Re: help please-spilling ketones, dehydration, not eating

[Guest guest]

katherine,

Do you have a glucometer?? You really need to check her sugar every

hour, especially if she can't keep her head up i guarantee her sugar is in the

30's. Anything below 65 take her to the ER!!!! And make sure the ER knows that

they can't give her glucagon shots because this will not work. We let our

local ER discharge Madison so many times after hypoglycemic episodes that know

we have bigger health problems. Don't let them tell you whjat t hey're gonna

do you have to tell them what you want done. hope this helps

Chrissy

[Guest guest]

Hi

I wish there was more I can do but I really don't know what advice

to give. If you need to just talk I am here. All I can say is try

to just get her to sip every few minutes. Try getting her to sip

through a straw.

I'm thinking of you and Autumn.

B

5 and Kelli 2 1/2

>

> Hi. I need to know if I should be doing something more. Autumn

got

> strep throat, upper resp and ear infection last wednesday but she

was

> still eating some and drinking some. By Friday she had stopped

> eating but was still drinking peptamin..not a lot, but enough to

keep

> her hydrated, by saturday she decided to stop everhthing all

together

> for the most part ( over 24rs we got 4 oz fluid in her, it was a

> fight)..I took her to the er and she got 2 doses (300ml) of fluid

and

> I was told if it happens again today, they will admit her. Well,

> finally, I had some urine in her diaper and I tested her ketones

this

> morn, it came back in between moderate and large. What am I

supposed

> to do? I did get her 3 oz peptamin this morn, but it took a

while,

> she won't drink anything else in cup/bottle or eat anything and

she

> fell back asleep now, I'm assuming because we got home late, but

she

> was having a hard time holding her head up but I dont' know. Her

> strep has mostly cleared up as has her ear infect so we are not

sure

> why she has decided to stop eating now. She is coughing pretty

bad

> though and she will not get any med in her even in her bottle,

it's

> tough enough getting her an antibiotic, she has vicks vapo rub on

> though. What do I do about these ketones? Should I be worried?

> When I get her in they asked me about RSS and my mind goes blank

> besides growth disorder, I did mention tendancy for low blood

sugar

> but they basically ignored it and gave her fluids.

>

> thanks

>

> , mom to Autumn 14 1/2 mos, 2 boys, baby girl due in July

[Guest guest]

,

Do you have the blue RSS pamphlet from MAGIC??? Under the " What should I do

if I think my SGA child has RSS? " section in the pamphlet, there is a

section labeled " Prevent hypoglycemia by: " Under this section it states

" making prior arrangements with your doctor and local ER to start IV glucose

if feeding is impossible " . I would say that Autumn is currently fitting

under this directive.

With the spilling of moderate to large amounts of ketones, I would take

Autumn in to the ER, explain that hypoglycemia is part of RSS, and that the

spilling of ketones is not acceptable for an RSS child, and that she needs

to be admitted immediately.

I would request the placement of a D10 IV, and have them monitor her BS and

the spilling of ketones regularly, until she's eating again.

It also states in the pamphlet that " A young SGA child should NEVER be

fasted or kept NPO for more than 4 hours for ANY reasons without

glucose-running IV " . So until Autumn fits that criteria, I would have them

keep her in the hospital.

Hope this helps!

Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

G-Tube)

[Guest guest]

Autumn needs to be admitted now. Take her to the ER and insist on

it. Her body has been taxed enough.

Good luck.

Jodi Z