Re: Slow eating is this normal for RSS?

April 12, 2005

Hi ,

My son , who will be 8 in a few weeks, often takes an hour to an

hour and a half to eat. At school he hardly eats anything because he

only has 20 minutes, tops.

I hope this helps.

Ken M

>

> Hi to everyone again,

>

> Stirling is now 6mths old and although he seems to enjoy the small

> amounts of food he takes, it often takes an hour or more to feed

him

> 2 (normal sized) ice cubes of food (about 1/2 jar). Is this

> expected for RSS children?

>

> Should i be trying to feed him smaller meals more frequently?

>

> He seems to like his Hi-Calorie formula and will now take 60-80 ml

> in a single session!

>

> He is mainitaing his weight, still only gaining tiny amounts

> although he has had another UTI which in turn triggered a bout of

> oral thrush.

>

> I keep getting a lot of pressure from health professionals to feed

> him more as they don't really understand RSS and some refuse to

> acknowledge he has it.( we're still awaiting a confirmed diagnosis,

> but he has so many of the traits and a consultant at our local

> hospital spotted it so i don't think there is much doubt there!

>

> is it also common for the mother to be constantly blamed for the

> child's condition as this is also happening to me. A Health Vistor

> again asked me if I ate properly while pregnant with him as this is

> a factor in SGA babies. I have also been accused of taking drugs

> and drinking.

>

> sorry for the mini-rant there, just wondred if this sort of thing

> has happened to anyone else out there.

>

> T

> (Stirling 6mths tomorrow)

April 12, 2005

Hi

Sounds like your health visitors are not at all supportive or understanding,

luckily although ours had not heard of RSS they are willing to learn from us and

are supportive, maybe after you get a diagnoses they might change their views a

bit. My daughter Bobbi is now 13 months (yesterday) and only has a few

spoonfuls of pureed food a day and 50 -70ml, 7 x a day, so he sounds like his

feeding is ok to me, how often do you feed him at present?

I know how you feel with all the health professionals going on (just feed him

more) but their not there trying to do it are they, and as long as he is gaining

he is doing just fine. I wouldn't try to push him to eat as in my experience

they will only throw up, and then they end up having less over all any way. Try

to block out these uncaring comments as they will only stress you out further, I

find if you need answers then ask the mums on this site, they know best.

Take care

Brigitte

Slow eating is this normal for RSS?

Hi to everyone again,

Stirling is now 6mths old and although he seems to enjoy the small

amounts of food he takes, it often takes an hour or more to feed him

2 (normal sized) ice cubes of food (about 1/2 jar). Is this

expected for RSS children?

Should i be trying to feed him smaller meals more frequently?

He seems to like his Hi-Calorie formula and will now take 60-80 ml

in a single session!

He is mainitaing his weight, still only gaining tiny amounts

although he has had another UTI which in turn triggered a bout of

oral thrush.

I keep getting a lot of pressure from health professionals to feed

him more as they don't really understand RSS and some refuse to

acknowledge he has it.( we're still awaiting a confirmed diagnosis,

but he has so many of the traits and a consultant at our local

hospital spotted it so i don't think there is much doubt there!

is it also common for the mother to be constantly blamed for the

child's condition as this is also happening to me. A Health Vistor

again asked me if I ate properly while pregnant with him as this is

a factor in SGA babies. I have also been accused of taking drugs

and drinking.

sorry for the mini-rant there, just wondred if this sort of thing

has happened to anyone else out there.

T

(Stirling 6mths tomorrow)

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April 12, 2005

Hi

my daughter is now 5 yrs old, she was diagnosed with RSS in 2001. She is a slow

eater now only weighing 30lbs. I have always been questioned weather i smoked

,done drugs ,or dranked during my pregnancy. Never have It is very aggravating

especially when people stair and you don't wont to give them the whole story of

your child to a stranger. I nursed tori for 15 months around the clock she

weighed 3lbs 9oz and only stayed in the hospital for 9 days, my guess now is

because her pediatrician had no clue to what she was dealing with other than

tori was completely healthy except for her weight.