Re: Looking for RSS consultant in Germany

[Guest guest]

Hi! My husband and I are facing the same thing. Here's the names

that I tracked down. If you would like their email addresses, email

me of the board at emily_joyner@... and I'll send them to you!

The doctors I found were:

Dr. Wollmann (with Pfizer but still seeing RSS children at the

Children's Hospital in Tubingen, just a few miles from Stuttgart

where we'd be), Dr. Dufke who is also with the Children's Hospital

there, Prof. Ranke at the University where the Children's Hospital

is, Dr. Binder with the Hospital and University, Dr. Eggerman with

the University and also Dr. Reiss who is the Head of Human Genetics

at the University. All of them specialize in either the treatment or

the study of RSS.

I hope this help! :-)

~

Alyssa RSS, 4 years, 25.4 lbs

>

> Hi

>

> I'm relocating to Hamburg. I remember some time ago being given

the name of

> a consultant in Germany. I think it was a lady doctor, based in

Hannover or

> Hamburg. Can anyone help?

>

> thanks

>