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Starband sliding around :(

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Hi!

My daughter (almost 11 months old) has had her starband helmet for 5 weeks now.

I really like her orthotist. He really takes his time and makes sure her helmet

fits her the best it can. It started off fitting really well, then become too

loose at about week 3 and would slide down over her eyebrows(especially when she

slept) so i went back and had him put a little extra padding on the base of the

neck and that did the trick for a few days then it started to slide to the side

and started to rub a little raw spot on her ear.

Her head has drastically improved so I was thinking maybe the ear holes are no

longer in the correct spot. Maybe she needs a new helmet made? We did the

rescan today and he shaved a little more out for growing room and the helmet

became even more loose. So now it slides forward and to the side over her ear.

He trimmed it a little so it hopefully wont irritate her ear so much but He said

that because my little girl was so active the helmet is just going to slide

around a little bit and there is nothing more he can do. :(

I just wanted to know if any of you had this problem and if there was a good

solution to it. It makes me feel so bad for putting her through this, but her

head is responding so well to it and we only have 2-3 more months of this left.

please give me your opinions!

thanks a mil!

Kelsi

PS we live out in the middle of nowhere and it takes us 3 hours (that's without

any traffic) to drive to the orthotics office. driving down there is such a

pain.

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The same thing has been happening with my son's DOC band. I don't like to see the band sliding down and over his ear and he doesn't like the constant adjustments throughout the day to make it right (which only lasts a few minutes). The orthotist at CT told me that he is responding extremely well and I can see a good amount of correction in his forehead and on the top of his head (he's been in the helmet for 5 weeks also). But, I can't help wondering if the having his one (good, not assymetrical) ear covered and, consequently, his right cheekbone pushed by the "sideburn" part of the helmet is counter-productive. I'd hate to see the ears get worse, even if his head is rounder.

The people at CT assured me that it was nothing to worry about, but I can't help it. They have "softened" the spots where the "sideburn" portions were covering his ear (b/c it was irritating his ear) but the band just keeps sliding all around and doesn't stay in place at all. He is only 4 1/2 months old, so he doesn't sit up by himself and still spends a LOT of time sleeping, so it's really only "right" for a few hours a day.

I'd also like to know if anyone has experienced this and what the results were. Should I demand that they adjust it to fit properly all the time? Is it possible? I wonder if they made a mistake in making the helmet? I had to pay out of pocket for this ($3300) so I'm not interested in being placated or having to go for a second band b/c they made a mistake or are not properly adjusting it.

From: kelsij <kelsij1@...>Subject: Starband sliding around :(Plagiocephaly Date: Tuesday, June 2, 2009, 12:47 AM

Hi!My daughter (almost 11 months old) has had her starband helmet for 5 weeks now. I really like her orthotist. He really takes his time and makes sure her helmet fits her the best it can. It started off fitting really well, then become too loose at about week 3 and would slide down over her eyebrows(especially when she slept) so i went back and had him put a little extra padding on the base of the neck and that did the trick for a few days then it started to slide to the side and started to rub a little raw spot on her ear. Her head has drastically improved so I was thinking maybe the ear holes are no longer in the correct spot. Maybe she needs a new helmet made? We did the rescan today and he shaved a little more out for growing room and the helmet became even more loose. So now it slides forward and to the side over her ear. He trimmed it a little so it hopefully wont irritate her ear so much but He said that because my little

girl was so active the helmet is just going to slide around a little bit and there is nothing more he can do. :(I just wanted to know if any of you had this problem and if there was a good solution to it. It makes me feel so bad for putting her through this, but her head is responding so well to it and we only have 2-3 more months of this left.please give me your opinions!thanks a mil!KelsiPS we live out in the middle of nowhere and it takes us 3 hours (that's without any traffic) to drive to the orthotics office. driving down there is such a pain.

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