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Question for Any Ram about your SCD

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Andy,You went on SCD because Imuran stopped working? Are you still on it? How are you doing now vs when you weren't on the diet assuming you're still on the imuran?-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: andy.thestud@...Date: Mon, 5 Apr 2010 04:46:26 +0000Subject: Re: If you were, currently, or may go on Imuran in the future and are on SCD I have a question.

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I understand -- I'm in my mid 30s', single and I know how you feel.

Imuran worked for me for 2.5 years, till I flared four months ago. I had a GREAT time while on Imuran, just wish that I hadn't had that damn beer which triggered my symptoms.

If Imuran works for you and however long it works, its just great. You have to do some liver tests, to make sure things are under control. Imuran isn't all that bad.

If Imuran works, I would just ENJOY the music till it lasts. When it fails, you can always come back to diet control at that point. That's just my opinion.

Good luck,

-Andy

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I started Imuran 12/06 and I'm still on it. I was on asymptomatic till 11/09 (~3

years). While on Imuran, ate anything I wanted, I found new job, had

boyfriend(s), traveled cross-country, went to the gym nearly everyday, learnt

swimming, had Tamiflu, -- aka normal life.

I drank beer one fateful night in Nov. Beer has always been a trigger for me,

and I made that mistake. I started bleeding the next day and within a week I

started off on SCD, and I've been doing SCD since then.

In the meanwhile, my doc checked the levels of azathioprine metabolites and said

I could go up on my Imuran dose since I am below the therapeutic index. I did

that last week, but I am still on SCD. I'm not sure if higher dose of Imuran has

failed or not -- I will know only if I get off SCD.

I met someone at the CCFA meeting recently, who was on Imuran for ~12 years

without symptoms or side-effects.

Please send me an email off-line with your number, if you wish.

-Andy

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