Re: Crohn's extreeme fatigue

[Guest guest]

Can anyone tell me if they had extreme fatigue with their crohn's and how long it took to resolve after going on the SCD. This has been an ongoing, unrelenting problem for our daughter, and we have seen progress--BUT IT IS SOOOOOO SLOW. We have been on the diet since January 4, 2010 (after starting in the fall with mistakes and stopping at Thanksgiving when another family member got severely ill), and are wondering how long this part of the illness might resolve. And maybe other aspects of her illness need to completely repair first--she has severe crohn's which has not responded to medication. We have been GFCF for about six years and things aren't as dire as in the past, but if we could just get energy back we would beat the most debilitating aspect of her illness.Well exhaustion is a part of auto-immune disease (and, indeed, all disease).Certainly, it is a major symptom of Crohn's. You might try LDN on top of SCD - if that works for her, it will likely decrease her exhaustion, that is, if her exhaustion isn't caused by a nexus of illnesses. Also, so far you've been on the diet 3.5 months or so. I'm sure it feels long toyou, and especially with a sick child, but this diet path to wellness takes a long time. Mara

[Guest guest]

but if we could just get energy back we would beat the most debilitating aspect of her illness.Hi Lori,sI took my son over six months before his energy returned and over a year before all symptoms were totally gone including most of his fistulas. I know it seems like a long time but now he has the rest of his life to be disease and medication free!Take care,Pat

[Guest guest]

>> >>>>>>> Can anyone tell me if they had extreme fatigue with their crohn's and >> how long it took to resolve after going on the SCD. This has been an >> ongoing, unrelenting problem for our daughter, and we have seen >> progress--BUT IT IS SOOOOOO SLOW. We have been on the diet since >> January 4, 2010 (after starting in the fall with mistakes and stopping >> at Thanksgiving when another family member got severely ill), and are >> wondering how long this part of the illness might resolve. And maybe >> other aspects of her illness need to completely repair first--she has >> severe crohn's which has not responded to medication. We have been >> GFCF for about six years and things aren't as dire as in the past, but >> if we could just get energy back we would beat the most debilitating >> aspect of her illness.>> Well exhaustion is a part of auto-immune disease (and, indeed, all > disease).> Certainly, it is a major symptom of Crohn's.>> You might try LDN on top of SCD - if that works for her, it will likely > decrease> her exhaustion, that is, if her exhaustion isn't caused by a nexus of > illnesses.>> Also, so far you've been on the diet 3.5 months or so. I'm sure it > feels long to> you, and especially with a sick child, but this diet path to wellness > takes a> long time.>> MaraI had extreme fatigue for YEARS with Crohn's. Took a lot of anti-oxidants, which helped some, but LDN got rid of it, period. Five days after starting it last year.n -- ______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of  a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com  

[Guest guest]

There are some things that can help with fatigue, although it takes significant

healing before there can be major improvement of this issue.

It is important to eat small meals frequently when you are on SCD. Since we

don't eat complex carbs, our bodies need more frequent refueling. I eat

something every 2 to 3 hours to maintain my blood sugar levels and also to

provide enough energy to get through a day of work. I make sure I get proteins

and fats along with carbs each time I have a snack. I usually make a

normal-sized meal and eat it in two parts.

Have you checked your daughter's B12 levels? And how about her other mineral

and vitamin levels? It is likely your daughter is dealing with malabsorption

issues, and could very easily need a boost of B12 and/or other minerals. I give

myself a B12 injection once a month to help with my low levels and neuromuscular

symptoms, but it has a nice side-effect of improving my fatigue and low energy

levels [grin]. She may just need some supplementation for a while, until enough

healing has occurred that her body can absorb nutrients again.

Is she dealing with high yeast/candida levels? That is another cause of

fatigue. As is an immune response to certain foods or supplements, although

this kind of an immune reaction tends to be super dramatic, such as falling down

within 20 minutes of swallowing a supplement, completely weak and unable to

stand, going nearly unconscious for a while. I've only experienced that twice,

as a reaction to glucosomine, but I won't forget it!

Time on SCD will help with this problem, but sometimes you can find strategies

to cope a bit better with fatigue.

Kim M.

SCD 6 years

>

> Can anyone tell me if they had extreme fatigue with their crohn's and how long

it took to resolve after going on the SCD.  This has been an ongoing,

unrelenting problem for our daughter, and we have seen progress--BUT IT IS

SOOOOOO SLOW.  We have been on the diet since January 4, 2010 (after starting in

the fall with mistakes and stopping at Thanksgiving when another family member

got severely ill), and are wondering how long this part of the illness might

resolve.  And maybe other aspects of her illness need to completely repair

first--she has severe crohn's which has not responded to medication.  We have

been GFCF for about six years and things aren't as dire as in the past, but if

we could just get energy back we would beat the most debilitating aspect of her

illness.

>

> Thanks,

> Lori

>

[Guest guest]

Kim,

Would you mind posting your daily sample diet so I can get a better idea of how to deal with all my issues?__________________________________________________________________CDSCD 6 monthsLialda, PurinetholFreeda Vitamins, L. Acidophilus, Cod Liver Oil, S.BoulardiiSymptoms finally improving

[Guest guest]

What is LDN, and where is it available? If you need a prescription, how did you ask your doctor for it?

Lori

To: BTVC-SCD Sent: Mon, April 19, 2010 1:09:32 PMSubject: Re: Crohn's extreeme fatigue

>> >>>>>>> Can anyone tell me if they had extreme fatigue with their crohn's and >> how long it took to resolve after going on the SCD. This has been an >> ongoing, unrelenting problem for our daughter, and we have seen >> progress--BUT IT IS SOOOOOO SLOW. We have been on the diet since >> January 4, 2010 (after starting in the fall with mistakes and stopping >> at Thanksgiving when another family member got severely ill), and are >> wondering how long this part of the illness might resolve. And maybe >> other aspects of her illness need to completely repair first--she has >> severe crohn's which has not responded to medication. We have been >> GFCF for about six years and

things aren't as dire as in the past, but >> if we could just get energy back we would beat the most debilitating >> aspect of her illness.>> Well exhaustion is a part of auto-immune disease (and, indeed, all > disease).> Certainly, it is a major symptom of Crohn's.>> You might try LDN on top of SCD - if that works for her, it will likely > decrease> her exhaustion, that is, if her exhaustion isn't caused by a nexus of > illnesses.>> Also, so far you've been on the diet 3.5 months or so. I'm sure it > feels long to> you, and especially with a sick child, but this diet path to wellness > takes a> long time.>> MaraI had extreme fatigue for YEARS with Crohn's. Took a lot of anti-oxidants, which helped some, but LDN got rid of it, period. Five days after starting it last year.

n

--

______________________________

A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com

[Guest guest]

Hi Lori,

You might try treating her for yeast specifically to see if she gets an

improvement in her energy levels. I'm sure there's correlations between

everything that is going on in her body and the fatigue, but my own experience

is that treating the yeast helps hugely with the fatigue.

Ellen

>

> Can anyone tell me if they had extreme fatigue with their crohn's and how long

it took to resolve after going on the SCD.  This has been an ongoing,

unrelenting problem for our daughter, and we have seen progress--BUT IT IS

SOOOOOO SLOW.  We have been on the diet since January 4, 2010 (after starting in

the fall with mistakes and stopping at Thanksgiving when another family member

got severely ill), and are wondering how long this part of the illness might

resolve.  And maybe other aspects of her illness need to completely repair

first--she has severe crohn's which has not responded to medication.  We have

been GFCF for about six years and things aren't as dire as in the past, but if

we could just get energy back we would beat the most debilitating aspect of her

illness.

>

> Thanks,

> Lori

>

[Guest guest]

Hi Lori

I haven't got Crohns(IBS/Celiac?) but I have had the extreme fatigue.

I was lucky enough to go to an alternative MD that uses hair tests, saliva tests

and other more traditional tests. I have been on individualized supplements for

1 1/2 years and I am starting to have normal days where I forget that I have

adrenal fatigue. So I am inclined to think that the supplements are working. You

can go to the website that does the hair tests and call them to ask who in your

area uses their system. http://www.arltma.com/. I really liked the report that

they supplied for the patient that told me what deficiencies did what.

I ended up sleeping this afternoon because I wasn't feeling well today and my

daughter commented that I haven't done that in a long time. So family and

friends are noticing an improvement.

Barbara

SCD 1 1/2 years

IBS 45 years

Celiac 7 years

Adrenal Fatigue 12 years

>

> Can anyone tell me if they had extreme fatigue with their crohn's and how long

it took to resolve after going on the SCD.  This has been an ongoing,

unrelenting problem for our daughter, and we have seen progress--BUT IT IS

SOOOOOO SLOW.  We have been on the diet since January 4, 2010 (after starting in

the fall with mistakes and stopping at Thanksgiving when another family member

got severely ill), and are wondering how long this part of the illness might

resolve.  And maybe other aspects of her illness need to completely repair

first--she has severe crohn's which has not responded to medication.  We have

been GFCF for about six years and things aren't as dire as in the past, but if

we could just get energy back we would beat the most debilitating aspect of her

illness.

>

> Thanks,

> Lori

>

[Guest guest]

Hi Eileen,

I meant to ask my doc about Lyme last time, but forgot. I'll be sure to remember

next time.

My blood work is all good, except that I haven't had vitamin D checked yet (it's

scheduled for next month). My TSH is high, but my primary care doc doesn't care.

I'm in the process of trying to get one of my other doc's to run some follow up

tests to see if I'm truly hypo.

Holly

Crohn's

SCD 12/01/08

>

> have you tested all your levels? could IV vitamins help?? is your thyroid off

-been tested for lyme??? just thoughts

> eileen

>

[Guest guest]

Hi Jodi,

I have my saliva test in hand, but haven't done it yet since my body has been

wacky. I thought it might be better to wait for things to even out a bit. I

haven't had DHEA levels checked.

I'm interested in having a sleep test, but my doc didn't seem interested. I'll

bring it up again, but he's been pretty unresponsive to my requests. About as

bad as the doc I got rid of a few months ago. Why is it so dang hard to find a

doc that will listen?

Sorry your CPAP isn't working out :-(. My dad has trouble with his too, so he

never uses it. My poor mom finally bought some earplugs to drown out his snores!

Holly

Crohn's

SCD 12/01/08

>

> Holly,

>

> I deal with this too.

> I have adrenal burn-out (my doc said adrenals finally caught up and just burnt

out from surgery)

> But have you checked sleep apnea?

> I am still trying to work through this darn CPAP machine. I don't know if

it's for me.

> Have you had saliva tests done?

> What about DHEA levels?

>

> I am going to start some herbs with my acupuncturist to deal with my adrenal

issues.

>

> Jodi

>

[Guest guest]

Holly,

How high is your TSH?

Have you had Thyroid antibodies tested?

While we're at it what about Adrenal antibodies?

If your doc isn't going to do the whole thyroid panel- go to an endo doc.

Jodi

> >

> > have you tested all your levels? could IV vitamins help?? is your thyroid

off -been tested for lyme??? just thoughts

> > eileen

> >

>

[Guest guest]

Hi Holly,

> I have my saliva test in hand, but haven't done it yet since my body has been

wacky. I thought it might be better to wait for things to even out a bit. I

haven't had DHEA levels checked.

Of course you need to have DHEA levels checked with the amount of steroids you

have been on in your life. I also have to do short bursts of steroids every now

and again. This is awful for our Adrenals.

You should also have your WHOLE thyroid panel (you must get reverse T3 to see if

you're pooling) checked along with sex hormones, thyroid antibodies, adrenal

antibodies, complete iron panel, along with various vitamins and minerals like

magnesium rbc, zinc, selenium, vit d 25 hydroxy.

Have they checked Epstein Barr virus on you at all? IgG, IgM?

> I'm interested in having a sleep test, but my doc didn't seem interested. I'll

bring it up again, but he's been pretty unresponsive to my requests. About as

bad as the doc I got rid of a few months ago. Why is it so dang hard to find a

doc that will listen?

Took me years and years to find good docs. It's terrible the pool of crap docs

that are out there.

Maybe you can find yourself an integrative doc, maybe using ACAM.org?

> Sorry your CPAP isn't working out :-(. My dad has trouble with his too, so he

never uses it. My poor mom finally bought some earplugs to drown out his snores!

Ohh it's a nightmare.

Thankfully, I don't snore!!

Jodi

[Guest guest]

Marilyn,

I know! I find the whole process utterly exhausting!

Don't wanna B & ^%h about it too much..

Jodi

> >I am still trying to work through this darn CPAP

> >machine. I don't know if it's for me.

>

> <frowning> You know where to go for assistance with your CPAP.

>

> CPAPTALK.COM. If I'd been left to the mercy of my

> DME, I'd've quit, two weeks into it.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

At 01:49 AM 4/21/2010, you wrote:

Sorry your CPAP isn't working

out :-(. My dad has trouble with his too, so he never uses it. My poor

mom finally bought some earplugs to drown out his

snores!

Holly,

I beg of you -- go to CPAPTALK.COM. Ask questions. There are people there

who can help make the CPAP a success. There are plenty of wives there

helping their husbands and husbands helping their wives.

Your father is KILLING himself early by not using his CPAP.

What your mother needs to do, instead of buying ear plugs is to:

1. Make sure your father has a will

2. Make sure she has plenty of life insurance on him.

3. Make sure she has a fully paid funeral plan for him.

My mother died of congestive heart failure, which was almost certainly

caused by untreated apnea. Please. I don't want to hear you lost your Dad

because of it.

Snoring isn't funny. Read the article below my signature.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

Are You Sleeping with the

Enemy?

By Standage, M.D.

email: drbandage@...

If an intruder tried to suffocate you with a pillow hundreds of times a

night, you’d call the police. In the case of sleep apnea, the airway

blocks off and breathing will stop for up to several minutes--but the

victim has no idea it's even happening. According to Ralph Downey III,

PhD, of the Sleep Disorders Center at Loma University Medical

Center in Loma , California, “The body, in essence, is being

assaulted by the damage done from intermittent lack of oxygen to the

heart, brain and other important organ systems, and yet such an assault

goes unreported. That is, patients who have these symptoms don't always

have their sleep apnea corrected. Perhaps in the light of a metaphor such

as the one of being assaulted by our own sleep disorder, people would

take more care of their sleep. Their hearts will thank them.”

Truth be told, sleep apnea may well be the most significant, costly,

easily treated, and least understood public health issue facing our

nation. The most recent studies predict that between 50 and 60 million

Americans are “at high risk” for having sleep apnea. And very few of them

have the slightest idea what sleep apnea is, much less that it may be

affecting their lives in profound ways.

The Basics

Apnea is the medical term for “stopping breathing.” Sleep apnea is

the temporary cessation of breathing during sleep, for intervals of 10

seconds up to minutes in length, depriving the body of oxygen. At some

point the body arouses just enough to resume breathing and disrupt sleep,

but usually not enough to awaken the individual. As a result, most people

suffering from sleep apnea are not aware of their condition. In the most

common type, obstructive sleep apnea (OSA), the airway blocks off when

the tongue and/or other soft tissues in the throat relax and the

individual simply stops breathing, sometimes for several minutes. This

sequence can be repeated hundreds of times a night.

Apart from disrupting normal sleep patterns, sleep apnea wreaks havoc on

the victim's body due to oxygen deprivation and physiological response

patterns that occur during apnea events. There is no physiological signal

stronger than oxygen deprivation to the brain. When blood oxygen levels

are low, the body shunts blood from any and all organs, including the

heart, to be sure the brain gets all available oxygen. On top of that,

the sympathetic nervous system kicks in and releases a tremendous flood

of stimulants and stress hormones, such as epinephrine (adrenaline) and

cortisol, resulting in the wellknown " fight or flight " response

to danger.

Suppose somebody were to sneak up on you in the dark and lunge at you

when you least expect it. Your heart races, the endocrine system

instantly pumps out inordinately powerful stimulants. Sleep apnea victims

are constantly confronted with a similar phenomenon and the accompanying

red alert, each time their oxygen levels drop to a critical point.

Another cruel twist happens when blood oxygen levels hover just above the

critical desaturation level, getting just enough oxygen on board to avoid

the arousal but not enough to provide the oxygenation that the body needs

to stay healthy. The desaturation graph is remarkable for a very

precipitous drop around the mid-to-upper 80% range for most people with

sleep apnea.

Repetitive apneic events disrupt the normal physiological interactions

between sleep and the cardiovascular system. Sleep fragmentation, with

its accompanying increased sympathetic activation, triggers vascular

endothelial dysfunction, increased oxidative stress, inflammation,

increased platelet aggregability, metabolic dysregulation; in addition,

it undoubtedly helps initiate and accelerate the progression of cardiac

and vascular disease. Persuasive data implicate sleep apnea in the

development of hypertension, and sleep apnea also contributes to cardiac

ischemia, congestive heart failure, cardiac arrhythmias, and

cerebrovascular disease and stroke.

At least if you’ve been attacked by a mugger you know to avoid ever going

down that dark alley again. Sleep apnea, conversely, does not tip its

hand. The victim’s conscious mind has virtually no recollection of the

hundreds of assaults occurring during sleep every night.

It should not be surprising that common symptoms of sleep apnea include

things like loud snoring and a gasping or snorting sound, high levels of

daytime fatigue, irritability, depression, malaise, loss of productivity

and work performance, extreme mental and physical exhaustion, loss of

judgment, short-term memory dysfunction, and a number of other

symptoms.

The Astounding Prevalence of Sleep Apnea in America

The numbers are shocking. The most recent studies have shown that one

in four adults in the United States (31% of all men and 21% of all women

over 18) is “at high risk” for OSA, based on analysis of the National

Sleep Foundation’s 2005 Sleep in America survey. Another study showed

that one third of all people over 18 (who visit a primary care

doctor) are at “high risk” for sleep apnea. Based on the 2000 Census,

that means that between 50 and 60 million Americans likely suffer from

sleep apnea. This is far higher that previous estimates that projected

that between 10 and 18 million Americans have sleep apnea. Increasing

awareness of sleep apnea and improved survey screening tools, along with

an aging U.S. population, seem to be factors in the increase in OSA

prevalence estimates. No longer should sleep apnea be thought of as an

affliction of middle-aged, overweight men. The disorder is dependent on a

number of factors (including, in particular, anatomy) and afflicts untold

millions of otherwise young and fit women and men.

The Unacceptable Human and Economic Toll

According to the National Commission on Sleep Disorders Research,

38,000 cardiovascular deaths a year in the United States are directly

attributable to sleep apnea. On top of that, sleep apnea is associated

with a large number of serious, co-morbid medical and psychological

conditions, such as hypertension, abnormal heart rhythm, sleep

deprivation, stroke, heart disease, diabetes, depression, memory loss,

poor

judgment, and change in personality. As a result, undiagnosed and

untreated sleep apnea victims are significant consumers of healthcare

services.

In Canada, sleep apnea victims were shown to consume 23 to 50% more

medical services in the five years prior to diagnosis than control

subjects, with hypertension and cardiovascular disease accounting for the

majority of increased costs. A recent study from Israel showed that

healthcare utilization was 1.7-fold higher by sleep apnea patients

compared to the control group, with 25% of the sleep apnea patients who

consumed the most resources accounting for 70% of the total healthcare

expenditures. Other studies have demonstrated that successful sleep apnea

treatment results in significant improvement in co-morbid conditions,

including, specifically, cardiovascular disease, hypertension, diabetes,

stroke, and depression.

Cardiovascular disease is the most significant killer in the United

States, resulting in over 685,000 fatalities and $40.4 billion in

healthcare costs annually. Hypertension healthcare costs in the United

States are approximately $19 billion. While it is not known what

percentage of all cardiovascular and hypertension healthcare costs is

attributable to untreated sleep apnea, in light of the fact that between

50 and 65 million Americans are at high risk for the disease, it stands

to reason that undiagnosed and untreated sleep apnea account for hundreds

of millions—perhaps billions—of healthcare dollars spent treating

conditions that could be more effectively and far more economically

treated as a sleep disorder. The human value in savings of physical pain

and mental anguish associated with invasive procedures, surgeries, and

chronic disease and death cannot be quantified.

Collateral Impacts

Collateral impacts arising from 50 to 60 million clinically

sleep-deprived people in the United States are certainly incalculable.

One report focusing on highway safety impacts from sleep apnea concluded

that more than 800,000 sleep apnea-related highway accidents occurred in

2000, resulting in 1,400 fatalities and costing nearly $16 billion. If

the same analysis were performed today using the new, much higher sleep

apnea prevalence rates, the highway safety impacts would probably be

twofold higher. Because extreme daytime exhaustion is prevalent among OSA

victims, sleep apnea-related losses due to reduced worker productivity,

industrial accidents, clerical mistakes, and so forth

would be almost impossible to estimate, but, given the numbers, would no

doubt amount to the billions of dollars annually. On top of this, the

personal quality of life impacts—depression, personality changes, lack of

judgment, irritability, utter exhaustion—cannot possibly be measured in

economic terms.

Simple, Economic Treatment

The best news in sleep apnea is that it is a condition that is easily

and economically treated. Continuous positive airway pressure (CPAP)

therapy is the treatment of choice for obstructive sleep apnea and has

been proven to be highly effective in treating sleep apnea and improving

a number of co-morbid conditions. CPAP therapy consists of a ventilatory

device that applies positive airway pressure at a constant, continuous

pressure to help keep the airway open, allowing the patient to breathe

normally during sleep. A number of other treatment options are also

employed, such as surgery and dental appliances but questions remain as

to the effectiveness of these treatment alternatives.

Where To Go from Here

Perhaps the biggest challenge in addressing the sleep apnea health

crisis is lack of public awareness (including many doctors). Just to put

this into context, 13,658 Americans died from AIDS in 2003 while at least

38,000 died from cardiovascular disease related directly to sleep apnea.

Yet while virtually everyone over 14 knows about AIDS, precious few of

the 50 to 60 million Americans plagued by sleep apnea have any idea that

a treatable sleep disorder is impacting every aspect of their lives. At

the same time, a little awareness on the part of the patient or his or

her doctor is all that it takes for treatment to start and, hopefully,

for the suffering to end. Unfortunately, a large number of doctors are

still not very familiar with sleep apnea or its treatment.

Primary care physicians are in an excellent position to screen people for

sleep apnea, as one in every three adults they see, on average, will be

“at high risk” for the condition. An excellent place to start (both for

doctors and for individuals) is to fill out a one-page, ten-question

survey called the “Berlin Questionnaire” that is widely available on the

Internet

(

http://www.pur-sleep.com/uploads/BerlinQuestionnaire.pdf). This

questionnaire is simple and fast, and is highly predictive of sleep

apnea—the positive predictive value of the survey for people scoring as

“high risk” is 89%.

Sleep apnea victims often have to work hard to convince their doctor (or

insurance company) to refer them for a sleep study, so a " high

risk " showing on the Berlin Questionnaire might be enough to

convince them to move forward with further tests. If people are not

satisfied

with their medical care they should get a second opinion, preferably from

a sleep disorder specialist. A number of overnight screening assessment

tools are also available. A formal sleep study is necessary, however, to

diagnose sleep apnea and obtain CPAP treatment.

[Guest guest]

Ohh Holly,

I forgot- get your " mother " hormone checked too!

Pregnenolone.

Jodi

>

> Hi Holly,

>

>

> > I have my saliva test in hand, but haven't done it yet since my body has

been wacky. I thought it might be better to wait for things to even out a bit. I

haven't had DHEA levels checked.

>

>

> Of course you need to have DHEA levels checked with the amount of steroids you

have been on in your life. I also have to do short bursts of steroids every now

and again. This is awful for our Adrenals.

>

> You should also have your WHOLE thyroid panel (you must get reverse T3 to see

if you're pooling) checked along with sex hormones, thyroid antibodies, adrenal

antibodies, complete iron panel, along with various vitamins and minerals like

magnesium rbc, zinc, selenium, vit d 25 hydroxy.

>

> Have they checked Epstein Barr virus on you at all? IgG, IgM?

>

>

>

> > I'm interested in having a sleep test, but my doc didn't seem interested.

I'll bring it up again, but he's been pretty unresponsive to my requests. About

as bad as the doc I got rid of a few months ago. Why is it so dang hard to find

a doc that will listen?

>

>

> Took me years and years to find good docs. It's terrible the pool of crap

docs that are out there.

> Maybe you can find yourself an integrative doc, maybe using ACAM.org?

>

>

>

> > Sorry your CPAP isn't working out :-(. My dad has trouble with his too, so

he never uses it. My poor mom finally bought some earplugs to drown out his

snores!

>

>

> Ohh it's a nightmare.

> Thankfully, I don't snore!!

>

> Jodi

>

[Guest guest]

Jodi,

My TSH is 5.670.

What test do you need for adrenal antibodies?

I have to get a referral from my primary care doc to go to an endo, and right

now, he won't do it. I'm trying to save some money to go to a good doc out of my

insurance network, but that will take some time, especially if I end up having

to pay out of pocket for blood work.

I have had the the Epstein Barr virus test in the past. I can't remember how

long it's been though.

Thanks for all the tips :-). I've made not of all the tests you recommended. Now

I just need to get a doc to order them!

Holly

Crohn's

SCD 12/01/08

>

> Holly,

>

> How high is your TSH?

> Have you had Thyroid antibodies tested?

> While we're at it what about Adrenal antibodies?

> If your doc isn't going to do the whole thyroid panel- go to an endo doc.

>

> Jodi

>

[Guest guest]

Hi Marilyn,

Message delivered! Although not necessarily well-received. My dad kind of

grunted, and was obviously irritated that I brought it up again. To be honest, I

don't think he really cares that he's hurting himself by not wearing the mask.

He knows that SCD helps me, but won't try it for his crohn's. He knows that

dairy could be making his arthritis and sinus problems worse, but isn't willing

to do even a 2 week no-dairy trial. If I had the time and energy, I'd go to

CPAPTALK.COM and research for him (even though he has ample time to be doing

this himself). As it is, I'm barely keeping my head above water with my own

problems. Hopefully he'll wake up and smell the coffee soon, but I doubt it. I

did email him the article you posted, just in case he might read it.

Holly

Crohn's

SCD 12/01/08

> >Sorry your CPAP isn't working out :-(. My dad

> >has trouble with his too, so he never uses it.

> >My poor mom finally bought some earplugs to drown out his snores!

>

> Holly,

>

> I beg of you -- go to CPAPTALK.COM. Ask

> questions. There are people there who can help

> make the CPAP a success. There are plenty of

> wives there helping their husbands and husbands helping their wives.

>

> Your father is KILLING himself early by not using his CPAP.

>

> What your mother needs to do, instead of buying ear plugs is to:

>

> 1. Make sure your father has a will

> 2. Make sure she has plenty of life insurance on him.

> 3. Make sure she has a fully paid funeral plan for him.

>

> My mother died of congestive heart failure, which

> was almost certainly caused by untreated apnea.

> Please. I don't want to hear you lost your Dad because of it.

>

> Snoring isn't funny. Read the article below my signature.

>

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

[Guest guest]

Holly, the good adrenal test is called ASI. It's a saliva test, very easy

to do. You just have to have a clean mouth and stick one of those cotton

rolls (like at the dentist) in your mouth until it is soaking wet.

You do this four times at prescribed times and mail them in. The

test tells not only the hormone levels but also whether the pattern of

rising and falling during the day is normal.

What test do you need for adrenal antibodies?

[Guest guest]

Hi ,

I've got the saliva test (still need to do it though). I didn't know it measured

adrenal antibodies too. Thanks!

Holly

Crohn's

SCD 12/01/08

>

> Holly, the good adrenal test is called ASI. It's a saliva test, very

> easy to do. You just have to have a clean mouth and stick one of

> those cotton rolls (like at the dentist) in your mouth until it is

> soaking wet. You do this four times at prescribed times and mail

> them in. The test tells not only the hormone levels but also whether

> the pattern of rising and falling during the day is normal.

>

>

> What test do you need for adrenal antibodies?

>

[Guest guest]

Holly,

I don't know if it measures antibodies or not. I thought it was just the

levels at each measuring time. But it's quite a useful test.

You get a graph plotted against a normal one. It's been quite

awhile since I've done one of them so I honestly don't remember what else

it might test.

Hi ,

I've got the saliva test (still need to do it though). I didn't know

it measured adrenal antibodies too. Thanks!

Holly

[Guest guest]

Heya Holly,

It mostly measures Cortisol and DHEA levels and on some labs the antibodies need

to be checked off too.

Which lab do you have?

Jodi

> >

> > Holly, the good adrenal test is called ASI. It's a saliva test, very

> > easy to do. You just have to have a clean mouth and stick one of

> > those cotton rolls (like at the dentist) in your mouth until it is

> > soaking wet. You do this four times at prescribed times and mail

> > them in. The test tells not only the hormone levels but also whether

> > the pattern of rising and falling during the day is normal.

> >

> >

> > What test do you need for adrenal antibodies?

> >

>

[Guest guest]

I think it's ZRT. I got the basic package from canaryclub.com

Holly

>

> Heya Holly,

>

> It mostly measures Cortisol and DHEA levels and on some labs the antibodies

need to be checked off too.

> Which lab do you have?

>

> Jodi