Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 I know just how you feel. I had the same problems with my pediatrician missing several things that I was bringing up to her. Take it as a lesson to be an advocate for your daughter and don't just accept the word of one doctor. With that being said...Pediatricians just do not know much about plagiocephaly and I don't think it is part of their normal check up. You will find that many of us have the same problem. I do not know if switching doctors would have brought this diagnosis to you sooner but perhaps you could talk to your doctor about your concerns of not being heard. As far as decorating the band...I chose not to paint it so that I could change it often. I use stickers and rhinestones and it turns out good. There are a lot of websites to look at for ideas. Good luck with everything. EMAILING FOR THE GREATER GOODJoin me Plagiocephaly From: courtneyccox@...Date: Sat, 1 Aug 2009 21:53:13 +0000Subject: Change Pediatrician? Howdy- new to the group...Noticed that my daughter () started having what I now know to be Right-Plagiocephaly at about 2.5 to 3 months old. Mentioned it to the Pediatrician, and she blew me off. Mentioned it at EVERY appt thereafter, and she didn't acknowledge that I actually had something of a point until she had barely started sitting up. At that point she told me to wait, since she was starting to sit up and it should "round out" on it's own. I knew about the condition of plagiocephaly, but figured that I would listen to the ped. at this point; she probably knows more about it and how to correct it than I do. However, at her five month, six month AND nine month appts, I mentioned again that it wasn't completely rounded out, and again my comment got passed over. I figured that I HAD to trust my pediatrician at SOME point (after all, she IS a doctor) and it didn't look to me as if was suffering from any kind of developmental delays, so I didn't push it more than that. At her 12 mo appt in the third week of July, the pediatrician magically "noticed" that he right side of her head was slightly mis-shapen. I looked at her and kind of got miffed, because I knew where she was going with this comment, and thought to myself, "I've told you about this since she was three months old and NOW you decide to take it seriously???!?!"Either way went to Cranial Technologies yesterday and they did diagnose her as a moderate right-plagiocephalic, and recommended the DOC band. We are now waiting to see if insurance will approve (will get the DOC even if they don't); then we start to fit her. I have two questions: One, what are the opinions of anyone else in regards to this pediatrician (I'm in San , TX) and two, anyone have any ideas on decorating the DOC band? Quote Link to comment Share on other sites More sharing options...
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