Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Thanks for the well wishes...I will certainly keep everyone informed!! And yes, Dalia is a sweet, " in charge " , smart, beautiful 17 month old...not to brag or anything :-) Sheryl > > > > > > Jen Salem from MAGIC here. My apologies first -- I have not > been > > > able to get on the listserve since April 5th or so. Please > > contact > > > me directly if you have any questions for me, because I > > undoubtedly > > > will not have time to go back and read old emails. Newsletter > > copy > > > was due 2 days ago.... still haven't turned it in .... you all > > know > > > how busy spring can get with kids. > > > > > > So many of us are so blessed with our RSS/SGA children and the > > > education and treatment options we have access to (even if > > > limited). MAGIC has been blessed to have been in contact with > an > > > incredible mom from Peru named Deysi (she may be on the > listserve, > > I > > > do not know). She has a 2 year old son named and she has > > > forwarded us incredible photos. Photos that very much remind me > > of > > > Colton (Libby's son) and Christian Chavez ('s son) > and > > > Cals (Jodi's son). The same mild RSS look but the > > > haunting big eyes, the ears that protrude just so. > appears > > > to have significant asymmetry of the left leg. He is very small > > but > > > his weight for height doesn't appear too severe. > > > > > > His mother has been battling and pushing and doing everything > she > > > can to find out everything about RSS for . Simply put, > her > > > options in Peru are extremely limited. > > > > > > This young mother has suffered greatly in her life, and > absolutely > > > knows what hunger is; gifts are rare in her life. And yet her > son > > > is the love of her young life. If I could post even some of her > > > letters -- they truly are incredible. She clearly has fought > for > > > her education and done everything she can to learn as much > English > > > as possible. > > > > > > Our RSS/SGA division is providing financial aid to ensure that > > their > > > hotel and registration/fees are covered for the convention. > > MAGIC's > > > Chicago office is working with the American embassy to ensure > the > > > proper paperwork is turned in for the VISAs. However, the > > cheapest > > > airfare we can find so far is $661 per person (she would need > > about > > > $1,300 for she and ). > > > > > > There is no way that she could afford even $100. She has no one > > to > > > help her raise this money in Peru. Our RSS/SGA general > > > scholarship fund can not pay for her airfare because we > have " set > > > standard " scholarships to make things equitable. > > > > > > However, we CAN take directed donations from other families for > > > their airfare. Another family can do a fundraiser and " earmark " > > the > > > funds for and Deysi's airfare. > > > > > > I will be honest that in the beginning, I was hesitant about > > this. > > > In my mind I kept thinking, why is one family more important > than > > > another? Why should we spend so much money on airfare for one > > > family? Then I received 's photos in the mail. My heart > > > broke. His home is immaculate and yet it is clear that they > live > > > below what we would call the poverty line. And yet he smiles in > > the > > > photos and the photos of he and his mother -- she adores him. > > > > > > So. Can we do this? Can we raise $1,300 for to come to > > > America to see Dr. Harbison and for Deysi to meet all of you and > > > learn about RSS and possible treatments? She has an American > > > father; I do not believe she is in contact with him but I may > try > > > and contact him myself. But through him, maybe there is the > > chance > > > that could receive ongoing care in the US, if it is > > needed?? > > > > > > Remember last summer when I posted about LeeAnn from Korea?? > How > > > her potential adoptive family had decided not to adopt her, and > > Dr. > > > Harbison truly believed that LeeAnn was an angel and needed a > home > > > in the US? So many of you talked to your family and friends, > and > > > literally 3 different families contacted the agency about > adopting > > > her. And guess what -- on this listserve now is the > amazing > > > mother to LeeAnn!!!! I am so sorry to be so emotional but this > is > > > why Katy and I keep staying on as volunteers for MAGIC. This > > > listserve has the power to literally alter the course of a > child's > > > life for the better. What an incredible power to be given. > > > > > > My daughter and I get on a plane next Wednesday to see > Dr. > > > Harbison, and WE CAN DO THAT!!!! My daughter has been so > blessed > > by > > > access to the best medical care. Why shouldn't any child have > the > > > same access? > > > > > > If 100 families on this listserve gave $15 each, we would raise > > > enough money to pay for their airfare. Can some of us skip > > > Starbucks for two weeks? Watch television at home this weekend > > > instead of going to the movies? > > > > > > If you can, mail any donations to MAGIC with a note that says > the > > > money is earmarked for 's Airfare Scholarship Fund, c/o > > MAGIC > > > Foundation, 6645 W. North Ave., Oak Park, IL 60302. > > > > > > Thank you for listening. If your family is unable to contribute > > at > > > this time, prayers are worth just as much, if not more!!!! > > > > > > God bless all of our children. > > > Salem > > > RSS/SGA Division Co-Consultant > > > MAGIC Foundation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 It's a mother right and prerogative to brag, and it's nice to hear just how wonderful Dalia is growing up to be!! She was certainly a gorgeous infant!! Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 33.2 " (84.5cm), G-Tube, GHT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 OMG, Sheryl! She got SOOOOO big! and grownup looking. Oh boy, she is so so so much like Emerence, princess/queen bee! We will both miss seeing you so much - I can't believe you are adding #2 to the mix..hope he is like my son and just mild mannered. Even though is 5 Emerence just rules the roost...he DID manage to give her a haircut though! AGH! , mom to 5 and Emerence, 2 RSS/SGA > > > > > > > > Jen Salem from MAGIC here. My apologies first -- I have not > > been > > > > able to get on the listserve since April 5th or so. Please > > > contact > > > > me directly if you have any questions for me, because I > > > undoubtedly > > > > will not have time to go back and read old emails. Newsletter > > > copy > > > > was due 2 days ago.... still haven't turned it in .... you > all > > > know > > > > how busy spring can get with kids. > > > > > > > > So many of us are so blessed with our RSS/SGA children and the > > > > education and treatment options we have access to (even if > > > > limited). MAGIC has been blessed to have been in contact with > > an > > > > incredible mom from Peru named Deysi (she may be on the > > listserve, > > > I > > > > do not know). She has a 2 year old son named and she > has > > > > forwarded us incredible photos. Photos that very much remind > me > > > of > > > > Colton (Libby's son) and Christian Chavez ('s son) > > and > > > > Cals (Jodi's son). The same mild RSS look but the > > > > haunting big eyes, the ears that protrude just so. > > appears > > > > to have significant asymmetry of the left leg. He is very > small > > > but > > > > his weight for height doesn't appear too severe. > > > > > > > > His mother has been battling and pushing and doing everything > > she > > > > can to find out everything about RSS for . Simply put, > > her > > > > options in Peru are extremely limited. > > > > > > > > This young mother has suffered greatly in her life, and > > absolutely > > > > knows what hunger is; gifts are rare in her life. And yet her > > son > > > > is the love of her young life. If I could post even some of > her > > > > letters -- they truly are incredible. She clearly has fought > > for > > > > her education and done everything she can to learn as much > > English > > > > as possible. > > > > > > > > Our RSS/SGA division is providing financial aid to ensure that > > > their > > > > hotel and registration/fees are covered for the convention. > > > MAGIC's > > > > Chicago office is working with the American embassy to ensure > > the > > > > proper paperwork is turned in for the VISAs. However, the > > > cheapest > > > > airfare we can find so far is $661 per person (she would need > > > about > > > > $1,300 for she and ). > > > > > > > > There is no way that she could afford even $100. She has no > one > > > to > > > > help her raise this money in Peru. Our RSS/SGA general > > > > scholarship fund can not pay for her airfare because we > > have " set > > > > standard " scholarships to make things equitable. > > > > > > > > However, we CAN take directed donations from other families > for > > > > their airfare. Another family can do a fundraiser > and " earmark " > > > the > > > > funds for and Deysi's airfare. > > > > > > > > I will be honest that in the beginning, I was hesitant about > > > this. > > > > In my mind I kept thinking, why is one family more important > > than > > > > another? Why should we spend so much money on airfare for one > > > > family? Then I received 's photos in the mail. My > heart > > > > broke. His home is immaculate and yet it is clear that they > > live > > > > below what we would call the poverty line. And yet he smiles > in > > > the > > > > photos and the photos of he and his mother -- she adores him. > > > > > > > > So. Can we do this? Can we raise $1,300 for to come > to > > > > America to see Dr. Harbison and for Deysi to meet all of you > and > > > > learn about RSS and possible treatments? She has an American > > > > father; I do not believe she is in contact with him but I may > > try > > > > and contact him myself. But through him, maybe there is the > > > chance > > > > that could receive ongoing care in the US, if it is > > > needed?? > > > > > > > > Remember last summer when I posted about LeeAnn from Korea?? > > How > > > > her potential adoptive family had decided not to adopt her, > and > > > Dr. > > > > Harbison truly believed that LeeAnn was an angel and needed a > > home > > > > in the US? So many of you talked to your family and friends, > > and > > > > literally 3 different families contacted the agency about > > adopting > > > > her. And guess what -- on this listserve now is the > > amazing > > > > mother to LeeAnn!!!! I am so sorry to be so emotional but > this > > is > > > > why Katy and I keep staying on as volunteers for MAGIC. This > > > > listserve has the power to literally alter the course of a > > child's > > > > life for the better. What an incredible power to be given. > > > > > > > > My daughter and I get on a plane next Wednesday to see > > Dr. > > > > Harbison, and WE CAN DO THAT!!!! My daughter has been so > > blessed > > > by > > > > access to the best medical care. Why shouldn't any child have > > the > > > > same access? > > > > > > > > If 100 families on this listserve gave $15 each, we would > raise > > > > enough money to pay for their airfare. Can some of us skip > > > > Starbucks for two weeks? Watch television at home this > weekend > > > > instead of going to the movies? > > > > > > > > If you can, mail any donations to MAGIC with a note that says > > the > > > > money is earmarked for 's Airfare Scholarship Fund, c/o > > > MAGIC > > > > Foundation, 6645 W. North Ave., Oak Park, IL 60302. > > > > > > > > Thank you for listening. If your family is unable to > contribute > > > at > > > > this time, prayers are worth just as much, if not more!!!! > > > > > > > > God bless all of our children. > > > > Salem > > > > RSS/SGA Division Co-Consultant > > > > MAGIC Foundation Quote Link to comment Share on other sites More sharing options...
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