Totally confused on new Gluten/Casein test results

[Guest guest]

Maybe this should be directed to Devin or ,

My 5 yr. old son's only dx is Microcephaly w/speech & motor delays. Speech

being the biggest issue. In May, on the advise of our OT, we had him tested

for Gluten & Casein, with the hopes that it would help him to start to speak.

When those first results came back they were:

Casein: >200 and Gluten was: 109.2

We started the GFCF diet in mid-June with maybe 3 accidental infractions in

the past 4 1/2 months.

Mid Oct I had him tested again and just received the results today.

This is what they look like

Casein 1.18 and Gluten 0.74

He was given EnzymeAid maybe twice before the retest. Is it really possible

that the peptides could have decreased that drastically in such a short

amount of time?

Oh, the tests were done through Great Plains Lab

Any suggestions, or reassurance that this is possible.

Thanks,

Rhonda in CA

[Guest guest]

, LOL Yes I think you were the I meant. You seem to be one of the

most knowledgable people on this board. Thank you for responding. The

differences in the #'s was just so confusing. I don't know if we've seen much

change in our son's behavior since pre-diet. At first he was really jabbering

alot. That has slowed some, but is still an improvement. He also seems a

little calmer although he was never really very hyper, and he seems to show

more interest in new things.

Thanks again,

Rhonda

[Guest guest]

On the chance I am the " " in question, I will give my thoughts.

Yes, it is possible. For one, that fits in the time frame of healing

a leaky gut (I'm on this leaky gut jag at the moment, lol). Maybe his

gut wasn't terribly bad, but that is sufficient time for healing.

Next, the peptide tests run about 80% reliable. Not that the tests

are done incorrectly, but just that the tests do not correlate

exactly into what you should do about it. example: someone has been

casein free for 1 year and the tests come back higher than before. or

some continues so consume gluten and the results drop. Dr. Shaw told

me that the soy peptides can interfere with the results and I believe

this is printed on the test results (somewhere). Your son may not

have had a problem with soy peptides and so this is accurate for you.

But it could be a fluke in the other direction, too. The REAL test to

go by is how is your son doing? Does he seem better? Is he happier

over all? Did being on the diet make any difference. Go by your son's

reactions more than the test results. If you have concerns, just call

the lab and ask them their opinion. Say you are concerned that it

looks " too good " and see what they say.

.

[Guest guest]

Rhonda,

We have not retested. Even though for some reason Gr. Plains decided to

change the way they score results. we are casein free. Just prior to

receiving our results I experimented with reintroducing just one food, one

time on two separate occasions-both times in exactly two hours he had diarhea

so I was convinced through our own " testing " that he could not tolerate

casein. Wheat came back right at normal and we were gluten free for about 3

wks. My stress level with the diet was high so he's currently back on gluten

products. I feel he's not as responsive and stims more so we've been gearing

up to try again. I just received my order from Kinnickinnick's-Have your

tried them? The doughnuts are excellent and I do not like most of the gfcf

foods.

Enzymaid, I believe, is designed for incidental g/c infractions. So I

only give this when I know there's been one. There has been quite a few

posts lately on enymes that sound even better than Kirkman's-check out the

website-www.houstonni.com.

My son is on the following supplements: Calmac, Essential Fatty Acids,

Zinc, CoQ10, Esberitox (Imm. Sys), Vit C., ProBio Gold (yeast), and a multi

vitamin. If you're looking for a good EFA I use ChildLife brand and It's

good- supposed to be butterschot flavored but I can hardly taste it.

Kathy