Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 In a message dated 10/18/01 7:22:44 AM Central Daylight Time, marym@... writes: > Good news, the surgery will cure your hyperlipidemia. In fact, Dr > Baltasar in Sapin says that he has done the Ds part without the > stomach reduction to cure this problem. Having high lipids > (cholesterol and triglycerides) is a very good reason to have this > surgery. > Wow! My husband would be an excellent candidate for this! He has high cholesterol and triclycerides but isn't quite at a high enough weight for wls.????? Dawn--South Suburban Chicago area Dr. Hess, Bowling Green, OH BPD/DS 4/27/00 www.duodenalswitch.com 267 to 165 5' 4 " size 22 to size 10 have made size goal no more high blood pressure, sore feet, or dieting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 At 1:54 AM -0700 10/18/01, Gold-Dust wrote: >Today saw my doctor to go over results of tests I am taking pre-op. Two >things were worrisome: > >1. Triglycerides. He said there was so much fat in my blood that they >could not check my cholesterol. > >2. Kidney function is down. He said this could possibly be from >dehydration, and is sending me to take the test again next week. Naturally, >I will be drinking up a storm. > >My question: Could either of these things disincline a surgeon from doing >the surgery? Probably not. >Do these problems make me not a good candidate? In fact, the triglyceride elevation makes you an ideal candidate. Before I started on Lipitor (pre-op), my total cholesterol had jumped from about 230 to 289. After three months on Lipitor, it had dropped to 188. Then came the DS, and three months post-op, still on Lipitor, my total cholesterol dropped to 114 !!! Triglycerides were 128. Total Cholesterol = 114 HDL = 30 (nominally low, but still >25% of total cholesterol) LDL = 58 Triglycerides = 128 I have been off Lipitor for almost three months, and I had my bloodwork last Monday, but have not received the lipid panel results yet. I have been eating lots of meat and have been using butter for the first time in decades, so we shall see how well the fat malabsorption works for me. My expectation is that the results will be fine, even without the Lipitor. Assuming that they will be fine, the DS sure is a boon for hyperlipidemic patients. > My surgery is >presently scheduled for November 29th, with all test results due no later >than Nov. 15th. > Good luck! --Steve -- Steve Goldstein, age 61 Lap BPD/DS on May 2, 2001 Dr. Elariny, INOVA Fairfax Hospital, Virginia Starting (05/02/01) BMI = 51 BMI on 10/18 = 40 (-73 lb.) Losing more slowly than most, but enjoying renewed health and life in general. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Good news, the surgery will cure your hyperlipidemia. In fact, Dr Baltasar in Sapin says that he has done the Ds part without the stomach reduction to cure this problem. Having high lipids (cholesterol and triglycerides) is a very good reason to have this surgery. The kidney function is important for surgery. Keeping your water intake up is important. The relative importance of this depends a lot on exactly how bad it is. If the kidneys are not functioning properly, the body cannot excrete the medications and other junk that the kidneys clear from the blood stream. However, if you are dehydrated then all your blood tests can look strange and seem abnormal. So hopefully this will all be resolved with your next tests. in Seattle > Today saw my doctor to go over results of tests I am taking pre- op. Two > things were worrisome: > > 1. Triglycerides. He said there was so much fat in my blood that they > could not check my cholesterol. > > 2. Kidney function is down. He said this could possibly be from > dehydration, and is sending me to take the test again next week. Naturally, > I will be drinking up a storm. > > My question: Could either of these things disincline a surgeon from doing > the surgery? Do these problems make me not a good candidate? My surgery is > presently scheduled for November 29th, with all test results due no later > than Nov. 15th. > > Many thanks for any help anyone can give. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Judy, Thanks for your blessings. Regarding the lipuds (triglycerites, and cholesterol) a high level of lipuds is actually a comborbidy that makes surgery all the more indicated, so you are good there. It would have been nice to have a baseline reading, but it will not affect your surgery. Regarding kidney function, this could have an impact. If your kidneys are severly imparied it will make you a much higher risk candiate for surgery. Some surgeons will go forward as long as you understand the risks (like Dr. Anthone). Other surgeons would like to keep their stats clean and will refuse to do the surgery if your kidny function is imparied too much. It is really a judgement call, but given you lipuds it is probably worth the increased risk (I am not a doctor or a nurse or a nurse practitionar, so take my opinion for what it is). Hull > Today saw my doctor to go over results of tests I am taking pre- op. Two > things were worrisome: > > 1. Triglycerides. He said there was so much fat in my blood that they > could not check my cholesterol. > > 2. Kidney function is down. He said this could possibly be from > dehydration, and is sending me to take the test again next week. Naturally, > I will be drinking up a storm. > > My question: Could either of these things disincline a surgeon from doing > the surgery? Do these problems make me not a good candidate? My surgery is > presently scheduled for November 29th, with all test results due no later > than Nov. 15th. > > Many thanks for any help anyone can give. > > Special aside to H - I've only been on this board a couple of weeks, > but have been helped so often by your thorough research. Many blessings on > your upcoming surgery. I hope you'll submit detailed descriptions of > everything as soon as you're up to it, because your clear, calm voice will > be so helpful to those of us awash with questions. > > Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 In a message dated 10/19/2001 6:46:00 AM Central Daylight Time, marym@... writes: > I think in the US they put folks on Simvastatin/Zocor or one of the > other Statin drugs. I've seen sky high lipids come down with those > drugs. Unfortunately they also interact with one of the > antidepressants I find most helpful for many of my patients. > > I haven't heard of the surgery being used for that in the US. > > , Seattle > My husband was on Lipidore (sp?) but was taken off because it was elevating his liver work up. Dawn--South Suburban Chicago area Dr. Hess, Bowling Green, OH BPD/DS 4/27/00 www.duodenalswitch.com 267 to 165 5' 4 " size 22 to size 10 have made size goal no more high blood pressure, sore feet, or dieting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 MB, Can I start by telling you I love you and I HATE THIS DISEASE.. I know how disappointed you are in the results but look at what you are doing--ROAD RUNNER, EXERCISE GIANT, DEAR SWEET MONITOR OF A BUNCH OF SICKIES WITHOUT COMPLAINT I MIGHT ADD.. I love you and we are ALL here for you. Your the best. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Hi everyone, Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling. Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward. Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. So that's the story. All is well, just not as well as I would like it to be. BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Beth Like you said, numbers are good and all, but since you feel good, you ARE good. As I said earlier, if I look at everything wrong with me in black and white...not a pretty picture. Then I go wait a minute..you still work, drive, take care of yourself and your dog and most of your house all by yourself. As sad as I am there are much more worse off than me. So there! (as I stomp my little fat feet again!) You go Beth! Have fun at rehab! Dyane Phoenix ipf 02 > > Hi everyone, > Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling. > Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward. > Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > So that's the story. All is well, just not as well as I would like it to be. > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Peggy, Thank you so much. I'm ok, really I am fine. I promise. It's just a bit disappointing but it doesnt' really mean that much when I think of what I'm able to do. As Dr. on said, 'Functionally you are stable", which is true. I hate this disease as much as you do. I hate it for all of us. But I love having this group, the love and support of all these people means more to me than I can ever explain. Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Monday, September 21, 2009 5:27:44 PMSubject: Re: Test results MB, Can I start by telling you I love you and I HATE THIS DISEASE.. I know how disappointed you are in the results but look at what you are doing--ROAD RUNNER, EXERCISE GIANT, DEAR SWEET MONITOR OF A BUNCH OF SICKIES WITHOUT COMPLAINT I MIGHT ADD.. I love you and we are ALL here for you. Your the best. Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Hi everyone, Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling. Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward. Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. So that's the story. All is well, just not as well as I would like it to be. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 mary-beth ive been on 150mg of imuran for ages so maybe thats the answer. its also change of season time and you have just started a serious exercise regime so perhaps its a blip. may > > Hi everyone, > Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling. > Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward. > Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > So that's the story. All is well, just not as well as I would like it to be. > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 May, I'm hoping for blip also. Not panicking as I still feel relatively well. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Monday, September 21, 2009 8:26:39 PMSubject: Re: Test results mary-bethive been on 150mg of imuran for agesso maybe thats the answer. its alsochange of season time and you havejust started a serious exercise regimeso perhaps its a blip.may>> Hi everyone,> Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling.> Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positivel y true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward.> Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > So that's the story. All is well, just not as well as I would like it to be. > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Beth, How was the weather in your area today? Was it raining? (It has really rained here in Georgia) Whenever I had PFTs and the weather was really yucky & raining, my numbers were always lower. Wait until you have the tests again to determine where you are. I am sure you are just where you were. DLCO can go up & down. Mine has been gradually going up, but Dr. thought that it was because I had just learned how to do the test. I also wanted to say to some of the newbies that my first pulmodude wanted me to walk slow and not do anything. I can assure that I did not follow his advice. I also went to Handbell practice this afternoon. Two people were already there the director and one other). They are amazed that I go out and about when there is so much sickness going around. Little do they know that I am very choosy as to where I go. And what I do. Besides constant handwashing, I have added gargling with salt water twice a day and blowing my nose very well and using the neti pot or some salt water in the nose. It has cut down on the amount of sinus drainage that is always present. I got the idea for the salt water from a note that brought home from the day care where she works. Another biggie on that note was this: Do not drink out of public water fountains. I also carry my masks around if I need to use them. And staying out of crowds. Sometimes my exercise class is crowded so I try to go at a different time when those people are finished. And I constantly wash my hands while I am there. I didn't meet to get carried away on writing all of this. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl>> Hi everyone,> Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling.> Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward.> Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > So that's the story. All is well, just not as well as I would like it to be. > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Dear Beth, The results may not be very good, as you say you 'feel good 'and that is important , with your positive attitude and your rehab programme things will be better next time. love Geeta In Breathe-Support , Beth wrote: > > Hi everyone, > Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling. > Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward. > Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > So that's the story. All is well, just not as well as I would like it to be. > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 hand washing and exercise: after being very sick last winter -- probably a stomach flu -- i started wiping the exercise equipment prior to using it Atlanta was on Good Morning America this morning i hope everyone on this board who lives in the storm/flood areas of the south are ok Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Test resultsTo: Breathe-Support Date: Monday, September 21, 2009, 11:40 PM Beth, How was the weather in your area today? Was it raining? (It has really rained here in Georgia) Whenever I had PFTs and the weather was really yucky & raining, my numbers were always lower. Wait until you have the tests again to determine where you are. I am sure you are just where you were. DLCO can go up & down. Mine has been gradually going up, but Dr. thought that it was because I had just learned how to do the test. I also wanted to say to some of the newbies that my first pulmodude wanted me to walk slow and not do anything. I can assure that I did not follow his advice. I also went to Handbell practice this afternoon. Two people were already there the director and one other). They are amazed that I go out and about when there is so much sickness going around. Little do they know that I am very choosy as to where I go. And what I do. Besides constant handwashing, I have added gargling with salt water twice a day and blowing my nose very well and using the neti pot or some salt water in the nose. It has cut down on the amount of sinus drainage that is always present. I got the idea for the salt water from a note that brought home from the day care where she works. Another biggie on that note was this: Do not drink out of public water fountains. I also carry my masks around if I need to use them. And staying out of crowds. Sometimes my exercise class is crowded so I try to go at a different time when those people are finished. And I constantly wash my hands while I am there. I didn't meet to get carried away on writing all of this. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl>> Hi everyone,> Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling.> Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward.> Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > So that's the story. All is well, just not as well as I would like it to be. > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Jane, The weather here yesterday was gorgeous actually. Sunny, not humid and around 80. I can't figure it out. You're right that the DLCO can go up and down so that doesn't bother me too much. The one thing that makes me worry a bit is my FVC was down significantly...all three times they had me do it. Sigh. I'm determined not to worry about it. I feel good and I'm able to do exactly the same things using the same oxygen I've always used. We'll see what the next pft shows and go from there. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Monday, September 21, 2009 11:40:04 PMSubject: Re: Test results Beth, How was the weather in your area today? Was it raining? (It has really rained here in Georgia) Whenever I had PFTs and the weather was really yucky & raining, my numbers were always lower. Wait until you have the tests again to determine where you are. I am sure you are just where you were. DLCO can go up & down. Mine has been gradually going up, but Dr. thought that it was because I had just learned how to do the test. I also wanted to say to some of the newbies that my first pulmodude wanted me to walk slow and not do anything. I can assure that I did not follow his advice. I also went to Handbell practice this afternoon. Two people were already there the director and one other). They are amazed that I go out and about when there is so much sickness going around. Little do they know that I am very choosy as to where I go. And what I do. Besides constant handwashing, I have added gargling with salt water twice a day and blowing my nose very well and using the neti pot or some salt water in the nose. It has cut down on the amount of sinus drainage that is always present. I got the idea for the salt water from a note that brought home from the day care where she works. Another biggie on that note was this: Do not drink out of public water fountains. I also carry my masks around if I need to use them. And staying out of crowds. Sometimes my exercise class is crowded so I try to go at a different time when those people are finished. And I constantly wash my hands while I am there. I didn't meet to get carried away on writing all of this. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl>> Hi everyone,> Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling.> Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward.> Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > So that's the story. All is well, just not as well as I would like it to be. > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Pink Kroger here now has clorox wipes just inside the entrance for wiping the cart handles. I was curious as to whether that is a practice in other areas or by other grocers. > > > > Hi everyone, > > Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling. > > Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward. > > Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > > So that's the story. All is well, just not as well as I would like it to be. > > > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 All the publix grocery stores 2 wal marts in town also have clorox wipes as you enterDorothy reineckeSent via BlackBerry by AT&TFrom: "Bruce" Date: Tue, 22 Sep 2009 14:03:36 -0000To: <Breathe-Support >Subject: Re: Test results Pink Kroger here now has clorox wipes just inside the entrance for wiping the cart handles. I was curious as to whether that is a practice in other areas or by other grocers. > > > > Hi everyone, > > Well everything is fine I didn't get precisely the results I expected. My ct scan shows some mild progression and oddly my pft, specifically my FVC and my DLCO are somewhat lower than the last time I had them done in June. Nothing horrible, just not as good as I assumed based on how I've been feeling. > > Now I know that Bruce is going to respond that the numbers and the ct scan are useful and all but what really matters is how I've been feeling and I'm feeling good. This is absolutely positively true and so I'm not going to let this get to me. Tomorrow I go back to rehab and I will move forward. > > Dr. on is going to consult with my rheumatologist and we will probably increase the Imuran from 100mg to 150mg for awhile. > > So that's the story. All is well, just not as well as I would like it to be. > > > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Bruce, The grocers all started doing that a few years ago, the year they ran short on flu shots. Frys is owned by Kroger so who knows they may have been the first. Dyane Phoenix ipf 02 > > > > > > Hi everyone, > > > Well everything is fine I didn't get precisely the results I > expected. My ct scan shows some mild progression and oddly my pft, > specifically my FVC and my DLCO are somewhat lower than the last time I > had them done in June. Nothing horrible, just not as good as I assumed > based on how I've been feeling. > > > Now I know that Bruce is going to respond that the numbers and the > ct scan are useful and all but what really matters is how I've been > feeling and I'm feeling good. This is absolutely positively true and so > I'm not going to let this get to me. Tomorrow I go back to rehab and I > will move forward. > > > Dr. on is going to consult with my rheumatologist and we will > probably increase the Imuran from 100mg to 150mg for awhile. > > > So that's the story. All is well, just not as well as I would like > it to be. > > > > > > Beth > > > Moderator > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Beth I like you had both my Ct scan and PFT plus Echo come back worse than before but I am taking Cellcept now (I got puking sick from Imuran)and I am feeling better so I am not going to worry about it . I cant change it so I am moving on. I did the nuclear stress test today . What a joy that was, every side effect you could get I got. The drug began with a D and it only took 6 minutes of torture. The isotopes were a breeze thank fully I didn't eat as they suggested. Well it will tell me if I can start exercising again as I want to do rehab again now that I am on oxygen. Hope to see you in Chattanooga . IPF 2/07 ILD 4/09 Scleroderma Raynauds Sjogrens Il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Bruce, They have those wipes at Giant Eagle grocery here in Ohio too.PJ in OH,54, IPF'09, Sjogren's'95 Re: Test results PinkKroger here now has clorox wipes just inside the entrance for wiping thecart handles. I was curious as to whether that is a practice in otherareas or by other grocers.> >> > Hi everyone,> > Well everything is fine I didn't get precisely the results Iexpected. My ct scan shows some mild progression and oddly my pft,specifically my FVC and my DLCO are somewhat lower than the last time Ihad them done in June. Nothing horrible, just not as good as I assumedbased on how I've been feeling.> > Now I know that Bruce is going to respond that the numbers and thect scan are useful and all but what really matters is how I've beenfeeling and I'm feeling good. This is absolutely positively true and soI'm not going to let this get to me. Tomorrow I go back to rehab and Iwill move forward.> > Dr. on is going to consult with my rheumatologist and we willprobably increase the Imuran from 100mg to 150mg for awhile.> > So that's the story. All is well, just not as well as I would likeit to be.> >> > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Sher Do make sure he knows you were just on Cipro. > > > > > > > > Hi everyone, > > > > Well everything is fine I didn't get precisely the results I > > expected. My ct scan shows some mild progression and oddly my pft, > > specifically my FVC and my DLCO are somewhat lower than the last > time I > > had them done in June. Nothing horrible, just not as good as I > assumed > > based on how I've been feeling. > > > > Now I know that Bruce is going to respond that the numbers and > the > > ct scan are useful and all but what really matters is how I've been > > feeling and I'm feeling good. This is absolutely positively true and > so > > I'm not going to let this get to me. Tomorrow I go back to rehab and > I > > will move forward. > > > > Dr. on is going to consult with my rheumatologist and we > will > > probably increase the Imuran from 100mg to 150mg for awhile. > > > > So that's the story. All is well, just not as well as I would > like > > it to be. > > > > > > > > Beth > > > > Moderator > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 Bruce...thanks and I am prepared to go with results of urine tests in hand. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Re: Test results SherDo make sure he knows you were just on Cipro.> > > >> > > > Hi everyone,> > > > Well everything is fine I didn't get precisely the results I> > expected. My ct scan shows some mild progression and oddly my pft,> > specifically my FVC and my DLCO are somewhat lower than the last> time I> > had them done in June. Nothing horrible, just not as good as I> assumed> > based on how I've been feeling.> > > > Now I know that Bruce is going to respond that the numbers and> the> > ct scan are useful and all but what really matters is how I'vebeen> > feeling and I'm feeling good. This is absolutely positively trueand> so> > I'm not going to let this get to me. Tomorrow I go back to rehaband> I> > will move forward.> > > > Dr. on is going to consult with my rheumatologist and we> will> > probably increase the Imuran from 100mg to 150mg for awhile.> > > > So that's the story. All is well, just not as well as I would> like> > it to be.> > > >> > > > Beth> > > > Moderator> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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