1V-zA/query:dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally.ning.com/?xgi=5Tyt7F2 _____ From: [mailto: ] On Behalf Of Barbara Jimenez Sent: Thursday, July 09, 2009 7:53 AM Subject: RE: Random thought My kids are both adopted and as a lactation consultant I realized that there is a MAJOR difference between formula and breast milk.( I know others disagree and feel formula is adequate I personally feel a big part of our obesity and diabetes issues are related to feeding formula that is made of sugar( sucrose and use to have coconut and other saturated fats as the base) . I have used breast milk from a friend but I had to realize ahead of time that it is a live product just like blood and you can pass disease as well as the immunities to disease.( HIV, hepatitis etc) It is a risk that may and may not be acceptable. That is why they pasteurize the milk in the banks to take the risk out. But.... you lose a great deal of the properties that you would want by doing so. BARBIE From: Stettner <taw1492 (DOT) <mailto:taw1492% 40> com> Subject: Random thought groups (DOT) <mailto:% 40groups. com> com Date: Wednesday, July 8, 2009, 11:40 PM I have a random question. I was thinking about how when I was breastfeeding Jordan that I was giving him my immunities. Although, it isn't an option for me to breastfeed him, have any of you used breast milk to help build immunities in you or your kids? I know that seems really weird, but the though keeps crossing my mind and wondering if it could help. Mom to Jordan (22 months and still awaiting an official diagnosis) Stettner Dolphin Yoga & Doula Center www.dolphinyoga. com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs q53YamFR8Ue1V- zA/query: dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally .ning.com/ ?xgi=5Tyt7F2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 I breast fed our son for well over 18 months. I actually asked our doc this question- he said the immunities are a " different kind " and they are not the specific antibodies that we would need for the IgG subclass deficiency. On Wed, Jul 8, 2009 at 9:40 PM, Stettner <taw1492@...> wrote: > > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga.com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > < > http://www.yelp.com/biz/dolphin-yoga-and-doula-center-san-mateo#hrid:vjNhCs > q53YamFR8Ue1V-zA/query:dolphin%20doula> > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally.ning.com/?xgi=5Tyt7F2 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 I breast fed our son for well over 18 months. I actually asked our doc this question- he said the immunities are a " different kind " and they are not the specific antibodies that we would need for the IgG subclass deficiency. On Wed, Jul 8, 2009 at 9:40 PM, Stettner <taw1492@...> wrote: > > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga.com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > < > http://www.yelp.com/biz/dolphin-yoga-and-doula-center-san-mateo#hrid:vjNhCs > q53YamFR8Ue1V-zA/query:dolphin%20doula> > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally.ning.com/?xgi=5Tyt7F2 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Hey, y'all. I'm new to your list, but there's no time like the present to jump into the discussion! When I was talking about relactating (we stopped nursing at around 18 months and my son is 22 months now) to help him ease the burden on his own body, the doctor told me that the IgA in the breastmilk cannot replace the IgG he needs and that it's also not capable of providing a sufficient quantity of antibody to keep him healthy on its own. Since I'm a relatively new mom (our only child isn't quite 2 yet), I did a lot of recent reading on breastfeeding and found that there's quite a bit of literature out there showing that breastmilk inhibits bacteria growth (even when used topically), but I don't have any references at my fingertips right now. If I find something that could help, I'll let you know! , mom to an Agamm son (not yet diagnosed as XLA) > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > Mom to Jordan (22 months and still awaiting an official diagnosis) > Stettner > Dolphin Yoga & Doula Center > www.dolphinyoga.com > 650.888.6996 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Hi , I had the same questions... With my oldest, he began getting seriously ill at 6-9 months (he weaned himself from me at 9 months). I blamed myself for over a year for not nursing longer before he was finally diagnosed with his immune issues. When I asked our immunologist about it, he said that it does help, but that the most significant benefits of mom's antibodies go away after the first six months or so, since the most antibody-rich milk is the early colostrum... we actually tried using commercially available colostrum capsules to help him, but we personally did not see any results from this. The colostrum is avaiable in capsules at the health store. We opened the capsules and added the powder to applesauce or other baby foods... It's pricey, but was worth a try for us. With my second son, his major illness started around 6 months, even though I nursed him to 15 months. And with my youngest I had to stop nursing at 4 months because my milk dried up for some unknown reason and he was starving...he also started getting seriously ill around 6 months of age... I definitely agree that it makes a huge difference in the beginning for baby if you can do it...Of course, we now know that I have immune issues too, so maybe I didn't have a whole lot of immunity to pass on anyway... Thanks! mom to 3 with CVID: (9), (7), Matty (3 for a few more days) > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > > > > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga.com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > <http://www.yelp.com/biz/dolphin-yoga-and-doula-center-san-mateo#hrid:vjNhCs > q53YamFR8Ue1V-zA/query:dolphin%20doula> > > > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally.ning.com/?xgi=5Tyt7F2 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 We were told that for the first 6 months or so, babies still have immunoglobulins that they got from their mother in the womb from the placenta. Around 6 months of age, that store starts to deplete, and the baby's body should start producing its own immunoglobulins. Although many important antibodies are passed on through breast milk, immunoglobulin is not. I would think that the antibodies which are might be helpful, but I really don't understand it well enough to say one way or the other. Anne Milnor From: Fox <mfox50@...> Subject: Re: Random thought Date: Thursday, July 9, 2009, 9:37 PM Hi , I had the same questions... With my oldest, he began getting seriously ill at 6-9 months (he weaned himself from me at 9 months). I blamed myself for over a year for not nursing longer before he was finally diagnosed with his immune issues. When I asked our immunologist about it, he said that it does help, but that the most significant benefits of mom's antibodies go away after the first six months or so, since the most antibody-rich milk is the early colostrum... we actually tried using commercially available colostrum capsules to help him, but we personally did not see any results from this. The colostrum is avaiable in capsules at the health store. We opened the capsules and added the powder to applesauce or other baby foods... It's pricey, but was worth a try for us. With my second son, his major illness started around 6 months, even though I nursed him to 15 months. And with my youngest I had to stop nursing at 4 months because my milk dried up for some unknown reason and he was starving...he also started getting seriously ill around 6 months of age... I definitely agree that it makes a huge difference in the beginning for baby if you can do it...Of course, we now know that I have immune issues too, so maybe I didn't have a whole lot of immunity to pass on anyway... Thanks! mom to 3 with CVID: (9), (7), Matty (3 for a few more days) > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > > > > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga. com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs > q53YamFR8Ue1V- zA/query: dolphin%20doula> > > > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally .ning.com/ ?xgi=5Tyt7F2 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 So since asking this question, I have done a bit more research and it looks like IgG doesn't really pass through the breastmilk. IgA is what gets to babies. So it doesn't look like that would be very helpful in our case as we are dealing with low IgG. Thanks everyone for your feedback. I am amazed at how much you all do and know to support your beautiful children and this group! Stettner Dolphin Yoga & Doula Center www.dolphinyoga.com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp.com/biz/dolphin-yoga-and-doula-center-san-mateo#hrid:vjNhCs q53YamFR8Ue1V-zA/query:dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally.ning.com/?xgi=5Tyt7F2 _____ From: [mailto: ] On Behalf Of Anne Milnor Sent: Thursday, July 09, 2009 1:56 PM Subject: Re: Re: Random thought We were told that for the first 6 months or so, babies still have immunoglobulins that they got from their mother in the womb from the placenta. Around 6 months of age, that store starts to deplete, and the baby's body should start producing its own immunoglobulins. Although many important antibodies are passed on through breast milk, immunoglobulin is not. I would think that the antibodies which are might be helpful, but I really don't understand it well enough to say one way or the other. Anne Milnor From: Fox <mfox50hotmail (DOT) <mailto:mfox50%40hotmail.com> com> Subject: Re: Random thought groups (DOT) <mailto:%40> com Date: Thursday, July 9, 2009, 9:37 PM Hi , I had the same questions... With my oldest, he began getting seriously ill at 6-9 months (he weaned himself from me at 9 months). I blamed myself for over a year for not nursing longer before he was finally diagnosed with his immune issues. When I asked our immunologist about it, he said that it does help, but that the most significant benefits of mom's antibodies go away after the first six months or so, since the most antibody-rich milk is the early colostrum... we actually tried using commercially available colostrum capsules to help him, but we personally did not see any results from this. The colostrum is avaiable in capsules at the health store. We opened the capsules and added the powder to applesauce or other baby foods... It's pricey, but was worth a try for us. With my second son, his major illness started around 6 months, even though I nursed him to 15 months. And with my youngest I had to stop nursing at 4 months because my milk dried up for some unknown reason and he was starving...he also started getting seriously ill around 6 months of age... I definitely agree that it makes a huge difference in the beginning for baby if you can do it...Of course, we now know that I have immune issues too, so maybe I didn't have a whole lot of immunity to pass on anyway... Thanks! mom to 3 with CVID: (9), (7), Matty (3 for a few more days) > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > > > > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga. com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs > q53YamFR8Ue1V- zA/query: dolphin%20doula> > > > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally .ning.com/ ?xgi=5Tyt7F2 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 So since asking this question, I have done a bit more research and it looks like IgG doesn't really pass through the breastmilk. IgA is what gets to babies. So it doesn't look like that would be very helpful in our case as we are dealing with low IgG. Thanks everyone for your feedback. I am amazed at how much you all do and know to support your beautiful children and this group! Stettner Dolphin Yoga & Doula Center www.dolphinyoga.com 650.888.6996 Love DYDC? Give us a review on Yelp <http://www.yelp.com/biz/dolphin-yoga-and-doula-center-san-mateo#hrid:vjNhCs q53YamFR8Ue1V-zA/query:dolphin%20doula> I need your help populating Women Locally, a website dedicated to helping you find resources in your own community. Become a member at http://womenlocally.ning.com/?xgi=5Tyt7F2 _____ From: [mailto: ] On Behalf Of Anne Milnor Sent: Thursday, July 09, 2009 1:56 PM Subject: Re: Re: Random thought We were told that for the first 6 months or so, babies still have immunoglobulins that they got from their mother in the womb from the placenta. Around 6 months of age, that store starts to deplete, and the baby's body should start producing its own immunoglobulins. Although many important antibodies are passed on through breast milk, immunoglobulin is not. I would think that the antibodies which are might be helpful, but I really don't understand it well enough to say one way or the other. Anne Milnor From: Fox <mfox50hotmail (DOT) <mailto:mfox50%40hotmail.com> com> Subject: Re: Random thought groups (DOT) <mailto:%40> com Date: Thursday, July 9, 2009, 9:37 PM Hi , I had the same questions... With my oldest, he began getting seriously ill at 6-9 months (he weaned himself from me at 9 months). I blamed myself for over a year for not nursing longer before he was finally diagnosed with his immune issues. When I asked our immunologist about it, he said that it does help, but that the most significant benefits of mom's antibodies go away after the first six months or so, since the most antibody-rich milk is the early colostrum... we actually tried using commercially available colostrum capsules to help him, but we personally did not see any results from this. The colostrum is avaiable in capsules at the health store. We opened the capsules and added the powder to applesauce or other baby foods... It's pricey, but was worth a try for us. With my second son, his major illness started around 6 months, even though I nursed him to 15 months. And with my youngest I had to stop nursing at 4 months because my milk dried up for some unknown reason and he was starving...he also started getting seriously ill around 6 months of age... I definitely agree that it makes a huge difference in the beginning for baby if you can do it...Of course, we now know that I have immune issues too, so maybe I didn't have a whole lot of immunity to pass on anyway... Thanks! mom to 3 with CVID: (9), (7), Matty (3 for a few more days) > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > > > > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga. com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs > q53YamFR8Ue1V- zA/query: dolphin%20doula> > > > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally .ning.com/ ?xgi=5Tyt7F2 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Maybe this will give you another answer. Your immunologist is partly right. ( keep in mind most MDs have less than a 8 hours of infant feeding education in total) Nurses have even less. Bascially, they did a study in Australia where they had mothers lick their premies skin. When they tested the skin it showed that the mother had built bacteria specific antibodies in the milk that went back to the baby. So whatever the mother touches in her environment ( or inhales or whatever) then the body makes antibodies that are passed on to the baby. So yes during the pregnancy there is a storage of colostrum in the breast that is full of antibodies from the moms environment and it is passed onto the baby in the first couple of days to weeks but then the process continues. Babies then gradually take on more of the responsibilites over the first 6 months But..... mom continues the job as time goes on but to a lesser impact. ( so like a back up system.) There are many reasons for milk to dry up but most of it is related to management of feedings and latch not just drying up. So it is usually a mom and baby compatibility issue that sometimes can be worked out with short or even long term supplementation and stimulation. The MOST important thing is to NOT kick yourself about the time you nursed. ANYTHING IS FANTASTIC but as long as you can into the second year is the BEST. The international AVERAGE time for breastfeeding is 4.2 years. In the US it is less than 3 months even averaging in all the long timers. We clearly need to work on it since it has SO much value for everyone. ( also majorly decreases breast cancer) BARBIE From: Fox <mfox50@...> Subject: Re: Random thought Date: Thursday, July 9, 2009, 3:37 PM Hi , I had the same questions... With my oldest, he began getting seriously ill at 6-9 months (he weaned himself from me at 9 months). I blamed myself for over a year for not nursing longer before he was finally diagnosed with his immune issues. When I asked our immunologist about it, he said that it does help, but that the most significant benefits of mom's antibodies go away after the first six months or so, since the most antibody-rich milk is the early colostrum... we actually tried using commercially available colostrum capsules to help him, but we personally did not see any results from this. The colostrum is avaiable in capsules at the health store. We opened the capsules and added the powder to applesauce or other baby foods... It's pricey, but was worth a try for us. With my second son, his major illness started around 6 months, even though I nursed him to 15 months. And with my youngest I had to stop nursing at 4 months because my milk dried up for some unknown reason and he was starving...he also started getting seriously ill around 6 months of age... I definitely agree that it makes a huge difference in the beginning for baby if you can do it...Of course, we now know that I have immune issues too, so maybe I didn't have a whole lot of immunity to pass on anyway... Thanks! mom to 3 with CVID: (9), (7), Matty (3 for a few more days) > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > > > > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga. com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs > q53YamFR8Ue1V- zA/query: dolphin%20doula> > > > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally .ning.com/ ?xgi=5Tyt7F2 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Maybe this will give you another answer. Your immunologist is partly right. ( keep in mind most MDs have less than a 8 hours of infant feeding education in total) Nurses have even less. Bascially, they did a study in Australia where they had mothers lick their premies skin. When they tested the skin it showed that the mother had built bacteria specific antibodies in the milk that went back to the baby. So whatever the mother touches in her environment ( or inhales or whatever) then the body makes antibodies that are passed on to the baby. So yes during the pregnancy there is a storage of colostrum in the breast that is full of antibodies from the moms environment and it is passed onto the baby in the first couple of days to weeks but then the process continues. Babies then gradually take on more of the responsibilites over the first 6 months But..... mom continues the job as time goes on but to a lesser impact. ( so like a back up system.) There are many reasons for milk to dry up but most of it is related to management of feedings and latch not just drying up. So it is usually a mom and baby compatibility issue that sometimes can be worked out with short or even long term supplementation and stimulation. The MOST important thing is to NOT kick yourself about the time you nursed. ANYTHING IS FANTASTIC but as long as you can into the second year is the BEST. The international AVERAGE time for breastfeeding is 4.2 years. In the US it is less than 3 months even averaging in all the long timers. We clearly need to work on it since it has SO much value for everyone. ( also majorly decreases breast cancer) BARBIE From: Fox <mfox50@...> Subject: Re: Random thought Date: Thursday, July 9, 2009, 3:37 PM Hi , I had the same questions... With my oldest, he began getting seriously ill at 6-9 months (he weaned himself from me at 9 months). I blamed myself for over a year for not nursing longer before he was finally diagnosed with his immune issues. When I asked our immunologist about it, he said that it does help, but that the most significant benefits of mom's antibodies go away after the first six months or so, since the most antibody-rich milk is the early colostrum... we actually tried using commercially available colostrum capsules to help him, but we personally did not see any results from this. The colostrum is avaiable in capsules at the health store. We opened the capsules and added the powder to applesauce or other baby foods... It's pricey, but was worth a try for us. With my second son, his major illness started around 6 months, even though I nursed him to 15 months. And with my youngest I had to stop nursing at 4 months because my milk dried up for some unknown reason and he was starving...he also started getting seriously ill around 6 months of age... I definitely agree that it makes a huge difference in the beginning for baby if you can do it...Of course, we now know that I have immune issues too, so maybe I didn't have a whole lot of immunity to pass on anyway... Thanks! mom to 3 with CVID: (9), (7), Matty (3 for a few more days) > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > > > > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga. com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs > q53YamFR8Ue1V- zA/query: dolphin%20doula> > > > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally .ning.com/ ?xgi=5Tyt7F2 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 This is not random. Its an important topic. I know a mom whose baby was breastfed and at 6 mos diagnosed w/ SCID (boy in bubble). Mom produces antibodies (sIgA) in breastmilk into the 2nd year of babies life. Studies show that volume goes down but antibodies can become more concentrated per ml well beyond 6 mos. Don't look back...all of you moms that weaned by choice or by force. You did what was right for baby at that time. And breastmilk can not sustain a PID baby beyond 6 mos...as far as passive immunity goes. Dani's mom, CVID Sent on the Now Network™ from my Sprint® BlackBerry Re: Random thought Date: Thursday, July 9, 2009, 3:37 PM Hi , I had the same questions... With my oldest, he began getting seriously ill at 6-9 months (he weaned himself from me at 9 months). I blamed myself for over a year for not nursing longer before he was finally diagnosed with his immune issues. When I asked our immunologist about it, he said that it does help, but that the most significant benefits of mom's antibodies go away after the first six months or so, since the most antibody-rich milk is the early colostrum... we actually tried using commercially available colostrum capsules to help him, but we personally did not see any results from this. The colostrum is avaiable in capsules at the health store. We opened the capsules and added the powder to applesauce or other baby foods... It's pricey, but was worth a try for us. With my second son, his major illness started around 6 months, even though I nursed him to 15 months. And with my youngest I had to stop nursing at 4 months because my milk dried up for some unknown reason and he was starving...he also started getting seriously ill around 6 months of age... I definitely agree that it makes a huge difference in the beginning for baby if you can do it...Of course, we now know that I have immune issues too, so maybe I didn't have a whole lot of immunity to pass on anyway... Thanks! mom to 3 with CVID: (9), (7), Matty (3 for a few more days) > > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > > > > Mom to Jordan (22 months and still awaiting an official diagnosis) > > > > > > Stettner > > Dolphin Yoga & Doula Center > > www.dolphinyoga. com > > 650.888.6996 > > Love DYDC? Give us a review on Yelp > <http://www.yelp. com/biz/dolphin- yoga-and- doula-center- san-mateo# hrid:vjNhCs > q53YamFR8Ue1V- zA/query: dolphin%20doula> > > > > I need your help populating Women Locally, a website dedicated to helping > you find resources in your own community. Become a member at > http://womenlocally .ning.com/ ?xgi=5Tyt7F2 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 IgA is on the skin and mucus membranes ( nose, gut etc) so it would be impossible to give them enough to block bacteria and viruses from entering the body since the breastmilk does not go to all those places. Breastmilk is used in many cultures around the world for eye and nose infections.( they put a small amount in them) but..... Ig G cannot be given to the baby in the milk it is a matter of the baby getting supportive antibodies to help the baby prevent the infections alongside the babies immune system. So for a child with XLA there is NO way that breastmilk is going to keep the child completely well at 2 years old .. YOU have done a WONDERFUL thing by nursing him and have probably held off MANY MANY infections by doing so. And yes you can relactate if he is willing or you could pump and give him milk and he would get more benefits but you still have to address that he is not making Immune globulins on his own. The immune system is VERY complex and I do not even start to say that I understand it but I have tried to share what I understand as a lactation consultant along with what I understand about my sons CVID to degree that is understandable. BARBIE From: Bear <connermoss@...> Subject: Re: Random thought Date: Thursday, July 9, 2009, 2:22 PM Hey, y'all. I'm new to your list, but there's no time like the present to jump into the discussion! When I was talking about relactating (we stopped nursing at around 18 months and my son is 22 months now) to help him ease the burden on his own body, the doctor told me that the IgA in the breastmilk cannot replace the IgG he needs and that it's also not capable of providing a sufficient quantity of antibody to keep him healthy on its own. Since I'm a relatively new mom (our only child isn't quite 2 yet), I did a lot of recent reading on breastfeeding and found that there's quite a bit of literature out there showing that breastmilk inhibits bacteria growth (even when used topically), but I don't have any references at my fingertips right now. If I find something that could help, I'll let you know! , mom to an Agamm son (not yet diagnosed as XLA) > I have a random question. I was thinking about how when I was breastfeeding > Jordan that I was giving him my immunities. Although, it isn't an option > for me to breastfeed him, have any of you used breast milk to help build > immunities in you or your kids? I know that seems really weird, but the > though keeps crossing my mind and wondering if it could help. > Mom to Jordan (22 months and still awaiting an official diagnosis) > Stettner > Dolphin Yoga & Doula Center > www.dolphinyoga. com > 650.888.6996 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2009 Report Share Posted August 6, 2009 Some peds are harder to persuade than others that is true. I think that pediatricians sometimes lack awareness of conditions like torticollis that can lead to plagio. My son's first ped diagnosed his tort at 3 days old but the hospital ped never even mentioned it. Even with an early diagnosis, I was not given any type of educational material about tort, plagio or repositioning. Everything I now know I learned from other parents, internet searches and boards like this. I was taught how to do the neck stretches but I know that repositioning would have been more effective sooner if I hadn't lost 2 months by not doing it as aggressively as I could have. I was only told to put him to sleep on his left side. There is certainly a lack of education for new parents about making sure that their babies don't spend too much time on the back or one side of their head and warn them to limit the use of bouncy seats and other " containers " . The ped may firmly believe, and correctly so, that it will round out but that's not going to happen if the baby spends 20 hours a day on the back of their head. This never came up in the parenting and childcare classes I took when I was pregnant and I never knew anyone who put a helmet on their child. Based on my own experience and a similar story from another mom is that the peds are concerned about the less than ethical behavior of the helmet makers and orthotists. My ped told me that their practice stopped referring all but the more severe cases to places like CT and orthotists because the helmet makers were far too likely to recommend a helmet for mild and borderline cases. I'm a pretty skeptical person when it comes to the medical field but I would take an MD's word over that of a non MD at a place like CT or an orthosist who stands to gain financially from a parent's decision to put a helmet on their child. Remember that MDs have that Hippocratic Oath to follow, the CEO of a helmet maker doesn't. Your ped may be looking out for your child's best interest more than you realize. On your other point, my son's PT/orthotist said that a CI of 90% would not be grounds to recommend a helmet. It differs by age and gender so her comment was based on a boy rather than a girl and under 6 months of age. > > Sorry to bother many of you with this post....but reading a lot of messages in this group, as well as in the older plagio group, it seems that many peds and family doctors are not easy to persuade in terms of banding. I was trying to figure out why this would be. Any ideas? I was thinking maybe (internally within clinics) it might be considered a failure within the clinicians rating system (if they have such a system) to have a child need a band (i.e. the clinicians job is to help the patient and family prevent these problems from arising in the first place, or from getting to the level of needing a band, through training, early observation, etc - therefore to have a child need a band is deemed a " failure " in terms of preventative medicine (this shouldn't happen unless the clinician " missed something " earlier on))? If true, this would explain the tendency (on some, but obviously not all clinicians) to not easily recommend banding - but I hope it isn't true as the ethics of such a position would seem questionable to me. I just can't see any other reason, though.......And since my family doctor wasn't persuaded by our concerns, and we didn't push too hard as we felt (at the time) he was great and was doing the best for our child, we've suffered as a result (our child wasn't banded until 21 months corrected, and the doc still insists it is " very mild " - and the doc never caught (or, at least, told us about the 90-92% brachy he had - it took specialists to inform us of this). > > Jr. (DOC banded at 21 month corrected, now almost 23 months correct) > Sr. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 I'd just like to make two points about the idea that helmet makers don't have ethics and just want our money.... The bottom line is you CANNOT get a band/helmet without a prescription from a doctor, so helmet companies can only go so far to recommend or " sell " treatment. If doctor's feel so strongly that helmet companies are just out to get our money, then they shouldn't be bullied into writing a prescription. That is what sounds unethical to me. Also, band/helmets are a medical device, therefore may be covered by insurance. Yes they are expensive if they are not (and even if they are), but so is everything else that deals with health and medicine. Does anyone stop to think how much they would pay for doctors visits, vaccines, treatments, x-rays, and prescriptions if they didn't have decent health insurance? Giving birth in a hospital is typically between 2 and 3 grand when all is said and done. Would we not pay that if we had to? I have really good health insurance coverage and still get nickel and dimed by doctors (driving around in BMWs and Lexuses, mind you) with bills for things that weren't covered here and there, and it drives me crazy. But the alternative would be bankruptcy if we didn't have the coverage we DID have. So this idea that only the helmet companies are out to make a buck, in my opinion, is ridiculous. Doctors and other health professionals (pharmaceutical companies, test labs, etc.) are definitely out to make a buck too. It's the insurance companies we should be pissed at for not all covering helmet treatment equally or at all. So that is where I place blame in this whole situation. Well, them and the doctors who don't take our concerns seriously and blow off plagio until it's too late to correct. Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > > > Sorry to bother many of you with this post....but reading a lot of messages in this group, as well as in the older plagio group, it seems that many peds and family doctors are not easy to persuade in terms of banding. I was trying to figure out why this would be. Any ideas? I was thinking maybe (internally within clinics) it might be considered a failure within the clinicians rating system (if they have such a system) to have a child need a band (i.e. the clinicians job is to help the patient and family prevent these problems from arising in the first place, or from getting to the level of needing a band, through training, early observation, etc - therefore to have a child need a band is deemed a " failure " in terms of preventative medicine (this shouldn't happen unless the clinician " missed something " earlier on))? If true, this would explain the tendency (on some, but obviously not all clinicians) to not easily recommend banding - but I hope it isn't true as the ethics of such a position would seem questionable to me. I just can't see any other reason, though.......And since my family doctor wasn't persuaded by our concerns, and we didn't push too hard as we felt (at the time) he was great and was doing the best for our child, we've suffered as a result (our child wasn't banded until 21 months corrected, and the doc still insists it is " very mild " - and the doc never caught (or, at least, told us about the 90-92% brachy he had - it took specialists to inform us of this). > > > > Jr. (DOC banded at 21 month corrected, now almost 23 months correct) > > Sr. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 I thought I'd add my own thoughts to the discussion.Most professional organizations have an ethics code that they have to agree to abide by. This is true for doctors, nurses, psychologists, social workers, counselors, and probably the PT's, OT's, and orthos than work at the helmet companies. Among the ethics is the First Do No Harm statement. In my job, I identify children for special education services. I have heard the argument that we say that kids qualify just for the funds. Well, every child that receives special education services COSTS the schools money because the government reimburses very little of the cost. So, that argument is totally ridiculous. My decision about whether or not to qualify never takes into consideration the cost. I'm obligated by my ethics not to over identify (due to the possible harm of incorrect labeling) or under identify (due to the harm of not providing services to students with disabilities who need them). Perhaps my supervisors at the district level worry about the costs, but they don't have any involvement or say in who qualifies. They do have to give their approval for any costly services (like expensive private schools), but that's another story. I'm not involved in those kinds of decisions. I believe that the OT's, PT's and orthos who work at the companies are the same way. After all, providing helmets does give them a job but they don't make any more money for recommending one than they do for not recommending one. Also, just like children with special needs, babies with flat heads are not in short supply. I say this based upon the recent statistics and the long wait times to get into these places. I believe that the bias (if there is one) to recommend helmets is due to their own belief systems (which is why they work where they do). They believe that helmets work and hate to see children who could benefit from treatment not get it. My own pediatrican told me that she was so-so on helmets because she'd only had about a 50 percent success rate with them in her practice. I didn't ask her what kind of helmet they had or where they had gone because I didn't think of it. She told me that neurosurgeons tended to not like them (we had just come from there) and the helmet places were biased for them. And then, she wrote me the referral to a cranial specialist so that I could get another opinion and then make my own decision. As a side note, when I recently went to CT for a consultation to see about another band, they DID NOT recommend the helmet. They felt that due to 's age plus her severity level, I would be "throwing away my money." If all they worried about was making money, I would have never been told that. I also know that much to the frustration of several parents, many STARband orthos will not band past 18 months because they believe that there will not be enough change to make it worth it. If they just wanted to make money, we wouldn't be running into this issue. As it is, many of us are arguing that we were willing to risk the very little change and that the money was not enough of an issue to not go foward with treatment at older ages. , mom to , 23 monthsSTARband grad 05/11/09 Currently doing CSTland http://sz0141.wc.mail.comcast.net/zimbra/h/ ----- Original Message -----From: Plagiocephaly Sent: Fri, 7 Aug 2009 11:35:16 +0000 (UTC)Subject: Re: Random Thought I'd just like to make two points about the idea that helmet makers don't have ethics and just want our money....The bottom line is you CANNOT get a band/helmet without a prescription from a doctor, so helmet companies can only go so far to recommend or "sell" treatment. If doctor's feel so strongly that helmet companies are just out to get our money, then they shouldn't be bullied into writing a prescription. That is what sounds unethical to me.Also, band/helmets are a medical device, therefore may be covered by insurance. Yes they are expensive if they are not (and even if they are), but so is everything else that deals with health and medicine. Does anyone stop to think how much they would pay for doctors visits, vaccines, treatments, x-rays, and prescriptions if they didn't have decent health insurance? Giving birth in a hospital is typically between 2 and 3 grand when all is said and done. Would we not pay that if we had to? I have really good health insurance coverage and still get nickel and dimed by doctors (driving around in BMWs and Lexuses, mind you) with bills for things that weren't covered here and there, and it drives me crazy. But the alternative would be bankruptcy if we didn't have the coverage we DID have. So this idea that only the helmet companies are out to make a buck, in my opinion, is ridiculous. Doctors and other health professionals (pharmaceutical companies, test labs, etc.) are definitely out to make a buck too. It's the insurance companies we should be pissed at for not all covering helmet treatment equally or at all. So that is where I place blame in this whole situation. Well, them and the doctors who don't take our concerns seriously and blow off plagio until it's too late to correct.Jake-2.5 (DOCBand Grad 9/08)Jordan-5> >> > Sorry to bother many of you with this post....but reading a lot of messages in this group, as well as in the older plagio group, it seems that many peds and family doctors are not easy to persuade in terms of banding. I was trying to figure out why this would be. Any ideas? I was thinking maybe (internally within clinics) it might be considered a failure within the clinicians rating system (if they have such a system) to have a child need a band (i.e. the clinicians job is to help the patient and family prevent these problems from arising in the first place, or from getting to the level of needing a band, through training, early observation, etc - therefore to have a child need a band is deemed a "failure" in terms of preventative medicine (this shouldn't happen unless the clinician "missed something" earlier on))? If true, this would explain the tendency (on some, but obviously not all clinicians) to not easily recommend banding - but I hope it isn't true as the ethics of such a position would seem questionable to me. I just can't see any other reason, though.......And since my family doctor wasn't persuaded by our concerns, and we didn't push too hard as we felt (at the time) he was great and was doing the best for our child, we've suffered as a result (our child wasn't banded until 21 months corrected, and the doc still insists it is "very mild" - and the doc never caught (or, at least, told us about the 90-92% brachy he had - it took specialists to inform us of this).> > > > Jr. (DOC banded at 21 month corrected, now almost 23 months correct)> > Sr.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 I completely agree with what said. Just have to add something. I did believe not one but four peds when telling me my son's plagio would fix by itself, and i started asking when he was 40 wks old. had I started aggressive repo then it probably would have been enough. but that was never mentioned and I trusted them. What my ped had to say when I got back from the specialist he finally saw at 13 mo, was " oh but he's not that bad', as if she was talking about an object. Like that's supposed to make me feel better. My peds just seemed to be interested in getting all the shots done and how big he was. I lately have felt like my vet cares more about my dogs then my ped cares about my son. sorry but i could go on ranting for a long time. I'm still very sore about this. Last week I asked the ped if they knew any osteopath. Whoever, a physician, called me back( big clinic, many peds) said she didn't know anybody and didn't know what CST was!!! Wow! In conclusion I think many of them can't remember the Oath because they see too many patients or should we say customers, don't take enough time with them, can't remember them from time to time, hence cannot form any kind of more than basic bond with them. Sorry again talking about my experience. AARRGH! That's it. I'm done. , Tampa, Fl , 16 mo adj, starband for almost a month Plagiocephaly From: nwilkens2275@...Date: Fri, 7 Aug 2009 11:29:39 +0000Subject: Re: Random Thought I'd just like to make two points about the idea that helmet makers don't have ethics and just want our money....The bottom line is you CANNOT get a band/helmet without a prescription from a doctor, so helmet companies can only go so far to recommend or "sell" treatment. If doctor's feel so strongly that helmet companies are just out to get our money, then they shouldn't be bullied into writing a prescription. That is what sounds unethical to me. Also, band/helmets are a medical device, therefore may be covered by insurance. Yes they are expensive, but so is everything else that deals with health and medicine. Does anyone stop to think how much they would pay for doctors visits, vaccines, treatments, x-rays, and prescriptions if they didn't have decent health insurance? Giving birth in a hospital is typically between 2 and 3 grand when all is said and done. Would we not pay that if we had to? I have really good health insurance coverage and still get nickel and dimed by doctors (driving around in BMWs and Lexuses, mind you) with bills for things that weren't covered here and there, and it drives me crazy. But the alternative would be bankruptcy if we didn't have the coverage we DID have. So this idea that only the helmet companies are out to make a buck, in my opinion, is ridiculous. It's the insurance companies we should be pissed at for not all covering helmet treatment equally or at all. So that is where I place blame in this whole situation. Well, them and the doctors who don't take our concerns seriously and blow off plagio until it's too late to correct. Jake-2.5 (DOCBand Grad 9/08)Jordan-5 > >> > Sorry to bother many of you with this post....but reading a lot of messages in this group, as well as in the older plagio group, it seems that many peds and family doctors are not easy to persuade in terms of banding. I was trying to figure out why this would be. Any ideas? I was thinking maybe (internally within clinics) it might be considered a failure within the clinicians rating system (if they have such a system) to have a child need a band (i.e. the clinicians job is to help the patient and family prevent these problems from arising in the first place, or from getting to the level of needing a band, through training, early observation, etc - therefore to have a child need a band is deemed a "failure" in terms of preventative medicine (this shouldn't happen unless the clinician "missed something" earlier on))? If true, this would explain the tendency (on some, but obviously not all clinicians) to not easily recommend banding - but I hope it isn't true as the ethics of such a position would seem questionable to me. I just can't see any other reason, though.......And since my family doctor wasn't persuaded by our concerns, and we didn't push too hard as we felt (at the time) he was great and was doing the best for our child, we've suffered as a result (our child wasn't banded until 21 months corrected, and the doc still insists it is "very mild" - and the doc never caught (or, at least, told us about the 90-92% brachy he had - it took specialists to inform us of this).> > > > Jr. (DOC banded at 21 month corrected, now almost 23 months correct)> > Sr.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 My MD (ped) was completely ignorant about plagio/brachy. When I asked her about my daughter's head at 2 mo she said " Don't worry about it " . That was completely the wrong answer, and her head only got worse. By 4 mo there was no question of her avoiding a band. MDs might have good intentions, but my experience is they are very ill informed. I have heard of many parents being told their child is borderline, or doesn't require a band by an ortho/band provider, including CT. I don't see them as unethical at all. I've been on this board for over 3 years, and have seen a lot of posts from a lot of parents. Also 90% is not a magic number. My specialist (cranial facial plastic surgeon) also uses 90% as a guideline. However every child is different, and you also need to look at the individual head rather than a number that only represents one two dimensional measurement of a three dimensional head. -christine sydney, 3.5 yrs, starband grad > > > > Sorry to bother many of you with this post....but reading a lot of messages in this group, as well as in the older plagio group, it seems that many peds and family doctors are not easy to persuade in terms of banding. I was trying to figure out why this would be. Any ideas? I was thinking maybe (internally within clinics) it might be considered a failure within the clinicians rating system (if they have such a system) to have a child need a band (i.e. the clinicians job is to help the patient and family prevent these problems from arising in the first place, or from getting to the level of needing a band, through training, early observation, etc - therefore to have a child need a band is deemed a " failure " in terms of preventative medicine (this shouldn't happen unless the clinician " missed something " earlier on))? If true, this would explain the tendency (on some, but obviously not all clinicians) to not easily recommend banding - but I hope it isn't true as the ethics of such a position would seem questionable to me. I just can't see any other reason, though.......And since my family doctor wasn't persuaded by our concerns, and we didn't push too hard as we felt (at the time) he was great and was doing the best for our child, we've suffered as a result (our child wasn't banded until 21 months corrected, and the doc still insists it is " very mild " - and the doc never caught (or, at least, told us about the 90-92% brachy he had - it took specialists to inform us of this). > > > > Jr. (DOC banded at 21 month corrected, now almost 23 months correct) > > Sr. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 My son dean finished his helmet about a month ago. I really wasn't satisfied with his results and felt he could still get more improvement. CT did not recommend a second band, but I pushed for one because I felt that since we have already come this far, why not finish it out and get as much correction as possible. Anyways, I don't think CT would recommend a band if not necessary or even borderline, which is what our case was. Sent from my Verizon Wireless BlackBerryFrom: "christineashok" Date: Sat, 08 Aug 2009 11:03:34 -0000<Plagiocephaly >Subject: Re: Random Thought My MD (ped) was completely ignorant about plagio/brachy. When I asked her about my daughter's head at 2 mo she said " Don't worry about it " . That was completely the wrong answer, and her head only got worse. By 4 mo there was no question of her avoiding a band. MDs might have good intentions, but my experience is they are very ill informed. I have heard of many parents being told their child is borderline, or doesn't require a band by an ortho/band provider, including CT. I don't see them as unethical at all. I've been on this board for over 3 years, and have seen a lot of posts from a lot of parents. Also 90% is not a magic number. My specialist (cranial facial plastic surgeon) also uses 90% as a guideline. However every child is different, and you also need to look at the individual head rather than a number that only represents one two dimensional measurement of a three dimensional head. -christine sydney, 3.5 yrs, starband grad > > > > Sorry to bother many of you with this post....but reading a lot of messages in this group, as well as in the older plagio group, it seems that many peds and family doctors are not easy to persuade in terms of banding. I was trying to figure out why this would be. Any ideas? I was thinking maybe (internally within clinics) it might be considered a failure within the clinicians rating system (if they have such a system) to have a child need a band (i.e. the clinicians job is to help the patient and family prevent these problems from arising in the first place, or from getting to the level of needing a band, through training, early observation, etc - therefore to have a child need a band is deemed a " failure " in terms of preventative medicine (this shouldn't happen unless the clinician " missed something " earlier on))? If true, this would explain the tendency (on some, but obviously not all clinicians) to not easily recommend banding - but I hope it isn't true as the ethics of such a position would seem questionable to me. I just can't see any other reason, though.......And since my family doctor wasn't persuaded by our concerns, and we didn't push too hard as we felt (at the time) he was great and was doing the best for our child, we've suffered as a result (our child wasn't banded until 21 months corrected, and the doc still insists it is " very mild " - and the doc never caught (or, at least, told us about the 90-92% brachy he had - it took specialists to inform us of this). > > > > Jr. (DOC banded at 21 month corrected, now almost 23 months correct) > > Sr. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.