Re: The light at the end of the tunnel...

[Guest guest]

Knip How wonderful for you. You will be in my prayers for sure. Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." is finally within sight!!!! Yesterday I had my final "pre-listing" appointment at the Lung Transplant Clinic at Brigham & Women's Hospital in Boston!! The medically supervised liquid diet that I went on at the end of August worked to perfection and I weighed in a full 8 pounds UNDER the upper weight limit that they had set for me. All in all, I have lost 32 lbs since starting! The doctors were very pleased...in fact, the clinic coordinator even noticed the loss even before I had checked in! It was music to the ears to hear - "wow, , you have really lost a lot of weight!". So now, just a couple of final technicalities with paperwork, and the long process to get listed will be complete! Once all the formalities are covered, I was told to expect a call on MONDAY, letting me know that I am officially ACTIVE on the transplant list. It was 2 years ago last month that I was diagnosed with IPF. Two years ago, I had never even heard of this disease and never in my wildest dreams would have imagined that I would be getting a lung transplant, or any other kind of transplant for that matter. That was certainly not something that was on my list for - where do you see yourself in five years? LOL I would really like to thank everyone on here, as well as my Facebook friends, for the amazing amount of support I have received throughout this whole process. I am truly humbled to have so many great people keeping me in their thoughts and prayers!!! I'll be setting up a website soon, to keep everyone updated on my progress...as soon as I have the address, I will post it for those that would be interested. Steve aka...Knip UIP/IPF 9/07 VATS 12/07 57 Plymouth, NH

[Guest guest]

Steve

i think i allready congratulated you on the facebook site

but this calls for more than one congratulation

congrats again

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: The light at the end of the tunnel...To: Breathe-Support Date: Thursday, October 15, 2009, 11:40 AM

is finally within sight!!!!Yesterday I had my final "pre-listing" appointment at the Lung Transplant Clinic at Brigham & Women's Hospital in Boston!! The medically supervised liquid diet that I went on at the end of August worked to perfection and I weighed in a full 8 pounds UNDER the upper weight limit that they had set for me. All in all, I have lost 32 lbs since starting! The doctors were very pleased...in fact, the clinic coordinator even noticed the loss even before I had checked in! It was music to the ears to hear - "wow, , you have really lost a lot of weight!". So now, just a couple of final technicalities with paperwork, and the long process to get listed will be complete! Once all the formalities are covered, I was told to expect a call on MONDAY, letting me know that I am officially ACTIVE on the transplant list. It was 2 years ago last month that I was diagnosed with IPF. Two years ago, I had never even heard

of this disease and never in my wildest dreams would have imagined that I would be getting a lung transplant, or any other kind of transplant for that matter. That was certainly not something that was on my list for - where do you see yourself in five years? LOLI would really like to thank everyone on here, as well as my Facebook friends, for the amazing amount of support I have received throughout this whole process. I am truly humbled to have so many great people keeping me in their thoughts and prayers!!!I'll be setting up a website soon, to keep everyone updated on my progress...as soon as I have the address, I will post it for those that would be interested.Steve aka...Knip UIP/IPF 9/07 VATS 12/0757 Plymouth, NH

[Guest guest]

Congrats, Steve. That is wonderful news. May the ball keep on rolling smoothly for you!

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

To: Breathe-Support Sent: Thu, October 15, 2009 11:40:04 AMSubject: The light at the end of the tunnel...

is finally within sight!!!!Yesterday I had my final "pre-listing" appointment at the Lung Transplant Clinic at Brigham & Women's Hospital in Boston!! The medically supervised liquid diet that I went on at the end of August worked to perfection and I weighed in a full 8 pounds UNDER the upper weight limit that they had set for me. All in all, I have lost 32 lbs since starting! The doctors were very pleased...in fact, the clinic coordinator even noticed the loss even before I had checked in! It was music to the ears to hear - "wow, , you have really lost a lot of weight!". So now, just a couple of final technicalities with paperwork, and the long process to get listed will be complete! Once all the formalities are covered, I was told to expect a call on MONDAY, letting me know that I am officially ACTIVE on the transplant list. It was 2 years ago last month that I was diagnosed with IPF. Two years ago, I had never even heard

of this disease and never in my wildest dreams would have imagined that I would be getting a lung transplant, or any other kind of transplant for that matter. That was certainly not something that was on my list for - where do you see yourself in five years? LOLI would really like to thank everyone on here, as well as my Facebook friends, for the amazing amount of support I have received throughout this whole process. I am truly humbled to have so many great people keeping me in their thoughts and prayers!!!I'll be setting up a website soon, to keep everyone updated on my progress...as soon as I have the address, I will post it for those that would be interested.Steve aka...Knip UIP/IPF 9/07 VATS 12/0757 Plymouth, NH

[Guest guest]

That's great news for you Steve..we'll all be waiting with you.

Cheers,

GIO>> is finally within sight!!!!> > Yesterday I had my final "pre-listing" appointment at the Lung Transplant Clinic at Brigham & Women's Hospital in Boston!! The medically supervised liquid diet that I went on at the end of August worked to perfection and I weighed in a full 8 pounds UNDER the upper weight limit that they had set for me. All in all, I have lost 32 lbs since starting! The doctors were very pleased...in fact, the clinic coordinator even noticed the loss even before I had checked in! It was music to the ears to hear - "wow, , you have really lost a lot of weight!". > > So now, just a couple of final technicalities with paperwork, and the long process to get listed will be complete! Once all the formalities are covered, I was told to expect a call on MONDAY, letting me know that I am officially ACTIVE on the transplant list. It was 2 years ago last month that I was diagnosed with IPF. Two years ago, I had never even heard of this disease and never in my wildest dreams would have imagined that I would be getting a lung transplant, or any other kind of transplant for that matter. That was certainly not something that was on my list for - where do you see yourself in five years? LOL> > I would really like to thank everyone on here, as well as my Facebook friends, for the amazing amount of support I have received throughout this whole process. I am truly humbled to have so many great people keeping me in their thoughts and prayers!!!> > I'll be setting up a website soon, to keep everyone updated on my progress...as soon as I have the address, I will post it for those that would be interested.> > Steve aka...Knip UIP/IPF 9/07 VATS 12/07> 57 Plymouth, NH>

[Guest guest]

Steve...I'll be watching for updates and prayers are with you.

My fingers are crossed this transplant will be without problems!

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

The light at the end of the tunnel...

is finally within sight!!!!Yesterday I had my final "pre-listing" appointment at the Lung Transplant Clinic at Brigham & Women's Hospital in Boston!! The medically supervised liquid diet that I went on at the end of August worked to perfection and I weighed in a full 8 pounds UNDER the upper weight limit that they had set for me. All in all, I have lost 32 lbs since starting! The doctors were very pleased...in fact, the clinic coordinator even noticed the loss even before I had checked in! It was music to the ears to hear - "wow, , you have really lost a lot of weight!". So now, just a couple of final technicalities with paperwork, and the long process to get listed will be complete! Once all the formalities are covered, I was told to expect a call on MONDAY, letting me know that I am officially ACTIVE on the transplant list. It was 2 years ago last month that I was diagnosed with IPF. Two years ago, I had never even heard of this disease and never in my wildest dreams would have imagined that I would be getting a lung transplant, or any other kind of transplant for that matter. That was certainly not something that was on my list for - where do you see yourself in five years? LOLI would really like to thank everyone on here, as well as my Facebook friends, for the amazing amount of support I have received throughout this whole process. I am truly humbled to have so many great people keeping me in their thoughts and prayers!!!I'll be setting up a website soon, to keep everyone updated on my progress...as soon as I have the address, I will post it for those that would be interested.Steve aka...Knip UIP/IPF 9/07 VATS 12/0757 Plymouth, NH