Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Sher - thank you so much for sharing that. It's a keeper. B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Attitude is everything. To: breathe-Support <Breathe-Support >Sent: Mon, October 19, 2009 4:39:06 PMSubject: correspondence between AK (Jim Wallman) and I. I ran across this in an old folder of "things to keep".... It is with Jim's permission I fwd... MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Anybody out there on prednisone? I keep eating like a pig, EVERYTHING, that normal? <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Mon, October 19, 2009 6:11:46 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Sher - thank you so much for sharing that. It's a keeper. B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Attitude is everything. From: Sher Bauman <bofus6 (AT) verizon (DOT) net>To: breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Mon, October 19, 2009 4:39:06 PMSubject: correspondence between AK (Jim Wallman) and I. I ran across this in an old folder of "things to keep".... It is with Jim's permission I fwd... MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 , How many mgs are you on ? Just a little warning you have to be careful while on prednisone and coming off of it.. I gained 70 pounds.........Are you shaking ? sleeping ? You will find all kinds of stuff happens while on it.I have forgotten your Dx. and when. Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Anybody out there on prednisone? I keep eating like a pig, EVERYTHING, that normal? <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support Sent: Mon, October 19, 2009 6:11:46 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Sher - thank you so much for sharing that. It's a keeper. B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Attitude is everything. From: Sher Bauman <bofus6 (AT) verizon (DOT) net>To: breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Mon, October 19, 2009 4:39:06 PMSubject: correspondence between AK (Jim Wallman) and I. I ran across this in an old folder of "things to keep".... It is with Jim's permission I fwd... MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 My dx is pf........I think three years, not sure, seeing a new Pulmo guy the 29. Not shaking, just swollen feet, and hands, I'm on two 20 mg daily. <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Mon, October 19, 2009 6:54:35 PMSubject: Re: correspondence between AK (Jim Wallman) and I., How many mgs are you on ? Just a little warning you have to be careful while on prednisone and coming off of it.. I gained 70 pounds......... Are you shaking ? sleeping ? You will find all kinds of stuff happens while on it. I have forgotten your Dx. and when. Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Anybody out there on prednisone? I keep eating like a pig, EVERYTHING, that normal? <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT> From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Mon, October 19, 2009 6:11:46 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Sher - thank you so much for sharing that. It's a keeper. B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Attitude is everything. From: Sher Bauman <bofus6 (AT) verizon (DOT) net>To: breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Mon, October 19, 2009 4:39:06 PMSubject: correspondence between AK (Jim Wallman) and I. I ran across this in an old folder of "things to keep".... It is with Jim's permission I fwd... MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Unfortunately, that is the case for some of us. Realistically, I know that I should be full but my stomach growls all the time. Sometimes I feel like the creature inside wants OUT! Add to that sleeplessness and the occasional jitters and/or feeling down and you have my life on prednisone. However, with all its side effects, it is helping me. Hope you do not have to be on it for long. Try drinking warm anything in the evening, it helps me not raid the fridge.Good Luck.IPF/NSIP 08 NC From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM Jim, First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! If and when I hear more I will share with you what I learn. I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. Strange, isn't it that your drs do not give you answers...perhaps they don't know. From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? Of course I 'despair' to a point...I care about you and I know you are troubled. Is hospice available to you considering where you live? I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. Write anytime..... ..Sher Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 LOL thanks, does sound like me <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Mon, October 19, 2009 6:59:36 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Unfortunately, that is the case for some of us. Realistically, I know that I should be full but my stomach growls all the time. Sometimes I feel like the creature inside wants OUT! Add to that sleeplessness and the occasional jitters and/or feeling down and you have my life on prednisone. However, with all its side effects, it is helping me. Hope you do not have to be on it for long. Try drinking warm anything in the evening, it helps me not raid the fridge. Good Luck. IPF/NSIP 08 NC From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM Jim, First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! If and when I hear more I will share with you what I learn. I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. Strange, isn't it that your drs do not give you answers...perhaps they don't know. From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? Of course I 'despair' to a point...I care about you and I know you are troubled. Is hospice available to you considering where you live? I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. Write anytime..... ..Sher Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 When I was first dx, my pulmoguy gave me 3 to 6 months to live when he saw my xrays. He put me on pred. he said it helped and I had more time than that...that's why I'm getting a new pulmodude <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Mon, October 19, 2009 6:59:36 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Unfortunately, that is the case for some of us. Realistically, I know that I should be full but my stomach growls all the time. Sometimes I feel like the creature inside wants OUT! Add to that sleeplessness and the occasional jitters and/or feeling down and you have my life on prednisone. However, with all its side effects, it is helping me. Hope you do not have to be on it for long. Try drinking warm anything in the evening, it helps me not raid the fridge. Good Luck. IPF/NSIP 08 NC From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM Jim, First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! If and when I hear more I will share with you what I learn. I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. Strange, isn't it that your drs do not give you answers...perhaps they don't know. From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? Of course I 'despair' to a point...I care about you and I know you are troubled. Is hospice available to you considering where you live? I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. Write anytime..... ..Sher Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Sher, I also thank you for sharing those beautiful emails. You were a wonderful friend to Jim. Can you tell us anymore? How long after this lovely exchange did Jim pass on & do you know if he had any " angel visits " ? Cees, S Calif PF 10/08 > > From: Sher Bauman <bofus (AT) wbcable (DOT) net> > >Subject: Re: Steve > >To: james_wallman@ yahoo.com > >Date: Monday, February 9, 2009, 1:43 PM > > > > > >Jim, > >First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. > >I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. > >I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! > >If and when I hear more I will share with you what I learn. > >I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. > >I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. > >Strange, isn't it that your drs do not give you answers...perhaps they don't know. > >From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. > >I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? > >Of course I 'despair' to a point...I care about you and I know you are troubled. > >Is hospice available to you considering where you live? > >I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. > >Write anytime..... ..Sher > > > > Don't fret about tomorrow, God is already there! > > > > Steve > >> > >> > >>First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, " what does it look like to die from IPF " ? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a " limit " . I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that " I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year " . I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... > ........jim > >> > >>ps.....wish I knew a good joke to tell you....... > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 That tendency is normal for prednisone but its something you very much need to control. The weight gain and diabetes are two side effects you need to be aware of and through diet and exercise do as well as you can toward minimizing. I personally believe that every prescription of prednisone should come with a referral to a nutritionist. > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > >Subject: Re: Steve > >To: james_wallman@ yahoo.com > >Date: Monday, February 9, 2009, 1:43 PM > > > > > >Jim, > >First of all thank you for taking me into your confidence.. ..expressing such personal concerns touches me. > >I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. > >I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! > >If and when I hear more I will share with you what I learn. > >I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. > >I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. > >Strange, isn't it that your drs do not give you answers...perhaps they don't know. > >From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. > >I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? > >Of course I 'despair' to a point...I care about you and I know you are troubled. > >Is hospice available to you considering where you live? > >I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. > >Write anytime..... ..Sher > > > > Don't fret about tomorrow, God is already there! > > > > Steve > >> > >> > >>First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, " what does it look like to die from IPF " ? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a " limit " . I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that " I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year " . I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... > ........jim > >> > >>ps.....wish I knew a good joke to tell you....... > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Thanks Bruce.......I am already a diabetic.......dredisone has messed up my readings <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Mon, October 19, 2009 8:11:40 PMSubject: Re: correspondence between AK (Jim Wallman) and I. That tendency is normal for prednisone but its something you very muchneed to control. The weight gain and diabetes are two side effects youneed to be aware of and through diet and exercise do as well as you cantoward minimizing. I personally believe that every prescription ofprednisone should come with a referral to a nutritionist.>> From: Sher Bauman bofus (AT) wbcable (DOT) net>> >Subject: Re: Steve> >To: james_wallman@ yahoo.com> >Date: Monday, February 9, 2009, 1:43 PM> >> >> >Jim,> >First of all thank you for taking me into your confidence...expressing such personal concerns touches me.> >I'm waiting for details about Steve. When his brother informed me ofSteve's death it was only about 3 lines. In fact it was so short that Ithought it was from Steve telling me his brother had died....mail camefrom Steve's laptop so I just presumed it was from Steve of course.> >I did a double-take to realize it was from Steve's brother and Steveis the one who died. What a shock to me and Rich!> >If and when I hear more I will share with you what I learn.> >I don't even know for sure that PF is what took his life... his wifedied about 6 mo or so prior and perhaps grief overtook him.> >I went online and tried to find his obit but was not successful. I'mjust not that computer savvy in 'searching'. ..> >Strange, isn't it that your drs do not give you answers...perhapsthey don't know.> >From what I know, death can be easy, such as if you are with hospiceand meds and help w/and through everything. Morphine seems to be awonder drug during end times. Perhaps your dr will Rx it for you.> >I'm so sorry Jim that you continue to progress downward towardtransition. Are you afraid? Are you in pain?> >Of course I 'despair' to a point...I care about you and I know youare troubled.> >Is hospice available to you considering where you live?> >I'm glad you could not muster a joke today.... I'm in my sad feelingsright now and move through them slowly.> >Write anytime..... ..Sher> >> > Don't fret about tomorrow, God is already there!> >> > Steve> >>> >>> >>First Sher, forgive me for coming to the back door likethis......perhaps you'll understand in a moment. What I am asking forare all details of Steve's death that you may have. I hope you can trustme.......that I'm not being ghoulish here........ .I have asked, and notreceived an answer from docs, etc, "what does it look like to die fromIPF"? I know it is not what I'd thought originally (awful), but peacefuland serene for the most part. This latest illness of mine has served toremind me.........there is definitely a "limit". I lost alot of functionin the last 9 days. My doc ( whom I trust hugely) told me on Fri that "Iwould not be surprised to hear that you'd died in 30 days, nor would Ibe surprised to see you alive in a year". I'm not obsessing on it Sher,it's just that it sounds like one day Steve is traveling, the next dayhe's dead. I'd appreciate whatever you may be able to share. Please donot despair, I'm okay, I'm settled.....> ........jim> >>> >>ps.....wish I knew a good joke to tell you.......> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 i go to "rehab" at a hospital in Pennsylvania Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: correspondence between AK (Jim Wallman) and I.To: Breathe-Support Date: Tuesday, October 20, 2009, 11:36 AM Joyce, are you still going to Emory for rehab for PF? <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT> From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tue, October 20, 2009 8:37:29 AMSubject: Re: correspondence between AK (Jim Wallman) and I. thanks for the tidbit about drinking something warm at night -- i will try to remember to do it sometimes in the winter, i heat up the milk in the microwave before going to bed -- i have to eat something with one of my bedtime meds Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM Jim, First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! If and when I hear more I will share with you what I learn. I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. Strange, isn't it that your drs do not give you answers...perhaps they don't know. From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? Of course I 'despair' to a point...I care about you and I know you are troubled. Is hospice available to you considering where you live? I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. Write anytime..... ..Sher Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Sorry Joyce, had you confused with someone else <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Tue, October 20, 2009 5:24:43 PMSubject: Re: correspondence between AK (Jim Wallman) and I. i go to "rehab" at a hospital in Pennsylvania Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM Jim, First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! If and when I hear more I will share with you what I learn. I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. Strange, isn't it that your drs do not give you answers...perhaps they don't know. From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? Of course I 'despair' to a point...I care about you and I know you are troubled. Is hospice available to you considering where you live? I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. Write anytime..... ..Sher Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 Thanks Dorothy, I'll check into it <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Tue, October 20, 2009 10:08:23 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Hi , I live south of Atlanta, in Fayetteville near Peachtree City. I see my doctor at Duke but I found that Piedmont Hospital has a pulmonary rehab program. I think you said you are in Marietta - Piedmont in Atlanta probably not too far. Piedmont has a facility in Fayetteville and I am going to start at that one in December. Joe and Joanie go to Emory for pulmo doctor, not sure if they do rehab there. I think there has been a recent change in staff at Emory, but they could tell you better. I think Jane also sees doctors there, but not sure about Rehab. Hope this helps you - Dorothy Reinecke DX 7/05 - UIP From: Soulliere <johnsbatik (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, October 20, 2009 8:08:18 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Sorry Joyce, had you confused with someone else <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg.. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT> From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tue, October 20, 2009 5:24:43 PMSubject: Re: correspondence between AK (Jim Wallman) and I. i go to "rehab" at a hospital in Pennsylvania Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM Jim, First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! If and when I hear more I will share with you what I learn. I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. Strange, isn't it that your drs do not give you answers...perhaps they don't know. From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? Of course I 'despair' to a point...I care about you and I know you are troubled. Is hospice available to you considering where you live? I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. Write anytime..... ..Sher Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.