Re: Re: Questions to ask the Pulmo-dude

[Guest guest]

donna

if you have someone to go with you, take him or her

someone recently informed me that they bring a tape recorder to listen to what was said -- it can be overwhelming in the beginning

take lots of notes

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Questions to ask the Pulmo-dudeTo: Breathe-Support Date: Sunday, November 8, 2009, 9:34 AM

DonnaTake a list of questions and a pad to take notes. Get copies from him ofall tests and labs. Do not allow yourself to be rushed. Make sure youget everything covered you want. Also, as you will have more questionsafter, find out how you'll get those answered.Is the pulmonologist connected to a teaching hospital with an ILDdepartment? If not, then I'd definitely want to know what his experiencewith PF is and where that came from. How many patients with PF.Any signs of connective tissue diseases or what testing has been done.Make sure extensive is done.What form of PF and how the conclusion has been reached.Do you have an oximeter? If not, get one. Have you had an overnightoximeter test performed? If not request it. Pulmonary Rehab.Ok, thats just a few items that crop to mind.>> Tomorrow is my first appointment with the Pulmo-dude. I am wonderingwhat the first visit is usually like. I am also wondering what types ofquestions I should ask when I see him. Any input would be appreciated.Thank you and wishing everyone comfort!>> Sincerely,> Donna (Iowa)>

[Guest guest]

I was just diagnosed with IPF in Sept. On my first visit to the Pulm Dr I had a list of all my questions. Research on the net to find these - it was very helpful. The Mayo Clinic site has good solid information. I took my sister with me and we went through the list one by one. He went over all the next steps and I took notes.

I am also applying for SS Disability, so I began a timeline type list in Word of all my appointments, with who including addresses and phone numbers. All of this information is needed by them. It also helps you stay in control of it ALL - it can be quite overwhelming.

Good Luck!

Myrlene Brown

IPF 09/2009 La Verne, CA

From: Bruce <brucemoreland@ gmail.com>Subject: Re: Questions to ask the Pulmo-dudeTo: Breathe-Support@ yahoogroups. comDate: Sunday, November 8, 2009, 9:34 AM

DonnaTake a list of questions and a pad to take notes. Get copies from him ofall tests and labs. Do not allow yourself to be rushed. Make sure youget everything covered you want. Also, as you will have more questionsafter, find out how you'll get those answered.Is the pulmonologist connected to a teaching hospital with an ILDdepartment? If not, then I'd definitely want to know what his experiencewith PF is and where that came from. How many patients with PF.Any signs of connective tissue diseases or what testing has been done.Make sure extensive is done.What form of PF and how the conclusion has been reached.Do you have an oximeter? If not, get one. Have you had an overnightoximeter test performed? If not request it. Pulmonary Rehab.Ok, thats just a few items that crop to mind.>> Tomorrow is my first appointment with the Pulmo-dude. I am wonderingwhat the first visit is usually like. I am also wondering what types ofquestions I should ask when I see him. Any input would be appreciated.Thank you and wishing everyone comfort!>> Sincerely,> Donna (Iowa)>