Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Welcome to the group!!! Chrissy mom to Louis 5 yrs Madison 3 1/2 yrs (RSS) shane 1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 hi jamie!! welcome to our " family " !! you will find lots of support here!! my son christopher is 4, also a dec. baby!! he is currently 27lbs 5oz and 36 1/4 " when last measured by dr h in jan. he is currently on periactin (an appitite stimulant) and ght (growth hormone) dr h is great!! when do you have an appt. we go again on may 2nd at 10:30 am. we are also attending the convention this summer, it is awesome, we went for the first time last year!! feel free to email me at any time jlcals2003@ yaho.com(no space after @) jodie c. (one of 4 jodis on here) (nicholas-7 nonrss, christopher-4 rss 27lbs 5oz 36 1/4 " periactin 4.5, ght genotropin .5, assmentry(left side 1cm), ADHD and OCD possible, athon-21months nonrss) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Hi there, Your story seems similiar to ours. I'm Leah and my youngest daughter, Olivia, is also 5! She's just a touch older than Tori, she was born Nov. 23/99. Olivia was premature weighing 1 lb 11 oz but on her due date she was 3lb 6oz, so if they would have let me go to term Tori and Olivia would have been just the same! Olivia's in kindergarten this year but we're holding her back to do it again next year. She's right on target and has everything down pat but her attention span is very short and she won't sit still at all so we're going to give her one more year to mature before we look seriously into ADD, etc. You've found a great group of people here, we're like a big family. If you want to e-mail me privately my e-mail is t-lfuller @shaw.ca (without the space). Leah, mom to 10 and Olivia 5, 22lbs, 34.5 " , RSS, OI, omeprazole, lactulose, tums, Pamidronate treatments. > > Hi my breif story. My daughter Tori is 5 yrs old she was diaginosed > with RSS in December 2001.I had a normal pregnancy up in till my > 37th week when in for ckup my blood pressure was very high not > normal for me. So my OBGYN sent me to Beneditine Hospital to be > monitored everything seemed ok myblood pressure went down and I was > sent home. That was on wednesday, friday was christmas eve it was > the sadiest christmas I had ever had the not knowing and feeling > somthing was very wrong. We had christmas oh wait my Dr called me > the day before and told me to be in the hospital on sunday the 26. > So my husbad drove me in around 11am I had a sonagram done but back > on the monitor, then around 4pm the midwife that worked in my > obgyn 's office came in and gave me cervidile she said that nothing > was wrong we were just going to ripen my cervix so I would be ready > to deliver on monday when the Dr. comes in. Then around 11:30 the > nurses sent my husband and his dad home to rest and shower they said > that it would be a bust next day at 12:15 in the morning I got my > first contraction. The nurse came in and said I still had along way > to go, I called my husband about 1:45 asked him to please come back > I was in alot of pain he said he would be their soon as he could,I > called him back again at 2:30 and said I was in labor, then called > him again when my water broke at 2:55.The nurse came in and tori's > head was crowing I delieverd at 3:05 am alone with 2 ER Drs.Things > happened so fast over the next few days. Tori was transported to > vassers nicu unit her glueclose would not come up and she only > weighed 3 lbs 9 oz. She spent 9 days in the hospital, she was sent > home only weighing 3 lbs 11 oz. I nuresed her around the clock for > 15 months the peditrican said she was below the 5th percentile but > still had her on little curve she was maintaing. Tori started EI > services at 6 months because she was delayed. Thne we were refered > to this Dr and that Dr And then finally saw one at west chester > medical center who gave us som understanding what was going on and > here we are facing yet another challenge (kindergarten)Tori now > weighs 30 lbs and 3feet 2inches, she is relitivley doing good, but > will be going to see Dr Harbison at Mt.sini in NY.And we will be > attending the magic foundation as long as I can raise the money for > us to go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Welcome to this wonderful group. You will learn so much here and make some great friends, too. I really hope you can make it to the Convention and I look forward to meeting you if you are there. Jodi R. 's mommy, 34 months old, 22 lbs. 32 " , Prilosec for reflux, j tube. > > Hi my breif story. My daughter Tori is 5 yrs old she was diaginosed > with RSS in December 2001.I had a normal pregnancy up in till my > 37th week when in for ckup my blood pressure was very high not > normal for me. So my OBGYN sent me to Beneditine Hospital to be > monitored everything seemed ok myblood pressure went down and I was > sent home. That was on wednesday, friday was christmas eve it was > the sadiest christmas I had ever had the not knowing and feeling > somthing was very wrong. We had christmas oh wait my Dr called me > the day before and told me to be in the hospital on sunday the 26. > So my husbad drove me in around 11am I had a sonagram done but back > on the monitor, then around 4pm the midwife that worked in my > obgyn 's office came in and gave me cervidile she said that nothing > was wrong we were just going to ripen my cervix so I would be ready > to deliver on monday when the Dr. comes in. Then around 11:30 the > nurses sent my husband and his dad home to rest and shower they said > that it would be a bust next day at 12:15 in the morning I got my > first contraction. The nurse came in and said I still had along way > to go, I called my husband about 1:45 asked him to please come back > I was in alot of pain he said he would be their soon as he could,I > called him back again at 2:30 and said I was in labor, then called > him again when my water broke at 2:55.The nurse came in and tori's > head was crowing I delieverd at 3:05 am alone with 2 ER Drs.Things > happened so fast over the next few days. Tori was transported to > vassers nicu unit her glueclose would not come up and she only > weighed 3 lbs 9 oz. She spent 9 days in the hospital, she was sent > home only weighing 3 lbs 11 oz. I nuresed her around the clock for > 15 months the peditrican said she was below the 5th percentile but > still had her on little curve she was maintaing. Tori started EI > services at 6 months because she was delayed. Thne we were refered > to this Dr and that Dr And then finally saw one at west chester > medical center who gave us som understanding what was going on and > here we are facing yet another challenge (kindergarten)Tori now > weighs 30 lbs and 3feet 2inches, she is relitivley doing good, but > will be going to see Dr Harbison at Mt.sini in NY.And we will be > attending the magic foundation as long as I can raise the money for > us to go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 Hi , went through EI, then CPSE and is starting kindergarten in the fall as well. has taken gymnastics and is starting Tball next week. He is already signed up to play soccer in the fall. This summer he will be starting karate. Judith, Steve, (RSS) and (non RSS) 5 year old twins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 hi jamie!! dr h perscribed the periactin for us. christopher did 9 months of caloric catch up growth with just using the periactin and upping his calorie in take!! he gained over 3lbs and grew over 2 1/2 " from last april to this jan.!!!! she has just started his ght at the end of jan!! i have since had to buy him bigger pants 2T in sept (the first in a long time) and now in feb. i had to buy him 3T!!! his foot has grown a full size since oct, from a 7 to a 8!!!! we are excited to see on may 2 how well he is doing!!!! jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 hi jamie!! christopher attends the preschool disabled class 5x a week at our elementry school where he receives some OT. he bowls in a bowling league with his older brother and a friend!!! he wants to play soccer and t-ball but where we live you have to be 5 so he has to wait until next year (he will be 5 in dec.) he is also in that class because of his possible ADHD. he has been in it since he has been 3 as well and it has done wonders!!! the structure and routine of the class are really helping him!!! jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 How much does Tori weigh now and what's her height? B 5 and Kelli 2 1/2 jamtorrss wrote: Hi my breif story. My daughter Tori is 5 yrs old she was diaginosed with RSS in December 2001.I had a normal pregnancy up in till my 37th week when in for ckup my blood pressure was very high not normal for me. So my OBGYN sent me to Beneditine Hospital to be monitored everything seemed ok myblood pressure went down and I was sent home. That was on wednesday, friday was christmas eve it was the sadiest christmas I had ever had the not knowing and feeling somthing was very wrong. We had christmas oh wait my Dr called me the day before and told me to be in the hospital on sunday the 26. So my husbad drove me in around 11am I had a sonagram done but back on the monitor, then around 4pm the midwife that worked in my obgyn 's office came in and gave me cervidile she said that nothing was wrong we were just going to ripen my cervix so I would be ready to deliver on monday when the Dr. comes in. Then around 11:30 the nurses sent my husband and his dad home to rest and shower they said that it would be a bust next day at 12:15 in the morning I got my first contraction. The nurse came in and said I still had along way to go, I called my husband about 1:45 asked him to please come back I was in alot of pain he said he would be their soon as he could,I called him back again at 2:30 and said I was in labor, then called him again when my water broke at 2:55.The nurse came in and tori's head was crowing I delieverd at 3:05 am alone with 2 ER Drs.Things happened so fast over the next few days. Tori was transported to vassers nicu unit her glueclose would not come up and she only weighed 3 lbs 9 oz. She spent 9 days in the hospital, she was sent home only weighing 3 lbs 11 oz. I nuresed her around the clock for 15 months the peditrican said she was below the 5th percentile but still had her on little curve she was maintaing. Tori started EI services at 6 months because she was delayed. Thne we were refered to this Dr and that Dr And then finally saw one at west chester medical center who gave us som understanding what was going on and here we are facing yet another challenge (kindergarten)Tori now weighs 30 lbs and 3feet 2inches, she is relitivley doing good, but will be going to see Dr Harbison at Mt.sini in NY.And we will be attending the magic foundation as long as I can raise the money for us to go. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 Tori weighs 30 lbs and is 38 inches. Re: I am new How much does Tori weigh now and what's her height? B 5 and Kelli 2 1/2 jamtorrss wrote: Hi my breif story. My daughter Tori is 5 yrs old she was diaginosed with RSS in December 2001.I had a normal pregnancy up in till my 37th week when in for ckup my blood pressure was very high not normal for me. So my OBGYN sent me to Beneditine Hospital to be monitored everything seemed ok myblood pressure went down and I was sent home. That was on wednesday, friday was christmas eve it was the sadiest christmas I had ever had the not knowing and feeling somthing was very wrong. We had christmas oh wait my Dr called me the day before and told me to be in the hospital on sunday the 26. So my husbad drove me in around 11am I had a sonagram done but back on the monitor, then around 4pm the midwife that worked in my obgyn 's office came in and gave me cervidile she said that nothing was wrong we were just going to ripen my cervix so I would be ready to deliver on monday when the Dr. comes in. Then around 11:30 the nurses sent my husband and his dad home to rest and shower they said that it would be a bust next day at 12:15 in the morning I got my first contraction. The nurse came in and said I still had along way to go, I called my husband about 1:45 asked him to please come back I was in alot of pain he said he would be their soon as he could,I called him back again at 2:30 and said I was in labor, then called him again when my water broke at 2:55.The nurse came in and tori's head was crowing I delieverd at 3:05 am alone with 2 ER Drs.Things happened so fast over the next few days. Tori was transported to vassers nicu unit her glueclose would not come up and she only weighed 3 lbs 9 oz. She spent 9 days in the hospital, she was sent home only weighing 3 lbs 11 oz. I nuresed her around the clock for 15 months the peditrican said she was below the 5th percentile but still had her on little curve she was maintaing. Tori started EI services at 6 months because she was delayed. Thne we were refered to this Dr and that Dr And then finally saw one at west chester medical center who gave us som understanding what was going on and here we are facing yet another challenge (kindergarten)Tori now weighs 30 lbs and 3feet 2inches, she is relitivley doing good, but will be going to see Dr Harbison at Mt.sini in NY.And we will be attending the magic foundation as long as I can raise the money for us to go. --------------------------------- Quote Link to comment Share on other sites More sharing options...
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