Re: Colin- pulled out his button - 2nd Time

[Guest guest]

,

That is really crummy! Poor guy, that must hurt! I'm sure it was no picnic

for you either.

I am wondering why he gets sick if he doesn't unhook the button? Does he

unhook himself while the pump is still running? Has he previously used

bolus's? We are just now starting to bolus our 3 yr old and I have to say

it is wonderful. She hasn't been able to tolerate them up to now, and we

still run her pump overnight, but they sure are easier to give during the

day. We feel so lucky she can now tolerate them

I sure hope he feels better soon, I'm sure he's pretty sore right now.

Dayna, Mom to ALyssa

_____

From: blacklab_4

Sent: Monday, February 28, 2005 3:56 PM

To: RSS-Support

Subject: Colin- pulled out his button - 2nd Time

Hello everyone - Well at 12:30 this morning Colin- decided to

pull out his button again and of course we couldn't get it to go

back in. We went to the city this morning and he had such a time. He

is such a strong little boy and endured so much pain - both my

husband and I had to hold him down as the nurse stretched his button

spot out to get it go back in. What a pleasure b/c I really enjoyed

the drive home while he screamed and cried.

I am stuck between a double-edged sword. Over the past three weeks

if he doesn't un-hook the button, he gets sick or now twice has

pulled it out completely. I hate to complain, but the negatives are

over-powering the postives. He hasn't gained anything from the

feedings since this summer. I am thinking that maybe we should just

give him a bolis.

Thanks for listening.

M. mom to Colin- 4 RSS and Gillian 8 months non-RSS

[Guest guest]

Hi michelle

is he complaining its sore before he pulls it out!!

I just mentioned Farrell valves to , but maybe you could try

them to. I know someone on this listserve will know more about them

than me, but it is basically an extra tube and bag that hangs just

bellow the feed bag(doesnt go through the pump, if the stomach gets

to full, the milk will divert up into this other bag till the

stomach has empited a bit.

I got diagrams of it off the internet,I know they are available in

America, i had to make on from bits and pieces when we used it for

liam(in australia)

Let me know if you dont know what im talking about, or want to try

it, Ill find the web site.

Jody(mum to Liam and Cameron)

>

> Hello everyone - Well at 12:30 this morning Colin- decided to

> pull out his button again and of course we couldn't get it to go

> back in. We went to the city this morning and he had such a time.

He

> is such a strong little boy and endured so much pain - both my

> husband and I had to hold him down as the nurse stretched his

button

> spot out to get it go back in. What a pleasure b/c I really

enjoyed

> the drive home while he screamed and cried.

>

> I am stuck between a double-edged sword. Over the past three weeks

> if he doesn't un-hook the button, he gets sick or now twice has

> pulled it out completely. I hate to complain, but the negatives

are

> over-powering the postives. He hasn't gained anything from the

> feedings since this summer. I am thinking that maybe we should

just

> give him a bolis.

>

> Thanks for listening.

>

> M. mom to Colin- 4 RSS and Gillian 8 months non-RSS

[Guest guest]

Hi ,

Are you sure that 1) the button is the right size for him??? and 2) the

ballon is properly inflating???

Maybe Colin- is just that much stronger than is, but as long as

his balloon is properly inflated, and doesn't have a slow leak, there is no

way he can pull his button out by himself. Not enough leverage. And with the

way we secure his tube, even if his tube gets caught on something, it

doesn't disturb the button, no matter how hard he pulls against it. I have

no idea what we're going to do when he's potty trained because we secure his

tube to his diaper! LOL

Anyway, just my two cents, for what it's worth! LOL

Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

G-Tube)

[Guest guest]

Pat,

You just reminded me. . . what do you secure a tube to when they are potty

trained??? We are going to start with Alyssa as soon as we get back from

NY. (who wants to tell the cabbie he needs to pull over, my kid's needs to

potty!?)) :-)

So all you mommies with potty trained kids. . . . what do you do??

Dayna, Mom to Alyssa

_____

From: pcpets

Sent: Tuesday, March 01, 2005 1:35 PM

To: RSS-Support

Subject: Re: Colin- pulled out his button - 2nd Time

Hi ,

Are you sure that 1) the button is the right size for him??? and 2) the

ballon is properly inflating???

Maybe Colin- is just that much stronger than is, but as long as

his balloon is properly inflated, and doesn't have a slow leak, there is no

way he can pull his button out by himself. Not enough leverage. And with the

way we secure his tube, even if his tube gets caught on something, it

doesn't disturb the button, no matter how hard he pulls against it. I have

no idea what we're going to do when he's potty trained because we secure his

tube to his diaper! LOL

Anyway, just my two cents, for what it's worth! LOL

Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

G-Tube)