Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Heya Ann, > Morning everyone. I'm fairly new to the list and have meant to say > hi...but I'm a bit on the shy side. Since it seems everyone here is very > helpful, I thought it safe to peek out from underneath my rock, looking > for a little guidance. Welcome!! > After years of pain and suffering, being diagnosed with Celiac (going > gluten free did little to ease all my gut pains and symptoms) and > dealing with a lot of neuropathy damage, among other things, I started > on SCD almost 3 months ago and have been amazed by all the changes. > Physically, emotionally, and mentally I've seen fantastic results, and > in such a short time. I was very malabsorbed, dealing with a ton of > vitamin deficiencies and terribly anemic. Me too! Same exact thing. I don't have celiac but suspect gluten sensitivity. I have been glutened on and off and always get symptomatic. > So I guess my question is, how long does a flare generally last? I'm not > able to tolerate many foods - and have tried 1 new food every other > week. I've been able to figure out when something bothers me or not. You are totally experiencing the 3 month flare. This seems to happen every 3 months for people as the gut ecology shifts! Don't despair- keep doing what you're doing.. It takes time. > Currently I have yogurt made w/ goat's milk, a few eggs, broiled lamb > patties, avocados, tomato juice as soup, white grape juice, peppermint > tea, chicken broth, and occasionally gelatin when I make jello. I can > only handle about 3 supplements a week, otherwise it messes up my day. > I've not had anything I shouldn't and have moved at a slow, steady pace. > If this is a flare, then I realize I'll have to just toughen up and ride > it out, but I didn't think it would last this long. I have had flare last for months, but since we are all so highly individual it is hard to say. There are a couple of ways you can look at your diet- especially with the sinus congestion- maybe you want to go dairy free for a while? I would also look at the tomato juice you are using as that can be problematic. Also, if your problem is more D maybe the eggs may be contributing. You can always take out the supplements to see how you heal as well. Alas, you don't need to make all these changes although i would strongly caution you to take a look at the tomato juice you are using as well as the supplements. > Hopefully I've made sense. Any advice would be appreciated. I miss > feeling good. Ohh you'll get back- it's a bummer when you're there.. I have been through so many healing crisis flares I can't even count anymore. Good luck! Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Don't forget to dilute the grape juice by 50% at least. Maybe go back to the intro for a couple of days to 'clear the decks' (Marilyn's phrase). Kim M. would probably say pull the supplements first and add one back in at a time. (I've been reading these lists too long!). If you're eating nuts/nut flours, pull those too. Try acidolpholus caps from Lucys, digestive wellness or chalmers if possible. It's kind of like starting over but if you find the culprit or if it's the 3month die-off, you'll do better afterwards. And what Jody said. She's been SCD for a long time. Hope you feel better, debbie 41 cd scd 12/05 (experimenting now but not actually getting anywhere with it) ldn 3/10 Heya Ann, > Morning everyone. I'm fairly new to the list and have meant to say> hi...but I'm a bit on the shy side. Since it seems everyone here is very> helpful, I thought it safe to peek out from underneath my rock, looking > for a little guidance.Welcome!! > After years of pain and suffering, being diagnosed with Celiac (going> gluten free did little to ease all my gut pains and symptoms) and> dealing with a lot of neuropathy damage, among other things, I started > on SCD almost 3 months ago and have been amazed by all the changes.> Physically, emotionally, and mentally I've seen fantastic results, and> in such a short time. I was very malabsorbed, dealing with a ton of > vitamin deficiencies and terribly anemic.Me too! Same exact thing.I don't have celiac but suspect gluten sensitivity.I have been glutened on and off and always get symptomatic. > So I guess my question is, how long does a flare generally last? I'm not> able to tolerate many foods - and have tried 1 new food every other> week. I've been able to figure out when something bothers me or not. You are totally experiencing the 3 month flare. This seems to happen every 3 months for people as the gut ecology shifts!Don't despair- keep doing what you're doing.. It takes time. > Currently I have yogurt made w/ goat's milk, a few eggs, broiled lamb> patties, avocados, tomato juice as soup, white grape juice, peppermint> tea, chicken broth, and occasionally gelatin when I make jello. I can > only handle about 3 supplements a week, otherwise it messes up my day.> I've not had anything I shouldn't and have moved at a slow, steady pace.> If this is a flare, then I realize I'll have to just toughen up and ride > it out, but I didn't think it would last this long.I have had flare last for months, but since we are all so highly individual it is hard to say.There are a couple of ways you can look at your diet- especially with the sinus congestion- maybe you want to go dairy free for a while? I would also look at the tomato juice you are using as that can be problematic.Also, if your problem is more D maybe the eggs may be contributing.You can always take out the supplements to see how you heal as well. Alas, you don't need to make all these changes although i would strongly caution you to take a look at the tomato juice you are using as well as the supplements. > Hopefully I've made sense. Any advice would be appreciated. I miss> feeling good.Ohh you'll get back- it's a bummer when you're there..I have been through so many healing crisis flares I can't even count anymore. Good luck!Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 The sinus congestion makes me wonder if yeast is moving in as the bacteria dies off. It happened to my daughter, as confirmed by lab tests. It does not seem you are eating much food that would feed candida, the white grape juice and perhaps the jello sound like the only things that would encourage the growth of yeast. You might pull them for a week or so and see if it gets better, > > > Morning everyone. I'm fairly new to the list and have meant to say > hi...but I'm a bit on the shy side. Since it seems everyone here is very > helpful, I thought it safe to peek out from underneath my rock, looking > for a little guidance. > > After years of pain and suffering, being diagnosed with Celiac (going > gluten free did little to ease all my gut pains and symptoms) and > dealing with a lot of neuropathy damage, among other things, I started > on SCD almost 3 months ago and have been amazed by all the changes. > Physically, emotionally, and mentally I've seen fantastic results, and > in such a short time. I was very malabsorbed, dealing with a ton of > vitamin deficiencies and terribly anemic. > > I literally have felt like a new person. In fact, up until 3 weeks ago > it has almost been euphoric how well I've felt. The mental clarity, the > calm mood, no more brain fog and dizziness, and to eat without reacting > and hurting has been empowering. > > Three weeks ago I started to feel sick. Somewhat like the flu - only it > didn't progress into the flu - and got a sinus infection that has stuck > with me. In reading the BTVC book I was aware of a possible flare and > wondered if it is supposed to last 3 to 4 weeks, or if I'm dealing with > something else? I feel defeated and beaten down by this sudden > drop...kind of kicked to the curb. Not enough to quit or sabotage my > healing so far...I honestly can't imagine any food that tastes as good > as feeling well and living life again. I'm fully committed to SCD and > have never veered from it. But I was doing so well and really want to > feel well again. > > So I guess my question is, how long does a flare generally last? I'm not > able to tolerate many foods - and have tried 1 new food every other > week. I've been able to figure out when something bothers me or not. > Currently I have yogurt made w/ goat's milk, a few eggs, broiled lamb > patties, avocados, tomato juice as soup, white grape juice, peppermint > tea, chicken broth, and occasionally gelatin when I make jello. I can > only handle about 3 supplements a week, otherwise it messes up my day. > I've not had anything I shouldn't and have moved at a slow, steady pace. > If this is a flare, then I realize I'll have to just toughen up and ride > it out, but I didn't think it would last this long. > > Hopefully I've made sense. Any advice would be appreciated. I miss > feeling good. > > Thanks! > > ~Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Thank you for your responses and advice Jodi! For some reason I thought the flares only lasted a short while (or maybe hoped is more like it), so I thought I'd be over the hump by now. Guess I'll have to toughen up and ride this thing out. I'll try to eliminate the tomato juice this week and see if that improves anything. The tomato juice as soup is usually my dinner (with some yogurt for a creamy tomato soup taste), so I'm not sure what to eat in its place...but feeling like this isn't working for me either. Maybe chicken broth. As to the supplements - I don't mind cutting them out for a bit. I don't feel they do me that much good. I really appreciate the help. It helps to hear from others doing SCD - makes it less lonely and daunting. ~Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Thank you Debbie. I think I'll go get a chicken from the store and make up some broth - do a few days of the intro - cut out the tomato juice for a week, and pull the supplements. I don't absorb supplements well, so I'm probably not getting much from them at this time. I appreciate the help! ~Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Ann, The process can be completely daunting and horrific. Marilyn was my back-bone. Have you tried bone broth with sea salt- that's satiating and can work for *some* of us. Good luck! Jodi > > Thank you for your responses and advice Jodi! For some reason I thought the flares only lasted a short while (or maybe hoped is more like it), so I thought I'd be over the hump by now. Guess I'll have to toughen up and ride this thing out. I'll try to eliminate the tomato juice this week and see if that improves anything. The tomato juice as soup is usually my dinner (with some yogurt for a creamy tomato soup taste), so I'm not sure what to eat in its place...but feeling like this isn't working for me either. Maybe chicken broth. As to the supplements - I don't mind cutting them out for a bit. I don't feel they do me that much good. > > I really appreciate the help. It helps to hear from others doing SCD - makes it less lonely and daunting. > > ~Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Hi Dawn, I didn't think of that. I haven't had any grape fruit juice or gelatin for the last 5 days, just haven't felt like eating any - so I won't add it back right now. Thank you for the advice! ~Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Ann, I've been in a flare the last month - my chiropracter thinks that the heavy pollen this time of year could be contributing. (I live in the south). He claims that even if you don't have bad allergies, everyone is fighting a reaction to the pollen - our antibodies are going crazy fighting and hence our autoimmune problems get worse. Luckily we've been getting some rain, plus I've been using my neti -pot faithfully and it seems to have helped. Just a theory, but I thought it was an interesting one. You are right at the 3 month mark though which is a notorious time for a flare. Just keep plugging away and take extra good care of yourself. Have you tried any epsom salt baths for the die -off? UC 13 years SCD 15 months > > > Morning everyone. I'm fairly new to the list and have meant to say > hi...but I'm a bit on the shy side. Since it seems everyone here is very > helpful, I thought it safe to peek out from underneath my rock, looking > for a little guidance. > > After years of pain and suffering, being diagnosed with Celiac (going > gluten free did little to ease all my gut pains and symptoms) and > dealing with a lot of neuropathy damage, among other things, I started > on SCD almost 3 months ago and have been amazed by all the changes. > Physically, emotionally, and mentally I've seen fantastic results, and > in such a short time. I was very malabsorbed, dealing with a ton of > vitamin deficiencies and terribly anemic. > > I literally have felt like a new person. In fact, up until 3 weeks ago > it has almost been euphoric how well I've felt. The mental clarity, the > calm mood, no more brain fog and dizziness, and to eat without reacting > and hurting has been empowering. > > Three weeks ago I started to feel sick. Somewhat like the flu - only it > didn't progress into the flu - and got a sinus infection that has stuck > with me. In reading the BTVC book I was aware of a possible flare and > wondered if it is supposed to last 3 to 4 weeks, or if I'm dealing with > something else? I feel defeated and beaten down by this sudden > drop...kind of kicked to the curb. Not enough to quit or sabotage my > healing so far...I honestly can't imagine any food that tastes as good > as feeling well and living life again. I'm fully committed to SCD and > have never veered from it. But I was doing so well and really want to > feel well again. > > So I guess my question is, how long does a flare generally last? I'm not > able to tolerate many foods - and have tried 1 new food every other > week. I've been able to figure out when something bothers me or not. > Currently I have yogurt made w/ goat's milk, a few eggs, broiled lamb > patties, avocados, tomato juice as soup, white grape juice, peppermint > tea, chicken broth, and occasionally gelatin when I make jello. I can > only handle about 3 supplements a week, otherwise it messes up my day. > I've not had anything I shouldn't and have moved at a slow, steady pace. > If this is a flare, then I realize I'll have to just toughen up and ride > it out, but I didn't think it would last this long. > > Hopefully I've made sense. Any advice would be appreciated. I miss > feeling good. > > Thanks! > > ~Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Bone broth sounds like a good idea, it might help to break up my routine. I'd been eating the same things because I was feeling so good. I really enjoy the tomato soup though, lol. I know...and I hate to sound like I'm whining when I know others have been through this stuff, and others are dealing with far more pressing matters. I just felt on top of the world a few weeks ago, and am in a funk. Thanks again! ~Ann > > Ann, > > The process can be completely daunting and horrific. > Marilyn was my back-bone. > > Have you tried bone broth with sea salt- that's satiating and can work for *some* of us. > > Good luck! > Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 At 01:39 PM 5/24/2010, you wrote: If this is a flare, then I realize I'll have to just toughen up and ride it out, but I didn't think it would last this long. Hopefully I've made sense. Any advice would be appreciated. I miss feeling good. Ann, Welcome to the list! <g> In general, most people on this list don't bite anything except SCD food. Yes, everything you said made sense... and the regressions, as you note, are discouraging. What you're probably seeing is, indeed, what we sometimes call " the three month flare " because (tah-dah!) it occurs around 3 months on SCD. As you're aware, the objective of SCD is to starve out the bad bacteria. Well, it has been observed that right around three months on the diet, you've done such a good job of starving them that their numbers are dropping rapidly. You've gotten rid of most of the weak sisters amongst the bad bacteria and the remaining ones are the stronger ones. So in effect, right now, you're saying, " Away with you! " and they're saying " H-ll no, we won't go! " and creating havoc for your poor gut. So it is absolutely critical that you hold fast at this point and not eat any illegals, because if you feed the bacteria right now, you'll let those stronger ones multiple, and then they'll be that much harder to starve out. The " three month flare " can occur anywhere from 9 weeks to 16 weeks. It can also occur again at 6-7 months, and 10-12 months. Those bacteria are stubborn. But YOU are more stubborn. My suggestion would be to drop back to easier-to-digest foods for a couple of days. Rest as much as possible, and don't push. Then gradually (probably not quite so gradually as the first time) reintroduce your regular foods. BTW, congratulations on feeling better so quickly, even if you are currently dealing with this flare! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 The tomato juice as soup is usually my dinner (with some yogurt for a creamy tomato soup taste), so I'm not sure what to eat in its place...but feeling like this isn't working for me either. Maybe chicken broth.Have you tried introducing other well cooked veggies? It didn't sound like you were eating that many veggies from your post, and even though it's not always the best option to introduce new things while in a flare, I would try adding some veggies to replace the tomato juice to have with some meat for your dinner. Maybe some zucchini, yellow squash, carrots, winter squash, or green beans? I'm not sure what you've tried in the past, but this is what I would try. You might want to puree them at first, just to make sure you tolerate them okay. I hope you feel better soon! It sounds like you're on the right track though =) Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 I'm a little late jumping in here.... just wanted you to know that my 3 and 7 month flares came right as predicted. And they lasted for 5 weeks each!!!! Ugh. I thought for sure I would never bounce back. But I did It was very discouraging going through it though. Hang in there!!! -Joanna SCD 9/2009, Crohn's 1992, 22.5mg Prednisone > > Thank you for your responses and advice Jodi! For some reason I thought the flares only lasted a short while (or maybe hoped is more like it), so I thought I'd be over the hump by now. Guess I'll have to toughen up and ride this thing out. I'll try to eliminate the tomato juice this week and see if that improves anything. The tomato juice as soup is usually my dinner (with some yogurt for a creamy tomato soup taste), so I'm not sure what to eat in its place...but feeling like this isn't working for me either. Maybe chicken broth. As to the supplements - I don't mind cutting them out for a bit. I don't feel they do me that much good. > > I really appreciate the help. It helps to hear from others doing SCD - makes it less lonely and daunting. > > ~Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Thank you Marilyn All the advice is very much appreciated. I'm going back to some broth, eliminating a few other things for now, and taking it a little easier. I'm in this for the long haul, so I'm just going to muster up some patience and let my body do its thing. The advice from this group is so valuable and has helped me put things into a better perspective. Thank you! ~Ann SCD since Feb. 27th Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Thanks Joanna! I don't know why but I thought it would be a week or two of not feeling as well, and once it progressed to three weeks, soon to be going on four, I wondered if I'd done something wrong. I just got so darn addicted to feeling good for the first time in so long, and I want more of that, lol. This is a good fight, so I'll practice some patience and let the healing take place. SCD has been the best thing that has happened to me, so I'm sticking with it ~Ann SCD since Feb. 27th > > > > Thank you for your responses and advice Jodi! For some reason I thought the flares only lasted a short while (or maybe hoped is more like it), so I thought I'd be over the hump by now. Guess I'll have to toughen up and ride this thing out. I'll try to eliminate the tomato juice this week and see if that improves anything. The tomato juice as soup is usually my dinner (with some yogurt for a creamy tomato soup taste), so I'm not sure what to eat in its place...but feeling like this isn't working for me either. Maybe chicken broth. As to the supplements - I don't mind cutting them out for a bit. I don't feel they do me that much good. > > > > I really appreciate the help. It helps to hear from others doing SCD - makes it less lonely and daunting. > > > > ~Ann > > > Quote Link to comment Share on other sites More sharing options...
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