Re: Re: Gluten Confession

[Guest guest]

" I choose to support parents in whatever is their decision regarding

the best interest of their own child "

Amen! I'm new to this group, so haven't come across the issues you

brought up, but my belief is that we are all " experts " on our own

children. Who else could love them, hope for them, work for them and

sacrifice happily for them with our enthusiasm?

Valeri

[Guest guest]

Dana-

We are in the middle of round 4 infraction/ infringement testing,

because I want to believe that this diet will not be permanent. Expense, and

cooking aside, my son was a normal baby until 18 months, until the " shut

down (we are sure vaccination related) If he was able to eat these foods for

8 months prior to the vaccination, we are hoping he will some day be able to

eat these foods again. I want to believe this diet is a bandaid, and not a

permanent treatment. My husband and I believe that the longer you keep your

children off of the food, the more likely they will never be likely to

digest it. I have no problem with the expense,or baking, or

inconvenience...Our infractions come because my son (who was TOTALLY out to

lunch at 3), by 6 was pretty high functioning, and was able to remember the

food we took away. MANY when they start this diet, have non-verbal, or lower

functioning, or young children. My son SINCE we have put this diet in place,

has constanly asked for food he couldn't have. Not for the high, I have to

say, I am a good baker, my cookies are good, the pizza (with soy cheese) is

as close as you can get, but the taste does not cut it. I have been on this

diet as well, and I found myself craving foods, that when I ate them did not

feel any worse for the wear....Autism is hard enough, there should never be

any rivalry to opinions, but I think often people are verhy tense and

comments are misunderstood. I have been " flamed " several times (some were

not intentional, but I just misread the " emotion " behind the words " , and

some were quite intentional, but knowing everyone typing has a child like

mine, I give them the benefit of the doubt that they are strung out. I

agree with you that even if opinions differ, we should all learn from

difference, we all, may learn something new -Shari

[Guest guest]

>>>>>My husband and I believe that the longer you keep your

children off of the food, the more likely they will never be likely to

digest it. I have no problem with the expense,or baking, or

inconvenience...Our infractions come because my son (who was TOTALLY out to

lunch at 3), by 6 was pretty high functioning, and was able to remember the

food we took away. MANY when they start this diet, have non-verbal, or lower

functioning, or young children. My son SINCE we have put this diet in place,

has constanly asked for food he couldn't have. Not for the high, I have to

say, I am a good baker, my cookies are good, the pizza (with soy cheese) is

as close as you can get, but the taste does not cut it. <<<<<<<

Everyone is entitled to their own opinions and convictions, and should be able

to state them without worry. My son, who has always been high functioning,

doesn't ask for his old foods anymore. He definately remembers the old foods,

but yet, rarely asks for them. Instead, when he sees the old foods, he asks if

it makes him sick or not. I don't want this diet to be permanent, but if it is,

than so be it. It's definately a pain in the behind, and limits our ability to

go places and indulge in fabulous foods, that lets face it, we all crave. We

recently took our son to a doctor who believes stongly in this diet, and other

diet interventions. I was stunned when she told me that I could sneek the

casein back into my son's diet, on a limited basis. She didn't mean hand him a

bowl of icecream, but she did feel I could give him butter, and other foods

containing trace amounts of casein. So, you can see that even doctors don't

agree on everything either. This particular doctor told me I could do this,

because my son was extremely high functioning (in her opinion she didn't even

think he was on the spectrum). She felt he would be able to tell me if the

foods made him feel yucky or spacey. So, who and what do you believe? I will

admit to allowing my son an occasional dinner out (once every two months), that

contains gluten. Most of the time we stick to places that we can obtain gfcf

foods, but there are those rare moments when I feel I have no choice. I simply

give him enzymes to counter balance the effect. However, I'm terrified to

simply give him back his old foods. I'm afraid to risk anything. I'm also

afraid of finding out I was wrong for over two years, and that I deprived him of

foods unnecessarily. What if what I've seen all these years was simply a

placebo thing. Afterall, my son was not a child who developed typically and

than turned for the worse. His development was odd, by all means, but he's

always had language, and no real autistic characteristics other than poor eye

contact and some repetitive play.

Anyway, I'm simply throwing thoughts out there, because I too question the diet.

However, I'm not ready to attempt any infringement, because I'm finally at peace

with myself and my son. I spent way too many years, waiting for him to develop

normally. Now that he is finally on the right path, perhaps I'm too afraid of

rocking the boat, all for the sake of Dairy Queen and all those other naughty

foods we enjoyed 2-1/2 years ago. It's definately fear on my part that keeps us

on this diet.

a - Peoria IL mom to Alec 7.2 (dyslexic), 5.5 (ASD), 3.6 Get

more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

a, that's so wonderful that your son asks if it makes him sick. And does

he ever show anxiety, or he fully accepts it? I should explain, my son

wasn't asking for the food verbally. Many times he sat and ate his GFCF

meals. It was coming out in his pictures that he draws. All black. Last year

he wrote " I can swing better than my friends, My friends can eat better

foods than me " , this year he drew under the heading " What I love " Pizza,

oreos, and yogurt (Yogurt? Please of all of the caseins I would draw..) So

it wasn't that he wasn't following, or begging, It was the underlying

depression. So sad. My fear off the diet is great...I know how wonderful he

behaves on the diet. I feel the diet helped him. After chelating for a year

now, I am just praying that his stomach has healed...Ugh life is hard is all

I can say-Shari Mom to Shane-7.10 (from auti to " DD " ) Jackie-LE-3 -2

Re: Re: Gluten Confession

>>>>>My husband and I believe that the longer you keep your

children off of the food, the more likely they will never be likely to

digest it. I have no problem with the expense,or baking, or

inconvenience...Our infractions come because my son (who was TOTALLY out to

lunch at 3), by 6 was pretty high functioning, and was able to remember the

food we took away. MANY when they start this diet, have non-verbal, or lower

functioning, or young children. My son SINCE we have put this diet in place,

has constanly asked for food he couldn't have. Not for the high, I have to

say, I am a good baker, my cookies are good, the pizza (with soy cheese) is

as close as you can get, but the taste does not cut it. <<<<<<<

Everyone is entitled to their own opinions and convictions, and should be

able to state them without worry. My son, who has always been high

functioning, doesn't ask for his old foods anymore. He definately remembers

the old foods, but yet, rarely asks for them. Instead, when he sees the old

foods, he asks if it makes him sick or not. I don't want this diet to be

permanent, but if it is, than so be it. It's definately a pain in the

behind, and limits our ability to go places and indulge in fabulous foods,

that lets face it, we all crave. We recently took our son to a doctor who

believes stongly in this diet, and other diet interventions. I was stunned

when she told me that I could sneek the casein back into my son's diet, on a

limited basis. She didn't mean hand him a bowl of icecream, but she did

feel I could give him butter, and other foods containing trace amounts of

casein. So, you can see that even doctors don't agree on everything either.

This particular doctor told me I could do this, becau

Anyway, I'm simply throwing thoughts out there, because I too question the

diet. However, I'm not ready to attempt any infringement, because I'm

finally at peace with myself and my son. I spent way too many years,

waiting for him to develop normally. Now that he is finally on the right

path, perhaps I'm too afraid of rocking the boat, all for the sake of Dairy

Queen and all those other naughty foods we enjoyed 2-1/2 years ago. It's

definately fear on my part that keeps us on this diet.

a - Peoria IL mom to Alec 7.2 (dyslexic), 5.5 (ASD), 3.6 Get

more from the Web. FREE MSN Explorer download : http://explorer.msn.com