rage cycle and suddenly up at night the past few days

[Guest guest]

I was reading the book " Aspergers syndrome and

Difficult moments " and they talk about the rage cycle

and how to prevent it, but I noticed they dont really

go into how to handle it when it is happening.

has been doing better at school, but once in a while

(3 times in the last 4 weeks) something sets him off

(usually transitions or fine motor tasks) and he gets

to the point where he is so out of control that he

destroys property, and becomes unsafe, and I usually

get called to come get him. THey made a safe room for

him, but it isnt safe enough to leave him in when he

is like this (counters, only a couple of mats, phones,

shelves, a window, etc). How do your schools handle

when your child gets like this. What plans do they

have for dealing with the rage cycle when nothing

calms them down and they have to work it out of their

system? I know the key is prevention and I keep

giving them suggestions for teaching him self

management skills, but they still need to know what to

do on those few occassions when self management doesnt

work. Everytime I come get him he gets the message

that he cant be there all day and all he has to do is

act out and he gets to go home, which is where he is

right now. ANy tips, or is my son the only one who

gets like this?

also, the past several days s excema has

suddenly come back (has had none since we stopped

dairy this past spring) and he is waking up in the

middle of the night crying and very restless

(something he hasnt done since we started the Feingold

diet 1 1/2 yrs ago). Any ideas? COuld it be that we

have gone a little off the Feingold diet in favor for

a GFCF diet? Or could it be that I gave him some

cookies that seemed okay, but then later I noticed

that it had a K-D symbol on it. THey were Pamela's

Peanut Butter Cookies, and Midel Ginger Snap cookies -

both which said Gluten Free and didnt have any obvious

dairy in them. HELP!!!

=====

Phyllis Parmelee

Visit my website:

THE 100 ACRE WOOD CHILD CARE - My Brand New Website

Like my website? Want to know how you can get one, too? If you are interested

in having me build one for you, send me an email.

__________________________________________________

[Guest guest]

Phyllis,

Epsom salts certainly is able to rescue my daughter from sudden rage or

weeping or accusations...These behaviors are terribly out of character for

her and occur rarely. Because the epsom salts can pull her out of these

episodes in minutes, I'm trying to teach her that the INTENSITY of her

feelings at this sort of time is a treatable biological issue, and that

when she feels these things coming on, she needs to be careful about issues

that effect her chemistry (foods and fumes), and try to get epsom salts or

meat ASAP. She's fallen apart after eating high phenolic foods before, and

even after walking in a restaurant that had just cleaned the floors with

Pinesol. There is no amount of TALKING that can resolve this issue when it

happens...but helping her chemistry resolves the issue rapidly! (As I tell

my daughter, it is not that there wasn't some real thing happening to make

her upset, but the level of her response far exceeds the seriousness of

whatever offense when her chemistry is off.)

The epsom salts worked the same for my father with Alzheimers disease. For

him, these rages were really scarey and would happen whenever we skipped a

day of using epsom salts, but as long as we kept him on daily application

of epsom salts (for 4 years until he died and prescribed by his doctor), he

had no need of drugs to manage his behavior, ie., his doctor never felt the

need to prescribe a behavioral drug...quite an accomplishment! We did

occasionally have episodes of his getting up in the middle of the night and

wandering, but it usually seemed to relate to gluten accidents.

These personal experiences with my father are what got me into studying

sulfation six years ago, because I couldn't understand why magnesium

sulfate could have that effect.

If we see my daughter is completely out of control of her emotions, and we

are at home, we whisk her off to the tub for an epsom salts bath, and

within minutes she is back to her own sweet self. When that has been

impossible, if we are out and about with no epsom salts available,

sometimes a bit of protein can help. It may be that a more " portable " form

of administering epsom salts would work...like a sponge bottle filled with

solution that can be rubbed on the skin, or maybe Kirkman's mag. sulfate

cream (which I have never used). Try these things at home first, if you'd

like!

These issues seem more likely to return when my daughter has had an

immunological challenge, but doesn't occur at the same time as the illness,

but in the days after she has gotten over the illness or soon after she was

exposed but before she has gotten sick. That may have something to do with

your observation about the eczema showing up...that maybe something had

been happening to weaken his immune system.

My daughter's immune system seems to shift to TH2, or antibody mediated

immunity AFTER she has been sick, which gives candida (yeast) a friendlier

environment to grow, adding its own problems. It is fairly usual for us to

need to use an antifungal at such times.

I wonder about the ginger. It has pharmaceutical properties, as the

articles below report. It is used to treat dizziness, which is an inner

ear thing...very much territory for sulfated macromolecules, but it would

be surprising if it only affected molecules in the inner ear rather than

also affecting other molecules systemically.

I hope something here helps.

1: Acta Otolaryngol 1988 Jan-Feb;105(1-2):45-9

Ginger root against seasickness. A controlled trial on the open sea.

Grontved A, Brask T, Kambskard J, Hentzer E.

Department of Oto-Rhino-Laryngology, Svendborg Hospital, Denmark.

In a double-blind randomized placebo trial, the effect of the powdered rhizome

of ginger (Zingiber officinale) was tested on seasickness. Eighty naval cadets,

unaccustomed to sailing in heavy seas reported during voyages on the high seas,

symptoms of seasickness every hour for 4 consecutive hours after ingestion of 1

g of the drug or placebo. Ginger root reduced the tendency to vomiting and cold

sweating significantly better than placebo did (p less than 0.05). With regard

to vomiting, a modified Protection Index (PI) = 72% was calculated. Remarkably

fewer symptoms of nausea and vertigo were reported after ginger root ingestion,

but the difference was not statistically significant. For all symptom

categories, PI = 38% was calculated.

Publication Types:

Clinical Trial

Randomized Controlled Trial

PMID: 3277342 [PubMed - indexed for MEDLINE]

2: ORL J Otorhinolaryngol Relat Spec 1986;48(5):282-6

Vertigo-reducing effect of ginger root. A controlled clinical study.

Grontved A, Hentzer E.

The effect of powdered ginger root (Zingiber officinale) upon vertigo and

nystagmus following caloric stimulation of the vestibular system was studied in

8 healthy volunteers in a double-blind crossover placebo trial. The results

reported are based upon 48 vertigo scores and 48 electronystagmograms. Ginger

root reduced the induced vertigo significantly better than did placebo. There

was no statistically significant action upon the duration or the maximum slow

phase velocity of nystagmus.

Publication Types:

Clinical Trial

Randomized Controlled Trial

PMID: 3537898 [PubMed - indexed for MEDLINE]

At 10/23/2001 -070001:54 PM, you wrote:

>I was reading the book " Aspergers syndrome and

>Difficult moments " and they talk about the rage cycle

>and how to prevent it, but I noticed they dont really

>go into how to handle it when it is happening.

>has been doing better at school, but once in a while

>(3 times in the last 4 weeks) something sets him off

>(usually transitions or fine motor tasks) and he gets

>to the point where he is so out of control that he

>destroys property, and becomes unsafe, and I usually

>get called to come get him. THey made a safe room for

>him, but it isnt safe enough to leave him in when he

>is like this (counters, only a couple of mats, phones,

>shelves, a window, etc). How do your schools handle

>when your child gets like this. What plans do they

>have for dealing with the rage cycle when nothing

>calms them down and they have to work it out of their

>system? I know the key is prevention and I keep

>giving them suggestions for teaching him self

>management skills, but they still need to know what to

>do on those few occassions when self management doesnt

>work. Everytime I come get him he gets the message

>that he cant be there all day and all he has to do is

>act out and he gets to go home, which is where he is

>right now. ANy tips, or is my son the only one who

>gets like this?

>

>also, the past several days s excema has

>suddenly come back (has had none since we stopped

>dairy this past spring) and he is waking up in the

>middle of the night crying and very restless

>(something he hasnt done since we started the Feingold

>diet 1 1/2 yrs ago). Any ideas? COuld it be that we

>have gone a little off the Feingold diet in favor for

>a GFCF diet? Or could it be that I gave him some

>cookies that seemed okay, but then later I noticed

>that it had a K-D symbol on it. THey were Pamela's

>Peanut Butter Cookies, and Midel Ginger Snap cookies -

>both which said Gluten Free and didnt have any obvious

>dairy in them. HELP!!!

>

>

>=====

>Phyllis Parmelee

>Visit my website:

>THE 100 ACRE WOOD CHILD CARE - My Brand New Website

>Like my website? Want to know how you can get one, too? If you are

>interested in having me build one for you, send me an email.

>

>__________________________________________________

>

[Guest guest]

Phyllis,

Not sure about Pamela's but the Midel's contain butter or at least

the last time I checked they did. I made the same mistake because

the way the ingredients are written its easy to miss.

Lori

> >I was reading the book " Aspergers syndrome and

> >Difficult moments " and they talk about the rage cycle

> >and how to prevent it, but I noticed they dont really

> >go into how to handle it when it is happening.

> >has been doing better at school, but once in a while

> >(3 times in the last 4 weeks) something sets him off

> >(usually transitions or fine motor tasks) and he gets

> >to the point where he is so out of control that he

> >destroys property, and becomes unsafe, and I usually

> >get called to come get him. THey made a safe room for

> >him, but it isnt safe enough to leave him in when he

> >is like this (counters, only a couple of mats, phones,

> >shelves, a window, etc). How do your schools handle

> >when your child gets like this. What plans do they

> >have for dealing with the rage cycle when nothing

> >calms them down and they have to work it out of their

> >system? I know the key is prevention and I keep

> >giving them suggestions for teaching him self

> >management skills, but they still need to know what to

> >do on those few occassions when self management doesnt

> >work. Everytime I come get him he gets the message

> >that he cant be there all day and all he has to do is

> >act out and he gets to go home, which is where he is

> >right now. ANy tips, or is my son the only one who

> >gets like this?

> >

> >also, the past several days s excema has

> >suddenly come back (has had none since we stopped

> >dairy this past spring) and he is waking up in the

> >middle of the night crying and very restless

> >(something he hasnt done since we started the Feingold

> >diet 1 1/2 yrs ago). Any ideas? COuld it be that we

> >have gone a little off the Feingold diet in favor for

> >a GFCF diet? Or could it be that I gave him some

> >cookies that seemed okay, but then later I noticed

> >that it had a K-D symbol on it. THey were Pamela's

> >Peanut Butter Cookies, and Midel Ginger Snap cookies -

> >both which said Gluten Free and didnt have any obvious

> >dairy in them. HELP!!!

> >

> >

> >=====

> >Phyllis Parmelee

> >Visit my website:

> >THE 100 ACRE WOOD CHILD CARE - My Brand New Website

> >Like my website? Want to know how you can get one, too? If you

are

> >interested in having me build one for you, send me an email.

> >

> >__________________________________________________

> >

[Guest guest]

I'm glad to see I'm not alone. I thought I was doing good buying

cookies from Mi-Del's. On the weekend, I was looking at the Miss

Roben's catalog and noticed the arrowroot cookies did not show free

of dairy. I quickly looked at the bag and there is was plain as day -

butter. I looked at the other 3 bags of cookies from them and

again - butter. I was only looking for milk and never noticed. It's

a good thing that my son didn't actually like them. I realize now

that he only likes soft cookies. Any ideas?

> > >I was reading the book " Aspergers syndrome and

> > >Difficult moments " and they talk about the rage cycle

> > >and how to prevent it, but I noticed they dont really

> > >go into how to handle it when it is happening.

> > >has been doing better at school, but once in a while

> > >(3 times in the last 4 weeks) something sets him off

> > >(usually transitions or fine motor tasks) and he gets

> > >to the point where he is so out of control that he

> > >destroys property, and becomes unsafe, and I usually

> > >get called to come get him. THey made a safe room for

> > >him, but it isnt safe enough to leave him in when he

> > >is like this (counters, only a couple of mats, phones,

> > >shelves, a window, etc). How do your schools handle

> > >when your child gets like this. What plans do they

> > >have for dealing with the rage cycle when nothing

> > >calms them down and they have to work it out of their

> > >system? I know the key is prevention and I keep

> > >giving them suggestions for teaching him self

> > >management skills, but they still need to know what to

> > >do on those few occassions when self management doesnt

> > >work. Everytime I come get him he gets the message

> > >that he cant be there all day and all he has to do is

> > >act out and he gets to go home, which is where he is

> > >right now. ANy tips, or is my son the only one who

> > >gets like this?

> > >

> > >also, the past several days s excema has

> > >suddenly come back (has had none since we stopped

> > >dairy this past spring) and he is waking up in the

> > >middle of the night crying and very restless

> > >(something he hasnt done since we started the Feingold

> > >diet 1 1/2 yrs ago). Any ideas? COuld it be that we

> > >have gone a little off the Feingold diet in favor for

> > >a GFCF diet? Or could it be that I gave him some

> > >cookies that seemed okay, but then later I noticed

> > >that it had a K-D symbol on it. THey were Pamela's

> > >Peanut Butter Cookies, and Midel Ginger Snap cookies -

> > >both which said Gluten Free and didnt have any obvious

> > >dairy in them. HELP!!!

> > >

> > >

> > >=====

> > >Phyllis Parmelee

> > >Visit my website:

> > >THE 100 ACRE WOOD CHILD CARE - My Brand New Website

> > >Like my website? Want to know how you can get one, too? If you

> are

> > >interested in having me build one for you, send me an email.

> > >

> > >__________________________________________________

> > >

[Guest guest]

If it's K-D, there's dairy somewhere. Mi-del has butter. I don't

know about Pamela's, but that company recently had a recall b/c of

cross-contamination. The return of eczema is certainly a sign of a

diet infringement. Have you tried pepcid AC tablets to counteract

the infringement?

My son's rages/meltdowns/mood-swings greatly reduced with GFCFRF.

Also, reduced chemicals, no nutrasweet, lower phenols. We avoid

obviously frustrating situations. Also chelation, which ended the

full-on meltdowns completely.

....> also, the past several days s excema has

> suddenly come back (has had none since we stopped

> dairy this past spring) and he is waking up in the

> middle of the night crying and very restless

> (something he hasnt done since we started the Feingold

> diet 1 1/2 yrs ago). Any ideas? COuld it be that we

> have gone a little off the Feingold diet in favor for

> a GFCF diet? Or could it be that I gave him some

> cookies that seemed okay, but then later I noticed

> that it had a K-D symbol on it. THey were Pamela's

> Peanut Butter Cookies, and Midel Ginger Snap cookies -

> both which said Gluten Free and didnt have any obvious

> dairy in them. HELP!!!

[Guest guest]

> My son's rages/meltdowns/mood-swings greatly reduced with GFCFRF.

Can you please explain gfcfrf?

Cheryl

________________________________________________________________

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