Re: An update - saw my oncologist yesterday

[Guest guest]

Zena -

Lots of prayers will be going up for you!

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

To: Breathe-Support Sent: Saturday, September 26, 2009 9:15:13 AMSubject: An update - saw my oncologist yesterday

and discussed my treatment.

I'm going to have both radiotherapy and a low dose chemotherapy for 4 weeks. They will then check on the size of the tumour and decide whether to operate or continue for a further 2 weeks. The radiotherapy will be everyday (not saturday and sunday) but apparently it will take me longer to find a parking spot than it will to actually be zapped!

I have to see the medical oncologist on wednesday so that she can work out exactly what chemo is right for me.

It looks like the treatment is going to start on monday week.

I am currently on opiates! Wayhay! I'm not allowed to take my normal approach to painkillers and take them only when I'm in pain, I'm to take them 4 times a day to stop me being in pain. (I was finding that the tramadol wasn't working, but it's because it's a build up effect)

Because of where the cancer is, and where they're going to do the radiotherapy, this will bring on the menopause, she said that it's 13 years earlier than expected, but I don't know if that's an average or if she's got that from my personal information. She was terribly worried that I'd be upset that I wouldn't be able to have anymore children! Hahahahaha! Yeah right, cos one isn't enough with all my other problems!

I'm still absolutely exhausted, which is why I haven't been around a lot.

There is every possibility that after this round of treatment the cancer will be gone gone gone

So that bit of string is turning into a rope now

Thank you all for your good wishes.

Love Ze xx

[Guest guest]

Ze, I will be praying that everything goes well for you. PF is enough without cancer too.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: An update - saw my oncologist yesterdayTo: Breathe-Support Date: Saturday, September 26, 2009, 6:15 AM

and discussed my treatment.

I'm going to have both radiotherapy and a low dose chemotherapy for 4 weeks. They will then check on the size of the tumour and decide whether to operate or continue for a further 2 weeks. The radiotherapy will be everyday (not saturday and sunday) but apparently it will take me longer to find a parking spot than it will to actually be zapped!

I have to see the medical oncologist on wednesday so that she can work out exactly what chemo is right for me.

It looks like the treatment is going to start on monday week.

I am currently on opiates! Wayhay! I'm not allowed to take my normal approach to painkillers and take them only when I'm in pain, I'm to take them 4 times a day to stop me being in pain. (I was finding that the tramadol wasn't working, but it's because it's a build up effect)

Because of where the cancer is, and where they're going to do the radiotherapy, this will bring on the menopause, she said that it's 13 years earlier than expected, but I don't know if that's an average or if she's got that from my personal information. She was terribly worried that I'd be upset that I wouldn't be able to have anymore children! Hahahahaha! Yeah right, cos one isn't enough with all my other problems!

I'm still absolutely exhausted, which is why I haven't been around a lot.

There is every possibility that after this round of treatment the cancer will be gone gone gone

So that bit of string is turning into a rope now

Thank you all for your good wishes.

Love Ze xx

[Guest guest]

Ze,They are right, I did 16 weeks for Breast cancer and yes it took longer to park, walk in, talk my top off, get zapped for 2 minutes, get dressed, walk out and find the car. The only problem I had was about half way through I developed a case of radiation burn on my nipple. Sensitive tissue so be ready, they should have creams for you that will help. And it can effect your red blood count so if you seem more tired than normal let them know, they can treat the anemia also. Hang in there, all my prayers to you.Dyane Phoenix ipf 02>> > and discussed my treatment.> > I'm going to have both radiotherapy and a low dose chemotherapy for 4> weeks. They will then check on the size of the tumour and decide> whether to operate or continue for a further 2 weeks. The radiotherapy> will be everyday (not saturday and sunday) but apparently it will take> me longer to find a parking spot than it will to actually be zapped!> > I have to see the medical oncologist on wednesday so that she can work> out exactly what chemo is right for me.> > It looks like the treatment is going to start on monday week.> > I am currently on opiates! Wayhay! I'm not allowed to take my normal> approach to painkillers and take them only when I'm in pain, I'm to take> them 4 times a day to stop me being in pain. (I was finding that the> tramadol wasn't working, but it's because it's a build up effect)> > Because of where the cancer is, and where they're going to do the> radiotherapy, this will bring on the menopause, she said that it's 13> years earlier than expected, but I don't know if that's an average or if> she's got that from my personal information. She was terribly worried> that I'd be upset that I wouldn't be able to have anymore children! > Hahahahaha! Yeah right, cos one isn't enough with all my other> problems!> > I'm still absolutely exhausted, which is why I haven't been around a> lot.> > There is every possibility that after this round of treatment the cancer> will be gone gone gone []> > So that bit of string is turning into a rope now []> > Thank you all for your good wishes.> > Love Ze xx>

[Guest guest]

I pray that you get through this without problems and then no more cancer.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: Re: An update - saw my oncologist yesterdayTo: Breathe-Support Date: Wednesday, September 30, 2009, 12:49 PM

So, more waiting! I have to have a scan in the position that I will be for the radiotherapy (surprisingly NOT legs akimbo) and they are going to TATOO me to make sure they line me up right each time Hopefully this will be friday. I will be getting i/v chemo once a week, hopefully my veins will be up to that without needing a port. I have been given a prescription for liquid morphine, and instructions to make a note of how much I'm using so that they can adjust if necessary. I will be going on clexane, it's more to do with clexane being more stable and not affected by any chemo. I should be starting them on friday. I'll be having the full six weeks of treatment and then they'll see how it's doing. She did

say that she would expect the tumor to be reduced enough in 2 weeks to make a considerable difference to my comfort levels. The radiotherapy will cause burning. The skin in that area being more sensitive and not exposed to the elements like other skin it's very likely to break down. If this happens then I'll be hauled in to hospital to get that sorted. I've been told to get my flu jab sorted before the treatment starts. Dunno why I told you that, more to remind me to get it sorted >> Just wanted to let you know that I'm thinking of you and hoping and praying for the absolute best outcome.> PJ in OH, 54, IPF'09,Sjogren' s|'95> > An update - saw my oncologist yesterday> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > and discussed my treatment. > > > I'm going to have both radiotherapy and a low dose chemotherapy for 4 weeks. They will then check on the size of the tumour and decide whether to operate or continue for a further 2 weeks. The radiotherapy will be everyday (not saturday and sunday) but apparently it will take me longer to find a parking

spot than it will to actually be zapped!> > > I have to see the medical oncologist on wednesday so that she can work out exactly what chemo is right for me.> > > It looks like the treatment is going to start on monday week.> > > I am currently on opiates! Wayhay! I'm not allowed to take my normal approach to painkillers and take them only when I'm in pain, I'm to take them 4 times a day to stop me being in pain. (I was finding that the tramadol wasn't working, but it's because it's a build up effect)> > > Because of where the cancer is, and where they're going to do the radiotherapy, this will bring on the menopause, she said that it's 13 years earlier than expected, but I don't know if that's an average or if she's got that from my personal information. She was terribly worried that I'd be upset that I wouldn't be able to have anymore children! Hahahahaha! Yeah right,

cos one isn't enough with all my other problems! > > > I'm still absolutely exhausted, which is why I haven't been around a lot.> > > There is every possibility that after this round of treatment the cancer will be gone gone gone > > > So that bit of string is turning into a rope now > > > Thank you all for your good wishes.> > > Love Ze xx>