Re: Re: : goodbye - WRITE BACK

January 16, 2005

thank you for being so caring,

I have rejoined the group I was surprised, that people

were so bothered about me. I don't know what is wrong

with . She was born prematurely at 28 weeks

1lb 11oz she is deaf, she has problems with her eyes.

her spine is curved. she is also asthmatic. she is

the size of a 6 year old and she will be 9 in June

--- Salem wrote:

>

> , hang on a second, OK? When they said not

> diagnosed

> properly, who said this? Many children are

> accidently diagnosed RSS

> when they aren't -- but in the vast majority of

> these cases,

> everything else has also been ruled out, and the

> child is still

> diagnosed with " small for gestational age " -

> meaning the child was

> born at under 5lbs 5oz and 17.5 inches long

> (roughly) at full term.

> The treatment for RSS and SGA is identical, and in

> fact the life

> issues are the same, mostly, for both. This is why

> MAGIC renamed

> its RSS division the RSS/SGA division.

>

> Is your daughter SGA? From your statement " ...now I

> don't know what

> is wrong with her anymore " it sounds like the

> doctors didn't give

> you any alternatives to the RSS diagnosis???

>

> Write back!

>

> >

> > I have been told that my daughter was not

> diagnosed properly so I

> > can't be part of your group anymore. now I don't

> know what is

> wrong

> > with her anymore.

>

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January 18, 2005

Hello,

Glad to see you back. We have been this route too. One doctor says RSS. the

others say SGA, either one the people on this list serve have kept me grounded

and listening to some ideas have helped na come a long way in a year. Glad

your back and hope you stay.

Marcy na's mom

Wood wrote: