Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi Kim C., I have concerns myself that my son might have some type of learning disability. There are times when he just looks at you and you know he knows the answer. We're going thru our triannual (sp?) with our school right now, and he'll be undergoing quite a variety of tests. I've asked them to keep a look out for this in their testing. Cheryl 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 kim, i am where you are jacob 8 in a repeat of the first grade. just got and iep done and its it on ohi and a learning dissabity althought they really have not narrowed it down to what it is he has . they are thinking he is add i think it is a prossicing dic. they are leaving it up to his sp.ed teacher to see if he needs ferther testing and i will give her a mounth to see if she does if not i will find a place to test him. he does simmial thing as your child. i guess we will have to see keep me posted and i will keep you posted cara mom to jacob Kacey171 wrote: I was wondering how many of you have RSS children who are diagnosed with learning disabilities. is a 5th grader, who has been eligible for Other Health Impaired (OHI which used to be physically impaired) and Speech and Language. He also gets OT in school. I have suspected a learning disability since the end of 1st grade, and have requested testing numerous times from his school. They deny my request every time, saying he doesn't give them any reason to test. The ESE Specialist (the person who runs the IEP meetings & puts in for evaluation) is misinformed as to what constitutes a learning disability. I have argued with her over the years about what does constitute a learning disability, and that I think has a processing disorder. He has trouble retaining concepts he has learned, and will sometimes literally act like he has never seen something before when we have been working on it everyday. He also has extremely poor reading comprehension, but is a great decoder. I am fed up with the excuses I have gotten over the years, and I have placed a call to the ESE area office to speak with a program specialist. I am very interested to find out the prevalence of learning disabilities in our children & if anyone has any suggestions as to things I can say to convince them to test him, I'd appreciate it. Ironically, I am a former ESE Specialist (now a reading specialist) for the same county school system. It surprises me that I would have as much difficulty as I am having getting him tested, though I think the problem lies with the ESE Specialist at his school... Kim C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 According to the data I collected for the GUidebook (which calculates frequency rates for children whom Dr. H has diagnosed as definitely RSS, versus SGA not RSS, versus maybe RSS). Now, this data is self-reported by parents, so there is of course a large room for error there. But here is what I found (of 125+/- subjects). 17% of RSS children had learning disabilities 21.4% of ??RSS 33% of SGA Now, I am just finishing writing this section for the Guidebook. I can't put everything here, but what I can tell you is that there is some controvery (a lot of controversy) about whether these learning disabilities are inherent in these children, or are a result of untreated hypoglycemia as infants, or a combo of both. They did find that head circumference was the strongest predictor. Those children whose head c. were above the 10th percentile at birth and at 9 months of age were more likely to have cognitive levels within the normal range (and no difference in learning disabilities) compare to control groups. If a child was <10th at birth but had catchup by 9 months, some problems but not severe. But the worse case scenarios were those babies born with head c. less than the 10th percentile and who did nothhave catch-up. RSS children are more likely to have head c. in the normal range than babies born short SGA alone. So I wasn't surprised to see the range of frequency rates among our families. However, there is a lack of published literature on specifically " learning disabilities " of our kids. There are a number of studies on cognitive and academic abilities in general. They are all in the MAGIC library, and you can get a free copy of any as a member. Jenn > > I was wondering how many of you have RSS children who are diagnosed with learning > disabilities. is a 5th grader, who has been eligible for Other Health Impaired (OHI > which used to be physically impaired) and Speech and Language. He also gets OT in > school. I have suspected a learning disability since the end of 1st grade, and have > requested testing numerous times from his school. They deny my request every time, > saying he doesn't give them any reason to test. The ESE Specialist (the person who runs > the IEP meetings & puts in for evaluation) is misinformed as to what constitutes a learning > disability. I have argued with her over the years about what does constitute a learning > disability, and that I think has a processing disorder. He has trouble retaining > concepts he has learned, and will sometimes literally act like he has never seen something > before when we have been working on it everyday. He also has extremely poor reading > comprehension, but is a great decoder. I am fed up with the excuses I have gotten over > the years, and I have placed a call to the ESE area office to speak with a program specialist. > I am very interested to find out the prevalence of learning disabilities in our children & if > anyone has any suggestions as to things I can say to convince them to test him, I'd > appreciate it. Ironically, I am a former ESE Specialist (now a reading specialist) for the > same county school system. It surprises me that I would have as much difficulty as I am > having getting him tested, though I think the problem lies with the ESE Specialist at his > school... > > Kim C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi Cheryl, Sorry to ask if you have already posted this, but how old is your son, and does he have RSS? You mentioned that you would be having his triannual evaluation. We call that something different here (reevaluation). Am I correct to assume that means he is already eligible for special education? If so, what services is he already receiving and what are his areas of weakness? Kim C. > Hi Kim C., > > I have concerns myself that my son might have some type of learning > disability. There are times when he just looks at you and you know > he knows the answer. We're going thru our triannual (sp?) with our > school right now, and he'll be undergoing quite a variety of tests. > I've asked them to keep a look out for this in their testing. > > Cheryl > 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Cara, Has already repeated first grade, or are you worried that he will not be promoted this year? What type of classroom is he in? Is he weak in all subjects, or does he have one subject that he does well in? Kim C. > kim, > i am where you are jacob 8 in a repeat of the first grade. just got and iep done and its it on ohi and a learning dissabity althought they really have not narrowed it down to what it is he has . they are thinking he is add i think it is a prossicing dic. they are leaving it up to his sp.ed teacher to see if he needs ferther testing and i will give her a mounth to see if she does if not i will find a place to test him. he does simmial thing as your child. i guess we will have to see keep me posted and i will keep you posted > cara mom to jacob > > Kacey171 <capuano_k@p...> wrote: > > I was wondering how many of you have RSS children who are diagnosed with learning > disabilities. is a 5th grader, who has been eligible for Other Health Impaired (OHI > which used to be physically impaired) and Speech and Language. He also gets OT in > school. I have suspected a learning disability since the end of 1st grade, and have > requested testing numerous times from his school. They deny my request every time, > saying he doesn't give them any reason to test. The ESE Specialist (the person who runs > the IEP meetings & puts in for evaluation) is misinformed as to what constitutes a learning > disability. I have argued with her over the years about what does constitute a learning > disability, and that I think has a processing disorder. He has trouble retaining > concepts he has learned, and will sometimes literally act like he has never seen something > before when we have been working on it everyday. He also has extremely poor reading > comprehension, but is a great decoder. I am fed up with the excuses I have gotten over > the years, and I have placed a call to the ESE area office to speak with a program specialist. > I am very interested to find out the prevalence of learning disabilities in our children & if > anyone has any suggestions as to things I can say to convince them to test him, I'd > appreciate it. Ironically, I am a former ESE Specialist (now a reading specialist) for the > same county school system. It surprises me that I would have as much difficulty as I am > having getting him tested, though I think the problem lies with the ESE Specialist at his > school... > > Kim C. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 , Thank you for this info. While researching online, I found these studies: http://adc.bmjjournals.com/cgi/content/abstract/archdischild;71/6/490 http://www.findarticles.com/p/articles/mi_qa4018/is_200405/ai_n9387229 I am not sure if these are included in the MAGIC library, as I don't have the list in front of me. I am too tired to read the second one right now, but I thought I would post this for others to check out. Kim C. > According to the data I collected for the GUidebook (which > calculates frequency rates for children whom Dr. H has diagnosed as > definitely RSS, versus SGA not RSS, versus maybe RSS). > > Now, this data is self-reported by parents, so there is of course a > large room for error there. But here is what I found (of 125+/- > subjects). > > 17% of RSS children had learning disabilities > 21.4% of ??RSS > 33% of SGA > > Now, I am just finishing writing this section for the Guidebook. I > can't put everything here, but what I can tell you is that there is > some controvery (a lot of controversy) about whether these learning > disabilities are inherent in these children, or are a result of > untreated hypoglycemia as infants, or a combo of both. They did > find that head circumference was the strongest predictor. Those > children whose head c. were above the 10th percentile at birth and > at 9 months of age were more likely to have cognitive levels within > the normal range (and no difference in learning disabilities) > compare to control groups. If a child was <10th at birth but had > catchup by 9 months, some problems but not severe. But the worse > case scenarios were those babies born with head c. less than the > 10th percentile and who did nothhave catch-up. > > RSS children are more likely to have head c. in the normal range > than babies born short SGA alone. So I wasn't surprised to see the > range of frequency rates among our families. > > However, there is a lack of published literature on > specifically " learning disabilities " of our kids. There are a > number of studies on cognitive and academic abilities in general. > They are all in the MAGIC library, and you can get a free copy of > any as a member. > > Jenn > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I was wondering how many of you have RSS children who are > diagnosed with learning > > disabilities. is a 5th grader, who has been eligible for > Other Health Impaired (OHI > > which used to be physically impaired) and Speech and Language. He > also gets OT in > > school. I have suspected a learning disability since the end of > 1st grade, and have > > requested testing numerous times from his school. They deny my > request every time, > > saying he doesn't give them any reason to test. The ESE > Specialist (the person who runs > > the IEP meetings & puts in for evaluation) is misinformed as to > what constitutes a learning > > disability. I have argued with her over the years about what does > constitute a learning > > disability, and that I think has a processing disorder. > He has trouble retaining > > concepts he has learned, and will sometimes literally act like he > has never seen something > > before when we have been working on it everyday. He also has > extremely poor reading > > comprehension, but is a great decoder. I am fed up with the > excuses I have gotten over > > the years, and I have placed a call to the ESE area office to > speak with a program specialist. > > I am very interested to find out the prevalence of learning > disabilities in our children & if > > anyone has any suggestions as to things I can say to convince them > to test him, I'd > > appreciate it. Ironically, I am a former ESE Specialist (now a > reading specialist) for the > > same county school system. It surprises me that I would have as > much difficulty as I am > > having getting him tested, though I think the problem lies with > the ESE Specialist at his > > school... > > > > Kim C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 kim, he has already repeated the first grade. he will go to the second grade this year but am not sure it it will be all main steam or not. we have had an IEP for just about a month now he does bad in all his subjects. this year however the teacher said se is about a b avage student. i schould hope so same teacher as last year and same stuff as last year. he is in speach has been from the begin of this year. jacob organization skills are really bad so for the remainder of this years he has an aid for lack of a better name to come in first thing in the moring to make sure he turnis in homework and again at the end of the day to amke sure he takes his home work home. he also goes for 140 min a week or one class . a day to the sp. ed room to work on this i think they are justr costing him the rest of the year. and their will be more change next year. this is partly because he is doing ok with his work in class this year but i am sure that he wil have great problems ajusting mext year. he does not like change it really throws him off. so we did as little as possiable this year to help him get by. i have the feeling that he will be more sp. ed. next year and alot less main stream. hope this answers your question. please feel free to ask more and share your experance with me cara mom to jacob 8 SGA Kacey171 wrote: Cara, Has already repeated first grade, or are you worried that he will not be promoted this year? What type of classroom is he in? Is he weak in all subjects, or does he have one subject that he does well in? Kim C. > kim, > i am where you are jacob 8 in a repeat of the first grade. just got and iep done and its it on ohi and a learning dissabity althought they really have not narrowed it down to what it is he has . they are thinking he is add i think it is a prossicing dic. they are leaving it up to his sp.ed teacher to see if he needs ferther testing and i will give her a mounth to see if she does if not i will find a place to test him. he does simmial thing as your child. i guess we will have to see keep me posted and i will keep you posted > cara mom to jacob > > Kacey171 <capuano_k@p...> wrote: > > I was wondering how many of you have RSS children who are diagnosed with learning > disabilities. is a 5th grader, who has been eligible for Other Health Impaired (OHI > which used to be physically impaired) and Speech and Language. He also gets OT in > school. I have suspected a learning disability since the end of 1st grade, and have > requested testing numerous times from his school. They deny my request every time, > saying he doesn't give them any reason to test. The ESE Specialist (the person who runs > the IEP meetings & puts in for evaluation) is misinformed as to what constitutes a learning > disability. I have argued with her over the years about what does constitute a learning > disability, and that I think has a processing disorder. He has trouble retaining > concepts he has learned, and will sometimes literally act like he has never seen something > before when we have been working on it everyday. He also has extremely poor reading > comprehension, but is a great decoder. I am fed up with the excuses I have gotten over > the years, and I have placed a call to the ESE area office to speak with a program specialist. > I am very interested to find out the prevalence of learning disabilities in our children & if > anyone has any suggestions as to things I can say to convince them to test him, I'd > appreciate it. Ironically, I am a former ESE Specialist (now a reading specialist) for the > same county school system. It surprises me that I would have as much difficulty as I am > having getting him tested, though I think the problem lies with the ESE Specialist at his > school... > > Kim C. > > > > > Quote Link to comment Share on other sites More sharing options...
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