Jump to content
RemedySpot.com

Re: correspondence between AK (Jim Wallman) and I.

Rate this topic


Guest guest

Recommended Posts

Sher - thank you so much for sharing that. It's a keeper.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

To: breathe-Support <Breathe-Support >Sent: Mon, October 19, 2009 4:39:06 PMSubject: correspondence between AK (Jim Wallman) and I.

I ran across this in an old folder of "things to keep"....

It is with Jim's permission I fwd...

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

Anybody out there on prednisone? I keep eating like a pig, EVERYTHING, that normal?

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Mon, October 19, 2009 6:11:46 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

Sher - thank you so much for sharing that. It's a keeper.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

From: Sher Bauman <bofus6 (AT) verizon (DOT) net>To: breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Mon, October 19, 2009 4:39:06 PMSubject: correspondence between AK (Jim Wallman) and I.

I ran across this in an old folder of "things to keep"....

It is with Jim's permission I fwd...

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

, How many mgs are you on ? Just a little warning you have to be careful while on prednisone and coming off of it.. I gained 70 pounds.........Are you shaking ? sleeping ? You will find all kinds of stuff happens while on it.I have forgotten your Dx. and when. Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Anybody out there on prednisone? I keep eating like a pig, EVERYTHING, that normal? <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support Sent: Mon, October 19, 2009 6:11:46 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Sher - thank you so much for sharing that. It's a keeper. B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Attitude is everything. From: Sher Bauman <bofus6 (AT) verizon (DOT) net>To: breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Mon, October 19, 2009 4:39:06 PMSubject: correspondence between AK (Jim Wallman) and I. I ran across this in an old folder of "things to keep".... It is with Jim's permission I fwd... MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

My dx is pf........I think three years, not sure, seeing a new Pulmo guy the 29. Not shaking, just swollen feet, and hands, I'm on two 20 mg daily.

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Mon, October 19, 2009 6:54:35 PMSubject: Re: correspondence between AK (Jim Wallman) and I., How many mgs are you on ? Just a little warning you have to be careful while on prednisone and coming off of it.. I gained 70 pounds.........

Are you shaking ? sleeping ? You will find all kinds of stuff happens while on it.

I have forgotten your Dx. and when.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Anybody out there on prednisone? I keep eating like a pig, EVERYTHING, that normal?

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT>

From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Mon, October 19, 2009 6:11:46 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

Sher - thank you so much for sharing that. It's a keeper.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

From: Sher Bauman <bofus6 (AT) verizon (DOT) net>To: breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Mon, October 19, 2009 4:39:06 PMSubject: correspondence between AK (Jim Wallman) and I.

I ran across this in an old folder of "things to keep"....

It is with Jim's permission I fwd...

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

Unfortunately, that is the case for some of us. Realistically, I know that I should be full but my stomach growls all the time. Sometimes I feel like the creature inside wants OUT! Add to that sleeplessness and the occasional jitters and/or feeling down and you have my life on prednisone. However, with all its side effects, it is helping me. Hope you do not have to be on it for long. Try drinking warm anything in the evening, it helps me not raid the fridge.Good Luck.IPF/NSIP 08 NC

From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM

Jim,

First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me.

I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course.

I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich!

If and when I hear more I will share with you what I learn.

I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him.

I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. ..

Strange, isn't it that your drs do not give you answers...perhaps they don't know.

From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you.

I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain?

Of course I 'despair' to a point...I care about you and I know you are troubled.

Is hospice available to you considering where you live?

I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly.

Write anytime..... ..Sher

Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

LOL thanks, does sound like me

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Mon, October 19, 2009 6:59:36 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

Unfortunately, that is the case for some of us. Realistically, I know that I should be full but my stomach growls all the time. Sometimes I feel like the creature inside wants OUT! Add to that sleeplessness and the occasional jitters and/or feeling down and you have my life on prednisone. However, with all its side effects, it is helping me. Hope you do not have to be on it for long. Try drinking warm anything in the evening, it helps me not raid the fridge.

Good Luck.

IPF/NSIP 08 NC

From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM

Jim,

First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me.

I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course.

I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich!

If and when I hear more I will share with you what I learn.

I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him.

I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. ..

Strange, isn't it that your drs do not give you answers...perhaps they don't know.

From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you.

I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain?

Of course I 'despair' to a point...I care about you and I know you are troubled.

Is hospice available to you considering where you live?

I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly.

Write anytime..... ..Sher

Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

When I was first dx, my pulmoguy gave me 3 to 6 months to live when he saw my xrays. He put me on pred. he said it helped and I had more time than that...that's why I'm getting a new pulmodude

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Mon, October 19, 2009 6:59:36 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

Unfortunately, that is the case for some of us. Realistically, I know that I should be full but my stomach growls all the time. Sometimes I feel like the creature inside wants OUT! Add to that sleeplessness and the occasional jitters and/or feeling down and you have my life on prednisone. However, with all its side effects, it is helping me. Hope you do not have to be on it for long. Try drinking warm anything in the evening, it helps me not raid the fridge.

Good Luck.

IPF/NSIP 08 NC

From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM

Jim,

First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me.

I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course.

I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich!

If and when I hear more I will share with you what I learn.

I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him.

I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. ..

Strange, isn't it that your drs do not give you answers...perhaps they don't know.

From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you.

I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain?

Of course I 'despair' to a point...I care about you and I know you are troubled.

Is hospice available to you considering where you live?

I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly.

Write anytime..... ..Sher

Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

Sher,

I also thank you for sharing those beautiful emails. You were a wonderful friend

to Jim. Can you tell us anymore? How long after this lovely exchange did Jim

pass on & do you know if he had any " angel visits " ?

Cees, S Calif

PF 10/08

>

> From: Sher Bauman <bofus (AT) wbcable (DOT) net>

> >Subject: Re: Steve

> >To: james_wallman@ yahoo.com

> >Date: Monday, February 9, 2009, 1:43 PM

> >

> >

> >Jim,

> >First of all thank you for taking me into your confidence.. .expressing such

personal concerns touches me.

> >I'm waiting for details about Steve. When his brother informed me of Steve's

death it was only about 3 lines. In fact it was so short that I thought it was

from Steve telling me his brother had died....mail came from Steve's laptop so I

just presumed it was from Steve of course.

> >I did a double-take to realize it was from Steve's brother and Steve is the

one who died. What a shock to me and Rich!

> >If and when I hear more I will share with you what I learn.

> >I don't even know for sure that PF is what took his life... his wife died

about 6 mo or so prior and perhaps grief overtook him.

> >I went online and tried to find his obit but was not successful. I'm just not

that computer savvy in 'searching'. ..

> >Strange, isn't it that your drs do not give you answers...perhaps they don't

know.

> >From what I know, death can be easy, such as if you are with hospice and meds

and help w/and through everything.  Morphine seems to be a wonder drug during

end times. Perhaps your dr will Rx it for you.

> >I'm so sorry Jim that you continue to progress downward toward transition.

Are you afraid? Are you in pain?

> >Of course I 'despair' to a point...I care about you and I know you are

troubled.

> >Is hospice available to you considering where you live?

> >I'm glad you could not muster a joke today.... I'm in my sad feelings right

now and move through them slowly.

> >Write anytime..... ..Sher

> > 

> > Don't fret about tomorrow, God is already there!

> >

> > Steve

> >>

> >>

> >>First Sher, forgive me for coming to the back door like this......perhaps

you'll understand in a moment. What I am asking for are all details of Steve's

death that you may have. I hope you can trust me.......that I'm not being

ghoulish here........ .I have asked, and not received an answer from docs, etc,

" what does it look like to die from IPF " ? I know it is not what I'd thought

originally (awful), but peaceful and serene for the most part. This latest

illness of mine has served to remind me.........there is definitely a " limit " . I

lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me

on Fri that " I would not be surprised to hear that you'd died in 30 days, nor

would I be surprised to see you alive in a year " . I'm not obsessing on it Sher,

it's just that it sounds like one day Steve is traveling, the next day he's

dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled.....

> ........jim

> >> 

> >>ps.....wish I knew a good joke to tell you.......

> >>

>

Link to comment
Share on other sites

That tendency is normal for prednisone but its something you very much

need to control. The weight gain and diabetes are two side effects you

need to be aware of and through diet and exercise do as well as you can

toward minimizing. I personally believe that every prescription of

prednisone should come with a referral to a nutritionist.

>

> From: Sher Bauman bofus (AT) wbcable (DOT) net>

> >Subject: Re: Steve

> >To: james_wallman@ yahoo.com

> >Date: Monday, February 9, 2009, 1:43 PM

> >

> >

> >Jim,

> >First of all thank you for taking me into your confidence..

..expressing such personal concerns touches me.

> >I'm waiting for details about Steve. When his brother informed me of

Steve's death it was only about 3 lines. In fact it was so short that I

thought it was from Steve telling me his brother had died....mail came

from Steve's laptop so I just presumed it was from Steve of course.

> >I did a double-take to realize it was from Steve's brother and Steve

is the one who died. What a shock to me and Rich!

> >If and when I hear more I will share with you what I learn.

> >I don't even know for sure that PF is what took his life... his wife

died about 6 mo or so prior and perhaps grief overtook him.

> >I went online and tried to find his obit but was not successful. I'm

just not that computer savvy in 'searching'. ..

> >Strange, isn't it that your drs do not give you answers...perhaps

they don't know.

> >From what I know, death can be easy, such as if you are with hospice

and meds and help w/and through everything. Morphine seems to be a

wonder drug during end times. Perhaps your dr will Rx it for you.

> >I'm so sorry Jim that you continue to progress downward toward

transition. Are you afraid? Are you in pain?

> >Of course I 'despair' to a point...I care about you and I know you

are troubled.

> >Is hospice available to you considering where you live?

> >I'm glad you could not muster a joke today.... I'm in my sad feelings

right now and move through them slowly.

> >Write anytime..... ..Sher

> >

> > Don't fret about tomorrow, God is already there!

> >

> > Steve

> >>

> >>

> >>First Sher, forgive me for coming to the back door like

this......perhaps you'll understand in a moment. What I am asking for

are all details of Steve's death that you may have. I hope you can trust

me.......that I'm not being ghoulish here........ .I have asked, and not

received an answer from docs, etc, " what does it look like to die from

IPF " ? I know it is not what I'd thought originally (awful), but peaceful

and serene for the most part. This latest illness of mine has served to

remind me.........there is definitely a " limit " . I lost alot of function

in the last 9 days. My doc ( whom I trust hugely) told me on Fri that " I

would not be surprised to hear that you'd died in 30 days, nor would I

be surprised to see you alive in a year " . I'm not obsessing on it Sher,

it's just that it sounds like one day Steve is traveling, the next day

he's dead. I'd appreciate whatever you may be able to share. Please do

not despair, I'm okay, I'm settled.....

> ........jim

> >>

> >>ps.....wish I knew a good joke to tell you.......

> >>

>

Link to comment
Share on other sites

Thanks Bruce.......I am already a diabetic.......dredisone has messed up my readings

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Mon, October 19, 2009 8:11:40 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

That tendency is normal for prednisone but its something you very muchneed to control. The weight gain and diabetes are two side effects youneed to be aware of and through diet and exercise do as well as you cantoward minimizing. I personally believe that every prescription ofprednisone should come with a referral to a nutritionist.>> From: Sher Bauman bofus (AT) wbcable (DOT) net>>

>Subject: Re: Steve> >To: james_wallman@ yahoo.com> >Date: Monday, February 9, 2009, 1:43 PM> >> >> >Jim,> >First of all thank you for taking me into your confidence...expressing such personal concerns touches me.> >I'm waiting for details about Steve. When his brother informed me ofSteve's death it was only about 3 lines. In fact it was so short that Ithought it was from Steve telling me his brother had died....mail camefrom Steve's laptop so I just presumed it was from Steve of course.> >I did a double-take to realize it was from Steve's brother and Steveis the one who died. What a shock to me and Rich!> >If and when I hear more I will share with you what I learn.> >I don't even know for sure that PF is what took his life... his wifedied about 6 mo or so prior and perhaps grief overtook him.> >I went online and tried

to find his obit but was not successful. I'mjust not that computer savvy in 'searching'. ..> >Strange, isn't it that your drs do not give you answers...perhapsthey don't know.> >From what I know, death can be easy, such as if you are with hospiceand meds and help w/and through everything. Morphine seems to be awonder drug during end times. Perhaps your dr will Rx it for you.> >I'm so sorry Jim that you continue to progress downward towardtransition. Are you afraid? Are you in pain?> >Of course I 'despair' to a point...I care about you and I know youare troubled.> >Is hospice available to you considering where you live?> >I'm glad you could not muster a joke today.... I'm in my sad feelingsright now and move through them slowly.> >Write anytime..... ..Sher> >> > Don't fret about tomorrow, God is already there!> >>

> Steve> >>> >>> >>First Sher, forgive me for coming to the back door likethis......perhaps you'll understand in a moment. What I am asking forare all details of Steve's death that you may have. I hope you can trustme.......that I'm not being ghoulish here........ .I have asked, and notreceived an answer from docs, etc, "what does it look like to die fromIPF"? I know it is not what I'd thought originally (awful), but peacefuland serene for the most part. This latest illness of mine has served toremind me.........there is definitely a "limit". I lost alot of functionin the last 9 days. My doc ( whom I trust hugely) told me on Fri that "Iwould not be surprised to hear that you'd died in 30 days,

nor would Ibe surprised to see you alive in a year". I'm not obsessing on it Sher,it's just that it sounds like one day Steve is traveling, the next dayhe's dead. I'd appreciate whatever you may be able to share. Please donot despair, I'm okay, I'm settled.....> ........jim> >>> >>ps.....wish I knew a good joke to tell you.......> >>>

Link to comment
Share on other sites

i go to "rehab" at a hospital in Pennsylvania

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: correspondence between AK (Jim Wallman) and I.To: Breathe-Support Date: Tuesday, October 20, 2009, 11:36 AM

Joyce, are you still going to Emory for rehab for PF?

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT>

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tue, October 20, 2009 8:37:29 AMSubject: Re: correspondence between AK (Jim Wallman) and I.

thanks for the tidbit about drinking something warm at night -- i will try to remember to do it

sometimes in the winter, i heat up the milk in the microwave before going to bed -- i have to eat something with one of my bedtime meds

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM

Jim,

First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me.

I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course.

I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich!

If and when I hear more I will share with you what I learn.

I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him.

I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. ..

Strange, isn't it that your drs do not give you answers...perhaps they don't know.

From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you.

I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain?

Of course I 'despair' to a point...I care about you and I know you are troubled.

Is hospice available to you considering where you live?

I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly.

Write anytime..... ..Sher

Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

Sorry Joyce, had you confused with someone else

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Tue, October 20, 2009 5:24:43 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

i go to "rehab" at a hospital in Pennsylvania

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM

Jim,

First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me.

I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course.

I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich!

If and when I hear more I will share with you what I learn.

I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him.

I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. ..

Strange, isn't it that your drs do not give you answers...perhaps they don't know.

From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you.

I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain?

Of course I 'despair' to a point...I care about you and I know you are troubled.

Is hospice available to you considering where you live?

I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly.

Write anytime..... ..Sher

Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

Thanks Dorothy, I'll check into it

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Tue, October 20, 2009 10:08:23 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

Hi ,

I live south of Atlanta, in Fayetteville near Peachtree City. I see my doctor at Duke but I found that Piedmont Hospital has a pulmonary rehab program. I think you said you are in Marietta - Piedmont in Atlanta probably not too far.

Piedmont has a facility in Fayetteville and I am going to start at that one in December.

Joe and Joanie go to Emory for pulmo doctor, not sure if they do rehab there. I think there has been a recent change in staff at Emory, but they could tell you better. I think Jane also sees doctors there, but not sure about Rehab.

Hope this helps you -

Dorothy Reinecke

DX 7/05 - UIP

From: Soulliere <johnsbatik (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, October 20, 2009 8:08:18 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

Sorry Joyce, had you confused with someone else

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg.. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT>

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tue, October 20, 2009 5:24:43 PMSubject: Re: correspondence between AK (Jim Wallman) and I.

i go to "rehab" at a hospital in Pennsylvania

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM

Jim,

First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me.

I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course.

I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich!

If and when I hear more I will share with you what I learn.

I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him.

I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. ..

Strange, isn't it that your drs do not give you answers...perhaps they don't know.

From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you.

I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain?

Of course I 'despair' to a point...I care about you and I know you are troubled.

Is hospice available to you considering where you live?

I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly.

Write anytime..... ..Sher

Don't fret about tomorrow, God is already there!

Steve

First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair,

I'm okay, I'm settled..... ........jim

ps.....wish I knew a good joke to tell you.......

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...