Re: Flair! need encouragement.. :(

[Guest guest]

It could be the tylenol, or the reason you took the tylenol ( virus? ).

I would not think you have undone one year of hard work. I hear this sort of

thing can happen but the recovery is quicker. Stay on intro- stage one- easy to

handle foods for now. You should feel better soon- I hope so.

PJ

>

> i have been on SCD strict for just over a year. I am having a flair. i have

had it since Thursday. The only thing that i ingested that was not SCD Legal was

an accidental dose of store brand Tylenol that was labled " ICE " i didnt relize

it till i swallowed it and couldnt get it back up. the next day... Flair. it is

very bad. urgency and blood. Could two little capsules do this to me?

> i am back on the Intro diet now and am wondering how long till i should see

improvement? Any experienced SCD comments and encouragement would be so

appreciated... Have i undone all the hard work i have done over the past year

> thanks for listening...

>

> UC 14 + years

> SCD 1 year 3 days

> no meds

>

[Guest guest]

The only thing that i ingested that was not SCD Legal was an accidental dose of store brand Tylenol that was labled "ICE" i didnt relize it till i swallowed it and couldnt get it back up. the next day... Flair. it is very bad. urgency and blood. Could two little capsules do this to me? Well, the timing certainly seems to be there. Do you usually take tylenol? It could be a combination of the illegals in the meds and the actual meds, or active ingredients or whatever, that upset your bowels. On the upside, you at least know what caused it (probably), so after it gets out of your system, I bet you'll be great =) Until then just try to hit it with everything you got. Epsom baths, tons of homemade broth, warm packs on your stomach, vitamin E enemas, any anti-inflammatory (legal) supplements that have worked for you before. I think I read that bromelain is good? Also probiotics, and maybe boulardii if you have that. And don't forget to relax and get a lot of rest! Hope you feel better! Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day

[Guest guest]

thanks for the encouragement.... i took the tylenol for cramps and i have always

taken it, even while on SCD. never had a problem before. This just seems to be

such a bad flair. so sudden. How long does it take the intro diet to help the

flair stop? When i started this diet a year ago i was not in a flair.

> > UC 14 + years

> > SCD 1 year 3 days

> > no meds

>

> It could be the tylenol, or the reason you took the tylenol ( virus? ).

> I would not think you have undone one year of hard work. I hear this sort of

thing can happen but the recovery is quicker. Stay on intro- stage one- easy to

handle foods for now. You should feel better soon- I hope so.

>

> PJ

>

> > > > >

>

[Guest guest]

It could also be the 1 year flare and it is a coincidence that it was the next day after taking the tylenol. I definitely echo Alyssa, lots of good broth, easy to tolerate foods, yogurt, epsom salt baths, and chilling out. And don't forget about dry, white, wine to help relax.AmeliaTo: BTVC-SCD Sent: Tue, May 11, 2010 8:55:40 PMSubject: Re: Flair! need encouragement..

thanks for the encouragement. ... i took the tylenol for cramps and i have always taken it, even while on SCD. never had a problem before. This just seems to be such a bad flair. so sudden. How long does it take the intro diet to help the flair stop? When i started this diet a year ago i was not in a flair.

> > UC 14 + years

> > SCD 1 year 3 days

> > no meds

>

> It could be the tylenol, or the reason you took the tylenol ( virus? ).

> I would not think you have undone one year of hard work. I hear this sort of thing can happen but the recovery is quicker. Stay on intro- stage one- easy to handle foods for now. You should feel better soon- I hope so.

>

> PJ

>

> > > > >

>

[Guest guest]

I'm sort of new to this diet but speaking from a medical background, I doubt it

could be the tylenol and would urge you to seek medical attention asap-- at

least call the doctor's office and talk to them about it. Not wanting you to

worry [try to destress and keep calm] but when I had bleeding problems years ago

my gastro doc said bleeding is always something you need to get checked out

asap. I don't have bowel issues now or anyway not like many here-- I'm here for

my autistic son. God bless. Kathy

>

> i have been on SCD strict for just over a year. I am having a flair. i have

had it since Thursday. The only thing that i ingested that was not SCD Legal was

an accidental dose of store brand Tylenol that was labled " ICE " i didnt relize

it till i swallowed it and couldnt get it back up. the next day... Flair. it is

very bad. urgency and blood. Could two little capsules do this to me?

> i am back on the Intro diet now and am wondering how long till i should see

improvement? Any experienced SCD comments and encouragement would be so

appreciated... Have i undone all the hard work i have done over the past year

> thanks for listening...

>

> UC 14 + years

> SCD 1 year 3 days

> no meds

>

[Guest guest]

I know this is scary. I was much sicker before I started SCD. I've been on it a

year with much less dramatic ups and downs thankfully. I do remember this

comment from " Life without bread " discussing low carb diets and colitis. As you

can well imagine, this diet advice which is quite old, must have approximated

SCD as most carbs were eliminated, but is not as effective as SCD.

The statement was that when one did have flares with UC, they were less intense

and less frequent along the way. I have heard people here say that too. It must

be scary to flare after one year- it would scare me too, but hopefully things

will settle down.

Everyone is different, so I do hope that your flare is short. It is hard to say

how long it will last

PJ

> >

> > It could be the tylenol, or the reason you took the tylenol ( virus? ).

> > I would not think you have undone one year of hard work. I hear this sort of

thing can happen but the recovery is quicker. Stay on intro- stage one- easy to

handle foods for now. You should feel better soon- I hope so.

> >

> > PJ

> >

> > > > > >

> >

>

[Guest guest]

agree- absolutely!

I think those of us discussing diet are assuming that one had regular medical

care, a diagnosis, a colonoscopy ( as needed ), and would call the doctor for

any serious symptoms, bleeding, new symptoms,..and would also call if they

persist.

PJ

> >

> > i have been on SCD strict for just over a year. I am having a flair. i have

had it since Thursday. The only thing that i ingested that was not SCD Legal was

an accidental dose of store brand Tylenol that was labled " ICE " i didnt relize

it till i swallowed it and couldnt get it back up. the next day... Flair. it is

very bad. urgency and blood. Could two little capsules do this to me?

> > i am back on the Intro diet now and am wondering how long till i should see

improvement? Any experienced SCD comments and encouragement would be so

appreciated... Have i undone all the hard work i have done over the past year

> > thanks for listening...

> >

> > UC 14 + years

> > SCD 1 year 3 days

> > no meds

> >

>

[Guest guest]

, I forget if you have UC or not, but if you do, the vitamin E enemas really help.Get an ear bulb syringe and mix together up to 8000 IUs of vitamin Ewith about a TB of distilled water and apply at night. Or you can usehalf during the day after you think your D episodes are over and thenmore at night. Feel better soon.MaraAt 12:55 PM 5/11/2010, you wrote:i have been on SCD strict for just over a year. I am having a flair. i have had it since Thursday. The only thing that i ingested that was not SCD Legal was an accidental dose of store brand Tylenol that was labled "ICE" i didnt relize it till i swallowed it and couldnt get it back up. the next day... Flair. it is very bad. urgency and blood. Could two little capsules do this to me? i am back on the Intro diet now and am wondering how long till i should see improvement? Any experienced SCD comments and encouragement would be so appreciated... Have i undone all the hard work i have done over the past yearthanks for listening... ,Alas, the so-called "inactive" ingredients in non-compounded meds can cause flares.Been there, and done that -- the one thing I forgot to check when arranging for my cancer surgery was inactives in the pain medication.You have an advantage i didn't have: you only had one dose. I was on the meds for several months.Keep in mind that the inactive ingredients in many medications are Grade A bacteria food. Here you've been, starving those bacteria out, and all of a sudden, you handed them a smorgasboard.They have gone to town, chowing down and reproducing, and that's why you're having a flare.You did absolutely the right thing by going to the intro diet. You're going to have to starve those little buggers out again -- and because the remaining ones were the hardy types who had survived your year of starving them, they're going to be more difficult than the first round to get rid of.You have not undone all your hard work -- but this is going to be a set back. Chin up. You made it this far. You can keep on knocking the bad bacteria upside their cell membranes!— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle

[Guest guest]

Dear Marilyn,

thank you for speaking out!!! i needed to hear it. The blood is scary, but it

has been my usual sym

ptom for many years. Two years ago i ended up in the hospital for a week. Dont

want to go there again so i did put a call in to my GI Dr. Do you think i should

go on any meds to stop the flare? or do you think the intro diet will do it?

These buggers do seem aweful strong. how long should i wait it out?

Thanks so much for any encouragement....

Very Sincerely,

lisa

UC 14+

SCD 1 year +

No meds

> >i have been on SCD strict for just over a year.

> >I am having a flair. i have had it since

> >Thursday. The only thing that i ingested that

> >was not SCD Legal was an accidental dose of

> >store brand Tylenol that was labled " ICE " i

> >didnt relize it till i swallowed it and couldnt

> >get it back up. the next day... Flair. it is

> >very bad. urgency and blood. Could two little capsules do this to me?

> >i am back on the Intro diet now and am wondering

> >how long till i should see improvement? Any

> >experienced SCD comments and encouragement would

> >be so appreciated... Have i undone all the hard

> >work i have done over the past year

> >thanks for listening...

>

> ,

>

> Alas, the so-called " inactive " ingredients in

> non-compounded meds can cause flares.

>

> Been there, and done that -- the one thing I

> forgot to check when arranging for my cancer

> surgery was inactives in the pain medication.

>

> You have an advantage i didn't have: you only had

> one dose. I was on the meds for several months.

>

> Keep in mind that the inactive ingredients in

> many medications are Grade A bacteria food. Here

> you've been, starving those bacteria out, and all

> of a sudden, you handed them a smorgasboard.

>

> They have gone to town, chowing down and

> reproducing, and that's why you're having a flare.

>

> You did absolutely the right thing by going to

> the intro diet. You're going to have to starve

> those little buggers out again -- and because the

> remaining ones were the hardy types who had

> survived your year of starving them, they're

> going to be more difficult than the first round to get rid of.

>

> You have not undone all your hard work -- but

> this is going to be a set back. Chin up. You made

> it this far. You can keep on knocking the bad

> bacteria upside their cell membranes!

>

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

Take the meds if you need them. Don't let this get so out of hand that you do

end up hospitalized. It is important to stop the bleeding and not let it go on

for long.

It is always good to take the medicine that will do the job with the least

amount of side effects.

PJ

> > >i have been on SCD strict for just over a year.

> > >I am having a flair. i have had it since

> > >Thursday. The only thing that i ingested that

> > >was not SCD Legal was an accidental dose of

> > >store brand Tylenol that was labled " ICE " i

> > >didnt relize it till i swallowed it and couldnt

> > >get it back up. the next day... Flair. it is

> > >very bad. urgency and blood. Could two little capsules do this to me?

> > >i am back on the Intro diet now and am wondering

> > >how long till i should see improvement? Any

> > >experienced SCD comments and encouragement would

> > >be so appreciated... Have i undone all the hard

> > >work i have done over the past year

> > >thanks for listening...

> >

> > ,

> >

> > Alas, the so-called " inactive " ingredients in

> > non-compounded meds can cause flares.

> >

> > Been there, and done that -- the one thing I

> > forgot to check when arranging for my cancer

> > surgery was inactives in the pain medication.

> >

> > You have an advantage i didn't have: you only had

> > one dose. I was on the meds for several months.

> >

> > Keep in mind that the inactive ingredients in

> > many medications are Grade A bacteria food. Here

> > you've been, starving those bacteria out, and all

> > of a sudden, you handed them a smorgasboard.

> >

> > They have gone to town, chowing down and

> > reproducing, and that's why you're having a flare.

> >

> > You did absolutely the right thing by going to

> > the intro diet. You're going to have to starve

> > those little buggers out again -- and because the

> > remaining ones were the hardy types who had

> > survived your year of starving them, they're

> > going to be more difficult than the first round to get rid of.

> >

> > You have not undone all your hard work -- but

> > this is going to be a set back. Chin up. You made

> > it this far. You can keep on knocking the bad

> > bacteria upside their cell membranes!

> >

> >

> >

> > — Marilyn

> > New Orleans, Louisiana, USA

> > Undiagnosed IBS since 1976, SCD since 2001

> > Darn Good SCD Cook

> > No Human Children

> > Shadow & Sunny Longhair Dachshund

> > Babette the Foundling Beagle

> >

>

[Guest guest]

Thank you again Marilyn,

i do appreciate your time. My GI Dr. called in a script for 3 - 3mg Entocort

1X time a day. i took the first dose an hour ago and already feel better. I used

to be on Prednisone (pre SCD)and hated it, but alas it eventually did the trick.

This is supposed to be better with less side effects. i will keep posted how

this works in case anyone else gets into this situation. Also seeing my doctor

next week just to check in. My plan is to stay on the intro diet another day or

two and then start adding foods back in slowly and proceed as usual. thanks

again.

very sincerely,

lisa

UC 14+

SCD 1 year

now starting Entocort for flare

> ,

>

> First, I'm glad you put in a call to your doctor.

> Whether or not you need meds -- that's something

> I can't advise you on because I'm not a doctor.

>

> Keep in mind that Elaine said that sometimes meds

> are necessary to get you over this hump or that.

> If you do need meds for a time, it does not, by

> any means, indicate that you have " wasted your

> time " or " ruined at your hard work. "

>

> It's a set back. These things happen on our

> healing journeys. Three steps forward and two

> steps back, and three steps forward and two steps back...

>

> This flare is a hump. If you need the meds, get

> them. Don't wait about seeing your doctor. Don't

> feel guilty about needing them. Feel better --

> keep on with basic foods, and then work on

> improving your range of foods and getting off the meds again.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

At 06:27 PM 5/12/2010, you wrote:

i do appreciate your time. My GI

Dr. called in a script for 3 - 3mg Entocort 1X time a day. i took the

first dose an hour ago and already feel better. I used to be on

Prednisone (pre SCD)and hated it, but alas it eventually did the trick.

This is supposed to be better with less side effects. i will keep posted

how this works in case anyone else gets into this situation. Also seeing

my doctor next week just to check in. My plan is to stay on the intro

diet another day or two and then start adding foods back in slowly and

proceed as usual. thanks again.

I'm glad you are feeling better already!

I've been on prednisone exactly once -- and not for gut issues, but yeah,

I hated it, too. But sometimes it, or similar drugs, are

necessary.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Entocort is much better than prednisone. Glad it is working for you.

PJ

>

>

> Thank you again Marilyn,

> i do appreciate your time. My GI Dr. called in a script for 3 - 3mg Entocort

1X time a day. i took the first dose an hour ago and already feel better. I used

to be on Prednisone (pre SCD)and hated it, but alas it eventually did the trick.

This is supposed to be better with less side effects. i will keep posted how

this works in case anyone else gets into this situation. Also seeing my doctor

next week just to check in. My plan is to stay on the intro diet another day or

two and then start adding foods back in slowly and proceed as usual. thanks

again.

> very sincerely,

> lisa

> UC 14+

> SCD 1 year

> now starting Entocort for flare

>

>

>

> > ,

> >

> > First, I'm glad you put in a call to your doctor.

> > Whether or not you need meds -- that's something

> > I can't advise you on because I'm not a doctor.

> >

> > Keep in mind that Elaine said that sometimes meds

> > are necessary to get you over this hump or that.

> > If you do need meds for a time, it does not, by

> > any means, indicate that you have " wasted your

> > time " or " ruined at your hard work. "

> >

> > It's a set back. These things happen on our

> > healing journeys. Three steps forward and two

> > steps back, and three steps forward and two steps back...

> >

> > This flare is a hump. If you need the meds, get

> > them. Don't wait about seeing your doctor. Don't

> > feel guilty about needing them. Feel better --

> > keep on with basic foods, and then work on

> > improving your range of foods and getting off the meds again.

> >

> >

> > — Marilyn

> > New Orleans, Louisiana, USA

> > Undiagnosed IBS since 1976, SCD since 2001

> > Darn Good SCD Cook

> > No Human Children

> > Shadow & Sunny Longhair Dachshund

> > Babette the Foundling Beagle

> >

>